Re: Patients willing to talk about Crohn's disease?

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[infections] Patients willing to talk about Crohn’s disease?

Hello all,I hope you are having a wonderful week. I was hoping to get in touch with patients dealing with Crohn's disease. I work for a public relations firm and one of my clients is in the Crohn's disease space.We work heavily in patient advocacy and disease awareness and we are looking to obtain some information from individuals who are comfortable about sharing their perspective on Crohn's disease. This could include education, disease management, medication issues, etc. If you have a few minutes, please fill out the survey below and e-mail the results to me at avillani@.... All answers will remain anonymous.Crohn's Disease Patient Survey1) How old are you? 2) How old were you when you were diagnosed with Crohn's Disease (CD)? 3) What are your overall symptoms?4) How often do you experience these symptoms (flare ups, for example)?5) What brand/medication are you currently using to treat your CD?6) Are you satisfied with the medication you are currently using? Do you feel your medication successfully reduces your symptoms and improves your quality of life?7) How long have you been using this medication? 8) Have you used any medications prior, and if so, which ones? What have you heard about other medications?9) Have you heard of Cimzia? What have you heard about it? From what source?10) What factors played a role in your decision to choose a specific brand (physicians, news stories, family/friend suggestion, etc.)?11) Did treatment cost influence your decision of which brand of medication to you use? 12) What did you use to pay for this medication (Private insurance, patient out-of-pocket, etc.)?13) Why did you switch to the new medication?14) What resources did you use to learn more about CD after you were diagnosed?15) Do you wish there were more resources available for you, or other CD patients, to learn more about the conditions of CD and the treatment options? Ideally, what tools would help you?16) Do you attend a patient support group or communicate with other patients?17) What has your experience with physicians been like? 18) What type of physician diagnosed you (i.e., primary care physician, rheumatologist, immunologist, etc.)?19) Is there anything else that would be helpful for other patients to know when talking to doctors about CD?20) Do you suffer from another autoimmune disease (Rheumatoid arthritis, psoriasis, etc.) and if so, how has this affected your treatment options?21) What personal aspects of your life (physical exercise, emotional well-being) have been impacted by this chronic illness? Do you feel that this illness has taken away something that you want back?22) If you are in the tri-state area, would you be open to a phone or live interview to tell your story? Thank you for taking the time to share your story. Please let me know if you have any questions. Please enjoy the rest of your week.