Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Barb, I am going to cut you a lot of slack here, but I have to ask-what is wrong with using the words " we " and " the patients " ? What words are acceptable to you? Why don't you start a thread on LymeNet about herx? Didn't they use the term there before the MP did? You could just tell them what herx is and see what responses you get from the patients about what they think it means and what the LLMD's think it means. I'd be interested to see the responses. It's funny that you quote Rumsfield " There are some things that you just don't know that you don't know. " Herx is not the term used on the MP site now. It hasn't been for quite some time, but you've made it quite clear that you don't want to know about anything there. Roy > > I didn't cut her any slack after the last 2 posts. > > She's un-informed - and parroting dogma from her guru. > > I didn't quite say it like that- but she's a follower.. using the > words " we " and " the patients " ...and TOTALLY mis-informed about the > true meaning of herx. > > I think that protocol is responsible for the bastardizing of the > meaning of that reaction... that's probably why I just can't let > their posts go by too long. > > To quote Rumsfield.. " There are some things that you just don't know > that you don't know. " . That's where she's at. > > It's tiring. > Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Roy Early in the piece I was the person screaming and yelling at the MP guru that this herx thing is crap. I actually had an interesting interaction with a member after I asked anyone with comparison blood tests- one before a herx and one after suffering the so called condition, and he observed, like I have, that there's a destruction of your red cells and clumping/clotting of your platelets.. so how is this reaction thing any good? Why is something strictly related to toxin expression by bacteria a so called ROAD TO CURE? DOWNWARD MOVEMENT OF YOUR RED BLOOD CELLS- SECONDLY DOWNWARD MOVEMENT OF YOUR PLATELET COUNTS- OFTEN JUST ABOVE THE LOWER LIMIT- WHICH IS DANGEROUS BECAUSE DEATH ISN'T THAT FAR AWAY FROM THAT LOWER MARKER- ACCORDING TO MEDICAL LITERATURE.. TONY > > > > I didn't cut her any slack after the last 2 posts. > > > > She's un-informed - and parroting dogma from her guru. > > > > I didn't quite say it like that- but she's a follower.. using the > > words " we " and " the patients " ...and TOTALLY mis-informed about the > > true meaning of herx. > > > > I think that protocol is responsible for the bastardizing of the > > meaning of that reaction... that's probably why I just can't let > > their posts go by too long. > > > > To quote Rumsfield.. " There are some things that you just don't > know > > that you don't know. " . That's where she's at. > > > > It's tiring. > > Barb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Roy, Nothing is wrong with Barb Peck. I don't know anyone as truthful or sincere as Barb, who's understanding and contributions have been considerable. She even helped develop the MP. You probably have no idea how much of the research she's responsible for in that protocol. When someone like Barb backs away from something she's put so much time and effort into, you have to ask yourself why. Or you should. I'm actually really surprised by you, Roy. For one thing, we at this list DO understand the seriousness of infection. That's why we also understand that 2 or 3 antibiotics cannot handle all infections for all people. Perhaps you'd understand the whole story if you weren't the victim of censored information. You'd know not only the success stories of a specific protocol, but how many patients and doctors have jumped ship. You'd know how many people have been sued or threatened with law suits. And you'd know how many health concerns have been brushed off (mine & my doctor's included) and how many serious problems were reported that never saw the light of day. You'd know why I & I fiercely protects its rights to disagree because you'd know how the original I & I list of 750+ members was sabotaged and shut down due to legal threats when its members had the nerve to discuss the cons as well as the pros of a certain protocol. You'd know how an attempt was made to subpoenae ALL of my email records, and you'd know about the failed libel lawsuit against me for having the audacity to disagree and warn patients of potential dangers of a certain treatment. And if by chance you ARE on the inside track and actually do know how things work/ed, how the "handling" of troublemakers was "discussed" ad infinitum, how their non-responses or bad reactions were rationalized and/or ignored, how legal threats were commonplace, how discussion groups got shut down, then I have to ask, WHAT IS WRONG WITH YOU? I'm happy you seem to be doing better. But you are not the only person involved here, which means people have the right to know both sides and someone has to speak out because the facts sure ain't coming out by themselves. Thank goodness we still live in a democracy which guarantees free speech. And by the way, if it's true that the word "herx" is being misused less, then WE probably deserve a pat on the back for that tiny advancement since nobody else seems to care about the misuse of the word. Apparently someone's listening to us. Going back to your original question, "What is wrong with Barb Peck?" Nothing. She's fully recovered. And she got there all on her own. penny royx31 <roysno@...> wrote: Barb,I am going to cut you a lot of slack here, but I have to ask-what is wrong with using the words "we" and "the patients"? What words are acceptable to you?Why don't you start a thread on LymeNet about herx? Didn't they use the term there before the MP did? You could just tell them what herx is and see what responses you get from the patients about what they think it means and what the LLMD's think it means. I'd be interested to see the responses.It's funny that you quote Rumsfield "There are some things that you just don't know that you don't know." Herx is not the term used on the MP site now. It hasn't been for quite some time, but you've made it quite clear that you don't want to know about anything there.Roy>> I didn't cut her any slack after the last 2 posts.> > She's un-informed - and parroting dogma from her guru.> > I didn't quite say it like that- but she's a follower.. using the > words "we" and "the patients"...and TOTALLY mis-informed about the > true meaning of herx.> > I think that protocol is responsible for the bastardizing of the > meaning of that reaction... that's probably why I just can't let > their posts go by too long.> > To quote Rumsfield.. " There are some things that you just don't know > that you don't know.". That's where she's at.> > It's tiring.> Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 > Barb, > I am going to cut you a lot of slack here, but I have to ask-what is > wrong with using the words " we " and " the patients " ? What words are > acceptable to you? ********* Roy: Using those words indicates to me she's not speaking for herself- but representing the beleifs of the group. She also mentioned in her post on LyneNet she didn't know the MP was discussed there previously (which also tells me she's really a Newbie and not a veteran of the MP. > > Why don't you start a thread on LymeNet about herx? Didn't they use > the term there before the MP did? You could just tell them what herx > is and see what responses you get from the patients about what they > think it means and what the LLMD's think it means. I'd be interested > to see the responses. ********************* That's been done many times before - by me- and by others who are trying to figure out which symptoms are symptoms caused by the disease, wnd which symptoms are cause by true herx, and which symptoms are caused by true drug allergy- and which ones are not. If you research back several years, you'll see herx discussed MANY times. > > It's funny that you quote Rumsfield " There are some things that you > just don't know that you don't know. " Herx is not the term used on > the MP site now. ********** That's good to hear- that's VERY good to hear. It hasn't been for quite some time, but you've made > it quite clear that you don't want to know about anything there. > Roy ***********I was on LymeNet BEFORE the original (MP)groups branched out from Sarc Info, and I was on Sarc info before there was a glimmer in anyones eye of the MP as we know it. I supplied T with some research papers which bolstered his ideas- and with some that didn't- which I think he misinterpreted - but would not entertain discussion on those. Everything was/is too one-sided for my taste.. and from the reports coming out of that group- things haven't changed. Barb > > > > > > > I didn't cut her any slack after the last 2 posts. > > > > She's un-informed - and parroting dogma from her guru. > > > > I didn't quite say it like that- but she's a follower.. using the > > words " we " and " the patients " ...and TOTALLY mis-informed about the > > true meaning of herx. > > > > I think that protocol is responsible for the bastardizing of the > > meaning of that reaction... that's probably why I just can't let > > their posts go by too long. > > > > To quote Rumsfield.. " There are some things that you just don't > know > > that you don't know. " . That's where she's at. > > > > It's tiring. > > Barb > Quote Link to comment Share on other sites More sharing options...
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