Re: Re: At the end of my ability to cope!

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missed you tonylike to see your rants more oftensteveOn 8 Feb 2009, at 00:53, dumbaussie2000 wrote:Hello!!You just described how your suffering from a huge sinus infection-You keep describing how you have major sinus issues, you then say youhave NO INFECTION in your sinuses. I could be wrong, but a billionbacteria in and around the region would qualify in my book for a HUGESINUS INFECTION- that ain't being delt with appropriately..Look up the fda's recommendation of NO ANTIBIOTICS for EARINFECTIONS..BAsically doctors are failing to clear ear infections90percent of the time with there approach and choice ofantiobiotics...you just joined that club..Avelox ain't going to touch any bacteria residing in your facialbones.quinolones don't touch bony structure infections. >> Hi:> I think I have Lyme and I have interstitial cystitis and am brandnew here.> I have a history of recurrent sinus infections, though not chronic.I get them, they go away > and then I am fine until my next one. I went 8 months before thislast one.> My last infection early december cleared up with Augementin for14days, but I continued > to have the most insane sinus pain, pressure, facial pressure, toothpain etc even though > there was no mucous.> The ENT did CT Scan and saw nothing, though at that point he had putme on Prednisone > and I don't know that inflammation would have shown up due to beingon day 4 of > Prednisone. It was a 9 day course or Prednisone starting at 60 mgand tapering down. I > was up for 7 nights, ended up in the ER and had to stop it. Itdidn't help much either, the > first few days the sinus pain resolved, but as I tapered down, thepain came back even > worse. Since the Prednisone I have had a lot more tooth pain fromthe sinuses. > > Since then, I have had another sinus infection which I am on Aveloxfor. I am in DIRE pain > still. The mucous is now clear, but still sticky and hard to blowout. I have KILLER sinus > pain and pressure, behind the eyes, above the eyes, bridge of thenose, cheeks and > TOOTH PAIN. When I lay down, as soon as I lay down, all my teethhave a feeling of > pressure and by middle of the night the upper molars all ache. Ihave been dealing with > this now for 2 months of nonstop dire pain!> I was referred to a neurologist and had a brain MRI which wasnormal. The ENT just did a > nasal swab to culture for fungus. The pain is 24/7. I have no moreinfection, morning > congestion, but nonstop insane face pain/pressure which I KNOW isfrom sinuses.> > I suspect I have Lyme though I never have had a definite positiveresult through IGENEX. I > have a C4a level of 9000 if you know what that is and my IGMimmunoglobulin is always a > bit elevated. > > I want to die from this pain, but I have two little children andreally what I want is release > from my suffering, not so much to die of course. I cry all the timeand am severely > depressed because of the pain in the sinuses.> > Does ANYBODY have any ideas of what I could do from here? Theneurologist said to take > Neurontin incase the Trigeminal Nerve is irritated from all theinflammation since this > nerve does go into the sinuses,teeth etc. I really don't like theside effect profile of this > drug. I have percoset for pain, but it make me feel sick to mystomach, plus I hate to take > it since it is a narcotic. I have done all the saline,neti pots,neilmed rinses one can > imagine, I have tried decongestants etcetcetc.> > What I am dealing with is chronic sinus inflammation in the absenceof infection and with > a normal CT sinus scan.> > I can't go on much more with this pain and condition.> Can anybody think of anything that might help? My LLMD wants to putme on Low Does > Naltrexone and ordered it from a compound pharmacy. > Please help!>

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really shouting is the only way with 99 % of the populationdespite the fact your preaching to the converted much of the time for the old criminals like me, penny, etc.etcsOn 8 Feb 2009, at 00:57, Agentbleu wrote:missed you tonylike to see your rants more oftensteveOn 8 Feb 2009, at 00:53, dumbaussie2000 wrote:Hello!!You just described how your suffering from a huge sinus infection-You keep describing how you have major sinus issues, you then say youhave NO INFECTION in your sinuses. I could be wrong, but a billionbacteria in and around the region would qualify in my book for a HUGESINUS INFECTION- that ain't being delt with appropriately..Look up the fda's recommendation of NO ANTIBIOTICS for EARINFECTIONS..BAsically doctors are failing to clear ear infections90percent of the time with there approach and choice ofantiobiotics...you just joined that club..Avelox ain't going to touch any bacteria residing in your facialbones.quinolones don't touch bony structure infections. >> Hi:> I think I have Lyme and I have interstitial cystitis and am brandnew here.> I have a history of recurrent sinus infections, though not chronic.I get them, they go away > and then I am fine until my next one. I went 8 months before thislast one.> My last infection early december cleared up with Augementin for14days, but I continued > to have the most insane sinus pain, pressure, facial pressure, toothpain etc even though > there was no mucous.> The ENT did CT Scan and saw nothing, though at that point he had putme on Prednisone > and I don't know that inflammation would have shown up due to beingon day 4 of > Prednisone. It was a 9 day course or Prednisone starting at 60 mgand tapering down. I > was up for 7 nights, ended up in the ER and had to stop it. Itdidn't help much either, the > first few days the sinus pain resolved, but as I tapered down, thepain came back even > worse. Since the Prednisone I have had a lot more tooth pain fromthe sinuses. > > Since then, I have had another sinus infection which I am on Aveloxfor. I am in DIRE pain > still. The mucous is now clear, but still sticky and hard to blowout. I have KILLER sinus > pain and pressure, behind the eyes, above the eyes, bridge of thenose, cheeks and > TOOTH PAIN. When I lay down, as soon as I lay down, all my teethhave a feeling of > pressure and by middle of the night the upper molars all ache. Ihave been dealing with > this now for 2 months of nonstop dire pain!> I was referred to a neurologist and had a brain MRI which wasnormal. The ENT just did a > nasal swab to culture for fungus. The pain is 24/7. I have no moreinfection, morning > congestion, but nonstop insane face pain/pressure which I KNOW isfrom sinuses.> > I suspect I have Lyme though I never have had a definite positiveresult through IGENEX. I > have a C4a level of 9000 if you know what that is and my IGMimmunoglobulin is always a > bit elevated. > > I want to die from this pain, but I have two little children andreally what I want is release > from my suffering, not so much to die of course. I cry all the timeand am severely > depressed because of the pain in the sinuses.> > Does ANYBODY have any ideas of what I could do from here? Theneurologist said to take > Neurontin incase the Trigeminal Nerve is irritated from all theinflammation since this > nerve does go into the sinuses,teeth etc. I really don't like theside effect profile of this > drug. I have percoset for pain, but it make me feel sick to mystomach, plus I hate to take > it since it is a narcotic. I have done all the saline,neti pots,neilmed rinses one can > imagine, I have tried decongestants etcetcetc.> > What I am dealing with is chronic sinus inflammation in the absenceof infection and with > a normal CT sinus scan.> > I can't go on much more with this pain and condition.> Can anybody think of anything that might help? My LLMD wants to putme on Low Does > Naltrexone and ordered it from a compound pharmacy. > Please help!>

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lolOn 8 Feb 2009, at 16:39, dumbaussie2000 wrote:BleuI just gave some facts!!!!!!!!!!!If your given a pathetic course ofantibiotics, your made to believe(abra cadabra)-see you have noinfection!!!...The facts are the dickheads prescribing the antibiotics have been toldyour so pathetic at clearing infections don't prescribe them!!!!Ifthat's ranting, maybe we shopuld tell this poor girl your infectionhas cleared and your just imaging all the pain and pressure yourexperiencing.. I think your braindead by the way!!!> >> >> >> > Hi:> >> > I think I have Lyme and I have interstitial cystitis and am brand> >> new here.> >> > I have a history of recurrent sinus infections, though not chronic.> >> I get them, they go away> >> > and then I am fine until my next one. I went 8 months before this> >> last one.> >> > My last infection early december cleared up with Augementin for14> >> days, but I continued> >> > to have the most insane sinus pain, pressure, facial pressure, > >> tooth> >> pain etc even though> >> > there was no mucous.> >> > The ENT did CT Scan and saw nothing, though at that point he had > >> put> >> me on Prednisone> >> > and I don't know that inflammation would have shown up due to being> >> on day 4 of> >> > Prednisone. It was a 9 day course or Prednisone starting at 60 mg> >> and tapering down. I> >> > was up for 7 nights, ended up in the ER and had to stop it. It> >> didn't help much either, the> >> > first few days the sinus pain resolved, but as I tapered down, the> >> pain came back even> >> > worse. Since the Prednisone I have had a lot more tooth pain from> >> the sinuses.> >> >> >> > Since then, I have had another sinus infection which I am on Avelox> >> for. I am in DIRE pain> >> > still. The mucous is now clear, but still sticky and hard to blow> >> out. I have KILLER sinus> >> > pain and pressure, behind the eyes, above the eyes, bridge of the> >> nose, cheeks and> >> > TOOTH PAIN. When I lay down, as soon as I lay down, all my teeth> >> have a feeling of> >> > pressure and by middle of the night the upper molars all ache. I> >> have been dealing with> >> > this now for 2 months of nonstop dire pain!> >> > I was referred to a neurologist and had a brain MRI which was> >> normal. The ENT just did a> >> > nasal swab to culture for fungus. The pain is 24/7. I have no more> >> infection, morning> >> > congestion, but nonstop insane face pain/pressure which I KNOW is> >> from sinuses.> >> >> >> > I suspect I have Lyme though I never have had a definite positive> >> result through IGENEX. I> >> > have a C4a level of 9000 if you know what that is and my IGM> >> immunoglobulin is always a> >> > bit elevated.> >> >> >> > I want to die from this pain, but I have two little children and> >> really what I want is release> >> > from my suffering, not so much to die of course. I cry all the time> >> and am severely> >> > depressed because of the pain in the sinuses.> >> >> >> > Does ANYBODY have any ideas of what I could do from here? The> >> neurologist said to take> >> > Neurontin incase the Trigeminal Nerve is irritated from all the> >> inflammation since this> >> > nerve does go into the sinuses,teeth etc. I really don't like the> >> side effect profile of this> >> > drug. I have percoset for pain, but it make me feel sick to my> >> stomach, plus I hate to take> >> > it since it is a narcotic. I have done all the saline,neti pots,> >> neilmed rinses one can> >> > imagine, I have tried decongestants etcetcetc.> >> >> >> > What I am dealing with is chronic sinus inflammation in the absence> >> of infection and with> >> > a normal CT sinus scan.> >> >> >> > I can't go on much more with this pain and condition.> >> > Can anybody think of anything that might help? My LLMD wants to put> >> me on Low Does> >> > Naltrexone and ordered it from a compound pharmacy.> >> > Please help!> >> >> >>> >>> >> >> >>