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Re: reply to Chris from Ann genetic researcher

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Kate- thanks very much for all of the information about your family. The more

information we get, the closer we'll come to understanding this whole

phenomena.

Give the boys great big hugs & kisses from me & mine.

Luv to all,

& Crystal Aquielle

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My brother died just before his 2nd birthday, at the same hospital I took Isaac

to in London (Gt. Ormond Street), so they had all his notes in the archives, he

died 30 years ago now, so genetic testing was still fairly new, anyway, they

also never really told me parents what my brother had, but reading through the

notes it does mention 'possible Arnold Chiari malformation' - and also my

cousin has a daughter with a severe seizure disorder (started when she was three

years old). The geneticist we saw and also Dr Guerrini, felt there was no

relation between these two situations and Isaac - my brothers problems where

spinal, his brain was fine and his mental development was actually above average

for his age and my cousins child is too far removed from Isaac to have a genetic

link.

Interesting though, how many of us have some relations with 'problems'

Also, there has been some discussion on the Liss list about mothers exposed to

chemicals while pregnant, my husband has an Auto Body Shop and sprays cars - it

has been a concern of ours - but I was exposed to it on and off during both

pregnancies and is fine? Just a thought?

Kate and Isaac

(Almost three!!)

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