Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 I've read for years that bruxism may -- emphasize may -- be connected to parasite infections... ??? d. --- In infections , " " <usenethod@...> wrote: > > > > , > > From what you are describing I would think that bruxism is a symptom > > of something else. Why would I have developed this 14 months ago? > > > > a > > > That's for sure, it comes from something else. I've seen it claimed on > some web page that almost everyone bruxes occasionally. But I > evidently do it way, way more and way, way harder than normals. I'm > sure it's some sort of effect of CFS but I don't know how. You still > have some general CFS stuff, right? Why you might have shifted to > heavier bruxism, I can't say, but at least the idea yields you one > possible way to get rid of the head symptoms. I don't mean to distract > you from your pursuit of ICH, penicillin, or anything else, but one > might as well investigate and perhaps act on multiple possibilities > simultaneously. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 Dan/ I keep trying to place emphasis on how important understanding the toxins involved are in the disease process. The reason why you have tetanus shots- is so that you have an immunity to the toxins so your jaw doesn't lock...(lock jaw)..The bacteria are harmless until they deliver a large amount of there toxins into the bloodstream.. Having Jaw problems (bruxism), is in my way of thinking, dealing with the consequences of the toxic loads that cfs dishes up... If you keep focused on Bb or whatever, your never going to have a complete picture, because the big picture is what the bugs keep dishing out... The other focus on babesia is not even half way to a diagnosis, because again the toxins aren't being observed or an association with damage to the body established..I would also think if mainstream doctors were to buy the whole Igenex positives for lyme thing- we would have an epidemic from forestry workers, which just doesn't seem to be happening to establish this wideheld belief in the whole ILADS, publications and things.. > > > > > > > , > > > From what you are describing I would think that bruxism is a symptom > > > of something else. Why would I have developed this 14 months ago? > > > > > > a > > > > > > That's for sure, it comes from something else. I've seen it claimed on > > some web page that almost everyone bruxes occasionally. But I > > evidently do it way, way more and way, way harder than normals. I'm > > sure it's some sort of effect of CFS but I don't know how. You still > > have some general CFS stuff, right? Why you might have shifted to > > heavier bruxism, I can't say, but at least the idea yields you one > > possible way to get rid of the head symptoms. I don't mean to distract > > you from your pursuit of ICH, penicillin, or anything else, but one > > might as well investigate and perhaps act on multiple possibilities > > simultaneously. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 Tony, We aren't talking about IgeneX, or at least I am not. But as to the forestry workers, I suspect if we got them all tested for borrelia they would be mostly positive. We are seeing vast increases in diseases such as Alzheimers, MS, ALS etc - no one knows what causes these. If I had not had a Lyme diagnosis no doctor would have ever tested my husband or my son for Lyme. Their symptoms looked like many other things - not Lyme. a > > Dan/ > I keep trying to place emphasis on how important understanding the > toxins involved are in the disease process. The reason why you have > tetanus shots- is so that you have an immunity to the toxins so your > jaw doesn't lock...(lock jaw)..The bacteria are harmless until they > deliver a large amount of there toxins into the bloodstream.. > Having Jaw problems (bruxism), is in my way of thinking, dealing with > the consequences of the toxic loads that cfs dishes up... > If you keep focused on Bb or whatever, your never going to have a > complete picture, because the big picture is what the bugs keep > dishing out... > The other focus on babesia is not even half way to a diagnosis, > because again the toxins aren't being observed or an association with > damage to the body established..I would also think if mainstream > doctors were to buy the whole Igenex positives for lyme thing- we > would have an epidemic from forestry workers, which just doesn't seem > to be happening to establish this wideheld belief in the whole ILADS, > publications and things.. > > > > > > > > > > > > , > > > > From what you are describing I would think that bruxism is a > symptom > > > > of something else. Why would I have developed this 14 months > ago? > > > > > > > > a > > > > > > > > > That's for sure, it comes from something else. I've seen it > claimed on > > > some web page that almost everyone bruxes occasionally. But I > > > evidently do it way, way more and way, way harder than normals. > I'm > > > sure it's some sort of effect of CFS but I don't know how. You > still > > > have some general CFS stuff, right? Why you might have shifted to > > > heavier bruxism, I can't say, but at least the idea yields you one > > > possible way to get rid of the head symptoms. I don't mean to > distract > > > you from your pursuit of ICH, penicillin, or anything else, but > one > > > might as well investigate and perhaps act on multiple > possibilities > > > simultaneously. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 Yeah, and your family could still end up sick from one of those other things but the lyme dx keeps you from considering it. A lyme dx that comes from questionable testing to begin with and has no clear-cut treatment methodology. I just don't see how anyone can believe in those test results so firmly that they turn their backs on other infectious possibilities. I see it as one clue for solving the puzzle, not a sure solution. penny pjeanneus <pj7@...> wrote: Tony,We aren't talking about IgeneX, or at least I am not. But as to the forestry workers, I suspect if we got them all tested for borrelia they would be mostly positive. We are seeing vast increases in diseases such as Alzheimers, MS, ALS etc - no one knows what causes these. If I had not had a Lyme diagnosis no doctor would have ever tested my husband or my son for Lyme. Their symptoms looked like many other things - not Lyme. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 I spent some time last evening looking over my options in terms of antibiotic treatment - considering I may not get a diagnosis. One of the things that becomes alarmingly clear is that we don't have a lot of treatment options no matter what the infection. If fact that was the beauty of Dr. Marshall's work - a combo of about 4-5 antibiotics pretty much covers it. HOWEVER - if I have babesia which is very likely then I need to add either Mepron or artemisinin. So does it matter what particular infection causes ALZ or ALS or MS or MS or lupus? You see, what we DO NOT want is such a " diagnosis " or label. That leads to bad drugs that treat nothing. I have been given prescriptions for Lyrica, flexeril, topamax, diamox. Pretty much I have only taken them as experiments to rule in or out some diagnosis. Since diamox didn't clear my headache I figured MAYBE it isn't intracranial hypertension. Disease labels can be the kiss of death. When my husband gets spacy I always tell him to quit taking his cholesterol lowering drugs. Which is worse, honest death or brain death? a > > Yeah, and your family could still end up sick from one of those other things but the lyme dx keeps you from considering it. A lyme dx that comes from questionable testing to begin with and has no clear- cut treatment methodology. > > I just don't see how anyone can believe in those test results so firmly that they turn their backs on other infectious possibilities. > > I see it as one clue for solving the puzzle, not a sure solution. > > penny > > > pjeanneus <pj7@...> wrote: > Tony, > We aren't talking about IgeneX, or at least I am not. But as to the > forestry workers, I suspect if we got them all tested for borrelia > they would be mostly positive. We are seeing vast increases in > diseases such as Alzheimers, MS, ALS etc - no one knows what causes > these. If I had not had a Lyme diagnosis no doctor would have ever > tested my husband or my son for Lyme. Their symptoms looked like many > other things - not Lyme. > > > > > > > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 > Tony, > We aren't talking about IgeneX, or at least I am not. But as to the > forestry workers, I suspect if we got them all tested for borrelia > they would be mostly positive. I think studies have been done on this and they aren't, but I'm not certain. I can't be sure, but they may not really have all that much more exposure than others. Lots of animal Bb hosts are found quite densely all over the suburbs. > We are seeing vast increases in > diseases such as Alzheimers, MS, ALS etc - no one knows what causes > these. MS looks to be up by only 2 fold. There are a lot of possible artifacts there. Is there any evidence that the Alz increase is above that which would be expected due to demographic aging? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2007 Report Share Posted August 12, 2007 It might have been beautiful if it wasn't extremely flawed. If it were that easy, the pharmaceutical companies wouldn't need to develop new antibiotics. This is what people can't seem to wrap their heads around. The bugs are highly adaptable. If we don't stay on top of them with constant testing and tweaking, we're just stumbling around in the dark. Our whole medical community is stumbling around, prescribing drugs that people are resistant to before they even take them. Remember me? Until I got dx'd with this infection, I'd only taken a few abx in my entire life. Penicillin was the main one (which still works for me to a degree). And yet when I got my first staph test results back, out of the 14 abx they tested against the organism, my bugs were resistant to 12. So we've got docs prescribing useless drugs and just making the whole situation worse. This is why I advocate finding out what drugs our bugs are resistant to, so that we can avoid that pitfall. We don't need to make them stronger than they already are. penny pjeanneus <pj7@...> wrote: I spent some time last evening looking over my options in terms of antibiotic treatment - considering I may not get a diagnosis. One of the things that becomes alarmingly clear is that we don't have a lot of treatment options no matter what the infection. If fact that was the beauty of Dr. Marshall's work - a combo of about 4-5 antibiotics pretty much covers it. HOWEVER - if I have babesia which is very likely then I need to add either Mepron or artemisinin. So does it matter what particular infection causes ALZ or ALS or MS or MS or lupus? You see, what we DO NOT want is such a "diagnosis" or label. That leads to bad drugs that treat nothing. I have been given prescriptions for Lyrica, flexeril, topamax, diamox. Pretty much I have only taken them as experiments to rule in or out some diagnosis. Since diamox didn't clear my headache I figured MAYBE it isn't intracranial hypertension. Disease labels can be the kiss of death.When my husband gets spacy I always tell him to quit taking his cholesterol lowering drugs. Which is worse, honest death or brain death?a>> Yeah, and your family could still end up sick from one of those other things but the lyme dx keeps you from considering it. A lyme dx that comes from questionable testing to begin with and has no clear-cut treatment methodology. > > I just don't see how anyone can believe in those test results so firmly that they turn their backs on other infectious possibilities. > > I see it as one clue for solving the puzzle, not a sure solution.> > penny> > > pjeanneus <pj7@...> wrote:> Tony,> We aren't talking about IgeneX, or at least I am not. But as to the > forestry workers, I suspect if we got them all tested for borrelia > they would be mostly positive. We are seeing vast increases in > diseases such as Alzheimers, MS, ALS etc - no one knows what causes > these. If I had not had a Lyme diagnosis no doctor would have ever > tested my husband or my son for Lyme. Their symptoms looked like many > other things - not Lyme.> > > > > > > .> Quote Link to comment Share on other sites More sharing options...
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