Re: Update on Aussie Barb, longest CFS follower on MP

[Guest guest]

Wow!!!!

tony

>

> Here's a follow up email that I received on Aussie Barb's condition

and another patient who recently died. Both emails are being

reprinted here in their original content with only minor changes to

account for spelling irregularities. I can neither verify nor dispute

the content of these reports, but the implications seem serious

enough to me to warrant further investigation.

> penny

>

> Quote Penny,

>

> For those interested in the clinical implications of Aussie Barbs

> hospitalization as it relates to the MP, her husband gave a brief

> posting of some of the details 2 weeks into her hospital stay;

>

> " The Hospital staff are taking very good care of her.They are doing

> daily tests to sort out what is causing all this. The tests have

> shown she has acute cholecystitis and an enlarged pancreas. They are

> continuing 3 antibiotics IV and the dexa is at 3mg q12h.The insulin

> is keeping the sugar stable.Kidney and liver function tests are

> improving every day. "

>

> The scary part about this hospitalization is that it follows almost

> the exact pattern of another MP patient known as " Fisherman " , screen

> name " jillbc " , who passed away in his hospital of Sarcoid/lung

> complications, just as Aussie Barb was being admitted. " Fisherman "

> had been on the MP for 2 plus years and stayed with the Benicar/abx

> medication all the way up to and during his hospitalization until

> only a few days before passing away.

>

> I suspect there others that are also following a similar fate as

> many long term MP patients are silently disappearing from the MP

> website without any indications of an improving or positive outcome.

> The silent disappearance of the individuals maybe that they dont

> have active spousal support like Aussie Barb and the Fisherman that

> can provide an update and outcome as an MP patient transitions into

> hopitalization. Unquote

>

[Guest guest]

Really scary. I posted this over on lymenet, to help them out over

there. Thanks.

>

> Here's a follow up email that I received on Aussie Barb's condition

and another patient who recently died. Both emails are being reprinted

here in their original content with only minor changes to account for

spelling irregularities. I can neither verify nor dispute the content

of these reports, but the implications seem serious enough to me to

warrant further investigation.

> penny

>

> Quote Penny,

>

> For those interested in the clinical implications of Aussie Barbs

> hospitalization as it relates to the MP, her husband gave a brief

> posting of some of the details 2 weeks into her hospital stay;

>

> " The Hospital staff are taking very good care of her.They are doing

> daily tests to sort out what is causing all this. The tests have

> shown she has acute cholecystitis and an enlarged pancreas. They are

> continuing 3 antibiotics IV and the dexa is at 3mg q12h.The insulin

> is keeping the sugar stable.Kidney and liver function tests are

> improving every day. "

>

> The scary part about this hospitalization is that it follows almost

> the exact pattern of another MP patient known as " Fisherman " , screen

> name " jillbc " , who passed away in his hospital of Sarcoid/lung

> complications, just as Aussie Barb was being admitted. " Fisherman "

> had been on the MP for 2 plus years and stayed with the Benicar/abx

> medication all the way up to and during his hospitalization until

> only a few days before passing away.

>

> I suspect there others that are also following a similar fate as

> many long term MP patients are silently disappearing from the MP

> website without any indications of an improving or positive outcome.

> The silent disappearance of the individuals maybe that they dont

> have active spousal support like Aussie Barb and the Fisherman that

> can provide an update and outcome as an MP patient transitions into

> hopitalization. Unquote

>