Re: Turned away for treatment

[Guest guest]

I can understand it if your doctor feels unable to treat your 4S - since no one

knows what

it is (auditory dysfunction? psychological disorder? neurological mis-wiring),

there aren't

really any options right now. But it seems clear to me that you and others on

this list are

suffering from related depression and anxiety. Those ARE easily treated with

talk therapy

and/or medication. I had 4S pretty bad in my teens and early twenties, and it

still causes

me some distress. But overall, life is good - I have a husband, children, many

friends and

a full life. I'm not sure I would have all those things now had I not gone into

therapy and

if I had not been absolutely determined not to let my " strange symptoms " (didn't

know

they had a name till only recently) win the battle.

4S stinks, no doubt about it. But I feel so sad when I hear about others on

this list

retreating into solitude, staying in their rooms all the time, wearing

headphones

constantly. I hope you will all find support, if not relief, for your symptoms.

I hate to

sound like a nag (I am a mom, after all) - but therapy, meditation, yoga,

strenuous

exercise and a generally healthy lifestyle have really helped me cope with this

awful

condition.

Good luck!

Kate in NY

- In Soundsensitivity , " pussycatdoll_5 "

wrote:

>

> I have visted my doctor several times and they don't seem to understand

> 4S. I was referred to a councillor and told her my problem, who then

> spoke to psycologists about my problem and then wrote me a letter back

> saying they were unable to treat the problem. I have had cognitive

> behavoiural therapy but found that no use. What am I supposed to do

> now? should I insist on treatment or just try to cope with it? I point

> out that I beleive I have a bad case of 4S and feel sad most days and

> feel stressed to the point where I feel so ill I think I'm going to

> collapse or die there and then. Does anyone else have it this bad? It's

> not fair, I just want to enjoy life and have fun but I can't with this

> stupid thing!!!

>

[Guest guest]

It's fine if your doctor doesn't know what to do for 4S... mine

doesn't either. But the point is they shouldn't just give up on you

because of that... they should actively look into it. I would try

another doctor. It took me many doctors before I found my current

one who is at least willing to listen and try different things. I

hated being constantly pawned off to another person just because they

didn't want to help me. If anything, don't give up on talking to a

psychologist or counselor because often times it really helps just to

vent about it whether they think you're a loon or not! Are you on

any meds for depression or anxiety? Often they help with the

stress/depression of it all but it never really takes 4S away. Don't

give up hope and try to live your life as if you didn't have 4S. I

know that is hard, but don't label yourself as not being able to have

fun because of 4S or that automatically makes 4S the winner. Try

your hardest to do things you enjoy despite the 4S. Every time you

accomplish escaping a situation you normally wouldn't do because of

4S, that builds confidence and helps you in the next situation. Best

wishes!

Darlene

>

> I have visted my doctor several times and they don't seem to

understand

> 4S. I was referred to a councillor and told her my problem, who

then

> spoke to psycologists about my problem and then wrote me a letter

back

> saying they were unable to treat the problem. I have had cognitive

> behavoiural therapy but found that no use. What am I supposed to do

> now? should I insist on treatment or just try to cope with it? I

point

> out that I beleive I have a bad case of 4S and feel sad most days

and

> feel stressed to the point where I feel so ill I think I'm going to

> collapse or die there and then. Does anyone else have it this bad?

It's

> not fair, I just want to enjoy life and have fun but I can't with

this

> stupid thing!!!

>