Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 Hi Lori & welcome to our group!! Sounds like things are progressing rather nicely for on thus far. Ah yes, many members have Cigna in our group, and many (not all) have been denied coverage for their baby's band, sorry to tell you this!! But like I said, not all, hopefully Cigna will come thru for you guys!! on is at a great younger age to get him banded, he should receive nice correction!! Your repositioning story w/on is like many in the group, myself included! Those babies can wiggle out of anything to get back on their flat side, it's very frustrating. I didn't use the boppy products you're questioning, lots in our group have. Keep plugging away w/the repositioning. It does help keeping him in the exesaucer, jumper, whatever keeps him off his flatside. There are tips at www.plagiocephaly.org/support Welcome again, we're happy you found us!! Keep us posted, fingers crossed Cigna comes thru for coverage! Debbie Abby's mom DOCGrad MIlorikhall <lorikhall@...> wrote: Hi there...I wanted to introduce myself (Lori) and ds on 1/14/03. on was diagnosed with positional plagio at 4 months. We noticed his "flatness" at his 2 month appt...the ped just told us to position him on his right side to sleep and to keep him off his back during the day. Well...needless to say...I wasn't aggressive enough. I purchased a sleep positioner and he managed to "break" lose...I kept hearing the velcros. The ped finally referred us to the cranial tech...after his consult...they suggested the DOC Band. We went to a cranial facial surgeon for measurements and he suggested the band, also. Now we are waiting for the pre-determination from Cigna. Anyone have problems with Cigna? We are still trying to repo him during the days and nights...we finally got him to sleep on his sides (at least for 4 hours at a time)...I'll wake up in the middle of the night and he has managed to get on his back...very stubborn. Anyone have suggestions during the day...he does have an exersaucer (30 minutes max) and a jumper (I have to swing him)...and unfortunately he still hates tummy time...is the boppy tummy time mat a good purchase? How about the mini boppy or noggin nest? Any suggestions would be greatly appreciated. Thanks for letting me share. I'm really glad I found this support group. I'll keep updating on's progress.Lori and on 1/14/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 Welcome to the group. This group is so supportive and helpful. Good luck with your insurance. We didn't have any of the tummy time items. Please keep us posted on on. Angie and Jenna(STARband grad 1/21/03) New to this board Hi there...I wanted to introduce myself (Lori) and ds on 1/14/03. on was diagnosed with positional plagio at 4 months. We noticed his "flatness" at his 2 month appt...the ped just told us to position him on his right side to sleep and to keep him off his back during the day. Well...needless to say...I wasn't aggressive enough. I purchased a sleep positioner and he managed to "break" lose...I kept hearing the velcros. The ped finally referred us to the cranial tech...after his consult...they suggested the DOC Band. We went to a cranial facial surgeon for measurements and he suggested the band, also. Now we are waiting for the pre-determination from Cigna. Anyone have problems with Cigna? We are still trying to repo him during the days and nights...we finally got him to sleep on his sides (at least for 4 hours at a time)...I'll wake up in the middle of the night and he has managed to get on his back...very stubborn. Anyone have suggestions during the day...he does have an exersaucer (30 minutes max) and a jumper (I have to swing him)...and unfortunately he still hates tummy time...is the boppy tummy time mat a good purchase? How about the mini boppy or noggin nest? Any suggestions would be greatly appreciated. Thanks for letting me share. I'm really glad I found this support group. I'll keep updating on's progress.Lori and on 1/14/03For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 Welcome! My daughter was diagnosed at 4 months as well. She's 6 months now and has just one week ago finally gotten (is that a word?) her band. I can already see some change! I don't know how Cigna will respond. According to the gal we work with, most insurance companies either don't cover it or fight it. She also says they like when people have Medicaid because they pay better than anyone else. Thankfully, my daughter is currently on Medicaid. I take my daughter to work with me, and until recently she spent a lot of time in her carseat/carrier and/or her bassinet that I keep up there. She has more than just a flat spot, though, and her flat spot is lower right in the back, so I don't think that effected her as much. I still put her in her swing some, and she sits up in it now, has almost outgrown it, and put her in an exersaucer at home, and in a walker at work, though she can't reach the floor yet, she is starting to tolerate being in it longer now. I don't know much about the jumper. I'd say the exersaucer and tummy time as much as possible, or sit him up holding him as long and as much as you can, and maybe he'll start sitting up on his own in the next month or so. If he does get banded, you won't have to worry so much about that. Good luck, and keep us informed! Caro, mom to Baby Mo, 6 1/2 months old, Docbanded 5/23/03 --- In Plagiocephaly , " lorikhall " <lorikhall@y...> wrote: > Hi there...I wanted to introduce myself (Lori) and ds on > 1/14/03. on was diagnosed with positional plagio at 4 months. > We noticed his " flatness " at his 2 month appt...the ped just told us > to position him on his right side to sleep and to keep him off his > back during the day. Well...needless to say...I wasn't aggressive > enough. I purchased a sleep positioner and he managed to " break " > lose...I kept hearing the velcros. The ped finally referred us to the > cranial tech...after his consult...they suggested the DOC Band. We > went to a cranial facial surgeon for measurements and he suggested > the band, also. Now we are waiting for the pre-determination from > Cigna. Anyone have problems with Cigna? We are still trying to repo > him during the days and nights...we finally got him to sleep on his > sides (at least for 4 hours at a time)...I'll wake up in the middle > of the night and he has managed to get on his back...very stubborn. > Anyone have suggestions during the day...he does have an exersaucer > (30 minutes max) and a jumper (I have to swing him)...and > unfortunately he still hates tummy time...is the boppy tummy time mat > a good purchase? How about the mini boppy or noggin nest? Any > suggestions would be greatly appreciated. Thanks for letting me > share. I'm really glad I found this support group. I'll keep > updating on's progress. > Lori and on 1/14/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 Hi Lori! Welcome to the board. My dd did the same thing when we tried repo, she broke loose every time, so now we are in the STARband. We have Cigna Select, which sucks I might add, but they did partially cover her band treatment, we still had to pay quite a bit. Glad you found this group, keep us updated! Good luck, Kat & Olivia-STARbanded 3/5/03 TX --- In Plagiocephaly , " lorikhall " <lorikhall@y...> wrote: > Hi there...I wanted to introduce myself (Lori) and ds on > 1/14/03. on was diagnosed with positional plagio at 4 months. > We noticed his " flatness " at his 2 month appt...the ped just told us > to position him on his right side to sleep and to keep him off his > back during the day. Well...needless to say...I wasn't aggressive > enough. I purchased a sleep positioner and he managed to " break " > lose...I kept hearing the velcros. The ped finally referred us to the > cranial tech...after his consult...they suggested the DOC Band. We > went to a cranial facial surgeon for measurements and he suggested > the band, also. Now we are waiting for the pre-determination from > Cigna. Anyone have problems with Cigna? We are still trying to repo > him during the days and nights...we finally got him to sleep on his > sides (at least for 4 hours at a time)...I'll wake up in the middle > of the night and he has managed to get on his back...very stubborn. > Anyone have suggestions during the day...he does have an exersaucer > (30 minutes max) and a jumper (I have to swing him)...and > unfortunately he still hates tummy time...is the boppy tummy time mat > a good purchase? How about the mini boppy or noggin nest? Any > suggestions would be greatly appreciated. Thanks for letting me > share. I'm really glad I found this support group. I'll keep > updating on's progress. > Lori and on 1/14/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 Hi Lori, I see you've gotten your questions answered already so I'll just welcome you to the group! Please keep us posted on on and Cigna. --- In Plagiocephaly , " lorikhall " <lorikhall@y...> wrote: > Hi there...I wanted to introduce myself (Lori) and ds on > 1/14/03. on was diagnosed with positional plagio at 4 months. > We noticed his " flatness " at his 2 month appt...the ped just told us > to position him on his right side to sleep and to keep him off his > back during the day. Well...needless to say...I wasn't aggressive > enough. I purchased a sleep positioner and he managed to " break " > lose...I kept hearing the velcros. The ped finally referred us to the > cranial tech...after his consult...they suggested the DOC Band. We > went to a cranial facial surgeon for measurements and he suggested > the band, also. Now we are waiting for the pre-determination from > Cigna. Anyone have problems with Cigna? We are still trying to repo > him during the days and nights...we finally got him to sleep on his > sides (at least for 4 hours at a time)...I'll wake up in the middle > of the night and he has managed to get on his back...very stubborn. > Anyone have suggestions during the day...he does have an exersaucer > (30 minutes max) and a jumper (I have to swing him)...and > unfortunately he still hates tummy time...is the boppy tummy time mat > a good purchase? How about the mini boppy or noggin nest? Any > suggestions would be greatly appreciated. Thanks for letting me > share. I'm really glad I found this support group. I'll keep > updating on's progress. > Lori and on 1/14/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Hi Lori! My Kurt is just one day older than on! While we were trying repo we used the tummy time mat and Kurt really liked it. I tried to keep him off his head, but I did use the Noggin Nest when he was in the car seat. We ended up banding him anyway after we tried repo for about 6 weeks. He still likes to use the tummy time mat though! Good luck! Kim mom to Kurt (STARbanded 5/8/03)lorikhall <lorikhall@...> wrote: Hi there...I wanted to introduce myself (Lori) and ds on 1/14/03. on was diagnosed with positional plagio at 4 months. We noticed his "flatness" at his 2 month appt...the ped just told us to position him on his right side to sleep and to keep him off his back during the day. Well...needless to say...I wasn't aggressive enough. I purchased a sleep positioner and he managed to "break" lose...I kept hearing the velcros. The ped finally referred us to the cranial tech...after his consult...they suggested the DOC Band. We went to a cranial facial surgeon for measurements and he suggested the band, also. Now we are waiting for the pre-determination from Cigna. Anyone have problems with Cigna? We are still trying to repo him during the days and nights...we finally got him to sleep on his sides (at least for 4 hours at a time)...I'll wake up in the middle of the night and he has managed to get on his back...very stubborn. Anyone have suggestions during the day...he does have an exersaucer (30 minutes max) and a jumper (I have to swing him)...and unfortunately he still hates tummy time...is the boppy tummy time mat a good purchase? How about the mini boppy or noggin nest? Any suggestions would be greatly appreciated. Thanks for letting me share. I'm really glad I found this support group. I'll keep updating on's progress.Lori and on 1/14/03For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Hi Sheri! Welcome to the group. It is nice to meet you. You are very fortunate that Kadie was diagnosed very early. Have you been having success with repositioning her now for sleep and keeping her off the flat spot as much as possible when awake? I hope that your efforts improve her plagio but should she need a helmet there are many people here that can give you very good advice. I am fairly new here and we are getting my ds's helmet ordered today. It was not an easy decision! Please let us know if you have any specific questions or concerns and I will try to help you as much as possible. Sue Colin F. (brachy) 8.5 mos. Buffalo, NY going to leave to get scanned NOW :-) > Hi all just wanted to intro myself. I am Sheri and I have a > 4 month old who has Torticollis and Plagio. Her name is Kadie. She > is in PT now for her tort and starts it here at home tomorrow. Long > story short>>>> Dh travels with his work we just got home to KY we > had been in Ok for 9 months. Kadie started PT there and is > beginning here tomorrow. She had a ctscan and all is ok but > radiologist couldnt rule out a brain prob ( only cause hse is so > young) but she is getting an MRI the 28th to be sure. She is fine > neurologically so we think it is just a shift dure to her plagio. > SHe goes to her neurologist July 15th to see if she needs a helmet. > Nice meeting eveyone adn hope to get ot know u all. > > Sheri mom to 2 > wife to 1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Hi Sheri, Welcome to the group, we're glad to have you. You sure are on top of the game! Your baby is at a great younger age to receive excellent correction should she be banded. Please let us know how you make out at your appt. Good luck and please keep us posted. > Hi all just wanted to intro myself. I am Sheri and I have a > 4 month old who has Torticollis and Plagio. Her name is Kadie. She > is in PT now for her tort and starts it here at home tomorrow. Long > story short>>>> Dh travels with his work we just got home to KY we > had been in Ok for 9 months. Kadie started PT there and is > beginning here tomorrow. She had a ctscan and all is ok but > radiologist couldnt rule out a brain prob ( only cause hse is so > young) but she is getting an MRI the 28th to be sure. She is fine > neurologically so we think it is just a shift dure to her plagio. > SHe goes to her neurologist July 15th to see if she needs a helmet. > Nice meeting eveyone adn hope to get ot know u all. > > Sheri mom to 2 > wife to 1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 Deanna, Welcome to the group! I just looked at Mackenzie's photos, and she looks so cute in the sink! I do see the head shape concern you wrote about. It may be sort of a brachy head shape, where the back of the head is more flattened, and the crown pushed upwards. From what I could tell, your daughter's head isn't excessively wide, which is so common with brachy babies, so that's great. http://www.cranialtech.com/medicalinfo/assessment/brachycephaly.pdf A band might do a good job of holding Mackenzie's head height at the crown in check, while allowing the rest of her head to round out accordingly. The orthos at Cranial Tech would provide an objective assessment of her severity, so if I were you, I would go for a consult to see what they think about correction potential to help you with your decision. Let us know if you do decide to go for the consult. How old is Mackenzie? Take care, Christie (Mom to Repo'd Remy) > > Hello Everyone > > I am new to this board...but from what I have seen so far it seems > great! Everyone if very supportive. I posted a few pictures of my > daughters head in a folder called MackenzieH...I was wondering if you > could possibly take a look and let me know what you think. Do you > see a problem. To me her head looks a little elongated in the > back...kind of like the cone head shape of a newborn baby. Let me > know what you think. I was going to make an appointment with Cranial > Tech for a free consultation. > > Thanks in advance. > Deana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 Thanks for looking....I knew I was not going crazy. Mackenzie is 8 monts 1 week. She was 6 weeks premature so her adjusted age is a little over 6 1/2 months. > > > > Hello Everyone > > > > I am new to this board...but from what I have seen so far it seems > > great! Everyone if very supportive. I posted a few pictures of > my > > daughters head in a folder called MackenzieH...I was wondering if > you > > could possibly take a look and let me know what you think. Do you > > see a problem. To me her head looks a little elongated in the > > back...kind of like the cone head shape of a newborn baby. Let me > > know what you think. I was going to make an appointment with > Cranial > > Tech for a free consultation. > > > > Thanks in advance. > > Deana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 Hi Deanna, Welcome to the group. Mackenzie looks like a cutie from what I could see. :-) I see what you're seeing. I think you should take her to Cranial Tech for a free evaluation. You will get an honest opinion on Mackenzie's plagio. Where are you located? We probably have a member that has used or is using the CT you'll be going to. Keep us posted. > > Hello Everyone > > I am new to this board...but from what I have seen so far it seems > great! Everyone if very supportive. I posted a few pictures of my > daughters head in a folder called MackenzieH...I was wondering if you > could possibly take a look and let me know what you think. Do you > see a problem. To me her head looks a little elongated in the > back...kind of like the cone head shape of a newborn baby. Let me > know what you think. I was going to make an appointment with Cranial > Tech for a free consultation. > > Thanks in advance. > Deana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 I live in Highland, CA. Thanks for looking and for the info. Would you believe that I took her to one doctor that told me he would be more worried about it if she was a boy. That girls have long hair that covers this type of thing up and if she is unhappy with the shape of her head later in life she could always have surgery. That is when I decided that I should take her directly to Cranial Tech in San Diego. I will call first thing Monday morning and get an appointment. Deana > > > > Hello Everyone > > > > I am new to this board...but from what I have seen so far it seems > > great! Everyone if very supportive. I posted a few pictures of my > > daughters head in a folder called MackenzieH...I was wondering if > you > > could possibly take a look and let me know what you think. Do you > > see a problem. To me her head looks a little elongated in the > > back...kind of like the cone head shape of a newborn baby. Let me > > know what you think. I was going to make an appointment with > Cranial > > Tech for a free consultation. > > > > Thanks in advance. > > Deana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 Hi Deanna, Yes, I believe it! It's sad that in this day and age, with plagio being the epidemic it is that peds still aren't educated about it. Please let us know how you make out at CT. We do have members that have used the San Diego, CT they all rave about it. > > > > Hi Deanna, > > Welcome to the group. Mackenzie looks like a cutie from what I > could > > see. :-) I see what you're seeing. I think you should take her to > > Cranial Tech for a free evaluation. You will get an honest opinion > on > > Mackenzie's plagio. Where are you located? We probably have a > member > > that has used or is using the CT you'll be going to. Keep us posted. > > > > --- In Plagiocephaly , " Deana " <cdhagar@p...> wrote: > > > > > > Hello Everyone > > > > > > I am new to this board...but from what I have seen so far it > seems > > > great! Everyone if very supportive. I posted a few pictures of > my > > > daughters head in a folder called MackenzieH...I was wondering if > > you > > > could possibly take a look and let me know what you think. Do > you > > > see a problem. To me her head looks a little elongated in the > > > back...kind of like the cone head shape of a newborn baby. Let > me > > > know what you think. I was going to make an appointment with > > Cranial > > > Tech for a free consultation. > > > > > > Thanks in advance. > > > Deana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 Hi Deana Welcome to the group. Mackenzie is a doll, thanks for sharing the pictures. I do see the area of consern, and think it is a good idea to have her evaluated. Let us know what they say. Sandy Willow's Mom Cranio Germany Grad Torticollis resolved http://www.geocities.com/samipa74/Willow_Lanette.html > > Hello Everyone > > I am new to this board...but from what I have seen so far it seems > great! Everyone if very supportive. I posted a few pictures of my > daughters head in a folder called MackenzieH...I was wondering if you > could possibly take a look and let me know what you think. Do you > see a problem. To me her head looks a little elongated in the > back...kind of like the cone head shape of a newborn baby. Let me > know what you think. I was going to make an appointment with Cranial > Tech for a free consultation. > > Thanks in advance. > Deana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 I see you have already had great input. Welcome to the group! Mackenzie is adorable!!! Thank you for sharing her photos!! Christy - mom to Kennedy Plagio/brachy/tort DOC band 11/23/04 - CT Dallas, TX Tulsa, OKDeana <cdhagar@...> wrote: Hello EveryoneI am new to this board...but from what I have seen so far it seems great! Everyone if very supportive. I posted a few pictures of my daughters head in a folder called MackenzieH...I was wondering if you could possibly take a look and let me know what you think. Do you see a problem. To me her head looks a little elongated in the back...kind of like the cone head shape of a newborn baby. Let me know what you think. I was going to make an appointment with Cranial Tech for a free consultation.Thanks in advance.DeanaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 Hi Deana....I just checked out your dd's pics. She's a cutie. I do see the elongated shape at the back so you are doing a good thing by going to CT for the evaluation. Please let us know what they say. Becky, mom to , repo grad in Pgh, PA > > Hello Everyone > > I am new to this board...but from what I have seen so far it seems > great! Everyone if very supportive. I posted a few pictures of my > daughters head in a folder called MackenzieH...I was wondering if you > could possibly take a look and let me know what you think. Do you > see a problem. To me her head looks a little elongated in the > back...kind of like the cone head shape of a newborn baby. Let me > know what you think. I was going to make an appointment with Cranial > Tech for a free consultation. > > Thanks in advance. > Deana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 Hi Deana, Welcome to the gorup. Mackenzie is a cutie! How old is she? What does your ped say? Did he/she refer you to Cranial Tech or are you going on your own. A lot of parents have to go on their own which just sucks. Which CT? Maybe we have someone in your area that can share experiences. I see the cone shape you are talking about. Has it always been that shape or have you noticed it getting worse. I can't really tell from the pictures but does it come to a point (for lack of a better word) in the back of the head? With na we saw the same head shape at birth and it just never got better before she was banded. Keep us posted. mom to na DOC Grad 2/04 Tort Resolved South Carolina www.thefilyaws.comDeana <cdhagar@...> wrote: Hello EveryoneI am new to this board...but from what I have seen so far it seems great! Everyone if very supportive. I posted a few pictures of my daughters head in a folder called MackenzieH...I was wondering if you could possibly take a look and let me know what you think. Do you see a problem. To me her head looks a little elongated in the back...kind of like the cone head shape of a newborn baby. Let me know what you think. I was going to make an appointment with Cranial Tech for a free consultation.Thanks in advance.DeanaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 Thank you so much for looking! Mackenzie is 8 months old..but she was 6 weeks premature wich makes her adjusted age 6 1/2 months. My ped agrees that there is a problem and he referred me to a neurosurgen. The neurosurgen said that he did not really see a problem...that he would be more concerned if she was a boy. He said that she would outgrow it...her hair would cover it...and if she was not happy when she was older she could always have surgery. That is what made me want to contact CT. We will be contacting the San Diego office. Yes when she was born she had that shape to her head. She went to the head down position 2 months before she was born and never moved from it. Her head has never gotten any better. Yes her head is elongated and it does kind of come to a point in the back. I am going to call CT tomorrow to see about a consultation. I will keep you posted. > > > Hello Everyone > > I am new to this board...but from what I have seen so far it seems > great! Everyone if very supportive. I posted a few pictures of my > daughters head in a folder called MackenzieH...I was wondering if you > could possibly take a look and let me know what you think. Do you > see a problem. To me her head looks a little elongated in the > back...kind of like the cone head shape of a newborn baby. Let me > know what you think. I was going to make an appointment with Cranial > Tech for a free consultation. > > Thanks in advance. > Deana > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Hi Deana It sounds like you are doing exactly the right thing. I can't believe what your neurosurgeon said to be honest. i'm shocked. I can't think why it is ok for girls to have plagio and not boys, they still want to tie their hair back, wear glasses (with misaligned ears this is a problem) and wear cycle helmets. And those are just the cosmetic issues! Secondly, I can't believe he would suggest surgery. It is an absolute last resort for when other non-invasive interventions (such as the DOCband) have failed..not a first line treatment if it doens't grow out. A friend of mine who is a GP told me never to ask a surgeon what to do, they always say have surgery and in this instance, that's what happened! YOu will be in good hands at CT. Rest assured there is a long-term non-invasive drug free treatment that doesn't involve anasthetics (the band which will be able to help your daughter. Let us know what they say. Good luck Hannah (mum to Lucia, London, UK) Cranio grad > > > > > > Hello Everyone > > > > I am new to this board...but from what I have seen so far it seems > > great! Everyone if very supportive. I posted a few pictures of my > > daughters head in a folder called MackenzieH...I was wondering if > you > > could possibly take a look and let me know what you think. Do you > > see a problem. To me her head looks a little elongated in the > > back...kind of like the cone head shape of a newborn baby. Let me > > know what you think. I was going to make an appointment with > Cranial > > Tech for a free consultation. > > > > Thanks in advance. > > Deana > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Hi Deana! I'm so glad that you found us. MacKenzie is such a cutie! It looks like she loves her baths. :-) I too see what you are talking about. That's great that you are going for a free evaluation. It can't hurt. Please let us know what they say. You are smart to be so pro-active about this and to be doing some research about it. Good luck! I'm also happy to hear that you are near a CT. Sue Colin F., 16 mos. STARband grad 9/04 > > Hello Everyone > > I am new to this board...but from what I have seen so far it seems > great! Everyone if very supportive. I posted a few pictures of my > daughters head in a folder called MackenzieH...I was wondering if you > could possibly take a look and let me know what you think. Do you > see a problem. To me her head looks a little elongated in the > back...kind of like the cone head shape of a newborn baby. Let me > know what you think. I was going to make an appointment with Cranial > Tech for a free consultation. > > Thanks in advance. > Deana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 I just sat and typed the whiniest post. Thank God for the delete button. I don't want to whine. This is life...Hasimoto's, CFS, and Restless Legs Syndrome. Some days I feel crazy, some days so weak and exhausted I can hardly function. Some days are great. I am taking Echinachea. I heard it can help with the CFS. I have also been told Kelp will help with the thyroid issue. I am looking for friends who understand, tips, humorous stories, survival strategies, secrets to success and just a place to go where people know what I " m talking about. Thanks for the time, talk to ya all later. Dani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 Welcome andra! I have someone helping to clean up my too long " new member 101 " archive -but until then -here's some starter info to help! Below is a new member archive that keeps it simple on what to know to start. Re: Hi! New and wondering about apraxia. Hi Mrs Laurie and welcome! Your son sounds like he has some oral apraxia which would of course need to be confirmed by professionals. If oral apraxia is present together with your child's delay he should at least be diagnosed as " suspected apraxia " and appropriate therapy should be provided. He is entitled by federal law to a free and appropriate public education (FAPE) in the least restrictive environment (LRE) which means that if 5 days of one on one speech therapy is appropriate for him then that's what he should receive. What type of speech therapy is he receiving from the school right now when you say " some " ? Below is a very long archive to help -please know that you don't have to understand it all at once -we're here as a group to help! Thanks for sharing. This group has from the start been a group that's made up of parents and professionals who care for children with many types of speech and/or language delays and/or disorders. There are parents here for example with undiagnosed " late talkers " and we just have not heard from them in awhile. It's actually a really good thing when there is a mix of us to share because we all learn from each other as many diagnoses can overlap -or down the road we learn that our child does have co diagnosis. While this group is open to parents of all children with communication impairments -including hearing impaired, autistic etc. it wasn't that all that posted recently had a child with autism, or autism and apraxia -but because of society focus on autism -many here started following an autism approach -including ABA in some cases! That's understandable if the much more basic approach to apraxia -ST and OT and EFAs were tried first and didn't work -but some were trying that to start. The overwhelming majority (if you check the archives) have success with the basic approach to apraxia. On the other hand- most of us are dealing with more than verbal apraxia.we just don't know that when our child is 2 -and we learn through professionals and observations as they continue to grow and more and more is expected of them. This is also why it's important to take your child for a neurodevelopmental medical exam when your child is suspected of apraxia to confirm or rule out other diagnosis such as sensory integration dysfunction etc. The earlier you know - the sooner to start appropriate therapies to get them up to speed by kindergarten. Don't let it overwhelm you -perhaps we aren't meant to know more than what we have to know at each stage. We'll be here to help along the way. It's OK to have any type of emotion when we find out our child has more than a simple delay -or " more " than " just " verbal apraxia. And it's OK to be completely overwhelmed and saddened to find out your child has apraxia. And as I was one of those parents it's never " just " apraxia when you find out!!! It's OK to be upset " just " because your child is a " late talker " too! Please know that I too believed Tanner to just have apraxia and have my first message posted to a grouplist about that below.but down the road found out he had a few other things we needed to help him address. The incredible news is that the majority of our children if you check history are up to speed to be mainstreamed by kindergarten- and of course many have learned with communication impaired children that it's best to start kindergarten at 6 vs. 5 to give them that one extra year of therapy and developmental time. If you have questions after reading the following please share them. This group has always been a wealth of information for all of us, no matter how long we've been here. Below is a new member archived message to hopefully answer more of your questions for now (did you read The Late Talker yet?) For updated information on fish oils and vitamin E and more - please visit the links section here /links What type of apraxic like speech behaviors are you seeing that makes you and the SLP suspect your child has apraxia vs. a simple delay in speech? Is your child talking at all yet? At your child's age - without speech, it's difficult to diagnose verbal apraxia -they could " suspect " verbal apraxia and begin treatment just in case, which wouldn't hurt your child if he ended up just having a simple delay. Just a few questions before we could provide more accurate answers: Does your child have signs of oral apraxia? (for example, can he on command smile, imitate funny faces, blow bubbles...if you put peanut butter anywhere around his mouth can he lick it off no matter where it is?) http://www.cherab.org/information/speechlanguage/oralapraxia.html Does your child have any neurological " soft signs " such as hypotonia or sensory integration dysfunction? http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html Who else evaluated your child? Was it only the SLP through your town school or was he also in Early Intervention through the state? (birth to three) Was he evaluated by both a speech pathologist as well as an occupational therapist? Was/were they knowledgeable about apraxia? (If your child wasn't diagnosed by an occupational therapist as well and professionals suspect apraxia -I highly recommend you request that too either through both the school as well as private through insurance for many reasons) To answer any questions you may have about taking your child to see a neurodevelopmental MD if he has not yet been to one and apraxia is suspected... in one word - " Yes!!! " I would have your child diagnosed (private) by a neurodevelopmental medical doctor (developmental pediatrician or pediatric neurologist) who is knowledgeable about apraxia and other neurologically based multi-faceted communication impairments for numerous reasons. Reasons include (but not limited to) *having a " hero " on the outside of the school who can assist in a therapeutic plan and oversee your child's development over the years *advocacy support with the insurance company * ruling out or confirming any neurological soft signs or any other reasons for the delay in speech *help those that ask " why isn't he talking yet " understand this is a medical condition -and has nothing to do with your child's cognitive ability. (if in your child's case it doesn't. Apraxia in itself does not affect a child's cognitive ability -and speaking early or late is no indication of a child's intelligence. Also contrary to popular belief -most who have speech impairments have average to above average intelligence) Here's an article written by Neurodevelopmental Pediatrician Dr. Marilyn Agin that was featured as a cover article in Contemporary Pediatrics -a trade magazine for hundreds of thousands of pediatric medical professionals across the US. (I wrote the parent guide) " The " late talker " -when silence isn't golden Not all children with delayed speech are " little Einsteins " or garden variety " late bloomers. " Some have a speech-language disorder that will persist unless warning signs are recognized and intervention comes early. Includes a Guide for Parents. " Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics http://contemporarypediatrics.modernmedicine.com/radio_peds4 Actual article (where you can read it for free) http://opsc.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 There are also many activities parents can do at home with their child to promote the development of speech. These are detailed in the Guide for Parents http://www.contemporarypediatrics.com/contpeds/article/articleDetail.jsp?id=1363\ 15. This guide was written by Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 lol-what she said! Welcome to the group. You will find a lot of support & helpful information here. On Tue, Oct 21, 2008 at 10:44 PM, kiddietalk <kiddietalk@...> wrote: > Welcome andra! > > I have someone helping to clean up my too long " new member 101 " > archive -but until then -here's some starter info to help! > > Below is a new member archive that keeps it simple on what to know to > start. > > Re: Hi! New and wondering about apraxia. > > Hi Mrs Laurie and welcome! > > Your son sounds like he has some oral apraxia which would of course > need to be confirmed by professionals. If oral apraxia is present > together with your child's delay he should at least be diagnosed > as " suspected apraxia " and appropriate therapy should be provided. > He is entitled by federal law to a free and appropriate public > education (FAPE) in the least restrictive environment (LRE) which > means that if 5 days of one on one speech therapy is appropriate for > him then that's what he should receive. What type of speech therapy > is he receiving from the school right now when you say " some " ? > > Below is a very long archive to help -please know that you don't have > to understand it all at once -we're here as a group to help! > > Thanks for sharing. This group has from the start been a group > that's made up of parents and professionals who care for children > with many types of speech and/or language delays and/or disorders. > There are parents here for example with undiagnosed " late talkers " > and we just have not heard from them in awhile. It's actually a > really good thing when there is a mix of us to share because we all > learn from each other as many diagnoses can overlap -or down the road > we learn that our child does have co diagnosis. > > While this group is open to parents of all children with > communication impairments -including hearing impaired, autistic etc. > it wasn't that all that posted recently had a child with autism, or > autism and apraxia -but because of society focus on autism -many here > started following an autism approach -including ABA in some cases! > That's understandable if the much more basic approach to apraxia -ST > and OT and EFAs were tried first and didn't work -but some were > trying that to start. > > The overwhelming majority (if you check the archives) have success > with the basic approach to apraxia. > > On the other hand- most of us are dealing with more than verbal > apraxia.we just don't know that when our child is 2 -and we learn > through professionals and observations as they continue to grow and > more and more is expected of them. This is also why it's important > to take your child for a neurodevelopmental medical exam when your > child is suspected of apraxia to confirm or rule out other diagnosis > such as sensory integration dysfunction etc. The earlier you know - > the sooner to start appropriate therapies to get them up to speed by > kindergarten. > > Don't let it overwhelm you -perhaps we aren't meant to know more > than what we have to know at each stage. We'll be here to help along > the way. It's OK to have any type of emotion when we find out our > child has more than a simple delay -or " more " than " just " verbal > apraxia. And it's OK to be completely overwhelmed and saddened to > find out your child has apraxia. And as I was one of those parents > it's never " just " apraxia when you find out!!! > > It's OK to be upset " just " because your child is a " late talker " too! > > Please know that I too believed Tanner to just have apraxia and have > my first message posted to a grouplist about that below.but down the > road found out he had a few other things we needed to help him > address. The incredible news is that the majority of our children if > you check history are up to speed to be mainstreamed by kindergarten- > and of course many have learned with communication impaired children > that it's best to start kindergarten at 6 vs. 5 to give them that one > extra year of therapy and developmental time. > > If you have questions after reading the following please share them. > This group has always been a wealth of information for all of us, no > matter how long we've been here. > > Below is a new member archived message to hopefully answer more of > your questions for now (did you read The Late Talker yet?) For updated > information on fish oils and vitamin E and more - please visit the > links section here > /links > > What type of apraxic like speech behaviors are you seeing that makes > you and the SLP suspect your child has apraxia vs. a simple delay in > speech? Is your child talking at all yet? At your child's age - > without speech, it's difficult to diagnose verbal apraxia -they > could " suspect " verbal apraxia and begin treatment just in case, > which wouldn't hurt your child if he ended up just having a simple > delay. Just a few questions before we could provide more accurate > answers: > > Does your child have signs of oral apraxia? (for example, can he on > command smile, imitate funny faces, blow bubbles...if you put peanut > butter anywhere around his mouth can he lick it off no matter where > it is?) > http://www.cherab.org/information/speechlanguage/oralapraxia.html > > Does your child have any neurological " soft signs " such as hypotonia > or sensory integration dysfunction? > > http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html > > Who else evaluated your child? Was it only the SLP through your > town school or was he also in Early Intervention through the state? > (birth to three) Was he evaluated by both a speech pathologist as > well as an occupational therapist? Was/were they knowledgeable > about apraxia? (If your child wasn't diagnosed by an occupational > therapist as well and professionals suspect apraxia -I highly > recommend you request that too either through both the school as > well as private through insurance for many reasons) > > To answer any questions you may have about taking your child to see a > neurodevelopmental MD if he has not yet been to one and apraxia is > suspected... in one word - " Yes!!! " I would have your child diagnosed > (private) by a neurodevelopmental medical doctor (developmental > pediatrician or pediatric neurologist) who is knowledgeable about > apraxia and other neurologically based multi-faceted communication > impairments for numerous reasons. Reasons include (but not limited > to) > > *having a " hero " on the outside of the school who can assist in a > therapeutic plan and oversee your child's development over the years > *advocacy support with the insurance company > * ruling out or confirming any neurological soft signs or any other > reasons for the delay in speech > *help those that ask " why isn't he talking yet " understand this is a > medical condition -and has nothing to do with your child's cognitive > ability. (if in your child's case it doesn't. Apraxia in itself > does not affect a child's cognitive ability -and speaking early or > late is no indication of a child's intelligence. Also contrary to > popular belief -most who have speech impairments have average to > above average intelligence) > > Here's an article written by Neurodevelopmental Pediatrician Dr. > Marilyn Agin that was featured as a cover article in Contemporary > Pediatrics -a trade magazine for hundreds of thousands of pediatric > medical professionals across the US. (I wrote the parent guide) > > " The " late talker " -when silence isn't golden > Not all children with delayed speech are " little Einsteins " or garden > variety " late bloomers. " Some have a speech-language disorder that > will persist unless warning signs are recognized and intervention > comes early. Includes a Guide for Parents. " > > Podcast interview with Dr. Marilyn Agin from Contemporary Pediatrics > http://contemporarypediatrics.modernmedicine.com/radio_peds4 > > Actual article (where you can read it for free) > > http://opsc.mediwire.com/main/Default.aspx?P=Content & ArticleID=132720 > > There are also many activities parents can do at home with their > child to > promote the development of speech. These are detailed in the Guide > for Parents > > http://www.contemporarypediatrics.com/contpeds/article/articleDetail.jsp?id=1363\ 15. > > This guide was written by Quote Link to comment Share on other sites More sharing options...
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