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Re: Not to open a pandora's box on MP, but here it goes:::eye inflammation:::

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I take it you have had your eye checked for bacteria, Cpn for example?thats what they found in my eye, and kindly wanted to treat it locally. I opted for a more aggressive systemic approach as clearly at that time is was riddled. (I did cipro 1.5G per day 6 weeks).Good lucksOn 28 Dec 2007, at 10:14, greginnz2004 wrote:Hey everybody,My name is Greg, and this is my first time posting on theinfection and inflammation group. I was pointed in this direction bya very helpful man, . 's website, email correspondence, andsubsequent links and information made me open to the idea, if notentirely convinced, that my chronic eye inflammation is infectious innature. I have spent the holidays doing nothing but research and havecome to a few realizations.1. My onset of scleritis (chronic eye inflammation of the sclera) 3years ago coincided with a few bouts of sinus, ear, and throatinfection. I am in the category of those dealing with scleritis who donot show signs of an underlying disease causing the inflammation. 2. I have a history of overexposure to sun. ie: episodes of sunpoisoning and snow blindness. This made me interested in the possiblerole of VitD and the MP. 3. My eye inflammation is worse on my left side, the same side inwhich my ear infections over the last few years have been more severe.When my sinuses are irritated or infected, my eyes are worse makingme believe it is all stemming from the same bacterial infection.4. Almost 2 months ago my scleritis flared up much worse than it hasever been. I take this as a sign that the bacteria have beenmultiplying. I don't want to seem naive, but I can tell from reading here and othersources that most are in agreement that chronic inflammation is fueledby bacteria. Therefore, my current use of prednisone (I am currentlytapering), and push by my doctors to go on methotrexate ifinflammation is not resolved, will only exaccerbate my infection andinflammation. It sounds as though the disagreement is how to fightthe underlying infection. Of course the MP sounds enticing, but the more I read about Dr.Marshall and the lack of long term testing of the protocol, the moredoubts I have. I'm also worried about the safety of long term lowdose antibiotic treatment. Are the members here in any agreement as to the best way to treatchronic eye inflammation? Is benicar combined w/ minocycline and VitDavoidance an accepted treatment? I understand I could very likelyhave fungal infections or coinfections that would require otherstronger antibiotics. I also understand that it might be a good ideato use the benicar as a therapeutic probe, and see how my inflammationresponds. I am in the process of cutting out sources of VitD, to test myresponse and just in case I decide to do MP. I feel as though it isgoing to be tough to gauge results if my VitD reduction coincides withprednisone weaning and introduction of benicar. Any thoughts orsuggestions? I do believe that somehow I can beat this thing, but Icould really use some help. Thanks for listening everybody, and let meknow what you think. Greg

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have you checked Cpnhelp.org?

--- Agentbleu <colourbleu@...> wrote:

> I take it you have had your eye checked for

> bacteria, Cpn for example?

>

> thats what they found in my eye, and kindly wanted

> to treat it

> locally. I opted for a more aggressive systemic

> approach as clearly

> at that time is was riddled. (I did cipro 1.5G per

> day 6 weeks).

>

> Good luck

> s

>

>

> On 28 Dec 2007, at 10:14, greginnz2004 wrote:

>

> > Hey everybody,

> >

> > My name is Greg, and this is my first time posting

> on the

> > infection and inflammation group. I was pointed in

> this direction by

> > a very helpful man, . 's website, email

> correspondence, and

> > subsequent links and information made me open to

> the idea, if not

> > entirely convinced, that my chronic eye

> inflammation is infectious in

> > nature. I have spent the holidays doing nothing

> but research and have

> > come to a few realizations.

> >

> > 1. My onset of scleritis (chronic eye inflammation

> of the sclera) 3

> > years ago coincided with a few bouts of sinus,

> ear, and throat

> > infection. I am in the category of those dealing

> with scleritis who do

> > not show signs of an underlying disease causing

> the inflammation.

> >

> > 2. I have a history of overexposure to sun. ie:

> episodes of sun

> > poisoning and snow blindness. This made me

> interested in the possible

> > role of VitD and the MP.

> >

> > 3. My eye inflammation is worse on my left side,

> the same side in

> > which my ear infections over the last few years

> have been more severe.

> > When my sinuses are irritated or infected, my eyes

> are worse making

> > me believe it is all stemming from the same

> bacterial infection.

> >

> > 4. Almost 2 months ago my scleritis flared up much

> worse than it has

> > ever been. I take this as a sign that the bacteria

> have been

> > multiplying.

> >

> > I don't want to seem naive, but I can tell from

> reading here and other

> > sources that most are in agreement that chronic

> inflammation is fueled

> > by bacteria. Therefore, my current use of

> prednisone (I am currently

> > tapering), and push by my doctors to go on

> methotrexate if

> > inflammation is not resolved, will only

> exaccerbate my infection and

> > inflammation. It sounds as though the disagreement

> is how to fight

> > the underlying infection.

> >

> > Of course the MP sounds enticing, but the more I

> read about Dr.

> > Marshall and the lack of long term testing of the

> protocol, the more

> > doubts I have. I'm also worried about the safety

> of long term low

> > dose antibiotic treatment.

> >

> > Are the members here in any agreement as to the

> best way to treat

> > chronic eye inflammation? Is benicar combined w/

> minocycline and VitD

> > avoidance an accepted treatment? I understand I

> could very likely

> > have fungal infections or coinfections that would

> require other

> > stronger antibiotics. I also understand that it

> might be a good idea

> > to use the benicar as a therapeutic probe, and see

> how my inflammation

> > responds.

> >

> > I am in the process of cutting out sources of

> VitD, to test my

> > response and just in case I decide to do MP. I

> feel as though it is

> > going to be tough to gauge results if my VitD

> reduction coincides with

> > prednisone weaning and introduction of benicar.

> Any thoughts or

> > suggestions? I do believe that somehow I can beat

> this thing, but I

> > could really use some help. Thanks for listening

> everybody, and let me

> > know what you think.

> >

> > Greg

> >

> >

> >

>

>

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Greg

A good place to start would be to stick a swab in your ear and

culture it..There's no point undertakintg any treatment without a

hint of what may be causing what your going thru and gett8ing a best

drug tip by doing culture and sensitivity.

>

> Hey everybody,

>

> My name is Greg, and this is my first time posting on the

> infection and inflammation group. I was pointed in this direction

by

> a very helpful man, . 's website, email correspondence, and

> subsequent links and information made me open to the idea, if not

> entirely convinced, that my chronic eye inflammation is infectious

in

> nature. I have spent the holidays doing nothing but research and

have

> come to a few realizations.

>

> 1. My onset of scleritis (chronic eye inflammation of the sclera) 3

> years ago coincided with a few bouts of sinus, ear, and throat

> infection. I am in the category of those dealing with scleritis who

do

> not show signs of an underlying disease causing the inflammation.

>

> 2. I have a history of overexposure to sun. ie: episodes of sun

> poisoning and snow blindness. This made me interested in the

possible

> role of VitD and the MP.

>

> 3. My eye inflammation is worse on my left side, the same side in

> which my ear infections over the last few years have been more

severe.

> When my sinuses are irritated or infected, my eyes are worse making

> me believe it is all stemming from the same bacterial infection.

>

> 4. Almost 2 months ago my scleritis flared up much worse than it

has

> ever been. I take this as a sign that the bacteria have been

> multiplying.

>

> I don't want to seem naive, but I can tell from reading here and

other

> sources that most are in agreement that chronic inflammation is

fueled

> by bacteria. Therefore, my current use of prednisone (I am

currently

> tapering), and push by my doctors to go on methotrexate if

> inflammation is not resolved, will only exaccerbate my infection and

> inflammation. It sounds as though the disagreement is how to fight

> the underlying infection.

>

> Of course the MP sounds enticing, but the more I read about Dr.

> Marshall and the lack of long term testing of the protocol, the more

> doubts I have. I'm also worried about the safety of long term low

> dose antibiotic treatment.

>

> Are the members here in any agreement as to the best way to treat

> chronic eye inflammation? Is benicar combined w/ minocycline and

VitD

> avoidance an accepted treatment? I understand I could very likely

> have fungal infections or coinfections that would require other

> stronger antibiotics. I also understand that it might be a good

idea

> to use the benicar as a therapeutic probe, and see how my

inflammation

> responds.

>

> I am in the process of cutting out sources of VitD, to test my

> response and just in case I decide to do MP. I feel as though it is

> going to be tough to gauge results if my VitD reduction coincides

with

> prednisone weaning and introduction of benicar. Any thoughts or

> suggestions? I do believe that somehow I can beat this thing, but I

> could really use some help. Thanks for listening everybody, and let

me

> know what you think.

>

> Greg

>

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Steve are you joking or what?

Do you think that tyhe bacteria in and around the eye, ear even, are

invisable and you need to do something special to discover the

pseudonomads, staph epi are irrelevant in the region?

tony

> > >

> > > Hey everybody,

> > >

> > > My name is Greg, and this is my first time posting on the

> > > infection and inflammation group. I was pointed in this

direction

> > by

> > > a very helpful man, . 's website, email correspondence,

and

> > > subsequent links and information made me open to the idea, if

not

> > > entirely convinced, that my chronic eye inflammation is

infectious

> > in

> > > nature. I have spent the holidays doing nothing but research and

> > have

> > > come to a few realizations.

> > >

> > > 1. My onset of scleritis (chronic eye inflammation of the

sclera) 3

> > > years ago coincided with a few bouts of sinus, ear, and throat

> > > infection. I am in the category of those dealing with scleritis

who

> > do

> > > not show signs of an underlying disease causing the

inflammation.

> > >

> > > 2. I have a history of overexposure to sun. ie: episodes of sun

> > > poisoning and snow blindness. This made me interested in the

> > possible

> > > role of VitD and the MP.

> > >

> > > 3. My eye inflammation is worse on my left side, the same side

in

> > > which my ear infections over the last few years have been more

> > severe.

> > > When my sinuses are irritated or infected, my eyes are worse

making

> > > me believe it is all stemming from the same bacterial infection.

> > >

> > > 4. Almost 2 months ago my scleritis flared up much worse than it

> > has

> > > ever been. I take this as a sign that the bacteria have been

> > > multiplying.

> > >

> > > I don't want to seem naive, but I can tell from reading here and

> > other

> > > sources that most are in agreement that chronic inflammation is

> > fueled

> > > by bacteria. Therefore, my current use of prednisone (I am

> > currently

> > > tapering), and push by my doctors to go on methotrexate if

> > > inflammation is not resolved, will only exaccerbate my

infection and

> > > inflammation. It sounds as though the disagreement is how to

fight

> > > the underlying infection.

> > >

> > > Of course the MP sounds enticing, but the more I read about Dr.

> > > Marshall and the lack of long term testing of the protocol, the

more

> > > doubts I have. I'm also worried about the safety of long term

low

> > > dose antibiotic treatment.

> > >

> > > Are the members here in any agreement as to the best way to

treat

> > > chronic eye inflammation? Is benicar combined w/ minocycline and

> > VitD

> > > avoidance an accepted treatment? I understand I could very

likely

> > > have fungal infections or coinfections that would require other

> > > stronger antibiotics. I also understand that it might be a good

> > idea

> > > to use the benicar as a therapeutic probe, and see how my

> > inflammation

> > > responds.

> > >

> > > I am in the process of cutting out sources of VitD, to test my

> > > response and just in case I decide to do MP. I feel as though

it is

> > > going to be tough to gauge results if my VitD reduction

coincides

> > with

> > > prednisone weaning and introduction of benicar. Any thoughts or

> > > suggestions? I do believe that somehow I can beat this thing,

but I

> > > could really use some help. Thanks for listening everybody, and

let

> > me

> > > know what you think.

> > >

> > > Greg

> > >

> >

> >

> >

>

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Thanks for the info! My doc said that I showed no signs of bacterial infection under slit lamp. They seem pretty convinced that this means I am infection free. However, they did not do a swab, or a blood test checking for bacterial infection. I am getting this done next week I have been reading the info on the Cpnnhelp.org, and it seems very consistent with my symptoms. However, I don't see too many people whose eye symptoms have been treated. Most have diseases like MS. Even if I don't have obvious signs of infection I am planning on using abx for a therapeutic probe. Any thoughts? Thanks for the help. Greg Marie Mayberry <msmabrry@...> wrote: have you checked Cpnhelp.org? --- Agentbleu <colourbleufree (DOT) fr> wrote: > I take it you have had your eye checked for > bacteria, Cpn for example? > > thats what they found in my eye, and kindly wanted > to treat it > locally. I opted for a more aggressive systemic > approach as clearly > at that time is was riddled. (I did cipro 1.5G per > day 6 weeks). > > Good luck > s > > > On 28 Dec 2007, at 10:14, greginnz2004 wrote: > > > Hey everybody, > > > > My name is Greg, and this is my first time posting > on the > >

infection and inflammation group. I was pointed in > this direction by > > a very helpful man, . 's website, email > correspondence, and > > subsequent links and information made me open to > the idea, if not > > entirely convinced, that my chronic eye > inflammation is infectious in > > nature. I have spent the holidays doing nothing > but research and have > > come to a few realizations. > > > > 1. My onset of scleritis (chronic eye inflammation > of the sclera) 3 > > years ago coincided with a few bouts of sinus, > ear, and throat > > infection. I am in the category of those dealing > with scleritis who do > > not show signs of an underlying disease causing > the inflammation. > > > > 2. I have a history of overexposure to sun. ie: > episodes of sun > > poisoning and snow blindness. This made me > interested in the possible > > role of VitD and the MP. > > > > 3. My eye inflammation is worse on my left side, > the same side in > > which my ear infections over the last few years > have been more severe. > > When my sinuses are irritated or infected, my eyes > are worse making > > me believe it is all stemming from the same > bacterial infection. > > > > 4. Almost 2 months ago my scleritis flared up much > worse than it has > > ever been. I take this as a sign that the bacteria > have been > > multiplying. > > > > I don't want to seem naive, but I can tell from > reading here and other > > sources that most are in agreement that chronic > inflammation is fueled > > by bacteria. Therefore, my

current use of > prednisone (I am currently > > tapering), and push by my doctors to go on > methotrexate if > > inflammation is not resolved, will only > exaccerbate my infection and > > inflammation. It sounds as though the disagreement > is how to fight > > the underlying infection. > > > > Of course the MP sounds enticing, but the more I > read about Dr. > > Marshall and the lack of long term testing of the > protocol, the more > > doubts I have. I'm also worried about the safety > of long term low > > dose antibiotic treatment. > > > > Are the members here in any agreement as to the > best way to treat > > chronic eye inflammation? Is benicar combined w/ > minocycline and VitD > > avoidance an accepted treatment? I understand I > could very

likely > > have fungal infections or coinfections that would > require other > > stronger antibiotics. I also understand that it > might be a good idea > > to use the benicar as a therapeutic probe, and see > how my inflammation > > responds. > > > > I am in the process of cutting out sources of > VitD, to test my > > response and just in case I decide to do MP. I > feel as though it is > > going to be tough to gauge results if my VitD > reduction coincides with > > prednisone weaning and introduction of benicar. > Any thoughts or > > suggestions? I do believe that somehow I can beat > this thing, but I > > could really use some help. Thanks for listening > everybody, and let me > > know what you think. > > > > Greg > > > > > > > >

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Greg,

I disagree with Tony aka Dumbaussie, that it is easy for us laymen to

find out what bacteria we are infected with. I do agree with Tony

that inflammation indicates undiagnosed infection. It may be c.

pneumonia, but it seems to me that would not be the obvious diagosis

with eye inflammation.

I want to make a middle of the road suggestion to you. Forget about

avoiding D and sun. Try the antibiotics Marshall suggests instead. If

your doctor is willing to subject you to methotrexate, then he should

be willing to try minocycline which is approved to treat rheumatoid

arthritis BECAUSE IT REDUCES INFLAMMATION.

He may also be willing to prescribe Zithromax because it also reduces

inflammation. Both of these antibiotics are effective against a

number of bacteria. If you get a bad reaction with the minocycline

reduce the dose to about 100 mg every third day for awhile.

You may need to taper off the prednisone as well. Assuming you have

an infection, of course, prednisone is the worst thing you could be

taking, but you still can't stop it all at once.

Personally I think what works on the MP are the antibiotics, not the

D avoidance. YOu may actually need more D, not less. Who knows.

a Carnes

>

> Hey everybody,

>

> My name is Greg, and this is my first time posting on the

> infection and inflammation group. I was pointed in this direction

by

> a very helpful man, . 's website, email correspondence, and

> subsequent links and information made me open to the idea, if not

> entirely convinced, that my chronic eye inflammation is infectious

in

> nature. I have spent the holidays doing nothing but research and

have

> come to a few realizations.

>

> 1. My onset of scleritis (chronic eye inflammation of the sclera) 3

> years ago coincided with a few bouts of sinus, ear, and throat

> infection. I am in the category of those dealing with scleritis who

do

> not show signs of an underlying disease causing the inflammation.

>

> 2. I have a history of overexposure to sun. ie: episodes of sun

> poisoning and snow blindness. This made me interested in the

possible

> role of VitD and the MP.

>

> 3. My eye inflammation is worse on my left side, the same side in

> which my ear infections over the last few years have been more

severe.

> When my sinuses are irritated or infected, my eyes are worse making

> me believe it is all stemming from the same bacterial infection.

>

> 4. Almost 2 months ago my scleritis flared up much worse than it

has

> ever been. I take this as a sign that the bacteria have been

> multiplying.

>

> I don't want to seem naive, but I can tell from reading here and

other

> sources that most are in agreement that chronic inflammation is

fueled

> by bacteria. Therefore, my current use of prednisone (I am

currently

> tapering), and push by my doctors to go on methotrexate if

> inflammation is not resolved, will only exaccerbate my infection and

> inflammation. It sounds as though the disagreement is how to fight

> the underlying infection.

>

> Of course the MP sounds enticing, but the more I read about Dr.

> Marshall and the lack of long term testing of the protocol, the more

> doubts I have. I'm also worried about the safety of long term low

> dose antibiotic treatment.

>

> Are the members here in any agreement as to the best way to treat

> chronic eye inflammation? Is benicar combined w/ minocycline and

VitD

> avoidance an accepted treatment? I understand I could very likely

> have fungal infections or coinfections that would require other

> stronger antibiotics. I also understand that it might be a good

idea

> to use the benicar as a therapeutic probe, and see how my

inflammation

> responds.

>

> I am in the process of cutting out sources of VitD, to test my

> response and just in case I decide to do MP. I feel as though it is

> going to be tough to gauge results if my VitD reduction coincides

with

> prednisone weaning and introduction of benicar. Any thoughts or

> suggestions? I do believe that somehow I can beat this thing, but I

> could really use some help. Thanks for listening everybody, and let

me

> know what you think.

>

> Greg

>

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Yea I was dying and eventually all they came up with was I had an eye infection.you should be able to fathom if you have a systemic infection just by the way you feel...On 29 Dec 2007, at 01:18, Greg wrote:Thanks for the info!  My doc said that I showed no signs of bacterial infection under slit lamp.  They seem pretty convinced that this means I am infection free.  However, they did not do a swab, or a blood test checking for bacterial infection.  I am getting this done next week   I have been reading the info on the Cpnnhelp.org, and it seems very consistent with my symptoms.  However, I don't see too many people whose eye symptoms have been treated.  Most have diseases like MS.  Even if I don't have obvious signs of infection I am planning on using abx for a therapeutic probe.  Any thoughts?  Thanks for the help.  GregMarie Mayberry <msmabrry > wrote:have you checked Cpnhelp.org?--- Agentbleu <colourbleufree (DOT) fr> wrote:> I take it you have had your eye checked for> bacteria, Cpn for example?> > thats what they found in my eye, and kindly wanted> to treat it > locally. I opted for a more aggressive systemic> approach as clearly > at that time is was riddled. (I did cipro 1.5G per> day 6 weeks).> > Good luck> s> > > On 28 Dec 2007, at 10:14, greginnz2004 wrote:> > > Hey everybody,> >> > My name is Greg, and this is my first time posting> on the> > infection and inflammation group. I was pointed in> this direction by> > a very helpful man, . 's website, email> correspondence, and> > subsequent links and information made me open to> the idea, if not> > entirely convinced, that my chronic eye> inflammation is infectious in> > nature. I have spent the holidays doing nothing> but research and have> > come to a few realizations.> >> > 1. My onset of scleritis (chronic eye inflammation> of the sclera) 3> > years ago coincided with a few bouts of sinus,> ear, and throat> > infection. I am in the category of those dealing> with scleritis who do> > not show signs of an underlying disease causing> the inflammation.> >> > 2. I have a history of overexposure to sun. ie:> episodes of sun> > poisoning and snow blindness. This made me> interested in the possible> > role of VitD and the MP.> >> > 3. My eye inflammation is worse on my left side,> the same side in> > which my ear infections over the last few years> have been more severe.> > When my sinuses are irritated or infected, my eyes> are worse making> > me believe it is all stemming from the same> bacterial infection.> >> > 4. Almost 2 months ago my scleritis flared up much> worse than it has> > ever been. I take this as a sign that the bacteria> have been> > multiplying.> >> > I don't want to seem naive, but I can tell from> reading here and other> > sources that most are in agreement that chronic> inflammation is fueled> > by bacteria. Therefore, my current use of> prednisone (I am currently> > tapering), and push by my doctors to go on> methotrexate if> > inflammation is not resolved, will only> exaccerbate my infection and> > inflammation. It sounds as though the disagreement> is how to fight> > the underlying infection.> >> > Of course the MP sounds enticing, but the more I> read about Dr.> > Marshall and the lack of long term testing of the> protocol, the more> > doubts I have. I'm also worried about the safety> of long term low> > dose antibiotic treatment.> >> > Are the members here in any agreement as to the> best way to treat> > chronic eye inflammation? Is benicar combined w/> minocycline and VitD> > avoidance an accepted treatment? I understand I> could very likely> > have fungal infections or coinfections that would> require other> > stronger antibiotics. I also understand that it> might be a good idea> > to use the benicar as a therapeutic probe, and see> how my inflammation> > responds.> >> > I am in the process of cutting out sources of> VitD, to test my> > response and just in case I decide to do MP. I> feel as though it is> > going to be tough to gauge results if my VitD> reduction coincides with> > prednisone weaning and introduction of benicar.> Any thoughts or> > suggestions? I do believe that somehow I can beat> this thing, but I> > could really use some help. Thanks for listening> everybody, and let me> > know what you think.> >> > Greg> >> >> > > > Looking for last minute shopping deals? Find them fast with Search.

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Hi Greg, I'm sure we all sympathize and relate to your dilemma. Unlike Marshall and a, most of us here don't believe that chronic infection can be treated with a one-size-fits-all abx protocol. As a matter of fact, it's a pretty silly notion. The more you study bacteria and antibiotics, the sillier it gets. If it were true, we wouldn't have 100s of abx on the market to deal with the rapidly evolving bacteria that somehow quickly outwit the previous generations of abx. Not only do we have the daunting task of targeting the bacteria with the best drugs for us individually, we need to find a way to circumvent their defense mechanisms (like biofilms and genetic adaptations) to prevent them from returning. It's very difficult. Since many of us can't get cultures done (unless you get a cooperative Infectious Disease doc or progressive ENT or

some kind of Plastic or Orthopedic Surgeon who deals with infections in weird places), we end up having to do therapeutic probes with antibiotics. A riskier proposition than knowing specifically what you're targeting, but if done properly will most likely teach you a lot about your own infection. Generally, in my experience with chronic infection, the right antibiotic makes you feel better pretty fast. That said, I absolutely don't buy the long term, low dose treatment method for a chronic, deeply entrenched infection. It just doesn't bear out in most cases in my view, certainly didn't work in my own. All the people I know who have any kind of handle on their infection, take full dose abx and know immediately whether the drugs are helping or aren't. I sincerely fear that anyone who plays with low dose abx is just inviting stronger, more entrenched infections. We also don't buy the whole, ongoing, long-term "herxing"

scenario. It just doesn't add up, no how, no way. Herxes should have quick onsets and be short lived. I'd suggest doing a search here on the Marshall Protocol (or MP or mp.com) to read the many discussions on the topic, but many of the posts don't even refer to the protocol by name so they wouldn't appear in the search results. The reason for that is the creator of the MP has a tendency to sue people. People have been banned from the mp.com site even when they support the protocol (like a), but wouldn't walk the party line in lockstep. So you need to take whatever you hear from the official mp.com with a healthy dose of skepticism, and ask yourself if you're getting the cons as well as the pros at that site. Personally, based on my own experience with the protocol, and based on some of the very serious, yet

unofficial reports of hospitalization, death, and various side effects, I find the risk at this time to far outweigh any potential and yet to be proven benefits. I do think Benicar has interesting antiinflammatory & antiaging possibilities, but after my own experience of taking it for about 2 years, I don't see it as a cure and would recommend waiting to see what all the various scientists studying it come up with. When I look back at it, the only positive thing I can really say about the protocol is that I learned I have a major inflammatory condition. And really that came from (a veterinarian), who first brought the MP to the attention of people outside the Sarcoidosis world. He dubbed our illness as ACID (acquired chronic inflammatory disease), a very appropriate moniker. Back when I first took Benicar, after the initial severe

discomfort that came with taking such high doses of a blood pressure lowering drug (and feeling like a deflated baloon for several weeks), it definitely felt like the Benicar reduced my inflammation remarkably. And it may have for a while, but in fact, I think the Benicar MASKED my symptoms of inflammation through vascular relaxation and other ARB mechanisms. Looking back, I realize it basically deadened sensation across the board, which would also deaden inflammatory pain (much like pain medication can). I noticed it even halted the intoxicating effects of alcohol (which was born out in rat studies pointed out by one of our resident scientists, Matt). With Benicar, I could drink a glass of wine for the first time in years, but felt absolutely none of the alcoholic effects. I think that's what it did to me as a whole, --just damped down everything. Oh, and Benicar did NOT "potentiate" my abx. I

eventually discovered that I could take full dose abx while on Benicar with no scary side effects or fears of overdosing (much to my surprise and relief). The supposed "potentiation" is not supported in the literature, nor is it included in any warnings by the manufacturer. So now it's around 4 years later and I still don't know of a single person on the MP who has been able to stop taking Benicar. So again that leads me to speculate that we're seeing and indication of symptom masking rather than a cure. As for the antibiotics. People like us can't take abx lightly. Either by undermedicating or using the wrong ones, --meaning either those that are ineffective or those that can cause major side effects. Especially Minocycline, which is a mainstay of the protocol. It's known to cause intercranial hypertension and thryoid problems

as well as drug induced lupus and blindness (read the insert). You might very well be someone, like my daughter, who sails with mino, but you could also be like others of us who get extremely ill on minocycline. And you should be aware of this before taking it and buying the party line that any and every effect you experience is a "herx". People I know who benefit greatly from mino never report long term "herxes". They report feeling better within 24 to 48 hours. If you've got a chronic eye problem, and we know it's proven that Minocylcine can cause ICH and blindness, I would proceed cautiously and would absolutely not ignore any symptoms of discomfort that might appear with minocycline. Good luck. penny Agentbleu <colourbleu@...> wrote: Yea I was dying and eventually all they came up with was I had an eye infection. you should be able to fathom if you have a systemic infection just by the way you feel... On 29 Dec 2007, at 01:18, Greg wrote: Thanks for the info! My doc said that I showed no signs of bacterial infection under slit lamp. They seem pretty convinced that this means I am infection free. However, they did not do a swab, or a blood test checking for bacterial infection. I am getting this done next week I have been reading the info on the Cpnnhelp.org, and it seems very consistent with my symptoms. However, I don't see too many people whose eye symptoms have been treated. Most have diseases like MS. Even if I don't have obvious signs of infection I am planning on using abx for a therapeutic probe. Any thoughts? Thanks for the help. GregMarie Mayberry

<msmabrry > wrote: have you checked Cpnhelp.org?--- Agentbleu <colourbleufree (DOT) fr> wrote:> I take it you have had your eye checked for> bacteria, Cpn for example?> > thats what they found in my eye, and kindly wanted> to treat it > locally. I opted for a more aggressive systemic> approach as clearly > at that time is was riddled. (I did cipro 1.5G per> day 6 weeks).> > Good luck> s> > > On 28 Dec 2007, at 10:14, greginnz2004 wrote:> > > Hey everybody,> >> > My name is Greg, and this is my first time posting> on the> > infection and inflammation group. I was pointed in> this direction by> > a very helpful man, . 's website, email> correspondence, and> > subsequent links and information made me open to> the idea, if not> > entirely convinced, that my chronic eye> inflammation is infectious in> > nature. I have spent the holidays doing nothing> but research and have> > come to a few realizations.> >> > 1. My onset of scleritis (chronic eye inflammation> of the sclera) 3> > years ago coincided with a few bouts of sinus,>

ear, and throat> > infection. I am in the category of those dealing> with scleritis who do> > not show signs of an underlying disease causing> the inflammation.> >> > 2. I have a history of overexposure to sun. ie:> episodes of sun> > poisoning and snow blindness. This made me> interested in the possible> > role of VitD and the MP.> >> > 3. My eye inflammation is worse on my left side,> the same side in> > which my ear infections over the last few years> have been more severe.> > When my sinuses are irritated or infected, my eyes> are worse making> > me believe it is all stemming from the same> bacterial infection.> >> > 4. Almost 2 months ago my scleritis flared up much> worse than it has> > ever been. I take this as a sign that the bacteria> have been> >

multiplying.> >> > I don't want to seem naive, but I can tell from> reading here and other> > sources that most are in agreement that chronic> inflammation is fueled> > by bacteria. Therefore, my current use of> prednisone (I am currently> > tapering), and push by my doctors to go on> methotrexate if> > inflammation is not resolved, will only> exaccerbate my infection and> > inflammation. It sounds as though the disagreement> is how to fight> > the underlying infection.> >> > Of course the MP sounds enticing, but the more I> read about Dr.> > Marshall and the lack of long term testing of the> protocol, the more> > doubts I have. I'm also worried about the safety> of long term low> > dose antibiotic treatment.> >> > Are the members here in any agreement as to

the> best way to treat> > chronic eye inflammation? Is benicar combined w/> minocycline and VitD> > avoidance an accepted treatment? I understand I> could very likely> > have fungal infections or coinfections that would> require other> > stronger antibiotics. I also understand that it> might be a good idea> > to use the benicar as a therapeutic probe, and see> how my inflammation> > responds.> >> > I am in the process of cutting out sources of> VitD, to test my> > response and just in case I decide to do MP. I> feel as though it is> > going to be tough to gauge results if my VitD> reduction coincides with> > prednisone weaning and introduction of benicar.> Any thoughts or> > suggestions? I do believe that somehow I can beat> this thing, but I> > could really use some

help. Thanks for listening> everybody, and let me> > know what you think.> >> > Greg> >> >> > > > Looking for last minute shopping deals? Find them fast with Search.

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this post Penny is dead on, benicar did same for me, mask symptosm all the while the main problem went untreated and got a lot worse. (fungi) which caused me to have a number of crisis and near death experiences. when i did take antifungals about a year after (when i was slightly stronger) the effects we immediate and continued to bring me back round for about 3 months. I took AF for about 18months, not sure if that long is worthy but the first 3-4 months fixed the main problem of chronic constipation (following all the abx)., On 29 Dec 2007, at 18:19, Penny Houle wrote:Hi Greg, I'm sure we all sympathize and relate to your dilemma. Unlike Marshall and a, most of us here don't believe that chronic infection can be treated with a one-size-fits-all abx protocol. As a matter of fact, it's a pretty silly notion. The more you study bacteria and antibiotics, the sillier it gets. If it were true, we wouldn't have 100s of abx on the market to deal with the rapidly evolving bacteria that somehow quickly outwit the previous generations of abx. Not only do we have the daunting task of targeting the bacteria with the best drugs for us individually, we need to find a way to circumvent their defense mechanisms (like biofilms and genetic adaptations) to prevent them from returning. It's very difficult. Since many of us can't get cultures done (unless you get a cooperative Infectious Disease doc or progressive ENT or some kind of Plastic or Orthopedic Surgeon who deals with infections in weird places), we end up having to do therapeutic probes with antibiotics. A riskier proposition than knowing specifically what you're targeting, but if done properly will most likely teach you a lot about your own infection. Generally, in my experience with chronic infection, the right antibiotic makes you feel better pretty fast. That said, I absolutely don't buy the long term, low dose treatment method for a chronic, deeply entrenched infection. It just doesn't bear out in most cases in my view, certainly didn't work in my own. All the people I know who have any kind of handle on their infection, take full dose abx and know immediately whether the drugs are helping or aren't. I sincerely fear that anyone who plays with low dose abx is just inviting stronger, more entrenched infections. We also don't buy the whole, ongoing, long-term "herxing" scenario. It just doesn't add up, no how, no way. Herxes should have quick onsets and be short lived. I'd suggest doing a search here on the Marshall Protocol (or MP or mp.com) to read the many discussions on the topic, but many of the posts don't even refer to the protocol by name so they wouldn't appear in the search results. The reason for that is the creator of the MP has a tendency to sue people. People have been banned from the mp.com site even when they support the protocol (like a), but wouldn't walk the party line in lockstep. So you need to take whatever you hear from the official mp.com with a healthy dose of skepticism, and ask yourself if you're getting the cons as well as the pros at that site. Personally, based on my own experience with the protocol, and based on some of the very serious, yet unofficial reports of hospitalization, death, and various side effects, I find the risk at this time to far outweigh any potential and yet to be proven benefits. I do think Benicar has interesting antiinflammatory & antiaging possibilities, but after my own experience of taking it for about 2 years, I don't see it as a cure and would recommend waiting to see what all the various scientists studying it come up with. When I look back at it, the only positive thing I can really say about the protocol is that I learned I have a major inflammatory condition. And really that came from (a veterinarian), who first brought the MP to the attention of people outside the Sarcoidosis world. He dubbed our illness as ACID (acquired chronic inflammatory disease), a very appropriate moniker. Back when I first took Benicar, after the initial severe discomfort that came with taking such high doses of a blood pressure lowering drug (and feeling like a deflated baloon for several weeks), it definitely felt like the Benicar reduced my inflammation remarkably.  And it may have for a while, but in fact, I think the Benicar MASKED my symptoms of inflammation through vascular relaxation and other ARB mechanisms. Looking back, I realize it basically deadened sensation across the board, which would also deaden inflammatory pain (much like pain medication can). I noticed it even halted the intoxicating effects of alcohol (which was born out in rat studies pointed out by one of our resident scientists, Matt). With Benicar, I could drink a glass of wine for the first time in years, but felt absolutely none of the alcoholic effects. I think that's what it did to me as a whole, --just damped down everything. Oh, and Benicar did NOT "potentiate" my abx. I eventually discovered that I could take full dose abx while on Benicar with no scary side effects or fears of overdosing (much to my surprise and relief). The supposed "potentiation" is not supported in the literature, nor is it included in any warnings by the manufacturer. So now it's around 4 years later and I still don't know of a single person on the MP who has been able to stop taking Benicar. So again that leads me to speculate that we're seeing and indication of symptom masking rather than a cure. As for the antibiotics. People like us can't take abx lightly. Either by undermedicating or using the wrong ones, --meaning either those that are ineffective or those that can cause major side effects. Especially Minocycline, which is a mainstay of the protocol. It's known to cause intercranial hypertension and thryoid problems as well as drug induced lupus and blindness (read the insert). You might very well be someone, like my daughter, who sails with mino, but you could also be like others of us who get extremely ill on minocycline. And you should be aware of this before taking it and buying the party line that any and every effect you experience is a "herx". People I know who benefit greatly from mino never report long term "herxes". They report feeling better within 24 to 48 hours. If you've got a chronic eye problem, and we know it's proven that Minocylcine can cause ICH and blindness, I would proceed cautiously and would absolutely not ignore any symptoms of discomfort that might appear with minocycline.  Good luck. penny  Agentbleu <colourbleufree (DOT) fr> wrote:Yea I was dying and eventually all they came up with was I had an eye infection.you should be able to fathom if you have a systemic infection just by the way you feel...On 29 Dec 2007, at 01:18, Greg wrote:Thanks for the info!  My doc said that I showed no signs of bacterial infection under slit lamp.  They seem pretty convinced that this means I am infection free.  However, they did not do a swab, or a blood test checking for bacterial infection.  I am getting this done next week   I have been reading the info on the Cpnnhelp.org, and it seems very consistent with my symptoms.  However, I don't see too many people whose eye symptoms have been treated.  Most have diseases like MS.  Even if I don't have obvious signs of infection I am planning on using abx for a therapeutic probe.  Any thoughts?  Thanks for the help.  GregMarie Mayberry <msmabrry > wrote:have you checked Cpnhelp.org?--- Agentbleu <colourbleufree (DOT) fr> wrote:> I take it you have had your eye checked for> bacteria, Cpn for example?> > thats what they found in my eye, and kindly wanted> to treat it > locally. I opted for a more aggressive systemic> approach as clearly > at that time is was riddled. (I did cipro 1.5G per> day 6 weeks).> > Good luck> s> > > On 28 Dec 2007, at 10:14, greginnz2004 wrote:> > > Hey everybody,> >> > My name is Greg, and this is my first time posting> on the> > infection and inflammation group. I was pointed in> this direction by> > a very helpful man, . 's website, email> correspondence, and> > subsequent links and information made me open to> the idea, if not> > entirely convinced, that my chronic eye> inflammation is infectious in> > nature. I have spent the holidays doing nothing> but research and have> > come to a few realizations.> >> > 1. My onset of scleritis (chronic eye inflammation> of the sclera) 3> > years ago coincided with a few bouts of sinus,> ear, and throat> > infection. I am in the category of those dealing> with scleritis who do> > not show signs of an underlying disease causing> the inflammation.> >> > 2. I have a history of overexposure to sun. ie:> episodes of sun> > poisoning and snow blindness. This made me> interested in the possible> > role of VitD and the MP.> >> > 3. My eye inflammation is worse on my left side,> the same side in> > which my ear infections over the last few years> have been more severe.> > When my sinuses are irritated or infected, my eyes> are worse making> > me believe it is all stemming from the same> bacterial infection.> >> > 4. Almost 2 months ago my scleritis flared up much> worse than it has> > ever been. I take this as a sign that the bacteria> have been> > multiplying.> >> > I don't want to seem naive, but I can tell from> reading here and other> > sources that most are in agreement that chronic> inflammation is fueled> > by bacteria. Therefore, my current use of> prednisone (I am currently> > tapering), and push by my doctors to go on> methotrexate if> > inflammation is not resolved, will only> exaccerbate my infection and> > inflammation. It sounds as though the disagreement> is how to fight> > the underlying infection.> >> > Of course the MP sounds enticing, but the more I> read about Dr.> > Marshall and the lack of long term testing of the> protocol, the more> > doubts I have. I'm also worried about the safety> of long term low> > dose antibiotic treatment.> >> > Are the members here in any agreement as to the> best way to treat> > chronic eye inflammation? Is benicar combined w/> minocycline and VitD> > avoidance an accepted treatment? I understand I> could very likely> > have fungal infections or coinfections that would> require other> > stronger antibiotics. I also understand that it> might be a good idea> > to use the benicar as a therapeutic probe, and see> how my inflammation> > responds.> >> > I am in the process of cutting out sources of> VitD, to test my> > response and just in case I decide to do MP. I> feel as though it is> > going to be tough to gauge results if my VitD> reduction coincides with> > prednisone weaning and introduction of benicar.> Any thoughts or> > suggestions? I do believe that somehow I can beat> this thing, but I> > could really use some help. Thanks for listening> everybody, and let me> > know what you think.> >> > Greg> >> >> > > > Looking for last minute shopping deals? Find them fast with Search.

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Yeah, well just doing my part. I think levity in life is important (if you plan to die laughing). I have a sick friend who has the same morbid sense of humor I do. We laugh 'til we cry planning protest funerals through coffin decor. Being sick gives you a whole new appreciation of the ridiculous :-) penny Agentbleu <colourbleu@...> wrote: On 29 Dec 2007, at 18:19, Penny Houle wrote: progressive ENT ROLMAO

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Greg

You'd get it 100% right if you sent a swab to esoterix labs, because

they had a huge understanding about bacteria and TOXINS..Your eyes

have a bacteria which is TOXIC and the TOXINS are fueling the

inflammation.Most labs do things like they do in mcdonalds- it's on

the menu, it's not on the menu.

Forget blood tests and everything else the medical system can offer

you..THEY ARE USELESS, AND THE SYSTEM IS FULL OF HOLES. It's

basically a system which is driven by financial incentive RATHER than

patient DIAGNOSIS.

So without a doubt the bacteria that are all over your eyes are there

in large numbers and are fuelling the inflammation. TAKE IT FROM

SOMEONE THAT PLAYS WITH THESE THINGS DAILY.unfortunately many people

are so focused on there own little thing on forums you lose the

BIGGER PICTURE ..

tony

>

> Greg,

> I disagree with Tony aka Dumbaussie, that it is easy for us laymen

to

> find out what bacteria we are infected with. I do agree with Tony

> that inflammation indicates undiagnosed infection. It may be c.

> pneumonia, but it seems to me that would not be the obvious

diagosis

> with eye inflammation.

>

> I want to make a middle of the road suggestion to you. Forget about

> avoiding D and sun. Try the antibiotics Marshall suggests instead.

If

> your doctor is willing to subject you to methotrexate, then he

should

> be willing to try minocycline which is approved to treat rheumatoid

> arthritis BECAUSE IT REDUCES INFLAMMATION.

>

> He may also be willing to prescribe Zithromax because it also

reduces

> inflammation. Both of these antibiotics are effective against a

> number of bacteria. If you get a bad reaction with the minocycline

> reduce the dose to about 100 mg every third day for awhile.

>

> You may need to taper off the prednisone as well. Assuming you have

> an infection, of course, prednisone is the worst thing you could be

> taking, but you still can't stop it all at once.

>

> Personally I think what works on the MP are the antibiotics, not

the

> D avoidance. YOu may actually need more D, not less. Who knows.

>

> a Carnes

>

> >

> > Hey everybody,

> >

> > My name is Greg, and this is my first time posting on the

> > infection and inflammation group. I was pointed in this direction

> by

> > a very helpful man, . 's website, email correspondence,

and

> > subsequent links and information made me open to the idea, if not

> > entirely convinced, that my chronic eye inflammation is

infectious

> in

> > nature. I have spent the holidays doing nothing but research and

> have

> > come to a few realizations.

> >

> > 1. My onset of scleritis (chronic eye inflammation of the sclera)

3

> > years ago coincided with a few bouts of sinus, ear, and throat

> > infection. I am in the category of those dealing with scleritis

who

> do

> > not show signs of an underlying disease causing the inflammation.

> >

> > 2. I have a history of overexposure to sun. ie: episodes of sun

> > poisoning and snow blindness. This made me interested in the

> possible

> > role of VitD and the MP.

> >

> > 3. My eye inflammation is worse on my left side, the same side in

> > which my ear infections over the last few years have been more

> severe.

> > When my sinuses are irritated or infected, my eyes are worse

making

> > me believe it is all stemming from the same bacterial infection.

> >

> > 4. Almost 2 months ago my scleritis flared up much worse than it

> has

> > ever been. I take this as a sign that the bacteria have been

> > multiplying.

> >

> > I don't want to seem naive, but I can tell from reading here and

> other

> > sources that most are in agreement that chronic inflammation is

> fueled

> > by bacteria. Therefore, my current use of prednisone (I am

> currently

> > tapering), and push by my doctors to go on methotrexate if

> > inflammation is not resolved, will only exaccerbate my infection

and

> > inflammation. It sounds as though the disagreement is how to fight

> > the underlying infection.

> >

> > Of course the MP sounds enticing, but the more I read about Dr.

> > Marshall and the lack of long term testing of the protocol, the

more

> > doubts I have. I'm also worried about the safety of long term low

> > dose antibiotic treatment.

> >

> > Are the members here in any agreement as to the best way to treat

> > chronic eye inflammation? Is benicar combined w/ minocycline and

> VitD

> > avoidance an accepted treatment? I understand I could very likely

> > have fungal infections or coinfections that would require other

> > stronger antibiotics. I also understand that it might be a good

> idea

> > to use the benicar as a therapeutic probe, and see how my

> inflammation

> > responds.

> >

> > I am in the process of cutting out sources of VitD, to test my

> > response and just in case I decide to do MP. I feel as though it

is

> > going to be tough to gauge results if my VitD reduction coincides

> with

> > prednisone weaning and introduction of benicar. Any thoughts or

> > suggestions? I do believe that somehow I can beat this thing, but

I

> > could really use some help. Thanks for listening everybody, and

let

> me

> > know what you think.

> >

> > Greg

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

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Nelly

I just did a recent 'feels like candida probe'- firstly the bacteria

are evident by appearing in large numbers.. Secondly the bacteria

present, killed off red blood cells in the culture agar, which to me

means they are producing a TOXIN. Imagine an organism that can kill

off red cells - WOULD THAT NOT START THE INFLAMMATION PROCESS. simple

science isn't that tough. If your bloodstream is full of destructed

red cells and you have a constant infflammatory condition..you'd be

silly ignoring the bleeding obvious..

tony

> >

> > Greg,

> > I disagree with Tony aka Dumbaussie, that it is easy for us

laymen

> to

> > find out what bacteria we are infected with. I do agree with

Tony

> > that inflammation indicates undiagnosed infection. It may be c.

> > pneumonia, but it seems to me that would not be the obvious

> diagosis

> > with eye inflammation.

> >

> > I want to make a middle of the road suggestion to you. Forget

about

> > avoiding D and sun. Try the antibiotics Marshall suggests

instead.

> If

> > your doctor is willing to subject you to methotrexate, then he

> should

> > be willing to try minocycline which is approved to treat

rheumatoid

> > arthritis BECAUSE IT REDUCES INFLAMMATION.

> >

> > He may also be willing to prescribe Zithromax because it also

> reduces

> > inflammation. Both of these antibiotics are effective against a

> > number of bacteria. If you get a bad reaction with the

minocycline

> > reduce the dose to about 100 mg every third day for awhile.

> >

> > You may need to taper off the prednisone as well. Assuming you

have

> > an infection, of course, prednisone is the worst thing you

could be

> > taking, but you still can't stop it all at once.

> >

> > Personally I think what works on the MP are the antibiotics,

not

> the

> > D avoidance. YOu may actually need more D, not less. Who knows.

> >

> > a Carnes

> >

> > >

> > > Hey everybody,

> > >

> > > My name is Greg, and this is my first time posting on the

> > > infection and inflammation group. I was pointed in this

direction

> > by

> > > a very helpful man, . 's website, email

correspondence,

> and

> > > subsequent links and information made me open to the idea, if

not

> > > entirely convinced, that my chronic eye inflammation is

> infectious

> > in

> > > nature. I have spent the holidays doing nothing but research

and

> > have

> > > come to a few realizations.

> > >

> > > 1. My onset of scleritis (chronic eye inflammation of the

sclera)

> 3

> > > years ago coincided with a few bouts of sinus, ear, and throat

> > > infection. I am in the category of those dealing with

scleritis

> who

> > do

> > > not show signs of an underlying disease causing the

inflammation.

> > >

> > > 2. I have a history of overexposure to sun. ie: episodes of

sun

> > > poisoning and snow blindness. This made me interested in the

> > possible

> > > role of VitD and the MP.

> > >

> > > 3. My eye inflammation is worse on my left side, the same

side in

> > > which my ear infections over the last few years have been

more

> > severe.

> > > When my sinuses are irritated or infected, my eyes are worse

> making

> > > me believe it is all stemming from the same bacterial

infection.

> > >

> > > 4. Almost 2 months ago my scleritis flared up much worse than

it

> > has

> > > ever been. I take this as a sign that the bacteria have been

> > > multiplying.

> > >

> > > I don't want to seem naive, but I can tell from reading here

and

> > other

> > > sources that most are in agreement that chronic inflammation

is

> > fueled

> > > by bacteria. Therefore, my current use of prednisone (I am

> > currently

> > > tapering), and push by my doctors to go on methotrexate if

> > > inflammation is not resolved, will only exaccerbate my

infection

> and

> > > inflammation. It sounds as though the disagreement is how to

fight

> > > the underlying infection.

> > >

> > > Of course the MP sounds enticing, but the more I read about

Dr.

> > > Marshall and the lack of long term testing of the protocol,

the

> more

> > > doubts I have. I'm also worried about the safety of long term

low

> > > dose antibiotic treatment.

> > >

> > > Are the members here in any agreement as to the best way to

treat

> > > chronic eye inflammation? Is benicar combined w/ minocycline

and

> > VitD

> > > avoidance an accepted treatment? I understand I could very

likely

> > > have fungal infections or coinfections that would require

other

> > > stronger antibiotics. I also understand that it might be a

good

> > idea

> > > to use the benicar as a therapeutic probe, and see how my

> > inflammation

> > > responds.

> > >

> > > I am in the process of cutting out sources of VitD, to test my

> > > response and just in case I decide to do MP. I feel as though

it

> is

> > > going to be tough to gauge results if my VitD reduction

coincides

> > with

> > > prednisone weaning and introduction of benicar. Any thoughts

or

> > > suggestions? I do believe that somehow I can beat this thing,

but

> I

> > > could really use some help. Thanks for listening everybody,

and

> let

> > me

> > > know what you think.

> > >

> > > Greg

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

>

>

>

>

>

>

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Nelly

Just to answer your query more cleanly. Without having mmy head

bitten off by a tough french chick.Swabbing the penile area, that

felt like candida, produced large numbers of a particular bacteria

that dominated the region without any other organisms showing up and

it was TOXIC ENOUGH TO EXFOLIATE area's of skin to make the candida

looking yucky appearance many have become familiar with.And the

beauty of this observation is also that the appearnce of this

organiosm and lack of any other organisms, means that the toxic mess

it made of my lower region also had enough destructive force(toxins =

antibiotics) to kill off everything else that may have lived down

there.

I also 'got this irritation', like everyone else gets them- I hadnn't

takjen any antibiotics for a month and had two penicillins left,

which I took together, without any other antibiotic follow up and I

ended up having something to play with (pardon the pun)..since I had

a few culture plates around..

tony

> >

> > Greg,

> > I disagree with Tony aka Dumbaussie, that it is easy for us

laymen

> to

> > find out what bacteria we are infected with. I do agree with

Tony

> > that inflammation indicates undiagnosed infection. It may be c.

> > pneumonia, but it seems to me that would not be the obvious

> diagosis

> > with eye inflammation.

> >

> > I want to make a middle of the road suggestion to you. Forget

about

> > avoiding D and sun. Try the antibiotics Marshall suggests

instead.

> If

> > your doctor is willing to subject you to methotrexate, then he

> should

> > be willing to try minocycline which is approved to treat

rheumatoid

> > arthritis BECAUSE IT REDUCES INFLAMMATION.

> >

> > He may also be willing to prescribe Zithromax because it also

> reduces

> > inflammation. Both of these antibiotics are effective against a

> > number of bacteria. If you get a bad reaction with the

minocycline

> > reduce the dose to about 100 mg every third day for awhile.

> >

> > You may need to taper off the prednisone as well. Assuming you

have

> > an infection, of course, prednisone is the worst thing you

could be

> > taking, but you still can't stop it all at once.

> >

> > Personally I think what works on the MP are the antibiotics,

not

> the

> > D avoidance. YOu may actually need more D, not less. Who knows.

> >

> > a Carnes

> >

> > >

> > > Hey everybody,

> > >

> > > My name is Greg, and this is my first time posting on the

> > > infection and inflammation group. I was pointed in this

direction

> > by

> > > a very helpful man, . 's website, email

correspondence,

> and

> > > subsequent links and information made me open to the idea, if

not

> > > entirely convinced, that my chronic eye inflammation is

> infectious

> > in

> > > nature. I have spent the holidays doing nothing but research

and

> > have

> > > come to a few realizations.

> > >

> > > 1. My onset of scleritis (chronic eye inflammation of the

sclera)

> 3

> > > years ago coincided with a few bouts of sinus, ear, and throat

> > > infection. I am in the category of those dealing with

scleritis

> who

> > do

> > > not show signs of an underlying disease causing the

inflammation.

> > >

> > > 2. I have a history of overexposure to sun. ie: episodes of

sun

> > > poisoning and snow blindness. This made me interested in the

> > possible

> > > role of VitD and the MP.

> > >

> > > 3. My eye inflammation is worse on my left side, the same

side in

> > > which my ear infections over the last few years have been

more

> > severe.

> > > When my sinuses are irritated or infected, my eyes are worse

> making

> > > me believe it is all stemming from the same bacterial

infection.

> > >

> > > 4. Almost 2 months ago my scleritis flared up much worse than

it

> > has

> > > ever been. I take this as a sign that the bacteria have been

> > > multiplying.

> > >

> > > I don't want to seem naive, but I can tell from reading here

and

> > other

> > > sources that most are in agreement that chronic inflammation

is

> > fueled

> > > by bacteria. Therefore, my current use of prednisone (I am

> > currently

> > > tapering), and push by my doctors to go on methotrexate if

> > > inflammation is not resolved, will only exaccerbate my

infection

> and

> > > inflammation. It sounds as though the disagreement is how to

fight

> > > the underlying infection.

> > >

> > > Of course the MP sounds enticing, but the more I read about

Dr.

> > > Marshall and the lack of long term testing of the protocol,

the

> more

> > > doubts I have. I'm also worried about the safety of long term

low

> > > dose antibiotic treatment.

> > >

> > > Are the members here in any agreement as to the best way to

treat

> > > chronic eye inflammation? Is benicar combined w/ minocycline

and

> > VitD

> > > avoidance an accepted treatment? I understand I could very

likely

> > > have fungal infections or coinfections that would require

other

> > > stronger antibiotics. I also understand that it might be a

good

> > idea

> > > to use the benicar as a therapeutic probe, and see how my

> > inflammation

> > > responds.

> > >

> > > I am in the process of cutting out sources of VitD, to test my

> > > response and just in case I decide to do MP. I feel as though

it

> is

> > > going to be tough to gauge results if my VitD reduction

coincides

> > with

> > > prednisone weaning and introduction of benicar. Any thoughts

or

> > > suggestions? I do believe that somehow I can beat this thing,

but

> I

> > > could really use some help. Thanks for listening everybody,

and

> let

> > me

> > > know what you think.

> > >

> > > Greg

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

>

>

>

>

>

>

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Share on other sites

Nelly

I think I answered your query by explaining that your not growing

what is considered a garden variety- BECAUSE WHEN THE RIGHT SEQUENCES

OCCUR, THESE BACTERIA SHOW THERE UGLY SIDE.. GARDEN VARIETY DON'T

HAVE AN UGLY SIDE..

THEN THERE'S THE LACK OF ANY OTHER SPECIES OF THE GARDEN VARIETY,

THAT MAKES THE SITUATION MORE OBVIOUS- NO OTHER BACTERIA CAN GROW

NEARBY SO THAT MAKES IT LIKE A GARDEN THAT WON'T GROW ANYTHING BUT A

CERTAIN WEED AND NO OTHER PLANT CAN TAKE HOLD IN THE VICINITY-

HOUSTON WE HAVE A PROBLEM!!!!

> > >

> > > Greg,

> > > I disagree with Tony aka Dumbaussie, that it is easy for us

> laymen

> > to

> > > find out what bacteria we are infected with. I do agree

with

> Tony

> > > that inflammation indicates undiagnosed infection. It may

be c.

> > > pneumonia, but it seems to me that would not be the obvious

> > diagosis

> > > with eye inflammation.

> > >

> > > I want to make a middle of the road suggestion to you.

Forget

> about

> > > avoiding D and sun. Try the antibiotics Marshall suggests

> instead.

> > If

> > > your doctor is willing to subject you to methotrexate, then

he

> > should

> > > be willing to try minocycline which is approved to treat

> rheumatoid

> > > arthritis BECAUSE IT REDUCES INFLAMMATION.

> > >

> > > He may also be willing to prescribe Zithromax because it

also

> > reduces

> > > inflammation. Both of these antibiotics are effective

against a

> > > number of bacteria. If you get a bad reaction with the

> minocycline

> > > reduce the dose to about 100 mg every third day for awhile.

> > >

> > > You may need to taper off the prednisone as well. Assuming

you

> have

> > > an infection, of course, prednisone is the worst thing you

> could be

> > > taking, but you still can't stop it all at once.

> > >

> > > Personally I think what works on the MP are the

antibiotics,

> not

> > the

> > > D avoidance. YOu may actually need more D, not less. Who

knows.

> > >

> > > a Carnes

> > >

> > > >

> > > > Hey everybody,

> > > >

> > > > My name is Greg, and this is my first time posting on the

> > > > infection and inflammation group. I was pointed in this

> direction

> > > by

> > > > a very helpful man, . 's website, email

> correspondence,

> > and

> > > > subsequent links and information made me open to the

idea, if

> not

> > > > entirely convinced, that my chronic eye inflammation is

> > infectious

> > > in

> > > > nature. I have spent the holidays doing nothing but

research

> and

> > > have

> > > > come to a few realizations.

> > > >

> > > > 1. My onset of scleritis (chronic eye inflammation of the

> sclera)

> > 3

> > > > years ago coincided with a few bouts of sinus, ear, and

throat

> > > > infection. I am in the category of those dealing with

> scleritis

> > who

> > > do

> > > > not show signs of an underlying disease causing the

> inflammation.

> > > >

> > > > 2. I have a history of overexposure to sun. ie: episodes

of

> sun

> > > > poisoning and snow blindness. This made me interested in

the

> > > possible

> > > > role of VitD and the MP.

> > > >

> > > > 3. My eye inflammation is worse on my left side, the same

> side in

> > > > which my ear infections over the last few years have been

> more

> > > severe.

> > > > When my sinuses are irritated or infected, my eyes are

worse

> > making

> > > > me believe it is all stemming from the same bacterial

> infection.

> > > >

> > > > 4. Almost 2 months ago my scleritis flared up much worse

than

> it

> > > has

> > > > ever been. I take this as a sign that the bacteria have

been

> > > > multiplying.

> > > >

> > > > I don't want to seem naive, but I can tell from reading

here

> and

> > > other

> > > > sources that most are in agreement that chronic

inflammation

> is

> > > fueled

> > > > by bacteria. Therefore, my current use of prednisone (I

am

> > > currently

> > > > tapering), and push by my doctors to go on methotrexate if

> > > > inflammation is not resolved, will only exaccerbate my

> infection

> > and

> > > > inflammation. It sounds as though the disagreement is how

to

> fight

> > > > the underlying infection.

> > > >

> > > > Of course the MP sounds enticing, but the more I read

about

> Dr.

> > > > Marshall and the lack of long term testing of the

protocol,

> the

> > more

> > > > doubts I have. I'm also worried about the safety of long

term

> low

> > > > dose antibiotic treatment.

> > > >

> > > > Are the members here in any agreement as to the best way

to

> treat

> > > > chronic eye inflammation? Is benicar combined w/

minocycline

> and

> > > VitD

> > > > avoidance an accepted treatment? I understand I could

very

> likely

> > > > have fungal infections or coinfections that would require

> other

> > > > stronger antibiotics. I also understand that it might be

a

> good

> > > idea

> > > > to use the benicar as a therapeutic probe, and see how my

> > > inflammation

> > > > responds.

> > > >

> > > > I am in the process of cutting out sources of VitD, to

test my

> > > > response and just in case I decide to do MP. I feel as

though

> it

> > is

> > > > going to be tough to gauge results if my VitD reduction

> coincides

> > > with

> > > > prednisone weaning and introduction of benicar. Any

thoughts

> or

> > > > suggestions? I do believe that somehow I can beat this

thing,

> but

> > I

> > > > could really use some help. Thanks for listening

everybody,

> and

> > let

> > > me

> > > > know what you think.

> > > >

> > > > Greg

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Never miss a thing. Make your homepage.

> > >

> >

> >

> >

> >

> >

> >

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Share on other sites

Nelly

That was so funny. But some how I still don't think you want to get

it.

cheers tony

> > >

> > > Greg,

> > > I disagree with Tony aka Dumbaussie, that it is easy for us

> laymen

> > to

> > > find out what bacteria we are infected with. I do agree

with

> Tony

> > > that inflammation indicates undiagnosed infection. It may

be c.

> > > pneumonia, but it seems to me that would not be the obvious

> > diagosis

> > > with eye inflammation.

> > >

> > > I want to make a middle of the road suggestion to you.

Forget

> about

> > > avoiding D and sun. Try the antibiotics Marshall suggests

> instead.

> > If

> > > your doctor is willing to subject you to methotrexate, then

he

> > should

> > > be willing to try minocycline which is approved to treat

> rheumatoid

> > > arthritis BECAUSE IT REDUCES INFLAMMATION.

> > >

> > > He may also be willing to prescribe Zithromax because it

also

> > reduces

> > > inflammation. Both of these antibiotics are effective

against a

> > > number of bacteria. If you get a bad reaction with the

> minocycline

> > > reduce the dose to about 100 mg every third day for awhile.

> > >

> > > You may need to taper off the prednisone as well. Assuming

you

> have

> > > an infection, of course, prednisone is the worst thing you

> could be

> > > taking, but you still can't stop it all at once.

> > >

> > > Personally I think what works on the MP are the

antibiotics,

> not

> > the

> > > D avoidance. YOu may actually need more D, not less. Who

knows.

> > >

> > > a Carnes

> > >

> > > >

> > > > Hey everybody,

> > > >

> > > > My name is Greg, and this is my first time posting on the

> > > > infection and inflammation group. I was pointed in this

> direction

> > > by

> > > > a very helpful man, . 's website, email

> correspondence,

> > and

> > > > subsequent links and information made me open to the

idea, if

> not

> > > > entirely convinced, that my chronic eye inflammation is

> > infectious

> > > in

> > > > nature. I have spent the holidays doing nothing but

research

> and

> > > have

> > > > come to a few realizations.

> > > >

> > > > 1. My onset of scleritis (chronic eye inflammation of the

> sclera)

> > 3

> > > > years ago coincided with a few bouts of sinus, ear, and

throat

> > > > infection. I am in the category of those dealing with

> scleritis

> > who

> > > do

> > > > not show signs of an underlying disease causing the

> inflammation.

> > > >

> > > > 2. I have a history of overexposure to sun. ie: episodes

of

> sun

> > > > poisoning and snow blindness. This made me interested in

the

> > > possible

> > > > role of VitD and the MP.

> > > >

> > > > 3. My eye inflammation is worse on my left side, the same

> side in

> > > > which my ear infections over the last few years have been

> more

> > > severe.

> > > > When my sinuses are irritated or infected, my eyes are

worse

> > making

> > > > me believe it is all stemming from the same bacterial

> infection.

> > > >

> > > > 4. Almost 2 months ago my scleritis flared up much worse

than

> it

> > > has

> > > > ever been. I take this as a sign that the bacteria have

been

> > > > multiplying.

> > > >

> > > > I don't want to seem naive, but I can tell from reading

here

> and

> > > other

> > > > sources that most are in agreement that chronic

inflammation

> is

> > > fueled

> > > > by bacteria. Therefore, my current use of prednisone (I

am

> > > currently

> > > > tapering), and push by my doctors to go on methotrexate if

> > > > inflammation is not resolved, will only exaccerbate my

> infection

> > and

> > > > inflammation. It sounds as though the disagreement is how

to

> fight

> > > > the underlying infection.

> > > >

> > > > Of course the MP sounds enticing, but the more I read

about

> Dr.

> > > > Marshall and the lack of long term testing of the

protocol,

> the

> > more

> > > > doubts I have. I'm also worried about the safety of long

term

> low

> > > > dose antibiotic treatment.

> > > >

> > > > Are the members here in any agreement as to the best way

to

> treat

> > > > chronic eye inflammation? Is benicar combined w/

minocycline

> and

> > > VitD

> > > > avoidance an accepted treatment? I understand I could

very

> likely

> > > > have fungal infections or coinfections that would require

> other

> > > > stronger antibiotics. I also understand that it might be

a

> good

> > > idea

> > > > to use the benicar as a therapeutic probe, and see how my

> > > inflammation

> > > > responds.

> > > >

> > > > I am in the process of cutting out sources of VitD, to

test my

> > > > response and just in case I decide to do MP. I feel as

though

> it

> > is

> > > > going to be tough to gauge results if my VitD reduction

> coincides

> > > with

> > > > prednisone weaning and introduction of benicar. Any

thoughts

> or

> > > > suggestions? I do believe that somehow I can beat this

thing,

> but

> > I

> > > > could really use some help. Thanks for listening

everybody,

> and

> > let

> > > me

> > > > know what you think.

> > > >

> > > > Greg

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Never miss a thing. Make your homepage.

> > >

> >

> >

> >

> >

> >

> >

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Share on other sites

Nelly

I tend to tackle anything that bothers me and find even though the

organisms may be hurting your bone, they also ooze to the surface and

again your can observe there ugly side...This idea of needing to get

in deep to find a huge problem is a little rediculoius IMO because we

have a massive problem that isn't that hidden.

IMO

toiny

> > >

> > > Greg,

> > > I disagree with Tony aka Dumbaussie, that it is easy

for us

> laymen

> > to

> > > find out what bacteria we are infected with. I do agree

with

> Tony

> > > that inflammation indicates undiagnosed infection. It

may be c.

> > > pneumonia, but it seems to me that would not be the

obvious

> > diagosis

> > > with eye inflammation.

> > >

> > > I want to make a middle of the road suggestion to you.

Forget

> about

> > > avoiding D and sun. Try the antibiotics Marshall

suggests

> instead.

> > If

> > > your doctor is willing to subject you to methotrexate,

then he

> > should

> > > be willing to try minocycline which is approved to

treat

> rheumatoid

> > > arthritis BECAUSE IT REDUCES INFLAMMATION.

> > >

> > > He may also be willing to prescribe Zithromax because

it also

> > reduces

> > > inflammation. Both of these antibiotics are effective

against a

> > > number of bacteria. If you get a bad reaction with the

> minocycline

> > > reduce the dose to about 100 mg every third day for

awhile.

> > >

> > > You may need to taper off the prednisone as well.

Assuming you

> have

> > > an infection, of course, prednisone is the worst thing

you

> could be

> > > taking, but you still can't stop it all at once.

> > >

> > > Personally I think what works on the MP are the

antibiotics,

> not

> > the

> > > D avoidance. YOu may actually need more D, not less.

Who knows.

> > >

> > > a Carnes

> > >

> > > >

> > > > Hey everybody,

> > > >

> > > > My name is Greg, and this is my first time posting on

the

> > > > infection and inflammation group. I was pointed in

this

> direction

> > > by

> > > > a very helpful man, . 's website, email

> correspondence,

> > and

> > > > subsequent links and information made me open to the

idea, if

> not

> > > > entirely convinced, that my chronic eye inflammation

is

> > infectious

> > > in

> > > > nature. I have spent the holidays doing nothing but

research

> and

> > > have

> > > > come to a few realizations.

> > > >

> > > > 1. My onset of scleritis (chronic eye inflammation of

the

> sclera)

> > 3

> > > > years ago coincided with a few bouts of sinus, ear,

and throat

> > > > infection. I am in the category of those dealing with

> scleritis

> > who

> > > do

> > > > not show signs of an underlying disease causing the

> inflammation.

> > > >

> > > > 2. I have a history of overexposure to sun. ie:

episodes of

> sun

> > > > poisoning and snow blindness. This made me interested

in the

> > > possible

> > > > role of VitD and the MP.

> > > >

> > > > 3. My eye inflammation is worse on my left side, the

same

> side in

> > > > which my ear infections over the last few years have

been

> more

> > > severe.

> > > > When my sinuses are irritated or infected, my eyes

are worse

> > making

> > > > me believe it is all stemming from the same bacterial

> infection.

> > > >

> > > > 4. Almost 2 months ago my scleritis flared up much

worse than

> it

> > > has

> > > > ever been. I take this as a sign that the bacteria

have been

> > > > multiplying.

> > > >

> > > > I don't want to seem naive, but I can tell from

reading here

> and

> > > other

> > > > sources that most are in agreement that chronic

inflammation

> is

> > > fueled

> > > > by bacteria. Therefore, my current use of prednisone

(I am

> > > currently

> > > > tapering), and push by my doctors to go on

methotrexate if

> > > > inflammation is not resolved, will only exaccerbate

my

> infection

> > and

> > > > inflammation. It sounds as though the disagreement is

how to

> fight

> > > > the underlying infection.

> > > >

> > > > Of course the MP sounds enticing, but the more I read

about

> Dr.

> > > > Marshall and the lack of long term testing of the

protocol,

> the

> > more

> > > > doubts I have. I'm also worried about the safety of

long term

> low

> > > > dose antibiotic treatment.

> > > >

> > > > Are the members here in any agreement as to the best

way to

> treat

> > > > chronic eye inflammation? Is benicar combined w/

minocycline

> and

> > > VitD

> > > > avoidance an accepted treatment? I understand I could

very

> likely

> > > > have fungal infections or coinfections that would

require

> other

> > > > stronger antibiotics.. I also understand that it

might be a

> good

> > > idea

> > > > to use the benicar as a therapeutic probe, and see

how my

> > > inflammation

> > > > responds.

> > > >

> > > > I am in the process of cutting out sources of VitD,

to test my

> > > > response and just in case I decide to do MP. I feel

as though

> it

> > is

> > > > going to be tough to gauge results if my VitD

reduction

> coincides

> > > with

> > > > prednisone weaning and introduction of benicar. Any

thoughts

> or

> > > > suggestions? I do believe that somehow I can beat

this thing,

> but

> > I

> > > > could really use some help. Thanks for listening

everybody,

> and

> > let

> > > me

> > > > know what you think.

> > > >

> > > > Greg

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Never miss a thing. Make your homepage.

> > >

> >

> >

> >

> >

> >

> >

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Share on other sites

Nelly

I look at it like this, we need to get to the edge of a foci of

infection and keep chiseling it down..We do need though to adopt a

multidisciplined approach that can't turn--- or that we can

monitor..They really do cover this with tuberculosis treatment- you

can see the use of many agents, some not antibacterial, just aiding

the antibacterial drugs to do there job well.

As you can see the younger members bounce back well which obviously

means they may have less foci spots to clear..Many have to keep

improving themselves monthly at all costs and get closer to leading a

normal life.

> > > >

> > > > Greg,

> > > > I disagree with Tony aka Dumbaussie, that it is easy

for us

> > laymen

> > > to

> > > > find out what bacteria we are infected with. I do agree

> with

> > Tony

> > > > that inflammation indicates undiagnosed infection. It

may

> be c.

> > > > pneumonia, but it seems to me that would not be the

obvious

> > > diagosis

> > > > with eye inflammation.

> > > >

> > > > I want to make a middle of the road suggestion to you.

> Forget

> > about

> > > > avoiding D and sun. Try the antibiotics Marshall

suggests

> > instead.

> > > If

> > > > your doctor is willing to subject you to methotrexate,

then

> he

> > > should

> > > > be willing to try minocycline which is approved to

treat

> > rheumatoid

> > > > arthritis BECAUSE IT REDUCES INFLAMMATION.

> > > >

> > > > He may also be willing to prescribe Zithromax because

it

> also

> > > reduces

> > > > inflammation. Both of these antibiotics are effective

> against a

> > > > number of bacteria. If you get a bad reaction with the

> > minocycline

> > > > reduce the dose to about 100 mg every third day for

awhile.

> > > >

> > > > You may need to taper off the prednisone as well.

Assuming

> you

> > have

> > > > an infection, of course, prednisone is the worst thing

you

> > could be

> > > > taking, but you still can't stop it all at once.

> > > >

> > > > Personally I think what works on the MP are the

> antibiotics,

> > not

> > > the

> > > > D avoidance. YOu may actually need more D, not less.

Who

> knows.

> > > >

> > > > a Carnes

> > > >

> > > > >

> > > > > Hey everybody,

> > > > >

> > > > > My name is Greg, and this is my first time posting on

the

> > > > > infection and inflammation group. I was pointed in

this

> > direction

> > > > by

> > > > > a very helpful man, . 's website, email

> > correspondence,

> > > and

> > > > > subsequent links and information made me open to the

> idea, if

> > not

> > > > > entirely convinced, that my chronic eye inflammation

is

> > > infectious

> > > > in

> > > > > nature. I have spent the holidays doing nothing but

> research

> > and

> > > > have

> > > > > come to a few realizations.

> > > > >

> > > > > 1. My onset of scleritis (chronic eye inflammation of

the

> > sclera)

> > > 3

> > > > > years ago coincided with a few bouts of sinus, ear,

and

> throat

> > > > > infection. I am in the category of those dealing with

> > scleritis

> > > who

> > > > do

> > > > > not show signs of an underlying disease causing the

> > inflammation.

> > > > >

> > > > > 2. I have a history of overexposure to sun. ie:

episodes

> of

> > sun

> > > > > poisoning and snow blindness. This made me interested

in

> the

> > > > possible

> > > > > role of VitD and the MP.

> > > > >

> > > > > 3. My eye inflammation is worse on my left side, the

same

> > side in

> > > > > which my ear infections over the last few years have

been

> > more

> > > > severe.

> > > > > When my sinuses are irritated or infected, my eyes

are

> worse

> > > making

> > > > > me believe it is all stemming from the same bacterial

> > infection.

> > > > >

> > > > > 4. Almost 2 months ago my scleritis flared up much

worse

> than

> > it

> > > > has

> > > > > ever been. I take this as a sign that the bacteria

have

> been

> > > > > multiplying.

> > > > >

> > > > > I don't want to seem naive, but I can tell from

reading

> here

> > and

> > > > other

> > > > > sources that most are in agreement that chronic

> inflammation

> > is

> > > > fueled

> > > > > by bacteria. Therefore, my current use of prednisone

(I

> am

> > > > currently

> > > > > tapering), and push by my doctors to go on

methotrexate if

> > > > > inflammation is not resolved, will only exaccerbate

my

> > infection

> > > and

> > > > > inflammation. It sounds as though the disagreement is

how

> to

> > fight

> > > > > the underlying infection.

> > > > >

> > > > > Of course the MP sounds enticing, but the more I read

> about

> > Dr.

> > > > > Marshall and the lack of long term testing of the

> protocol,

> > the

> > > more

> > > > > doubts I have. I'm also worried about the safety of

long

> term

> > low

> > > > > dose antibiotic treatment.

> > > > >

> > > > > Are the members here in any agreement as to the best

way

> to

> > treat

> > > > > chronic eye inflammation? Is benicar combined w/

> minocycline

> > and

> > > > VitD

> > > > > avoidance an accepted treatment? I understand I could

> very

> > likely

> > > > > have fungal infections or coinfections that would

require

> > other

> > > > > stronger antibiotics. I also understand that it might

be

> a

> > good

> > > > idea

> > > > > to use the benicar as a therapeutic probe, and see

how my

> > > > inflammation

> > > > > responds.

> > > > >

> > > > > I am in the process of cutting out sources of VitD,

to

> test my

> > > > > response and just in case I decide to do MP. I feel

as

> though

> > it

> > > is

> > > > > going to be tough to gauge results if my VitD

reduction

> > coincides

> > > > with

> > > > > prednisone weaning and introduction of benicar. Any

> thoughts

> > or

> > > > > suggestions? I do believe that somehow I can beat

this

> thing,

> > but

> > > I

> > > > > could really use some help. Thanks for listening

> everybody,

> > and

> > > let

> > > > me

> > > > > know what you think.

> > > > >

> > > > > Greg

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Never miss a thing. Make your homepage.

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

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Share on other sites

This is an interesting topic because in my book on clinical use of

antibiotics. People with liver infections- surgery was the obvious

choice, but hard longer term treatment with tetracyclines would

sometimes avoid the need for surgery..this is a tip that tells me

since we have got these tough area's, but due to dissemination of our

infection, a decent long term antibiotic treatment approach and

making sure there's improvement, may be the best starting position..

Then understanding that if you can't resolve the problem a solution

or answer may come from removal of bad tissue.. In my case I know I

have cysts alongside my spine and even though i had a few removed

early in my life (before ill) there have been a few that still

bothered me, even though I wasn't unwell ..

> > > > >

> > > > > Greg,

> > > > > I disagree with Tony aka Dumbaussie, that it is easy

> for us

> > > laymen

> > > > to

> > > > > find out what bacteria we are infected with. I do

agree

> > with

> > > Tony

> > > > > that inflammation indicates undiagnosed infection. It

> may

> > be c.

> > > > > pneumonia, but it seems to me that would not be the

> obvious

> > > > diagosis

> > > > > with eye inflammation.

> > > > >

> > > > > I want to make a middle of the road suggestion to

you.

> > Forget

> > > about

> > > > > avoiding D and sun. Try the antibiotics Marshall

> suggests

> > > instead.

> > > > If

> > > > > your doctor is willing to subject you to

methotrexate,

> then

> > he

> > > > should

> > > > > be willing to try minocycline which is approved to

> treat

> > > rheumatoid

> > > > > arthritis BECAUSE IT REDUCES INFLAMMATION.

> > > > >

> > > > > He may also be willing to prescribe Zithromax because

> it

> > also

> > > > reduces

> > > > > inflammation. Both of these antibiotics are effective

> > against a

> > > > > number of bacteria. If you get a bad reaction with

the

> > > minocycline

> > > > > reduce the dose to about 100 mg every third day for

> awhile.

> > > > >

> > > > > You may need to taper off the prednisone as well.

> Assuming

> > you

> > > have

> > > > > an infection, of course, prednisone is the worst

thing

> you

> > > could be

> > > > > taking, but you still can't stop it all at once.

> > > > >

> > > > > Personally I think what works on the MP are the

> > antibiotics,

> > > not

> > > > the

> > > > > D avoidance. YOu may actually need more D, not less.

> Who

> > knows.

> > > > >

> > > > > a Carnes

> > > > >

> > > > > >

> > > > > > Hey everybody,

> > > > > >

> > > > > > My name is Greg, and this is my first time posting

on

> the

> > > > > > infection and inflammation group. I was pointed in

> this

> > > direction

> > > > > by

> > > > > > a very helpful man, . 's website, email

> > > correspondence,

> > > > and

> > > > > > subsequent links and information made me open to

the

> > idea, if

> > > not

> > > > > > entirely convinced, that my chronic eye

inflammation

> is

> > > > infectious

> > > > > in

> > > > > > nature. I have spent the holidays doing nothing but

> > research

> > > and

> > > > > have

> > > > > > come to a few realizations.

> > > > > >

> > > > > > 1. My onset of scleritis (chronic eye inflammation

of

> the

> > > sclera)

> > > > 3

> > > > > > years ago coincided with a few bouts of sinus, ear,

> and

> > throat

> > > > > > infection. I am in the category of those dealing

with

> > > scleritis

> > > > who

> > > > > do

> > > > > > not show signs of an underlying disease causing the

> > > inflammation.

> > > > > >

> > > > > > 2. I have a history of overexposure to sun. ie:

> episodes

> > of

> > > sun

> > > > > > poisoning and snow blindness. This made me

interested

> in

> > the

> > > > > possible

> > > > > > role of VitD and the MP.

> > > > > >

> > > > > > 3. My eye inflammation is worse on my left side,

the

> same

> > > side in

> > > > > > which my ear infections over the last few years

have

> been

> > > more

> > > > > severe.

> > > > > > When my sinuses are irritated or infected, my eyes

> are

> > worse

> > > > making

> > > > > > me believe it is all stemming from the same

bacterial

> > > infection.

> > > > > >

> > > > > > 4. Almost 2 months ago my scleritis flared up much

> worse

> > than

> > > it

> > > > > has

> > > > > > ever been. I take this as a sign that the bacteria

> have

> > been

> > > > > > multiplying.

> > > > > >

> > > > > > I don't want to seem naive, but I can tell from

> reading

> > here

> > > and

> > > > > other

> > > > > > sources that most are in agreement that chronic

> > inflammation

> > > is

> > > > > fueled

> > > > > > by bacteria. Therefore, my current use of

prednisone

> (I

> > am

> > > > > currently

> > > > > > tapering), and push by my doctors to go on

> methotrexate if

> > > > > > inflammation is not resolved, will only exaccerbate

> my

> > > infection

> > > > and

> > > > > > inflammation. It sounds as though the disagreement

is

> how

> > to

> > > fight

> > > > > > the underlying infection.

> > > > > >

> > > > > > Of course the MP sounds enticing, but the more I

read

> > about

> > > Dr.

> > > > > > Marshall and the lack of long term testing of the

> > protocol,

> > > the

> > > > more

> > > > > > doubts I have. I'm also worried about the safety of

> long

> > term

> > > low

> > > > > > dose antibiotic treatment.

> > > > > >

> > > > > > Are the members here in any agreement as to the

best

> way

> > to

> > > treat

> > > > > > chronic eye inflammation? Is benicar combined w/

> > minocycline

> > > and

> > > > > VitD

> > > > > > avoidance an accepted treatment? I understand I

could

> > very

> > > likely

> > > > > > have fungal infections or coinfections that would

> require

> > > other

> > > > > > stronger antibiotics. I also understand that it

might

> be

> > a

> > > good

> > > > > idea

> > > > > > to use the benicar as a therapeutic probe, and see

> how my

> > > > > inflammation

> > > > > > responds.

> > > > > >

> > > > > > I am in the process of cutting out sources of VitD,

> to

> > test my

> > > > > > response and just in case I decide to do MP. I feel

> as

> > though

> > > it

> > > > is

> > > > > > going to be tough to gauge results if my VitD

> reduction

> > > coincides

> > > > > with

> > > > > > prednisone weaning and introduction of benicar. Any

> > thoughts

> > > or

> > > > > > suggestions? I do believe that somehow I can beat

> this

> > thing,

> > > but

> > > > I

> > > > > > could really use some help. Thanks for listening

> > everybody,

> > > and

> > > > let

> > > > > me

> > > > > > know what you think.

> > > > > >

> > > > > > Greg

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Never miss a thing. Make your homepage.

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Share on other sites

More on that NElly. There was a lady that had endometreosis surgery

and she swore it fixed her fibromyalgia..On further questioning she

was lucky to get some decent amounts of IV antibiotics for a feared C

diff infection, that supposedly came about because of her being given

antibiotics for profilactic infection use.

> > > > >

> > > > > Greg,

> > > > > I disagree with Tony aka Dumbaussie, that it is easy

> for us

> > > laymen

> > > > to

> > > > > find out what bacteria we are infected with. I do

agree

> > with

> > > Tony

> > > > > that inflammation indicates undiagnosed infection. It

> may

> > be c.

> > > > > pneumonia, but it seems to me that would not be the

> obvious

> > > > diagosis

> > > > > with eye inflammation.

> > > > >

> > > > > I want to make a middle of the road suggestion to

you.

> > Forget

> > > about

> > > > > avoiding D and sun. Try the antibiotics Marshall

> suggests

> > > instead.

> > > > If

> > > > > your doctor is willing to subject you to

methotrexate,

> then

> > he

> > > > should

> > > > > be willing to try minocycline which is approved to

> treat

> > > rheumatoid

> > > > > arthritis BECAUSE IT REDUCES INFLAMMATION.

> > > > >

> > > > > He may also be willing to prescribe Zithromax because

> it

> > also

> > > > reduces

> > > > > inflammation. Both of these antibiotics are effective

> > against a

> > > > > number of bacteria. If you get a bad reaction with

the

> > > minocycline

> > > > > reduce the dose to about 100 mg every third day for

> awhile.

> > > > >

> > > > > You may need to taper off the prednisone as well.

> Assuming

> > you

> > > have

> > > > > an infection, of course, prednisone is the worst

thing

> you

> > > could be

> > > > > taking, but you still can't stop it all at once.

> > > > >

> > > > > Personally I think what works on the MP are the

> > antibiotics,

> > > not

> > > > the

> > > > > D avoidance. YOu may actually need more D, not less.

> Who

> > knows.

> > > > >

> > > > > a Carnes

> > > > >

> > > > > >

> > > > > > Hey everybody,

> > > > > >

> > > > > > My name is Greg, and this is my first time posting

on

> the

> > > > > > infection and inflammation group. I was pointed in

> this

> > > direction

> > > > > by

> > > > > > a very helpful man, . 's website, email

> > > correspondence,

> > > > and

> > > > > > subsequent links and information made me open to

the

> > idea, if

> > > not

> > > > > > entirely convinced, that my chronic eye

inflammation

> is

> > > > infectious

> > > > > in

> > > > > > nature. I have spent the holidays doing nothing but

> > research

> > > and

> > > > > have

> > > > > > come to a few realizations.

> > > > > >

> > > > > > 1. My onset of scleritis (chronic eye inflammation

of

> the

> > > sclera)

> > > > 3

> > > > > > years ago coincided with a few bouts of sinus, ear,

> and

> > throat

> > > > > > infection. I am in the category of those dealing

with

> > > scleritis

> > > > who

> > > > > do

> > > > > > not show signs of an underlying disease causing the

> > > inflammation.

> > > > > >

> > > > > > 2. I have a history of overexposure to sun. ie:

> episodes

> > of

> > > sun

> > > > > > poisoning and snow blindness. This made me

interested

> in

> > the

> > > > > possible

> > > > > > role of VitD and the MP.

> > > > > >

> > > > > > 3. My eye inflammation is worse on my left side,

the

> same

> > > side in

> > > > > > which my ear infections over the last few years

have

> been

> > > more

> > > > > severe.

> > > > > > When my sinuses are irritated or infected, my eyes

> are

> > worse

> > > > making

> > > > > > me believe it is all stemming from the same

bacterial

> > > infection.

> > > > > >

> > > > > > 4. Almost 2 months ago my scleritis flared up much

> worse

> > than

> > > it

> > > > > has

> > > > > > ever been. I take this as a sign that the bacteria

> have

> > been

> > > > > > multiplying.

> > > > > >

> > > > > > I don't want to seem naive, but I can tell from

> reading

> > here

> > > and

> > > > > other

> > > > > > sources that most are in agreement that chronic

> > inflammation

> > > is

> > > > > fueled

> > > > > > by bacteria. Therefore, my current use of

prednisone

> (I

> > am

> > > > > currently

> > > > > > tapering), and push by my doctors to go on

> methotrexate if

> > > > > > inflammation is not resolved, will only exaccerbate

> my

> > > infection

> > > > and

> > > > > > inflammation. It sounds as though the disagreement

is

> how

> > to

> > > fight

> > > > > > the underlying infection.

> > > > > >

> > > > > > Of course the MP sounds enticing, but the more I

read

> > about

> > > Dr.

> > > > > > Marshall and the lack of long term testing of the

> > protocol,

> > > the

> > > > more

> > > > > > doubts I have. I'm also worried about the safety of

> long

> > term

> > > low

> > > > > > dose antibiotic treatment.

> > > > > >

> > > > > > Are the members here in any agreement as to the

best

> way

> > to

> > > treat

> > > > > > chronic eye inflammation? Is benicar combined w/

> > minocycline

> > > and

> > > > > VitD

> > > > > > avoidance an accepted treatment? I understand I

could

> > very

> > > likely

> > > > > > have fungal infections or coinfections that would

> require

> > > other

> > > > > > stronger antibiotics. I also understand that it

might

> be

> > a

> > > good

> > > > > idea

> > > > > > to use the benicar as a therapeutic probe, and see

> how my

> > > > > inflammation

> > > > > > responds.

> > > > > >

> > > > > > I am in the process of cutting out sources of VitD,

> to

> > test my

> > > > > > response and just in case I decide to do MP. I feel

> as

> > though

> > > it

> > > > is

> > > > > > going to be tough to gauge results if my VitD

> reduction

> > > coincides

> > > > > with

> > > > > > prednisone weaning and introduction of benicar. Any

> > thoughts

> > > or

> > > > > > suggestions? I do believe that somehow I can beat

> this

> > thing,

> > > but

> > > > I

> > > > > > could really use some help. Thanks for listening

> > everybody,

> > > and

> > > > let

> > > > > me

> > > > > > know what you think.

> > > > > >

> > > > > > Greg

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Never miss a thing. Make your homepage.

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

Link to comment
Share on other sites

Nelly

If you go back to any of your cultures, the missing link is the staph

epi that is often the only thing that's there- isn't being

reported...You know how that goes and the way the system works...If

you send a thorat swab to a lab without huge amounts of specific

requests, all they tell you is ytou have no pathogens detected.

All labs are doing is checking you don't have streptococcus

pyogenes..Everything else is irrelevant unless they are grilled by a

caring doctor.The same things happen with UTI cultures- I grow staph

epi till the cows come home and it never gets reported because the

urine didn't cloud up.Clouding of the urine is the labs impression of

a UTI, any bug that avoids this isn't causing you problems, yet I

recall my urine looking like I was shredding large amounts of my

bladder on many occasions, only to get everythings normal on a report.

Another thing I recall was my shins oozing a clear liquid, like

biofilm(slime) early in the disease.... so I really don't think a

huge problem is that invisable. Also I can just about culture my

elbow and see similar bacterial patterns six months apart, so I feel

confident the established organisms that are causing rot in a joint,

have a foothold that we know is hard to clear... so your usual

culprits are dominating over a long stretch and learning about these

residents ain't a bad exercise.. it sure beats knowing nothing..And

as ironic as this sounds my father died from pneumonia and no

organisms were identified in his labs..

> > > > >

> > > > > Greg,

> > > > > I disagree with Tony aka Dumbaussie, that it is

easy

> for us

> > > laymen

> > > > to

> > > > > find out what bacteria we are infected with. I do

agree

> > with

> > > Tony

> > > > > that inflammation indicates undiagnosed infection.

It

> may

> > be c.

> > > > > pneumonia, but it seems to me that would not be the

> obvious

> > > > diagosis

> > > > > with eye inflammation.

> > > > >

> > > > > I want to make a middle of the road suggestion to

you.

> > Forget

> > > about

> > > > > avoiding D and sun. Try the antibiotics Marshall

> suggests

> > > instead.

> > > > If

> > > > > your doctor is willing to subject you to

methotrexate,

> then

> > he

> > > > should

> > > > > be willing to try minocycline which is approved to

> treat

> > > rheumatoid

> > > > > arthritis BECAUSE IT REDUCES INFLAMMATION.

> > > > >

> > > > > He may also be willing to prescribe Zithromax

because

> it

> > also

> > > > reduces

> > > > > inflammation. Both of these antibiotics are

effective

> > against a

> > > > > number of bacteria. If you get a bad reaction with

the

> > > minocycline

> > > > > reduce the dose to about 100 mg every third day for

> awhile.

> > > > >

> > > > > You may need to taper off the prednisone as well.

> Assuming

> > you

> > > have

> > > > > an infection, of course, prednisone is the worst

thing

> you

> > > could be

> > > > > taking, but you still can't stop it all at once.

> > > > >

> > > > > Personally I think what works on the MP are the

> > antibiotics,

> > > not

> > > > the

> > > > > D avoidance. YOu may actually need more D, not

less.

> Who

> > knows.

> > > > >

> > > > > a Carnes

> > > > >

> > > > > >

> > > > > > Hey everybody,

> > > > > >

> > > > > > My name is Greg, and this is my first time

posting on

> the

> > > > > > infection and inflammation group. I was pointed

in

> this

> > > direction

> > > > > by

> > > > > > a very helpful man, . 's website, email

> > > correspondence,

> > > > and

> > > > > > subsequent links and information made me open to

the

> > idea, if

> > > not

> > > > > > entirely convinced, that my chronic eye

inflammation

> is

> > > > infectious

> > > > > in

> > > > > > nature. I have spent the holidays doing nothing

but

> > research

> > > and

> > > > > have

> > > > > > come to a few realizations.

> > > > > >

> > > > > > 1. My onset of scleritis (chronic eye

inflammation of

> the

> > > sclera)

> > > > 3

> > > > > > years ago coincided with a few bouts of sinus,

ear,

> and

> > throat

> > > > > > infection. I am in the category of those dealing

with

> > > scleritis

> > > > who

> > > > > do

> > > > > > not show signs of an underlying disease causing

the

> > > inflammation.

> > > > > >

> > > > > > 2. I have a history of overexposure to sun. ie:

> episodes

> > of

> > > sun

> > > > > > poisoning and snow blindness. This made me

interested

> in

> > the

> > > > > possible

> > > > > > role of VitD and the MP.

> > > > > >

> > > > > > 3. My eye inflammation is worse on my left side,

the

> same

> > > side in

> > > > > > which my ear infections over the last few years

have

> been

> > > more

> > > > > severe.

> > > > > > When my sinuses are irritated or infected, my

eyes

> are

> > worse

> > > > making

> > > > > > me believe it is all stemming from the same

bacterial

> > > infection.

> > > > > >

> > > > > > 4. Almost 2 months ago my scleritis flared up

much

> worse

> > than

> > > it

> > > > > has

> > > > > > ever been. I take this as a sign that the

bacteria

> have

> > been

> > > > > > multiplying.

> > > > > >

> > > > > > I don't want to seem naive, but I can tell from

> reading

> > here

> > > and

> > > > > other

> > > > > > sources that most are in agreement that chronic

> > inflammation

> > > is

> > > > > fueled

> > > > > > by bacteria. Therefore, my current use of

prednisone

> (I

> > am

> > > > > currently

> > > > > > tapering), and push by my doctors to go on

> methotrexate if

> > > > > > inflammation is not resolved, will only

exaccerbate

> my

> > > infection

> > > > and

> > > > > > inflammation. It sounds as though the

disagreement is

> how

> > to

> > > fight

> > > > > > the underlying infection.

> > > > > >

> > > > > > Of course the MP sounds enticing, but the more I

read

> > about

> > > Dr.

> > > > > > Marshall and the lack of long term testing of the

> > protocol,

> > > the

> > > > more

> > > > > > doubts I have. I'm also worried about the safety

of

> long

> > term

> > > low

> > > > > > dose antibiotic treatment.

> > > > > >

> > > > > > Are the members here in any agreement as to the

best

> way

> > to

> > > treat

> > > > > > chronic eye inflammation? Is benicar combined w/

> > minocycline

> > > and

> > > > > VitD

> > > > > > avoidance an accepted treatment? I understand I

could

> > very

> > > likely

> > > > > > have fungal infections or coinfections that would

> require

> > > other

> > > > > > stronger antibiotics. I also understand that it

might

> be

> > a

> > > good

> > > > > idea

> > > > > > to use the benicar as a therapeutic probe, and

see

> how my

> > > > > inflammation

> > > > > > responds.

> > > > > >

> > > > > > I am in the process of cutting out sources of

VitD,

> to

> > test my

> > > > > > response and just in case I decide to do MP. I

feel

> as

> > though

> > > it

> > > > is

> > > > > > going to be tough to gauge results if my VitD

> reduction

> > > coincides

> > > > > with

> > > > > > prednisone weaning and introduction of benicar.

Any

> > thoughts

> > > or

> > > > > > suggestions? I do believe that somehow I can beat

> this

> > thing,

> > > but

> > > > I

> > > > > > could really use some help. Thanks for listening

> > everybody,

> > > and

> > > > let

> > > > > me

> > > > > > know what you think.

> > > > > >

> > > > > > Greg

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Never miss a thing. Make your homepage.

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Share on other sites

Penny an interesting post. An article in the news recently stated

categorily- that all the steroid and antibiotic treatments attempted

in sinus and ear infections, are a complete waste of time.Your basic

doctors appointment and his attempt at a fix are a failure.You could

possably get a btter outcome with someone that isn't shy of doing the

job right. I noticed sprtspeople with infections get them treated at

the serious fix end of the scale -no half measures for them.

> >

> > Greg,

> > I disagree with Tony aka Dumbaussie, that it is easy for us

laymen

> to

> > find out what bacteria we are infected with. I do agree with Tony

> > that inflammation indicates undiagnosed infection. It may be c.

> > pneumonia, but it seems to me that would not be the obvious

> diagosis

> > with eye inflammation.

> >

> > I want to make a middle of the road suggestion to you. Forget

about

> > avoiding D and sun. Try the antibiotics Marshall suggests

instead.

> If

> > your doctor is willing to subject you to methotrexate, then he

> should

> > be willing to try minocycline which is approved to treat

rheumatoid

> > arthritis BECAUSE IT REDUCES INFLAMMATION.

> >

> > He may also be willing to prescribe Zithromax because it also

> reduces

> > inflammation. Both of these antibiotics are effective against a

> > number of bacteria. If you get a bad reaction with the

minocycline

> > reduce the dose to about 100 mg every third day for awhile.

> >

> > You may need to taper off the prednisone as well. Assuming you

have

> > an infection, of course, prednisone is the worst thing you could

be

> > taking, but you still can't stop it all at once.

> >

> > Personally I think what works on the MP are the antibiotics, not

> the

> > D avoidance. YOu may actually need more D, not less. Who knows.

> >

> > a Carnes

> >

> > >

> > > Hey everybody,

> > >

> > > My name is Greg, and this is my first time posting on the

> > > infection and inflammation group. I was pointed in this

direction

> > by

> > > a very helpful man, . 's website, email correspondence,

> and

> > > subsequent links and information made me open to the idea, if

not

> > > entirely convinced, that my chronic eye inflammation is

> infectious

> > in

> > > nature. I have spent the holidays doing nothing but research

and

> > have

> > > come to a few realizations.

> > >

> > > 1. My onset of scleritis (chronic eye inflammation of the

sclera)

> 3

> > > years ago coincided with a few bouts of sinus, ear, and throat

> > > infection. I am in the category of those dealing with scleritis

> who

> > do

> > > not show signs of an underlying disease causing the

inflammation.

> > >

> > > 2. I have a history of overexposure to sun. ie: episodes of sun

> > > poisoning and snow blindness. This made me interested in the

> > possible

> > > role of VitD and the MP.

> > >

> > > 3. My eye inflammation is worse on my left side, the same side

in

> > > which my ear infections over the last few years have been more

> > severe.

> > > When my sinuses are irritated or infected, my eyes are worse

> making

> > > me believe it is all stemming from the same bacterial infection.

> > >

> > > 4. Almost 2 months ago my scleritis flared up much worse than

it

> > has

> > > ever been. I take this as a sign that the bacteria have been

> > > multiplying.

> > >

> > > I don't want to seem naive, but I can tell from reading here

and

> > other

> > > sources that most are in agreement that chronic inflammation is

> > fueled

> > > by bacteria. Therefore, my current use of prednisone (I am

> > currently

> > > tapering), and push by my doctors to go on methotrexate if

> > > inflammation is not resolved, will only exaccerbate my

infection

> and

> > > inflammation. It sounds as though the disagreement is how to

fight

> > > the underlying infection.

> > >

> > > Of course the MP sounds enticing, but the more I read about Dr.

> > > Marshall and the lack of long term testing of the protocol, the

> more

> > > doubts I have. I'm also worried about the safety of long term

low

> > > dose antibiotic treatment.

> > >

> > > Are the members here in any agreement as to the best way to

treat

> > > chronic eye inflammation? Is benicar combined w/ minocycline

and

> > VitD

> > > avoidance an accepted treatment? I understand I could very

likely

> > > have fungal infections or coinfections that would require other

> > > stronger antibiotics. I also understand that it might be a good

> > idea

> > > to use the benicar as a therapeutic probe, and see how my

> > inflammation

> > > responds.

> > >

> > > I am in the process of cutting out sources of VitD, to test my

> > > response and just in case I decide to do MP. I feel as though

it

> is

> > > going to be tough to gauge results if my VitD reduction

coincides

> > with

> > > prednisone weaning and introduction of benicar. Any thoughts or

> > > suggestions? I do believe that somehow I can beat this thing,

but

> I

> > > could really use some help. Thanks for listening everybody, and

> let

> > me

> > > know what you think.

> > >

> > > Greg

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

>

>

>

>

>

>

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Share on other sites

Greg

M ke boards s uffed..I hink he advice our ge ing is grea hough.

cheers

> >

> > Greg,

> > I disagree with Tony aka Dumbaussie, that it is easy for us

laymen

> to

> > find out what bacteria we are infected with. I do agree with

Tony

> > that inflammation indicates undiagnosed infection. It may be c.

> > pneumonia, but it seems to me that would not be the obvious

> diagosis

> > with eye inflammation.

> >

> > I want to make a middle of the road suggestion to you. Forget

about

> > avoiding D and sun. Try the antibiotics Marshall suggests

instead.

> If

> > your doctor is willing to subject you to methotrexate, then he

> should

> > be willing to try minocycline which is approved to treat

rheumatoid

> > arthritis BECAUSE IT REDUCES INFLAMMATION.

> >

> > He may also be willing to prescribe Zithromax because it also

> reduces

> > inflammation. Both of these antibiotics are effective against a

> > number of bacteria. If you get a bad reaction with the

minocycline

> > reduce the dose to about 100 mg every third day for awhile.

> >

> > You may need to taper off the prednisone as well. Assuming you

have

> > an infection, of course, prednisone is the worst thing you

could be

> > taking, but you still can't stop it all at once.

> >

> > Personally I think what works on the MP are the antibiotics,

not

> the

> > D avoidance. YOu may actually need more D, not less. Who knows.

> >

> > a Carnes

> >

> > >

> > > Hey everybody,

> > >

> > > My name is Greg, and this is my first time posting on the

> > > infection and inflammation group. I was pointed in this

direction

> > by

> > > a very helpful man, . 's website, email

correspondence,

> and

> > > subsequent links and information made me open to the idea, if

not

> > > entirely convinced, that my chronic eye inflammation is

> infectious

> > in

> > > nature. I have spent the holidays doing nothing but research

and

> > have

> > > come to a few realizations.

> > >

> > > 1. My onset of scleritis (chronic eye inflammation of the

sclera)

> 3

> > > years ago coincided with a few bouts of sinus, ear, and throat

> > > infection. I am in the category of those dealing with

scleritis

> who

> > do

> > > not show signs of an underlying disease causing the

inflammation.

> > >

> > > 2. I have a history of overexposure to sun. ie: episodes of

sun

> > > poisoning and snow blindness. This made me interested in the

> > possible

> > > role of VitD and the MP.

> > >

> > > 3. My eye inflammation is worse on my left side, the same

side in

> > > which my ear infections over the last few years have been

more

> > severe.

> > > When my sinuses are irritated or infected, my eyes are worse

> making

> > > me believe it is all stemming from the same bacterial

infection.

> > >

> > > 4. Almost 2 months ago my scleritis flared up much worse than

it

> > has

> > > ever been. I take this as a sign that the bacteria have been

> > > multiplying.

> > >

> > > I don't want to seem naive, but I can tell from reading here

and

> > other

> > > sources that most are in agreement that chronic inflammation

is

> > fueled

> > > by bacteria. Therefore, my current use of prednisone (I am

> > currently

> > > tapering), and push by my doctors to go on methotrexate if

> > > inflammation is not resolved, will only exaccerbate my

infection

> and

> > > inflammation. It sounds as though the disagreement is how to

fight

> > > the underlying infection.

> > >

> > > Of course the MP sounds enticing, but the more I read about

Dr.

> > > Marshall and the lack of long term testing of the protocol,

the

> more

> > > doubts I have. I'm also worried about the safety of long term

low

> > > dose antibiotic treatment.

> > >

> > > Are the members here in any agreement as to the best way to

treat

> > > chronic eye inflammation? Is benicar combined w/ minocycline

and

> > VitD

> > > avoidance an accepted treatment? I understand I could very

likely

> > > have fungal infections or coinfections that would require

other

> > > stronger antibiotics. I also understand that it might be a

good

> > idea

> > > to use the benicar as a therapeutic probe, and see how my

> > inflammation

> > > responds.

> > >

> > > I am in the process of cutting out sources of VitD, to test my

> > > response and just in case I decide to do MP. I feel as though

it

> is

> > > going to be tough to gauge results if my VitD reduction

coincides

> > with

> > > prednisone weaning and introduction of benicar. Any thoughts

or

> > > suggestions? I do believe that somehow I can beat this thing,

but

> I

> > > could really use some help. Thanks for listening everybody,

and

> let

> > me

> > > know what you think.

> > >

> > > Greg

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

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Share on other sites

Greg:

I haven't been following the thread closely - since I don't read

the site as faithfully as I once did.. but I am a documneted case of

Scleritis, posterior/anterior Uveitis and opic neuritis.

And I no longer have these conditions.

Initially thought to be autoimmune- but of course we all know that

tune- and I didn't dance to it- even though my inflammaion and eye

symptoms caused partial loss of my visual field in once eye- color

perception changes and enough inflammation to have my Opthal. Dr.

worry about me going blind. (It was ocular Lyme)

You may want to try " Terramycin " made by Pfizer. It's an antibiotic

eye ointmnet (Tetracycline and polymyxin B) FDA approves for humans

in the 3rd world, and used as a veterinary product here.

It worked better than anything I got at the eye Doc.. and no- it

won't cause an over growth of funal infection in the eye unless you

use it every day for over 8 months.

Good luck.

Barb

> > > > > >

> > > > > > Greg,

> > > > > > I disagree with Tony aka Dumbaussie, that it is

> easy

> > for us

> > > > laymen

> > > > > to

> > > > > > find out what bacteria we are infected with. I

do

> agree

> > > with

> > > > Tony

> > > > > > that inflammation indicates undiagnosed

infection.

> It

> > may

> > > be c.

> > > > > > pneumonia, but it seems to me that would not be

the

> > obvious

> > > > > diagosis

> > > > > > with eye inflammation.

> > > > > >

> > > > > > I want to make a middle of the road suggestion

to

> you.

> > > Forget

> > > > about

> > > > > > avoiding D and sun. Try the antibiotics

Marshall

> > suggests

> > > > instead.

> > > > > If

> > > > > > your doctor is willing to subject you to

> methotrexate,

> > then

> > > he

> > > > > should

> > > > > > be willing to try minocycline which is approved

to

> > treat

> > > > rheumatoid

> > > > > > arthritis BECAUSE IT REDUCES INFLAMMATION.

> > > > > >

> > > > > > He may also be willing to prescribe Zithromax

> because

> > it

> > > also

> > > > > reduces

> > > > > > inflammation. Both of these antibiotics are

> effective

> > > against a

> > > > > > number of bacteria. If you get a bad reaction

with

> the

> > > > minocycline

> > > > > > reduce the dose to about 100 mg every third day

for

> > awhile.

> > > > > >

> > > > > > You may need to taper off the prednisone as

well.

> > Assuming

> > > you

> > > > have

> > > > > > an infection, of course, prednisone is the

worst

> thing

> > you

> > > > could be

> > > > > > taking, but you still can't stop it all at once.

> > > > > >

> > > > > > Personally I think what works on the MP are the

> > > antibiotics,

> > > > not

> > > > > the

> > > > > > D avoidance. YOu may actually need more D, not

> less.

> > Who

> > > knows.

> > > > > >

> > > > > > a Carnes

> > > > > >

> > > > > > >

> > > > > > > Hey everybody,

> > > > > > >

> > > > > > > My name is Greg, and this is my first time

> posting on

> > the

> > > > > > > infection and inflammation group. I was

pointed

> in

> > this

> > > > direction

> > > > > > by

> > > > > > > a very helpful man, . 's website,

email

> > > > correspondence,

> > > > > and

> > > > > > > subsequent links and information made me open

to

> the

> > > idea, if

> > > > not

> > > > > > > entirely convinced, that my chronic eye

> inflammation

> > is

> > > > > infectious

> > > > > > in

> > > > > > > nature. I have spent the holidays doing

nothing

> but

> > > research

> > > > and

> > > > > > have

> > > > > > > come to a few realizations.

> > > > > > >

> > > > > > > 1. My onset of scleritis (chronic eye

> inflammation of

> > the

> > > > sclera)

> > > > > 3

> > > > > > > years ago coincided with a few bouts of

sinus,

> ear,

> > and

> > > throat

> > > > > > > infection. I am in the category of those

dealing

> with

> > > > scleritis

> > > > > who

> > > > > > do

> > > > > > > not show signs of an underlying disease

causing

> the

> > > > inflammation.

> > > > > > >

> > > > > > > 2. I have a history of overexposure to sun.

ie:

> > episodes

> > > of

> > > > sun

> > > > > > > poisoning and snow blindness. This made me

> interested

> > in

> > > the

> > > > > > possible

> > > > > > > role of VitD and the MP.

> > > > > > >

> > > > > > > 3. My eye inflammation is worse on my left

side,

> the

> > same

> > > > side in

> > > > > > > which my ear infections over the last few

years

> have

> > been

> > > > more

> > > > > > severe.

> > > > > > > When my sinuses are irritated or infected, my

> eyes

> > are

> > > worse

> > > > > making

> > > > > > > me believe it is all stemming from the same

> bacterial

> > > > infection.

> > > > > > >

> > > > > > > 4. Almost 2 months ago my scleritis flared up

> much

> > worse

> > > than

> > > > it

> > > > > > has

> > > > > > > ever been. I take this as a sign that the

> bacteria

> > have

> > > been

> > > > > > > multiplying.

> > > > > > >

> > > > > > > I don't want to seem naive, but I can tell

from

> > reading

> > > here

> > > > and

> > > > > > other

> > > > > > > sources that most are in agreement that

chronic

> > > inflammation

> > > > is

> > > > > > fueled

> > > > > > > by bacteria. Therefore, my current use of

> prednisone

> > (I

> > > am

> > > > > > currently

> > > > > > > tapering), and push by my doctors to go on

> > methotrexate if

> > > > > > > inflammation is not resolved, will only

> exaccerbate

> > my

> > > > infection

> > > > > and

> > > > > > > inflammation. It sounds as though the

> disagreement is

> > how

> > > to

> > > > fight

> > > > > > > the underlying infection.

> > > > > > >

> > > > > > > Of course the MP sounds enticing, but the

more I

> read

> > > about

> > > > Dr.

> > > > > > > Marshall and the lack of long term testing of

the

> > > protocol,

> > > > the

> > > > > more

> > > > > > > doubts I have. I'm also worried about the

safety

> of

> > long

> > > term

> > > > low

> > > > > > > dose antibiotic treatment.

> > > > > > >

> > > > > > > Are the members here in any agreement as to

the

> best

> > way

> > > to

> > > > treat

> > > > > > > chronic eye inflammation? Is benicar combined

w/

> > > minocycline

> > > > and

> > > > > > VitD

> > > > > > > avoidance an accepted treatment? I understand

I

> could

> > > very

> > > > likely

> > > > > > > have fungal infections or coinfections that

would

> > require

> > > > other

> > > > > > > stronger antibiotics. I also understand that

it

> might

> > be

> > > a

> > > > good

> > > > > > idea

> > > > > > > to use the benicar as a therapeutic probe,

and

> see

> > how my

> > > > > > inflammation

> > > > > > > responds.

> > > > > > >

> > > > > > > I am in the process of cutting out sources of

> VitD,

> > to

> > > test my

> > > > > > > response and just in case I decide to do MP.

I

> feel

> > as

> > > though

> > > > it

> > > > > is

> > > > > > > going to be tough to gauge results if my VitD

> > reduction

> > > > coincides

> > > > > > with

> > > > > > > prednisone weaning and introduction of

benicar.

> Any

> > > thoughts

> > > > or

> > > > > > > suggestions? I do believe that somehow I can

beat

> > this

> > > thing,

> > > > but

> > > > > I

> > > > > > > could really use some help. Thanks for

listening

> > > everybody,

> > > > and

> > > > > let

> > > > > > me

> > > > > > > know what you think.

> > > > > > >

> > > > > > > Greg

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

>

> > > > > >

> > > > > >

> > > > > > ---------------------------------

> > > > > > Never miss a thing. Make your homepage.

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

Link to comment
Share on other sites

Nannika Atta Penny san

> > >

> > > Greg,

> > > I disagree with Tony aka Dumbaussie, that it is easy for us

> laymen

> > to

> > > find out what bacteria we are infected with. I do agree with

> Tony

> > > that inflammation indicates undiagnosed infection. It may be c.

> > > pneumonia, but it seems to me that would not be the obvious

> > diagosis

> > > with eye inflammation.

> > >

> > > I want to make a middle of the road suggestion to you. Forget

> about

> > > avoiding D and sun. Try the antibiotics Marshall suggests

> instead.

> > If

> > > your doctor is willing to subject you to methotrexate, then he

> > should

> > > be willing to try minocycline which is approved to treat

> rheumatoid

> > > arthritis BECAUSE IT REDUCES INFLAMMATION.

> > >

> > > He may also be willing to prescribe Zithromax because it also

> > reduces

> > > inflammation. Both of these antibiotics are effective against a

> > > number of bacteria. If you get a bad reaction with the

> minocycline

> > > reduce the dose to about 100 mg every third day for awhile.

> > >

> > > You may need to taper off the prednisone as well. Assuming you

> have

> > > an infection, of course, prednisone is the worst thing you

> could be

> > > taking, but you still can't stop it all at once.

> > >

> > > Personally I think what works on the MP are the antibiotics,

> not

> > the

> > > D avoidance. YOu may actually need more D, not less. Who knows.

> > >

> > > a Carnes

> > >

> > > >

> > > > Hey everybody,

> > > >

> > > > My name is Greg, and this is my first time posting on the

> > > > infection and inflammation group. I was pointed in this

> direction

> > > by

> > > > a very helpful man, . 's website, email

> correspondence,

> > and

> > > > subsequent links and information made me open to the idea, if

> not

> > > > entirely convinced, that my chronic eye inflammation is

> > infectious

> > > in

> > > > nature. I have spent the holidays doing nothing but research

> and

> > > have

> > > > come to a few realizations.

> > > >

> > > > 1. My onset of scleritis (chronic eye inflammation of the

> sclera)

> > 3

> > > > years ago coincided with a few bouts of sinus, ear, and throat

> > > > infection. I am in the category of those dealing with

> scleritis

> > who

> > > do

> > > > not show signs of an underlying disease causing the

> inflammation.

> > > >

> > > > 2. I have a history of overexposure to sun. ie: episodes of

> sun

> > > > poisoning and snow blindness. This made me interested in the

> > > possible

> > > > role of VitD and the MP.

> > > >

> > > > 3. My eye inflammation is worse on my left side, the same

> side in

> > > > which my ear infections over the last few years have been

> more

> > > severe.

> > > > When my sinuses are irritated or infected, my eyes are worse

> > making

> > > > me believe it is all stemming from the same bacterial

> infection.

> > > >

> > > > 4. Almost 2 months ago my scleritis flared up much worse than

> it

> > > has

> > > > ever been. I take this as a sign that the bacteria have been

> > > > multiplying.

> > > >

> > > > I don't want to seem naive, but I can tell from reading here

> and

> > > other

> > > > sources that most are in agreement that chronic inflammation

> is

> > > fueled

> > > > by bacteria. Therefore, my current use of prednisone (I am

> > > currently

> > > > tapering), and push by my doctors to go on methotrexate if

> > > > inflammation is not resolved, will only exaccerbate my

> infection

> > and

> > > > inflammation. It sounds as though the disagreement is how to

> fight

> > > > the underlying infection.

> > > >

> > > > Of course the MP sounds enticing, but the more I read about

> Dr.

> > > > Marshall and the lack of long term testing of the protocol,

> the

> > more

> > > > doubts I have. I'm also worried about the safety of long term

> low

> > > > dose antibiotic treatment.

> > > >

> > > > Are the members here in any agreement as to the best way to

> treat

> > > > chronic eye inflammation? Is benicar combined w/ minocycline

> and

> > > VitD

> > > > avoidance an accepted treatment? I understand I could very

> likely

> > > > have fungal infections or coinfections that would require

> other

> > > > stronger antibiotics. I also understand that it might be a

> good

> > > idea

> > > > to use the benicar as a therapeutic probe, and see how my

> > > inflammation

> > > > responds.

> > > >

> > > > I am in the process of cutting out sources of VitD, to test my

> > > > response and just in case I decide to do MP. I feel as though

> it

> > is

> > > > going to be tough to gauge results if my VitD reduction

> coincides

> > > with

> > > > prednisone weaning and introduction of benicar. Any thoughts

> or

> > > > suggestions? I do believe that somehow I can beat this thing,

> but

> > I

> > > > could really use some help. Thanks for listening everybody,

> and

> > let

> > > me

> > > > know what you think.

> > > >

> > > > Greg

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

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> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

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> >

>

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