Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 I got a positive lyme result today. if anyone here wants to chat about lyme info please contact me offgroup. or is it ok to talk here? amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2009 Report Share Posted December 23, 2009 where is this place where there is no mold? > > > > I also have been told I have Lyme and the symptoms are identical to those on the mold list. So, if I cant leave this home..is it pointless to go see him? > > My experience, observation and strong belief is that it is exceedingly difficult to treat Lyme, viruses or any other pathogens insofar as people are still getting much mold exposure. > > It seems that the immune system isn't up to it. > > All those antibiotic treatments are tremendously taxing on the system. Many people cannot tolerate more than even a small amount. Those who proceed often suffer terrible die-off reactions. Those who make any improvements often experience relapses back to where they were. > > Antivirals seem to be the same. > > I was not able to tolerate any of that stuff when I was in my moldy house. > > When I was pursuing moderate avoidance, I was able to tolerate small amounts with a good bit of symptoms. > > When I've been really clear of mold toxins as a result of extreme avoidance, I've had little problems tolerating regular doses (and have experienced significant benefits). > > If the mold is what is screwing up the immune system (and fostering a relatively anaerobic environment in which pathogens can easily thrive), this makes perfect sense. > > I remain perplexed at why people would want to remain in a place that's poisoning them, regardless of what the alternative is.... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2009 Report Share Posted December 23, 2009 , let me see if I can understand this. someone that lives with you in a rabbit hole in the desert who has the most extreme mcs can work in the summer but not in the winter, by practicing extreme advoidance. so what happens in the winter? does the desert become extremely moldy? are you sure this is not a extreme allergy to mold? how does extreme advoidance fit in with living in the desert in the winter with extreme mold? are there some other extreme facts your leaving out? does this extremest have any other extreme reactions to anything besides mold? if not it must surely be a extreme allergy. > > , > > This is very interesting about having to get away from the mold before > healing from other chronic problems, thank you. > > Regarding " wanting to stay in a place that's poisoning them " , I think > there can be many reasons. In my son's case, he doesn't necessarily > believe that mold is poisoning him, he sees this as one more theory, > likely to be yet another misdiagnosis as there have been so many, he is > attached to our house, it is the only home he has ever known, he is > comfortable there, it is the " known " quantity, he has great difficulty > traveling due to chronic pain, sleep issues, and digestive problems, so > for many reasons he could not just take off and live out of our car... > And he doesn't even have to think about the logistics, cost, etc. of > finding a safer place, paying for an additional residence, etc... > > I personally found it very stressful trying to find a place that was > likely to be relatively mold safe & also provide certain amenities that > would help my son be somewhat in his comfort zone away from home, and I > am completely healthy, so I can imagine how difficult it is for someone > who is very sick to make a move, either temporary or permanent... > > And then there are issues like jobs and kids in school, and so on.... > > Also I don't think I've found the perfect safe place yet either, I will > have to go thru this again if the doctor says to not go back to our > house (likely scenario), looking for a more permanent place to live. > > > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 thanks for the replies. I am very ill and just the thought of trying to pack up...look for someplace to live, not just any place..but a non moldy place ..one that is near where I live. It just seems impossible. What if the new place is just as moldy or worse. My symptoms are worse in winter than summer...but wouldnt the mold grow more in the summer months? AC is barely run in summer, so that is not the variable. Cant you treat while still living in the moldy home? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 here are my current symptoms.. very tight pelvic floor muscles, interstitial cystitis... some mornings I wake up feeling very sick(like today) but I was OK for the past few days, so not sure what it it..but it is rainy today. I am sensitive to many foods. Weight loss, vulvodynia. the odd thing is I did work in a building that had leaks..sat under a vent...but I was in that building for five years before I got sick. I would get upper respitory infections, but that was the extent ...until 2005 when I was in the mountains. would Dr Shoemaker be able to tell what is mold and what is lyme? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 I think he would! Both cause similar symptoms but some medications can help both! would Dr Shoemaker be able to tell what is mold and what is lyme? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 Hi, I am really interested in your symptoms BECAUSE my sick family member has very tight pelvic floor muscles, pelvic pain and dysfunction. The cause of these problems is not well understood by conventional medicine, they are good at diagnosing it but then do not know the cause or how to fix, I suspect that it is neuromuscular misfiring brought on by mold and other toxicities. Sue > >here are my current symptoms.. > >very tight pelvic floor muscles, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 also, here are a couple books you may want to read, although they don't address the cause, if you have the energy to do the work, some of this may help: Heal Pelvic Pain by Amy Stein <http://www.amazon.com/Heal-Pelvic-Pain-Strengthening-Incontinence/dp/ 0071546561/ref=sr_1_1?ie=UTF8 & s=books & qid=1261872040 & sr=8-1> A Headache in the Pelvis by Wise <http://www.amazon.com/Headache-Pelvis-5th--Wise/dp/0972775544/ ref=sr_1_2?ie=UTF8 & s=books & qid=1261872040 & sr=8-2> And there are physical therapists who specialize in pelvic floor problems who maybe able to give you some relief. However, my sick family member did Dr. Wise's 5 day program (but did not do the follow up homework) and got no relief from that, he also did months and months of physical therapy without any relief, but again he did little of the PT homework... Good luck, Sue > >here are my current symptoms.. > >very tight pelvic floor muscles, > interstitial cystitis... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 thanks SSR- it is just a real challenge tracking down all my medical records...I have been to so many doctors it is just crazy. I would have to create my timeline for sickness too and I havent kept that detailed of notes along the way. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2009 Report Share Posted December 27, 2009 No, no treatment can keep up with the ongoing toxic load from a moldy environment. You might as well try to dry yourself while standing under the shower. If you stay you will permanently damage your health or die > > thanks for the replies. I am very ill and just the thought of trying to pack up...look for someplace to live, not just any place..but a non moldy place ..one that is near where I live. It just seems impossible. What if the new place is just as moldy or worse. > > My symptoms are worse in winter than summer...but wouldnt the mold grow more in the summer months? AC is barely run in summer, so that is not the variable. > > Cant you treat while still living in the moldy home? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 In a message dated 12/27/2009 9:57:21 A.M. Eastern Standard Time, mich2604@... writes: thanks SSR- it is just a real challenge tracking down all my medical records...I have been to so many doctors it is just crazy. I don't think you have to copy them ALL. Just the most recent and a good summary of what has been going on with you. Symptoms, when they began, testing done, results, etc. Include the Drs. names and why you saw them and what they treated you for and with. Quote Link to comment Share on other sites More sharing options...
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