Patients willing to talk about Crohn’s disease?

[Guest guest]

Hello all,

I hope you are having a wonderful week. I was hoping to get in touch

with patients dealing with Crohn's disease. I work for a public

relations firm and one of my clients is in the Crohn's disease space.

We work heavily in patient advocacy and disease awareness and we are

looking to obtain some information from individuals who are

comfortable about sharing their perspective on Crohn's disease. This

could include education, disease management, medication issues, etc.

If you have a few minutes, please fill out the survey below and e-

mail the results to me at avillani@.... All answers

will remain anonymous.

Crohn's Disease Patient Survey

1) How old are you?

2) How old were you when you were diagnosed with Crohn's

Disease (CD)?

3) What are your overall symptoms?

4) How often do you experience these symptoms (flare ups, for

example)?

5) What brand/medication are you currently using to treat your

CD?

6) Are you satisfied with the medication you are currently

using? Do you feel your medication successfully reduces your

symptoms and improves your quality of life?

7) How long have you been using this medication?

8) Have you used any medications prior, and if so, which ones?

What have you heard about other medications?

9) Have you heard of Cimzia? What have you heard about it?

From what source?

10) What factors played a role in your decision to choose a

specific brand (physicians, news stories, family/friend suggestion,

etc.)?

11) Did treatment cost influence your decision of which brand of

medication to you use?

12) What did you use to pay for this medication (Private

insurance, patient out-of-pocket, etc.)?

13) Why did you switch to the new medication?

14) What resources did you use to learn more about CD after you

were diagnosed?

15) Do you wish there were more resources available for you, or

other CD patients, to learn more about the conditions of CD and the

treatment options? Ideally, what tools would help you?

16) Do you attend a patient support group or communicate with

other patients?

17) What has your experience with physicians been like?

18) What type of physician diagnosed you (i.e., primary care

physician, rheumatologist, immunologist, etc.)?

19) Is there anything else that would be helpful for other

patients to know when talking to doctors about CD?

20) Do you suffer from another autoimmune disease (Rheumatoid

arthritis, psoriasis, etc.) and if so, how has this affected your

treatment options?

21) What personal aspects of your life (physical exercise,

emotional well-being) have been impacted by this chronic illness? Do

you feel that this illness has taken away something that you want

back?

22) If you are in the tri-state area, would you be open to a phone

or live interview to tell your story?

Thank you for taking the time to share your story. Please let me

know if you have any questions. Please enjoy the rest of your week.