Fwd: Re: Update on Aussie Barb, longest CFS follower on MP

[Guest guest]

Here's the latest update. Unfortunately, I cannot communicate with the person sending me these emails so I can't vouch for their content or cite the actual source of the quoted material. Update received today on Aussie Barb's condition: Subject: Re: Update on Aussie Barb, longest CFS follower on MPLatest update, things are still very serious;"Barb has had more bad news today.In spite of the treatment,thepancreatic enzyme lipase reading is 90 when normal is 40.This is thehighest reading yet.The pancreatitis is caused by acute choleastitis(infected gallbladder).She is back on clear fluid diet to restpancreas.Today she is having a CT scan to check all.Oral antibioticscontinue for the gallbladder.The Doctors say the gallbladder has tocome out as the

infection is not/has not resolved.Doctors saygallbladder is causing pancreatitis which is life threatening.Barbcannot see any other answer as she has been on antibiotics for 3years already. She has been shocked by this turn of events as shethought she was close to going home even though she was still weakre mobilising etc.The haemoglobin has risen to 11 since thetransfusion.Thank you all once again for your continued support andcare." It sounds like Aussie Barb needs to have her gall bladder removed as it's badly infected and not responding to treatment, even though she was unaware of the condition. If this really IS the case, it just reinforces my thinking that so many pwc are probably sick due to unrecognized infections. AND tinkering with low dose antibiotics for a chronic infection is a huge

health gamble. penny  

;

[Guest guest]

Whatever the cause of her current problems, some things starkly stand out:

1) The protocol did not cure infection. After 4 years if it works the

way they say she should be infection free

2) Moreover, her cultish (sad) belief in all symptoms as

immunopathology on the way to cure, probably delayed her diagnosis

I hope she gets her gallbladder out and gets out of the hospital. It

sounds very precarious with the anemia, the pancreatitis, etc.

>

> Here's the latest update. Unfortunately, I cannot communicate with

the person sending me these emails so I can't vouch for their content

or cite the actual source of the quoted material.

>

> Update received today on Aussie Barb's condition:

>

> Subject: Re: Update on Aussie Barb, longest CFS follower on MP

>

> Latest update, things are still very serious;

>

> " Barb has had more bad news today.In spite of the treatment,the

> pancreatic enzyme lipase reading is 90 when normal is 40.This is the

> highest reading yet.The pancreatitis is caused by acute choleastitis

> (infected gallbladder).She is back on clear fluid diet to rest

> pancreas.Today she is having a CT scan to check all.Oral antibiotics

> continue for the gallbladder.The Doctors say the gallbladder has to

> come out as the infection is not/has not resolved.Doctors say

> gallbladder is causing pancreatitis which is life threatening.Barb

> cannot see any other answer as she has been on antibiotics for 3

> years already. She has been shocked by this turn of events as she

> thought she was close to going home even though she was still weak

> re mobilising etc.The haemoglobin has risen to 11 since the

> transfusion.Thank you all once again for your continued support and

> care. "

>

> It sounds like Aussie Barb needs to have her gall bladder removed

as it's badly infected and not responding to treatment, even though

she was unaware of the condition. If this really IS the case, it just

reinforces my thinking that so many pwc are probably sick due to

unrecognized infections. AND tinkering with low dose antibiotics for a

chronic infection is a huge health gamble.

>

> penny

;

>