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That's great news, Bonnie! - and so reassuring for you to hear that

you've been on the right path!

I hope this new chiropractor can continue to help you and your

daughter get through the healing - I'll keep my fingers crossed that

the insurance doesn't alter that for you again! Did you mention the

mercury testing you did? Does he suggest chelation? (I think you

mentioned maybe trying some natural chelators - have you started?)

I have also been thinking more and more about a raw diet for the whole

family, including sprouting! I think it is an excellent idea and I

wish I could get motivated to at least incorporate more raw foods into

our diet. I just have a hard time keeping enough fresh fruits/veggies

in the house with the amount we already eat. I like to use organic as

much as possible without going broke and it's sometimes so hard to

find affordable, good quality fresh organic produce that I often get

frozen organic vegetables. I've been considering joining a CSA farm

(community supported agriculture) but have been hesitant because most

ask for a year's financial commitment up front and I don't know if I

would utilize all the produce as productively as I should so I don't

want to waste the food or the money. I don't know though, maybe it

would help me 'commit' to using it all & having more of a raw diet....????

Thanks for sharing the insights from this visit - keep us updated on

any new developments!

best,

>

> We went to see a new chiropractor...haven't been to our old one for

a while

> because of insurance changes...and he was very thrilled with everything

> we've been doing. He said, " You're doing all the right things. Who's

helping

> you figure all this out? " I said, " Um...it's mostly the moms on the

Yahoo

> Miralax list! "

>

> Anyway...he thinks that our daughter's sensory integration problems

have to

> be solved before the constipation will clear. He thinks that the

stress from

> living with sensory problems is overloading her sympathetic and

> parasympathetic nervous systems. He also thinks that some stuff

we've tried

> that didn't help, like the gf/cf diet, may not have helped because other

> factors weren't in place yet, and that a lot of the things we've

tried that

> looked like they weren't helping actually are helping, but that when

you're

> working on healing the nervous system, the body will prioritize brain

> healing before GI healing, so that if we give it some time, and keep

doing

> what we're doing, we should eventually see GI improvement too. We

definitely

> are seeing sensory improvement, I just had not been viewing that as the

> primary issue. I always felt the constipation affected her quality

of life

> more than the sensory problems, which we viewed as mild. So I'm really

> pleased to have all this explained to me...I sort of feel like what

we're

> doing is like peeling away the layers of an onion. We have to peel

away all

> these toxicities one by one (while also trying to add back in

nutrients one

> by one), and we don't seem to see improvement, but eventually I feel

that

> we'll finally get to the last layer. And, I think that even though she's

> still constipated, maybe the fact that she's been so darn healthy

all fall

> is a sign that her GI tract is healing in ways that we just can't

see, yet.

>

> It is such a slow journey, though. This chiropractor also cautioned

me that

> it can take years to clear mercury from kids' systems. Sigh.

>

> In the meantime, I'm thinking of going back to the GF/CF diet

because I'm

> thinking it may, like some of these other things, have been helping

her in

> unseen ways, even if we couldn't actually SEE how it was helping her

before.

> On the other hand, I'm also thinking about trying to gradually shift her

> onto a more raw foods diet (which would be mostly GF/CF anyway, but

might

> include some sprouted grains that still would have gluten in

them--since she

> doesn't have celiac disease, I'm not sure that she'd need to be as

strictly

> GF as celiacs are.) I'm shifting to more and more raw foods myself.

> Unfortunately it's easier to switch me than her...I'm a lot more open to

> trying new things than she is. It would have to be a VERY gradual

shift! And

> the frustrating truth is, if a dietary change is helping her in

unseen ways,

> and it's a rough diet to implement, like both GF and raw foods diets

are,

> than we're likely to backslide, because it will seem like we're

doing all

> this for nothing (it will especially look that way to my skeptical

husband).

>

>

> Sigh. Oh well. At least we're making progress, however incrementally...

>

> Bonnie

>

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Thanks, . We'll be able to stick with our new chiropractor for a while, as the insurance isn't paying for him...he does $25 wellness visits for kids as a way to encourage parents to provide chiropractic care for the whole family...that's roughly what I would pay for a deductible for an office visit with our pediatrician anyway, and actually the chiropractor's office is much closer to home. We had to switch HMOs to get my DD's occupational therapy for her sensory problems covered, and lost our chiropractic benefit in the process. I did tell him about the mercury testing, but he didn't suggest chelation...we are for now just pursing the natural detox route, using omega-3s and trace minerals and soon (if I can get it into my DD) chlorella. It is hard to feed everyone organic food without going broke, especially if you have kids who throw away a lot of food (as we do!). I've been using a list of the 12 most/12 least pesticide contaminated fruits/vegs (and not worrying about organic for less contaminated produce like bananas and avocados) and also using a lot of frozen fruits at this time of the year (though those are expensive too). We had a CSA farm share this summer and it worked out well, but we did have a hard time using everything. I froze a lot of it. Our CSA farm also had a box where you could put anything you weren't planning to use, or take anything anyone else had discarded, so that helped reduce waste a little. The raw food conversion is really hard to manage...but at least it can be done slowly. I think it's easier if you start with eating tons of fruit, especially oranges...though I originally started because I was trying to diet and was eating a spinach salad as my entree for lunch and dinner, and then there was the spinach scare, so I switched to kale and became totally addicted. You'd have thought kale was a drug or something...I had to have it, twice a day, and went through withdrawal when we were on vacation and couldn't get kale. (It must have a bunch of stuff in it that was I was deficient in at the time...I still love it but I don't have to have a kale fix every day anymore. Although writing about it is making me hungry!) I told my husband, " I think I'm addicted to kale, " and he said, looking horrified, " You are the first human ever to speak those words. " Anyway, good luck. I'm thinking of juicing kale (another expense: a juicer--sigh) and mixing it with grape juice for the kids. But my constipated DD often refuses juice so it may be an uphill battle...

Bonnie

That's great news, Bonnie! - and so reassuring for you to hear that

you've been on the right path!

I hope this new chiropractor can continue to help you and your

daughter get through the healing - I'll keep my fingers crossed that

the insurance doesn't alter that for you again! Did you mention the

mercury testing you did? Does he suggest chelation? (I think you

mentioned maybe trying some natural chelators - have you started?)

I have also been thinking more and more about a raw diet for the whole

family, including sprouting! I think it is an excellent idea and I

wish I could get motivated to at least incorporate more raw foods into

our diet. I just have a hard time keeping enough fresh fruits/veggies

in the house with the amount we already eat. I like to use organic as

much as possible without going broke and it's sometimes so hard to

find affordable, good quality fresh organic produce that I often get

frozen organic vegetables. I've been considering joining a CSA farm

(community supported agriculture) but have been hesitant because most

ask for a year's financial commitment up front and I don't know if I

would utilize all the produce as productively as I should so I don't

want to waste the food or the money. I don't know though, maybe it

would help me 'commit' to using it all & having more of a raw diet....????

Thanks for sharing the insights from this visit - keep us updated on

any new developments!

best,

>

> We went to see a new chiropractor...haven't been to our old one for

a while

> because of insurance changes...and he was very thrilled with everything

> we've been doing. He said, " You're doing all the right things. Who's

helping

> you figure all this out? " I said, " Um...it's mostly the moms on the

Yahoo

> Miralax list! "

>

> Anyway...he thinks that our daughter's sensory integration problems

have to

> be solved before the constipation will clear. He thinks that the

stress from

> living with sensory problems is overloading her sympathetic and

> parasympathetic nervous systems. He also thinks that some stuff

we've tried

> that didn't help, like the gf/cf diet, may not have helped because other

> factors weren't in place yet, and that a lot of the things we've

tried that

> looked like they weren't helping actually are helping, but that when

you're

> working on healing the nervous system, the body will prioritize brain

> healing before GI healing, so that if we give it some time, and keep

doing

> what we're doing, we should eventually see GI improvement too. We

definitely

> are seeing sensory improvement, I just had not been viewing that as the

> primary issue. I always felt the constipation affected her quality

of life

> more than the sensory problems, which we viewed as mild. So I'm really

> pleased to have all this explained to me...I sort of feel like what

we're

> doing is like peeling away the layers of an onion. We have to peel

away all

> these toxicities one by one (while also trying to add back in

nutrients one

> by one), and we don't seem to see improvement, but eventually I feel

that

> we'll finally get to the last layer. And, I think that even though she's

> still constipated, maybe the fact that she's been so darn healthy

all fall

> is a sign that her GI tract is healing in ways that we just can't

see, yet.

>

> It is such a slow journey, though. This chiropractor also cautioned

me that

> it can take years to clear mercury from kids' systems. Sigh.

>

> In the meantime, I'm thinking of going back to the GF/CF diet

because I'm

> thinking it may, like some of these other things, have been helping

her in

> unseen ways, even if we couldn't actually SEE how it was helping her

before.

> On the other hand, I'm also thinking about trying to gradually shift her

> onto a more raw foods diet (which would be mostly GF/CF anyway, but

might

> include some sprouted grains that still would have gluten in

them--since she

> doesn't have celiac disease, I'm not sure that she'd need to be as

strictly

> GF as celiacs are.) I'm shifting to more and more raw foods myself.

> Unfortunately it's easier to switch me than her...I'm a lot more open to

> trying new things than she is. It would have to be a VERY gradual

shift! And

> the frustrating truth is, if a dietary change is helping her in

unseen ways,

> and it's a rough diet to implement, like both GF and raw foods diets

are,

> than we're likely to backslide, because it will seem like we're

doing all

> this for nothing (it will especially look that way to my skeptical

husband).

>

>

> Sigh. Oh well. At least we're making progress, however incrementally...

>

> Bonnie

>

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Hi Bonnie -

Is that list on the internet or could you email me a copy? It sounds

like a useful thing to have!

TIA,

> > >

> > > We went to see a new chiropractor...haven't been to our old one for

> > a while

> > > because of insurance changes...and he was very thrilled with

everything

> > > we've been doing. He said, " You're doing all the right things. Who's

> > helping

> > > you figure all this out? " I said, " Um...it's mostly the moms on the

> > Yahoo

> > > Miralax list! "

> > >

> > > Anyway...he thinks that our daughter's sensory integration problems

> > have to

> > > be solved before the constipation will clear. He thinks that the

> > stress from

> > > living with sensory problems is overloading her sympathetic and

> > > parasympathetic nervous systems. He also thinks that some stuff

> > we've tried

> > > that didn't help, like the gf/cf diet, may not have helped

because other

> > > factors weren't in place yet, and that a lot of the things we've

> > tried that

> > > looked like they weren't helping actually are helping, but that when

> > you're

> > > working on healing the nervous system, the body will prioritize

brain

> > > healing before GI healing, so that if we give it some time, and keep

> > doing

> > > what we're doing, we should eventually see GI improvement too. We

> > definitely

> > > are seeing sensory improvement, I just had not been viewing that

as the

> > > primary issue. I always felt the constipation affected her quality

> > of life

> > > more than the sensory problems, which we viewed as mild. So I'm

really

> > > pleased to have all this explained to me...I sort of feel like what

> > we're

> > > doing is like peeling away the layers of an onion. We have to peel

> > away all

> > > these toxicities one by one (while also trying to add back in

> > nutrients one

> > > by one), and we don't seem to see improvement, but eventually I feel

> > that

> > > we'll finally get to the last layer. And, I think that even

though she's

> > > still constipated, maybe the fact that she's been so darn healthy

> > all fall

> > > is a sign that her GI tract is healing in ways that we just can't

> > see, yet.

> > >

> > > It is such a slow journey, though. This chiropractor also cautioned

> > me that

> > > it can take years to clear mercury from kids' systems. Sigh.

> > >

> > > In the meantime, I'm thinking of going back to the GF/CF diet

> > because I'm

> > > thinking it may, like some of these other things, have been helping

> > her in

> > > unseen ways, even if we couldn't actually SEE how it was helping her

> > before.

> > > On the other hand, I'm also thinking about trying to gradually

shift her

> > > onto a more raw foods diet (which would be mostly GF/CF anyway, but

> > might

> > > include some sprouted grains that still would have gluten in

> > them--since she

> > > doesn't have celiac disease, I'm not sure that she'd need to be as

> > strictly

> > > GF as celiacs are.) I'm shifting to more and more raw foods myself.

> > > Unfortunately it's easier to switch me than her...I'm a lot more

open to

> > > trying new things than she is. It would have to be a VERY gradual

> > shift! And

> > > the frustrating truth is, if a dietary change is helping her in

> > unseen ways,

> > > and it's a rough diet to implement, like both GF and raw foods diets

> > are,

> > > than we're likely to backslide, because it will seem like we're

> > doing all

> > > this for nothing (it will especially look that way to my skeptical

> > husband).

> > >

> > >

> > > Sigh. Oh well. At least we're making progress, however

incrementally...

> > >

> > > Bonnie

> > >

> >

> >

> >

>

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He sounds encouraging!! Nuero/GI!! The 2 are interlinked, one affects the other! Sensory integration I believe stems from GI issues! Seems GI healing well help with the sensory issues! We see this first hand with our son!! Improved GI, less sensory! The GI is loaded with nerves that are neuro linked to the brain! Thank you for the input, I have always been curious about chiro's. Jennie wrote: We went to see a new chiropractor...haven't been to our old one for a while because of insurance

changes...and he was very thrilled with everything we've been doing. He said, "You're doing all the right things. Who's helping you figure all this out?" I said, "Um...it's mostly the moms on the Yahoo Miralax list!" Anyway...he thinks that our daughter's sensory integration problems have to be solved before the constipation will clear. He thinks that the stress from living with sensory problems is overloading her sympathetic and parasympathetic nervous systems. He also thinks that some stuff we've tried that didn't help, like the gf/cf diet, may not have helped because other factors weren't in place yet, and that a lot of the things we've tried that looked like they weren't helping actually are helping, but that when you're working on healing the nervous system, the body will prioritize brain healing before GI healing, so that if we give it some time, and keep doing what we're doing, we should eventually see GI improvement too. We definitely are seeing sensory

improvement, I just had not been viewing that as the primary issue. I always felt the constipation affected her quality of life more than the sensory problems, which we viewed as mild. So I'm really pleased to have all this explained to me...I sort of feel like what we're doing is like peeling away the layers of an onion. We have to peel away all these toxicities one by one (while also trying to add back in nutrients one by one), and we don't seem to see improvement, but eventually I feel that we'll finally get to the last layer. And, I think that even though she's still constipated, maybe the fact that she's been so darn healthy all fall is a sign that her GI tract is healing in ways that we just can't see, yet. It is such a slow journey, though. This chiropractor also cautioned me that it can take years to clear mercury from kids' systems. Sigh. In the meantime, I'm thinking of going back to the GF/CF diet because I'm thinking it may, like some of these

other things, have been helping her in unseen ways, even if we couldn't actually SEE how it was helping her before. On the other hand, I'm also thinking about trying to gradually shift her onto a more raw foods diet (which would be mostly GF/CF anyway, but might include some sprouted grains that still would have gluten in them--since she doesn't have celiac disease, I'm not sure that she'd need to be as strictly GF as celiacs are.) I'm shifting to more and more raw foods myself. Unfortunately it's easier to switch me than her...I'm a lot more open to trying new things than she is. It would have to be a VERY gradual shift! And the frustrating truth is, if a dietary change is helping her in unseen ways, and it's a rough diet to implement, like both GF and raw foods diets are, than we're likely to backslide, because it will seem like we're doing all this for nothing (it will especially look that way to my skeptical husband). Sigh. Oh well. At least we're making

progress, however incrementally...Bonnie

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Hi Bonnie,

I can completely appreciate how you feel. Hang in there and stay the course! I too have often said it is like peeling away layers or putting pieces of the puzzle together. We were 1 1/2 years into biomedical treatments for my daughter's sensory integration problems and ADHD (including going GF/CF/soy free) and I was ready to stop due to lack of progress. Then my DAN suggested the low oxalate diet, and that was our first huge breakthrough. It led us into a whole year of peeling away more layers (more food intolerances, etc.) before we finally hit bottom, and now are resolving all the problems those layers revealed. We finally see the light at the end of the tunnel. I highly recommend taking a look at the low oxalate diet and look to see if there are any salicylate/phenol sensitivities as well - addressing those two have pretty much

eliminated my daughter's sensory issues (as well as greatly improved her ADHD).

To give an example of how you have to keep peeling away the layers, my son went GF/CF/SF when he was 3 because he started having major attention problems (much more than age appropriate). We def. saw improvement, but then he regressed again. While I didn't know it at the time, what happened was we were inadverdently giving him high oxalate foods and Vit C to try to address his long term constipation issues. After starting my daughter on LOD, I decided to try him, and we began to get back that improvement after the first initial dumping phase. So long story short, one treatment can cancel another's good effects, and until you get to the root of the problem, you may not see any improvements. The most important thing is to be persistent, even if it seems extreme (I can't begin to tell you how much skepticism I dealt with from some family and

friends). If I had given up (and trust me, 2007 was soooo tough to hang in there!!), then we wouldn't be where we are now. In the end, it is all worth it.

God Bless and good luck,

insight from our visit to the chiropractor

We went to see a new chiropractor. ..haven't been to our old one for a while because of insurance changes...and he was very thrilled with everything we've been doing. He said, "You're doing all the right things. Who's helping you figure all this out?" I said, "Um...it's mostly the moms on the Yahoo Miralax list!" Anyway...he thinks that our daughter's sensory integration problems have to be solved before the constipation will clear. He thinks that the stress from living with sensory problems is overloading her sympathetic and parasympathetic nervous systems. He also thinks that some stuff we've tried that didn't help, like the gf/cf diet, may not have helped because other factors weren't in place yet, and that a lot of the things we've tried that looked like they weren't helping actually are helping, but that when you're working on healing the nervous system, the body will prioritize brain healing before GI healing, so that if we give it some

time, and keep doing what we're doing, we should eventually see GI improvement too. We definitely are seeing sensory improvement, I just had not been viewing that as the primary issue. I always felt the constipation affected her quality of life more than the sensory problems, which we viewed as mild. So I'm really pleased to have all this explained to me...I sort of feel like what we're doing is like peeling away the layers of an onion. We have to peel away all these toxicities one by one (while also trying to add back in nutrients one by one), and we don't seem to see improvement, but eventually I feel that we'll finally get to the last layer. And, I think that even though she's still constipated, maybe the fact that she's been so darn healthy all fall is a sign that her GI tract is healing in ways that we just can't see, yet. It is such a slow journey, though. This chiropractor also cautioned me that it can take years to clear mercury from

kids' systems. Sigh. In the meantime, I'm thinking of going back to the GF/CF diet because I'm thinking it may, like some of these other things, have been helping her in unseen ways, even if we couldn't actually SEE how it was helping her before. On the other hand, I'm also thinking about trying to gradually shift her onto a more raw foods diet (which would be mostly GF/CF anyway, but might include some sprouted grains that still would have gluten in them--since she doesn't have celiac disease, I'm not sure that she'd need to be as strictly GF as celiacs are.) I'm shifting to more and more raw foods myself. Unfortunately it's easier to switch me than her...I'm a lot more open to trying new things than she is. It would have to be a VERY gradual shift! And the frustrating truth is, if a dietary change is helping her in unseen ways, and it's a rough diet to implement, like both GF and raw foods diets are, than we're likely to backslide, because it

will seem like we're doing all this for nothing (it will especially look that way to my skeptical husband). Sigh. Oh well. At least we're making progress, however incrementally. ..Bonnie

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