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SCD Failed--Now What? Need Filling Foods-Help!

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My son could eat a whole chicken in one sitting if allowed. He is

that hungry. He can't eat nuts and SCD seems to be based around

this. He's allergic to almost everything. He needs something filling-

-like a whole loaf of bread. His behaviors are increasingly getting

worse because I think he is just so very HUNGRY! Can anyone out there

please help us? I need to give him things that will fill him up other

than meat (he won't eat veggies). At this point I'm willing to ignore

all allergies (except for the life threatening ones) just so I get get

some food into him and make him comfortable for a change.

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Can you give us an idea of what his allergies are. I'm sure we can put our heads together and come up with some safe things he can eat to fill him up without going off the deep end and feeding him whatever. That won't help the situation. We're ready...many of us have 40 different allergies to deal with, so list them for us.

Tami

My son could eat a whole chicken in one sitting if allowed. He is that hungry. He can't eat nuts and SCD seems to be based around this. He's allergic to almost everything. He needs something filling--like a whole loaf of bread. His behaviors are increasingly getting worse because I think he is just so very HUNGRY! Can anyone out there please help us? I need to give him things that will fill him up other than meat (he won't eat veggies). At this point I'm willing to ignore all allergies (except for the life threatening ones) just so I get get some food into him and make him comfortable for a change.

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I follow a diet similar to Body Ecology Diet (you can google that and get the book if you wish).I give a lot of soaked/sprouted grains (quinoa, buckwheat, millet, teff and amaranth) balanced with raw and cooked vegetables.You can make pancakes, muffins etc with these grains. I also give homemade nutmilks.I have a yahoo group where there are recipes in the files, the group is beyondgfcfYou could ask more there and more experienced people might answer.PramilaTo: BorreliaMultipleInfectionsAndAutism Sent: Tuesday, December 30, 2008 11:31:59 AMSubject: SCD Failed--Now What? Need Filling Foods-Help!

My son could eat a whole chicken in one sitting if allowed. He is

that hungry. He can't eat nuts and SCD seems to be based around

this. He's allergic to almost everything. He needs something filling-

-like a whole loaf of bread. His behaviors are increasingly getting

worse because I think he is just so very HUNGRY! Can anyone out there

please help us? I need to give him things that will fill him up other

than meat (he won't eat veggies). At this point I'm willing to ignore

all allergies (except for the life threatening ones) just so I get get

some food into him and make him comfortable for a change.

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have you tried pecanbread.com for nutfree recipes?

we had enourmous constant hunger and overeating here, without putting on excess weight, but that reduced substantially with SCDiet! And then with enzymes and other biomed, ds has a more or less normal apetite now. The overeating was when he was very young and non verbal but I believe it was due to gut dysbiosis (which SCD addresses) and also probably reflux/pain.

have you tried going antibacterial or antiviral route?

Natasa

My son could eat a whole chicken in one sitting if allowed. He is

that hungry. He can't eat nuts and SCD seems to be based around

this. He's allergic to almost everything. He needs something filling-

-like a whole loaf of bread. His behaviors are increasingly getting

worse because I think he is just so very HUNGRY! Can anyone out there

please help us? I need to give him things that will fill him up other

than meat (he won't eat veggies). At this point I'm willing to ignore

all allergies (except for the life threatening ones) just so I get get

some food into him and make him comfortable for a change.

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Have you tried the different squashes- acorn, spaghetti, butternut. We eat a lot here to get that filling carb feeling.

Re: SCD Failed--Now What? Need Filling Foods-Help!

Wild rice is yummy and very filling. It's not technically a "grain" at

all - it's a wild grass seed. It's expensive in the little packages,

but cheaper in bulk if you have a Whole Foods or similar super health

food store near you.

I use wild rice on rotation, but we'd eat it every day if we could! I

put a cup or so in filtered water to soak in the morning, then by

evening it has expanded to twice it's volume. If you are around during

the day you can change out the water to remove as many oxalates as

possible (if oxalates are a problem). Then in the evening, rinse and

boil in a fresh batch of filtered water for 45 minutes to an hour

(depending on how long/warm the soak time). Most of the kernels/seeds

split open and turn almost inside out when it's ready, so it goes from

dark brown to a whitish gray.

I serve it like a chunky soup with home made chicken or beef bone

broth and matching colored meat - either chicken/turkery/wild game

bird and beef/buffalo/venison/natural bacon.

This makes enough for two adults and one hungry 5 year old, with

leftovers to spare. I normally freeze one or two 10oz servings in

pyrex for use as school lunches in the future. I pull one out the

night before and in the morning heat on the stove and pour into a

Foogo thermos.

The whole soaking of grains concept was foreign to me in the

beginning, but once you get the hang of remembering in the morning

it's not a big deal at all.

Since my son was never fed wild rice when he had a leaky gut I assume

he doesn't have an IgG sensitivity to it. It's not on any of the test

panels though, so I can only tell he's still OK with bioset or muscle

testing. His gut is way better now, but I still do it on rotation

because I don't want him to develop a sensitivity - it's the main

filling starchy thing he can eat beyond potatoes and corn (both with

their own concerns - nightshades and BT toxins).

>

> My son could eat a whole chicken in one sitting if allowed. He is

> that hungry. He can't eat nuts and SCD seems to be based around

> this. He's allergic to almost everything. He needs something filling-

> -like a whole loaf of bread. His behaviors are increasingly getting

> worse because I think he is just so very HUNGRY! Can anyone out there

> please help us? I need to give him things that will fill him up other

> than meat (he won't eat veggies). At this point I'm willing to ignore

> all allergies (except for the life threatening ones) just so I get get

> some food into him and make him comfortable for a change.

>

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We have these on beef day. Ground beef with some " taco spices " mixed

in with winter squash of choice with ghee and or coconut oil. Very

filling. If not milk intolerant.. can make taco shells from cheese.

This is in one of the SCD cookbooks.. lots of good ideas in the cook

books esp for using vegetables in interesting ways. The good oils are

filling: coconut ( I have a tub that has no flavor and a little far

that does, lard, ghee if tolerated, butter if tolerated, olive oil)

Robin

> >

> > My son could eat a whole chicken in one sitting if allowed. He is

> > that hungry. He can't eat nuts and SCD seems to be based around

> > this. He's allergic to almost everything. He needs something

filling-

> > -like a whole loaf of bread. His behaviors are increasingly

getting

> > worse because I think he is just so very HUNGRY! Can anyone out

there

> > please help us? I need to give him things that will fill him up

other

> > than meat (he won't eat veggies). At this point I'm willing to

ignore

> > all allergies (except for the life threatening ones) just so I

get get

> > some food into him and make him comfortable for a change.

> >

>

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-I thought rice (even wild rice) breeds yeast? Does soaking

it get rid of this problem? How do you know if there are oxalate

problems? I've been reading about this and am still not even sure

what it is. Would blending the rice up in a blender with veggies

work or would this turn into paste? After months of soup my son

won't take it anymore.

> >

> > My son could eat a whole chicken in one sitting if allowed. He

is

> > that hungry. He can't eat nuts and SCD seems to be based around

> > this. He's allergic to almost everything. He needs something

filling-

> > -like a whole loaf of bread. His behaviors are increasingly

getting

> > worse because I think he is just so very HUNGRY! Can anyone out

there

> > please help us? I need to give him things that will fill him up

other

> > than meat (he won't eat veggies). At this point I'm willing to

ignore

> > all allergies (except for the life threatening ones) just so I

get get

> > some food into him and make him comfortable for a change.

> >

>

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Wild rice caused no yeast problems with my son. He has been on the

Feast Without Yeast diet since he was 12 months old, so he doesn't

have many flair up's. And when he does they are easy to knock down.

Perhaps on a regular yeast feeding diet it might cause problems

though? I can't know for sure.

You don't have to make it as a soup. It's more dense than white rice,

but it's still " fluffy " when dry. I can't imagine blending (paste?)

but I have made them into sticky rice patties and fried in natural

bacon fat (super yummy and cholesterol boosting!). You can do lots of

stuff with it beyond soup.

As for Oxalates, you can join the yahoo group " trying low oxalates "

for more information. Or search for the papers written by Owens.

They form crystals which have an affinity for damaged tissue. They

congregate there and cause more inflammation, preventing healing. With

leaky gut, they can get out into the bloodstream and cause havoc

wherever they land - including the brain, according to some. They

impair glutathione production and if they get to the thyriod, they do

something that messes with sulfate levels (can't remember what off the

top of my head.) If I remember rightly they also impair sulfaction at

the cellular level. I'd have to check my research notes from a LONG

time ago for the specifics.

Calcium citrate (without vitamin D) and the probiotic VSL#3 will help

bind the oxalates for excretion.

The oxalate crystals can can itch/burn as they pass through the

urethra (but not agony like kidney stones). You can get a urine lab

test for it, or just guess if your son has his hands in his pants a

lot after eating high oxalate foods. Or peeing frequently with small

volume, or having accidents.

I have a microscope with a polarizer and I was able to adjust my son's

diet (total low oxalate for a couple of months) so none showed up at

all, then slowly added in medium oxalate foods till I saw them again.

So I was able to figure out his systemic " threshold " for oxalates.

But some say that urinary excretion is not all the info you need and

that a comparison of the blood vs urine levels is needed. I haven't

gone that far - it's easier to just use the low oxalate diet and

powers of observation.

There were also a some other common supplements that can help, but I

can't remember off the top of my head which ones they are. Just a few

of the many my son needs every day to keep him going. It's all a blur

- my oxalate research was about two years ago.

Since getting both the oxalate and phenol issues under control, we are

both able to process sulfur foods better. Beneficial ones like garlic,

onion and my favorite - cultured raw sauerkraut! And he can now handle

a certain amount of phenols and oxalates too, but in moderation. I

wouldn't do high oxalate, phenol and sulfur foods in the same meal -

or even in the same day. It's all about balance......

It's hard to do low oxalate, low phenol, low sulfur and GF/CF diets

together, but I managed. He also had 40+ sensitivities, so was very

restricted for a while. Doesn't have to be forever.

> > >

> > > My son could eat a whole chicken in one sitting if allowed. He

> is

> > > that hungry. He can't eat nuts and SCD seems to be based around

> > > this. He's allergic to almost everything. He needs something

> filling-

> > > -like a whole loaf of bread. His behaviors are increasingly

> getting

> > > worse because I think he is just so very HUNGRY! Can anyone out

> there

> > > please help us? I need to give him things that will fill him up

> other

> > > than meat (he won't eat veggies). At this point I'm willing to

> ignore

> > > all allergies (except for the life threatening ones) just so I

> get get

> > > some food into him and make him comfortable for a change.

> > >

> >

>

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