New Here & Jumping right in

November 23, 2008

Hello all! My name is , and I've just recently learned of 4S.

I actually self diagnosed myself last night after my husband said as I

was filing my nails, " If I were doing that, you'd go nuts. " Since the

laptop was open (and I knew he was right), I decided to start

searching. It led me here, and I am so grateful to know I am not alone!

I wouldn't say this is debilitating to me. But I definitely have my

moments. Eating noises bother me the most. Ice crunching is the

worst right now. Any crunching, really, but ice seems loudest. When

I don't feel like I can ask someone to stop, or I have no control

whatsoever, it gets increasingly worse. I've tried NOT asking my

husband to stop chewing ice, only to feel like I was going to crawl

out of my skin, scream, or throw up.

I've often wonder if the eating noises bothering me " came from " having

it drilled into my head to " chew with your mouth closed. " I remember

that message from my step-mom when we were younger, and I feel I

became very aware of people smacking their lips...which led to other

noises, etc.

Do you think that's a possible cause? I mean, maybe I was already

predisposed because my siblings don't have 4S, but could that have

'done it' for me?!

I look forward to learning more!

November 23, 2008

Hello ,

Welcome J I too know exactly what you mean with crunching, I go crazy as

well. There seems to be a lot of energy inside this group about moving forward

and finding that cure cause and anyway to help each other out, This place has

been a savour for my sanity J so hopefully it will help you too.

I always remember the chew with your mouth closed talk, but I am

a twin and have always been around my brother growing up, he too was subject to

the same lectures as me, but does not have 4S in fact, he still chews at times

with his mouth open which drives me insane J I think and i am only

guessing here, but, if it is genetic ( I believe my grandfather had it and my

uncle has it both on my fathers side) something inside us is predisposition

to having the condition and a trigger sets us off. No idea what that is though,

my girlfriend also has 4s ( which I have only recently learnt) and she too

developed the conidition around the same time as me, around 13-14. Her sister

also seems to have a very minor degree of this condition (hates scratching and

smacking lips but doesn’t mind crunching) but the rest of her family does

not seem bothered at all....

Maybe if we all compiled some information on when we first

started noticing the irritation by sounds, we might be able to find a link? Would

everyone be comfortable with this? I Know information is floating on the board

somewhere but if we were to compile it maybe, we might be able to give others

who are looking into this condition more insight???

I hope you find hope and help here

Rich

From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of andrealeigh4

Sent: Monday, 24 November 2008 10:37 AM

To: Soundsensitivity

Subject: New Here & Jumping right in

Hello all! My name is , and I've just

recently learned of 4S.