Update on Aussie Barb, longest CFS follower on MP

[Guest guest]

Here's a follow up email that I received on Aussie Barb's condition and another patient who recently died. Both emails are being reprinted here in their original content with only minor changes to account for spelling irregularities. I can neither verify nor dispute the content of these reports, but the implications seem serious enough to me to warrant further investigation. penny Quote Penny,For those interested in the clinical implications of Aussie Barbshospitalization as it relates to the MP, her husband gave a briefposting of some of the details 2 weeks into her hospital stay;"The Hospital staff are taking very good care of her.They are doingdaily tests to sort out what is causing all this. The tests haveshown she has acute cholecystitis and an enlarged pancreas. They arecontinuing 3 antibiotics IV and the dexa is at 3mg q12h.The insulinis

keeping the sugar stable.Kidney and liver function tests areimproving every day."The scary part about this hospitalization is that it follows almostthe exact pattern of another MP patient known as "Fisherman", screenname "jillbc", who passed away in his hospital of Sarcoid/lungcomplications, just as Aussie Barb was being admitted. "Fisherman"had been on the MP for 2 plus years and stayed with the Benicar/abxmedication all the way up to and during his hospitalization untilonly a few days before passing away.I suspect there others that are also following a similar fate asmany long term MP patients are silently disappearing from the MPwebsite without any indications of an improving or positive outcome.The silent disappearance of the individuals maybe that they donthave active spousal support like Aussie Barb and the Fisherman thatcan provide an update and outcome as an MP patient transitions

intohopitalization. Unquote