Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 a You have NO IDEA! You are so busy wanting your ilness to be something else? The infections of CFS, or Lyme, are right in that neighbourhood. Yet time an time again, you refuse to acknowledge this. It's obvious that shoemakers swab of the region does reveal damaging organisms, according to your esoterix report- but na can't have that, doesn't fit with the what I want my ilness to be. tony > > Hello all, > I went to China the first week of December. While there we heard two > programs which involved very loud native drums and cymbals. I was > taking Lyrica which barely controls my nerve problems including stiff > neck and pressure type headache. I felt okay when the show started, > but after about 40 minutes of the loud sounds the nerves and muscles > in my legs began to contract, ache and twitch. I could barely stand to > sit there for the remaining time. > > I find the Lyrica relieves the head pressure but makes the spaceyness > worse. It is better than nothing though and is the only thing I have > found that helps at all. > > Does this nerve reaction indicate anything? I am beginning to wonder > if I have some permanent damage from an initial infection 19 months > ago. > > a Carnes > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 I can't get anything to treat it. I've tried for weeks at a time - various antibiotics - nothing works at all. I thought penicillin was for awhile, but then it stopped working. At some point you start to step back and look at dealing with symptoms. I never thought I would write that, but it is true. I still have some circulation things to try. I also wonder what natural treatment would increase levels of GABA in the brain or lower glutamate. a > > a > You have NO IDEA! You are so busy wanting your ilness to be something > else? The infections of CFS, or Lyme, are right in that > neighbourhood. Yet time an time again, you refuse to acknowledge this. > It's obvious that shoemakers swab of the region does reveal damaging > organisms, according to your esoterix report- but na can't have that, > doesn't fit with the what I want my ilness to be. > tony > > > > > > Hello all, > > I went to China the first week of December. While there we heard > two > > programs which involved very loud native drums and cymbals. I was > > taking Lyrica which barely controls my nerve problems including > stiff > > neck and pressure type headache. I felt okay when the show started, > > but after about 40 minutes of the loud sounds the nerves and > muscles > > in my legs began to contract, ache and twitch. I could barely stand > to > > sit there for the remaining time. > > > > I find the Lyrica relieves the head pressure but makes the > spaceyness > > worse. It is better than nothing though and is the only thing I > have > > found that helps at all. > > > > Does this nerve reaction indicate anything? I am beginning to > wonder > > if I have some permanent damage from an initial infection 19 months > > ago. > > > > a Carnes > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 You might give the penicillin another go. I sometimes think it's not working either, until I stop taking it and then realize I was wrong. Pretty weird about the nerve reaction in the legs. All I know is that I feel like I'm doing a precarious balancing act on the edge of a very sharp blade where the slightest disturbance can result in a bad fall with painful results. My crazy neuron firings usually result in migraines. Who knows why exactly? But I suppose it could just as easily go the other way and effect the legs. I know spasming blood vessels are a causative factor in migraines, so could very well be the case in your legs as well. I think trying some circulatory stuff would be worth a shot. You never know what's going to work with this illness until you stumble upon it. pennypjeanneus <pj7@...> wrote: I can't get anything to treat it. I've tried for weeks at a time - various antibiotics - nothing works at all. I thought penicillin was for awhile, but then it stopped working. At some point you start to step back and look at dealing with symptoms. I never thought I would write that, but it is true. I still have some circulation things to try.I also wonder what natural treatment would increase levels of GABA in the brain or lower glutamate.a >> a> You have NO IDEA! You are so busy wanting your ilness to be something > else? The infections of CFS, or Lyme, are right in that > neighbourhood. Yet time an time again, you refuse to acknowledge this.> It's obvious that shoemakers swab of the region does reveal damaging > organisms, according to your esoterix report- but na can't have that, > doesn't fit with the what I want my ilness to be.> tony> > > >> > Hello all,> > I went to China the first week of December. While there we heard > two > > programs which involved very loud native drums and cymbals. I was > > taking Lyrica which barely controls my nerve problems including > stiff > > neck and pressure type headache. I felt okay when the show started, > > but after about 40 minutes of the loud sounds the nerves and > muscles > > in my legs began to contract, ache and twitch. I could barely stand > to > > sit there for the remaining time.> > > > I find the Lyrica relieves the head pressure but makes the > spaceyness > > worse. It is better than nothing though and is the only thing I > have > > found that helps at all.> > > > Does this nerve reaction indicate anything? I am beginning to > wonder > > if I have some permanent damage from an initial infection 19 months > > ago.> > > > a Carnes> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 a, frequently, trying to manage symptoms can stimulate/create b9igger problems than you already have..I would be trying a serious shot of cefazolin or a decent dose of keflex as a probe instead of giving up. Also penicillin for your symptoms is given, when sensitive, in LARGE AMOUNTS not the petty cash stuff your thinking..And Ohhh!!!! welcome to the world of ME ............ > > > > > > Hello all, > > > I went to China the first week of December. While there we heard > > two > > > programs which involved very loud native drums and cymbals. I was > > > taking Lyrica which barely controls my nerve problems including > > stiff > > > neck and pressure type headache. I felt okay when the show > started, > > > but after about 40 minutes of the loud sounds the nerves and > > muscles > > > in my legs began to contract, ache and twitch. I could barely > stand > > to > > > sit there for the remaining time. > > > > > > I find the Lyrica relieves the head pressure but makes the > > spaceyness > > > worse. It is better than nothing though and is the only thing I > > have > > > found that helps at all. > > > > > > Does this nerve reaction indicate anything? I am beginning to > > wonder > > > if I have some permanent damage from an initial infection 19 > months > > > ago. > > > > > > a Carnes > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Per Amy Yasko, to my recollection: Glutamate is the gun, calcium the bullet. Magnesium reversibly inhibits this. Magnesium. Cut down glutamates in diet. Theanine can help (Allergy Research makes ZEN I think, theanine and gaba). Chamomile tea has apigenin, a benzo like chemical. > > > > > > Hello all, > > > I went to China the first week of December. While there we heard > > two > > > programs which involved very loud native drums and cymbals. I was > > > taking Lyrica which barely controls my nerve problems including > > stiff > > > neck and pressure type headache. I felt okay when the show > started, > > > but after about 40 minutes of the loud sounds the nerves and > > muscles > > > in my legs began to contract, ache and twitch. I could barely > stand > > to > > > sit there for the remaining time. > > > > > > I find the Lyrica relieves the head pressure but makes the > > spaceyness > > > worse. It is better than nothing though and is the only thing I > > have > > > found that helps at all. > > > > > > Does this nerve reaction indicate anything? I am beginning to > > wonder > > > if I have some permanent damage from an initial infection 19 > months > > > ago. > > > > > > a Carnes > > > > > > Quote Link to comment Share on other sites More sharing options...
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