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Working together to get recognition of this disorder

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Hi Jerry,

I have suffered from an irrational anger response to the sound of

people eating, chewing gum, tapping pencils etc. for about 25 years. I

only recently (about a week ago) discovered that I am not alone in

this disorder and that, in fact, it is a true disorder (not just me

being crazy).

I love the idea of pursuing research into this condition and suspect

that many people in this group would be willing to participiate. I

have a strong background in research though my current work is in the

area of bone biology, so is not particularly well suited to

researching our disorder. But I'm certainly willing to talk more about

this with anyone interested in putting the time and energy in to

pursue it.

As you point out, one of our top priorities should also be to get our

condition recognized by the medical establishment. Who knows how many

more people there are out there who suffer from this condition alone

because health care providers do not realize this is an actual entity.

An established diagnosis would also help for insurance coverage for

potential treatments as well as for communication with bosses/coworkers.

I am willing to work with you (or other sufferers) to look into how

this might be accomplished. I am not sure where to start but perhaps

we could contact the AMA, NIH, APA to find out how a new disease

becomes accepted as an entity?

Nan

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