Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 a, I have reason/history to know a little about what you are describing. The nitro caused increased vasodilation, or perhaps more accurately, arterial dilation. That is it's intended function. If your arteries were already overly dilated (have lost their 'tone') it would account for many strange symptoms, not only in the head, but throughout the system. I believe, based on experience and treatment from a long departed Dr, that many of us with any kind of fatigue problems, as well as FM, are probably overly dilated in the arterial system. I cannot expound upon this any further; it would take a book. But-----have you considered the " Pall Protocol " ? Sharon M > My head symptoms continue now for over 19 months. Today I got the bright > idea to see what nitroglycerin would feel like. The increase in head > pressure was EXACTLY like my constant head pressure only more so. Within > about 30 minutes the pressure returned to the constant level without causing > any severe or ongoing pain. > > If enlarging the blood vessels in the brain increased the pressure > sensation, does anyone have a clue what this would indicate? > > I also have a continuously elevated C reactive protein level suggestive of > inflammation. > > a Carnes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Thanks, Sharon. I have Marty Pall's articles in my files and will take a look at them. a Carnes > > a, > > I have reason/history to know a little about what you are describing. The nitro caused increased vasodilation, or perhaps more accurately, arterial dilation. That is it's intended function. If your arteries were already overly dilated (have lost their 'tone') it would account for many strange symptoms, not only in the head, but throughout the system. > > I believe, based on experience and treatment from a long departed Dr, that many of us with any kind of fatigue problems, as well as FM, are probably overly dilated in the arterial system. > I cannot expound upon this any further; it would take a book. > > But-----have you considered the " Pall Protocol " ? > > Sharon M > > > > > My head symptoms continue now for over 19 months. Today I got the bright > > idea to see what nitroglycerin would feel like. The increase in head > > pressure was EXACTLY like my constant head pressure only more so. Within > > about 30 minutes the pressure returned to the constant level without causing > > any severe or ongoing pain. > > > > If enlarging the blood vessels in the brain increased the pressure > > sensation, does anyone have a clue what this would indicate? > > > > I also have a continuously elevated C reactive protein level suggestive of > > inflammation. > > > > a Carnes > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Ahhh, Infection maybe? I know your listening to all those good doctors that keep promising, like they do to all of us, that you don't have infection, but unfortunately you now have ME to go with your lyme diagnosis, or as they call it in america cfs. > > My head symptoms continue now for over 19 months. Today I got the bright > idea to see what nitroglycerin would feel like. The increase in head > pressure was EXACTLY like my constant head pressure only more so. Within > about 30 minutes the pressure returned to the constant level without causing > any severe or ongoing pain. > > If enlarging the blood vessels in the brain increased the pressure > sensation, does anyone have a clue what this would indicate? > > I also have a continuously elevated C reactive protein level suggestive of > inflammation. > > a Carnes > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 I have assumed since 1995 that everything I have is INFECTION. Trouble is, I have been at the end of my rope trying to figure out what to treat it with at this point. I was diagnosed with ME in 1995, running a fever, elevated EBV, enlarged lymph nodes. In 2003 I was further diagnosed with borrelia. I have no doubt this is further infection of some sort. Do you think I have inflammed arteries? You know the neuro is going to think this is an autoimmune disease and give me steroids. I am not going to see him for that reason. Perhaps garlic and neti pots????? <grin> a > > Ahhh, Infection maybe? I know your listening to all those good > doctors that keep promising, like they do to all of us, that you > don't have infection, but unfortunately you now have ME to go with > your lyme diagnosis, or as they call it in america cfs. > > > > > > > > My head symptoms continue now for over 19 months. Today I got the > bright > > idea to see what nitroglycerin would feel like. The increase in head > > pressure was EXACTLY like my constant head pressure only more so. > Within > > about 30 minutes the pressure returned to the constant level > without causing > > any severe or ongoing pain. > > > > If enlarging the blood vessels in the brain increased the pressure > > sensation, does anyone have a clue what this would indicate? > > > > I also have a continuously elevated C reactive protein level > suggestive of > > inflammation. > > > > a Carnes > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 a Dr. Burrascano and Dr. Horrowitz can't ever help anyone that's been put on steroids. They would get many wheelchair bound patients that had been given steroids and there outcome apparently becomes the hardest patient to help. I honestly don't know how it works, nor do the ducks I suppose.. Just be carefull getting any short term fix that makes the long road impossable. tony > > > > > > My head symptoms continue now for over 19 months. Today I got the > > bright > > > idea to see what nitroglycerin would feel like. The increase in > head > > > pressure was EXACTLY like my constant head pressure only more so. > > Within > > > about 30 minutes the pressure returned to the constant level > > without causing > > > any severe or ongoing pain. > > > > > > If enlarging the blood vessels in the brain increased the pressure > > > sensation, does anyone have a clue what this would indicate? > > > > > > I also have a continuously elevated C reactive protein level > > suggestive of > > > inflammation. > > > > > > a Carnes > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 a, you sound just like me, elevated C reactive protein, head pressure etc. (In my case head pressure becomes severe migraines). Personally, the only thing that helps my head is ice and vaso-constrictors, not vaso-dilators (which I think Nitroglycerin is). Caffeine & some decongestants are also vasoconstrictors. (have you tried any of these vasoconstrictors yet...other than coffee?) It's possible you have the same hereditary clotting disorder I do which makes Nitric Oxide a big problem causing vessel spasming (and muscle problems). This is what Dr. Glueck thinks is causing my migraines (which are known to be caused by vessel spasming) in addition to being triggered by the infection in my head. He suggested that I take Arginaid (9g a day). It's a powdered drink form of L-Arginine which should help synthesize Nitric Oxide and smoothe out vessel spasms. L-Arginine is actually a type of vasodilator, but it did not cause me problems because I think if you take it regularly the vessels become less reactive and spastic (kind of the same effect Benicar has) and as a result the pressure and pain in the head (and other body parts) is relieved. I finished off one box of Arginaid (about 2 weeks worth) and did notice less pressure and pain while I took it. I'm now waiting for my pharmacy to order it for me because it's considered a medical food (which is given to extremely ill people while in the hospital) and my insurance should cover it with a prescription saving me a little money. Anyway, I've always said that our symptoms are very similar so you might want to give Arginaid a try. I had to order it from Walgreens on line as they don't sell it in California, but you might be able to get it locally. It's possible L-arginine alone could help, but Glueck recommends the ARginaid, so I started there. penny a Carnes <pj7@...> wrote: My head symptoms continue now for over 19 months. Today I got the bright idea to see what nitroglycerin would feel like. The increase in head pressure was EXACTLY like my constant head pressure only more so. Within about 30 minutes the pressure returned to the constant level without causing any severe or ongoing pain. If enlarging the blood vessels in the brain increased the pressure sensation, does anyone have a clue what this would indicate? I also have a continuously elevated C reactive protein level suggestive of inflammation. a Carnes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 Wow, I wasn't laughing at neti pots. I actually just bought one. How much Xylitol should I add to each mix? Thanks, a > > I wouldn't laugh at neti pots, although I prefer the more technologically advanced Hydropluse which is automated and does everything for you with no fuss, muss or discomfort. > > I, and others I know, have been helped a lot with a saline/betadine rinse. It's basically a topical antimicrobial right in the place where the bugs like to live. I add xylitol to mine since biofilms can't form when xylitol is in the area. > > penny > > dumbaussie2000 <dumbaussie2000@...> wrote: > a > Dr. Burrascano and Dr. Horrowitz can't ever help anyone that's been > put on steroids. They would get many wheelchair bound patients that > had been given steroids and there outcome apparently becomes the > hardest patient to help. > I honestly don't know how it works, nor do the ducks I suppose.. > > Just be carefull getting any short term fix that makes the long road > impossable. > tony > > > > > > > > > > My head symptoms continue now for over 19 months. Today I got > the > > > bright > > > > idea to see what nitroglycerin would feel like. The increase in > > head > > > > pressure was EXACTLY like my constant head pressure only more > so. > > > Within > > > > about 30 minutes the pressure returned to the constant level > > > without causing > > > > any severe or ongoing pain. > > > > > > > > If enlarging the blood vessels in the brain increased the > pressure > > > > sensation, does anyone have a clue what this would indicate? > > > > > > > > I also have a continuously elevated C reactive protein level > > > suggestive of > > > > inflammation. > > > > > > > > a Carnes > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.