Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Hi Jerry, I have suffered from an irrational anger response to the sound of people eating, chewing gum, tapping pencils etc. for about 25 years. I only recently (about a week ago) discovered that I am not alone in this disorder and that, in fact, it is a true disorder (not just me being crazy). I love the idea of pursuing research into this condition and suspect that many people in this group would be willing to participiate. I have a strong background in research though my current work is in the area of bone biology, so is not particularly well suited to researching our disorder. But I'm certainly willing to talk more about this with anyone interested in putting the time and energy in to pursue it. As you point out, one of our top priorities should also be to get our condition recognized by the medical establishment. Who knows how many more people there are out there who suffer from this condition alone because health care providers do not realize this is an actual entity. An established diagnosis would also help for insurance coverage for potential treatments as well as for communication with bosses/coworkers. I am willing to work with you (or other sufferers) to look into how this might be accomplished. I am not sure where to start but perhaps we could contact the AMA, NIH, APA to find out how a new disease becomes accepted as an entity? Nan Quote Link to comment Share on other sites More sharing options...
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