Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Tommy's Dad, My son will be 8 in a few weeks. We started w/Dr. G when he was over 4 years old. His HHV-6 has always been the biggest factor for us, too. (Roseola when he was about eight months old.) We never got to use Kutapressin so I can't comment on that, but we've switched back and forth between Valtrex and Famvir over the years and did IMGG for about one year. The HHV-6 reference number has SLOWLY come down and is almost in the normal range, but still active. In fact, on his labs a few months ago EVERYTHING was normal for the first time (hooray!) except the test showing viral activity and the HHV-6 number. There were times when the number went back UP but that was about two years ago and it's since gone down lower than ever and stayed down. My son is doing fairly well. Not up to peers yet, though. About a year behind academically and at about 3-4 year old level socially. This past year he was in a regular classroom for 90% of the day and the kids really embraced him. It was a wonderfully year for him socially. He interacted for the first time on a consistent basis and did things that surprised school staff that have know him since he was 3. (Like leading kids in song games out at recess.) Wish you and your family the best. - in Mobile, AL Reality lies beyond the horizon... Wonderwegian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 That's an excellent article. Thanks for the link. Rhoda HHV-6 http://www.plazamedicine.com/hhv6/hhv6_1.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 It does say in that article the best immune modulator on the market is " Transfer Factor. " I believe you guys don't use that one right? Kristie > > That's an excellent article. Thanks for the link. > > Rhoda > HHV-6 > > > http://www.plazamedicine.com/hhv6/hhv6_1.html > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 http://www.hhv-6foundation.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 I have no answers for you but I want to mention that I just received this email in my inbox today along with 22 other emails. Â Jill From: alan21101997 <beiwallace@...> Subject: HHV-6 Date: Saturday, July 10, 2010, 8:18 AM Â Hi all, I am new here so i need some help. I have a 12 year old son with severe autism who is non verbal, i have done most DAN protocol(except HBOT and Valtrex )with no success. I am ready to start the Valtrex for my son, 3 *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, his HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of my sons blood test and found out he had positive HHV-6 in 2003 and once he had HHV-1 positive in 2004.He also had Immunoscience lab immino panel test which showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. He has a history of out of range of Neutrophilis and history of low white blood cell. I did natural anti virus with no improvement. My question is , is it worth trying Valtrex ? Any information much appreciated Bei Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 look my advice is try it ,he may be a responder and you wont always be wondering.Have you considered your son may have lymes ,that is what happened with us.try doing zyto consult with Payne living well today.ALso look into Nutriiveda from pursuit of research cant explain it but really helping kids with apraxia,worth trying for a few months good luck mary On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@...>wrote: > > > Hi all, > > I am new here so i need some help. I have a 12 year old son with severe > autism who is non verbal, i have done most DAN protocol(except HBOT and > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, his > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of my > sons blood test and found out he had positive HHV-6 in 2003 and once he had > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test which > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > He has a history of out of range of Neutrophilis and history of low white > blood cell. I did natural anti virus with no improvement. My question is , > is it worth trying Valtrex ? Any information much appreciated > > Bei > > > -- Cotter 5 Pollerton Manor Carlow 059 9134964 087 2637921 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 I have asked Dr. Goldberg about trying Nutriveda because our son has severe apraxia. He says absolutely no because of the whey protein and some other ingredients. Anyone seeing Dr. Goldberg who have done Nutriveda anyway? To me we are unable to get the esonophils and IEG down through his VERY restricted diet anyway so what harm can it do? Thanks for your input. Martha On Sun, Jul 18, 2010 at 8:11 AM, Cotter <cotter.mary1@...> wrote: > look my advice is try it ,he may be a responder and you wont always be > wondering.Have you considered your son may have lymes ,that is what > happened > with us.try doing zyto consult with Payne living well today.ALso > look into Nutriiveda from pursuit of research cant explain it but really > helping kids with apraxia,worth trying for a few months > > good luck > > mary > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@... > >wrote: > > > > > > > Hi all, > > > > I am new here so i need some help. I have a 12 year old son with severe > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > his > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of my > > sons blood test and found out he had positive HHV-6 in 2003 and once he > had > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > which > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > He has a history of out of range of Neutrophilis and history of low white > > blood cell. I did natural anti virus with no improvement. My question is > , > > is it worth trying Valtrex ? Any information much appreciated > > > > Bei > > > > > > > > > > -- > Cotter > 5 Pollerton Manor > Carlow > 059 9134964 > 087 2637921 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 Have you tried DHA/EPA? My son, too, has apraxia. He is on high quality/medical grade DHA-EPA from Metagenics and it really helps. It's pricey ($42/month) and we ran out and I did not rush out to replace it. After 2 weeks, his language reverted back to 1-2 words. He was talking again with the DHA-EPA. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of Martha Wood Sent: Sunday, July 18, 2010 6:20 AM Subject: Re: HHV-6 I have asked Dr. Goldberg about trying Nutriveda because our son has severe apraxia. He says absolutely no because of the whey protein and some other ingredients. Anyone seeing Dr. Goldberg who have done Nutriveda anyway? To me we are unable to get the esonophils and IEG down through his VERY restricted diet anyway so what harm can it do? Thanks for your input. Martha On Sun, Jul 18, 2010 at 8:11 AM, Cotter <cotter.mary1@... <mailto:cotter.mary1%40gmail.com> > wrote: > look my advice is try it ,he may be a responder and you wont always be > wondering.Have you considered your son may have lymes ,that is what > happened > with us.try doing zyto consult with Payne living well today.ALso > look into Nutriiveda from pursuit of research cant explain it but really > helping kids with apraxia,worth trying for a few months > > good luck > > mary > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@... <mailto:beiwallace%40bigpond.com> > >wrote: > > > > > > > Hi all, > > > > I am new here so i need some help. I have a 12 year old son with severe > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > his > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of my > > sons blood test and found out he had positive HHV-6 in 2003 and once he > had > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > which > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > He has a history of out of range of Neutrophilis and history of low white > > blood cell. I did natural anti virus with no improvement. My question is > , > > is it worth trying Valtrex ? Any information much appreciated > > > > Bei > > > > > > > > > > -- > Cotter > 5 Pollerton Manor > Carlow > 059 9134964 > 087 2637921 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 Me, too. Kristy Nardini TazziniTM Stainless Steel Bottles <http://www.tazzini.com/> http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 P Please consider the environment before printing this email. From: [mailto: ] On Behalf Of Jill Boyer Sent: Sunday, July 18, 2010 1:03 AM Subject: Re: HHV-6 I have no answers for you but I want to mention that I just received this email in my inbox today along with 22 other emails. Jill From: alan21101997 <beiwallace@... <mailto:beiwallace%40bigpond.com> > Subject: HHV-6 <mailto:%40> Date: Saturday, July 10, 2010, 8:18 AM Hi all, I am new here so i need some help. I have a 12 year old son with severe autism who is non verbal, i have done most DAN protocol(except HBOT and Valtrex )with no success. I am ready to start the Valtrex for my son, 3 *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, his HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of my sons blood test and found out he had positive HHV-6 in 2003 and once he had HHV-1 positive in 2004.He also had Immunoscience lab immino panel test which showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. He has a history of out of range of Neutrophilis and history of low white blood cell. I did natural anti virus with no improvement. My question is , is it worth trying Valtrex ? Any information much appreciated Bei Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 Yes, we take two DHA/EPA supplements from Pure Essentials daily (Parmaceutical grade) and I think it really helped get the language started. But we are really still at 1-2 words and needing to expand this and it just not happening with speech therapy and all we are doing at home. On Sun, Jul 18, 2010 at 9:55 AM, Kristy Nardini <knardini@...>wrote: > > > Have you tried DHA/EPA? My son, too, has apraxia. He is on high > quality/medical grade DHA-EPA from Metagenics and it really helps. It's > pricey ($42/month) and we ran out and I did not rush out to replace it. > After 2 weeks, his language reverted back to 1-2 words. He was talking > again > with the DHA-EPA. > > > Kristy Nardini > TazziniTM Stainless Steel Bottles > <http://www.tazzini.com/> http://www.tazzini.com > kristy@... <kristy%40tazzini.com> > Phone: 858.243.1929 > Fax: 858.724.1418 > > P Please consider the environment before printing this email. > > From: <%40> [mailto: > <%40>] On Behalf Of Martha > Wood > Sent: Sunday, July 18, 2010 6:20 AM > <%40> > Subject: Re: HHV-6 > > > > I have asked Dr. Goldberg about trying Nutriveda because our son has severe > apraxia. He says absolutely no because of the whey protein and some other > ingredients. > Anyone seeing Dr. Goldberg who have done Nutriveda anyway? To me we are > unable to get the esonophils and IEG down through his VERY restricted diet > anyway so what harm can it do? > > Thanks for your input. > Martha > On Sun, Jul 18, 2010 at 8:11 AM, Cotter <cotter.mary1@...<cotter.mary1%40gmail.com> > <mailto:cotter.mary1%40gmail.com <cotter.mary1%2540gmail.com>> > wrote: > > > look my advice is try it ,he may be a responder and you wont always be > > wondering.Have you considered your son may have lymes ,that is what > > happened > > with us.try doing zyto consult with Payne living well today.ALso > > look into Nutriiveda from pursuit of research cant explain it but really > > helping kids with apraxia,worth trying for a few months > > > > good luck > > > > mary > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@...<beiwallace%40bigpond.com> > <mailto:beiwallace%40bigpond.com <beiwallace%2540bigpond.com>> > > >wrote: > > > > > > > > > > > Hi all, > > > > > > I am new here so i need some help. I have a 12 year old son with severe > > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > > his > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of > my > > > sons blood test and found out he had positive HHV-6 in 2003 and once he > > had > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > > which > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > He has a history of out of range of Neutrophilis and history of low > white > > > blood cell. I did natural anti virus with no improvement. My question > is > > , > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > Bei > > > > > > > > > > > > > > > > > -- > > Cotter > > 5 Pollerton Manor > > Carlow > > 059 9134964 > > 087 2637921 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2010 Report Share Posted July 18, 2010 HI Martha, at the end of the day you are the parent ,and i can honestly say of all the treatments including valtrex ,nutriiveda is one thing i will keep,we havent seen wows we are on it 6 months but slow steady gains ,for apraxia it is something i would def try,and the high levels of fish oils too. mary On Sun, Jul 18, 2010 at 2:19 PM, Martha Wood <marthawood70@...> wrote: > > > I have asked Dr. Goldberg about trying Nutriveda because our son has severe > apraxia. He says absolutely no because of the whey protein and some other > ingredients. > Anyone seeing Dr. Goldberg who have done Nutriveda anyway? To me we are > unable to get the esonophils and IEG down through his VERY restricted diet > anyway so what harm can it do? > > Thanks for your input. > Martha > > On Sun, Jul 18, 2010 at 8:11 AM, Cotter <cotter.mary1@...<cotter.mary1%40gmail.com>> > wrote: > > > look my advice is try it ,he may be a responder and you wont always be > > wondering.Have you considered your son may have lymes ,that is what > > happened > > with us.try doing zyto consult with Payne living well today.ALso > > look into Nutriiveda from pursuit of research cant explain it but really > > helping kids with apraxia,worth trying for a few months > > > > good luck > > > > mary > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@...<beiwallace%40bigpond.com> > > >wrote: > > > > > > > > > > > Hi all, > > > > > > I am new here so i need some help. I have a 12 year old son with severe > > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > > his > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of > my > > > sons blood test and found out he had positive HHV-6 in 2003 and once he > > had > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > > which > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > He has a history of out of range of Neutrophilis and history of low > white > > > blood cell. I did natural anti virus with no improvement. My question > is > > , > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > Bei > > > > > > > > > > > > > > > > > -- > > > Cotter > > 5 Pollerton Manor > > Carlow > > 059 9134964 > > 087 2637921 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Martha, " what harm can it do? " .??? Clearly your child has a very sensitive system or his eosinophils and IgE would have responded more quickly and he would not need to be on such a restricted diet. The damage you can do to his health can be irreparable, or at least take years to reverse the inflammatory effects of something like whey (dairy!). Regardless of the illness, dairy is consistently one of the things our children (and most for that matter!) should NEVER have. I understand your frustration, but hang in there. There are no quick fixes to a hyper or hypo immune system. I think too often people complain that their child isn't progressing as quickly as they like with Dr. G or Dr. Russel, yet they are not following the concept or protocol per Dr's instructions and are self medicating their child through supplements, poor food choices etc. In the end you have to do what you think is right for your child. But I plead with you to think it through and not do anything that can set back your child's health long term. You either trust Dr. G or you don't. For most of us, he is right every time. Warm regards, Lori _____ From: [mailto: ] On Behalf Of Martha Wood Sent: July-18-10 9:20 AM Subject: Re: HHV-6 I have asked Dr. Goldberg about trying Nutriveda because our son has severe apraxia. He says absolutely no because of the whey protein and some other ingredients. Anyone seeing Dr. Goldberg who have done Nutriveda anyway? To me we are unable to get the esonophils and IEG down through his VERY restricted diet anyway so what harm can it do? Thanks for your input. Martha On Sun, Jul 18, 2010 at 8:11 AM, Cotter <cotter.mary1@... <mailto:cotter.mary1%40gmail.com> > wrote: > look my advice is try it ,he may be a responder and you wont always be > wondering.Have you considered your son may have lymes ,that is what > happened > with us.try doing zyto consult with Payne living well today.ALso > look into Nutriiveda from pursuit of research cant explain it but really > helping kids with apraxia,worth trying for a few months > > good luck > > mary > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@... <mailto:beiwallace%40bigpond.com> > >wrote: > > > > > > > Hi all, > > > > I am new here so i need some help. I have a 12 year old son with severe > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > his > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of my > > sons blood test and found out he had positive HHV-6 in 2003 and once he > had > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > which > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > He has a history of out of range of Neutrophilis and history of low white > > blood cell. I did natural anti virus with no improvement. My question is > , > > is it worth trying Valtrex ? Any information much appreciated > > > > Bei > > > > > > > > > > -- > Cotter > 5 Pollerton Manor > Carlow > 059 9134964 > 087 2637921 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Lori, Thanks so much for this! I researched Nutriiveda more last night and am coming to the same conclusions. My husband agrees with you by the way. It is just sooo slow and frustrating to continue to restrict the diet with no evidence of change in the labs. Martha On Mon, Jul 19, 2010 at 7:35 AM, Lori <lbharris@...> wrote: > > > Martha, " what harm can it do? " .??? > > Clearly your child has a very sensitive system or his eosinophils and IgE > would have responded more quickly and he would not need to be on such a > restricted diet. > > The damage you can do to his health can be irreparable, or at least take > years to reverse the inflammatory effects of something like whey (dairy!). > Regardless of the illness, dairy is consistently one of the things our > children (and most for that matter!) should NEVER have. > > I understand your frustration, but hang in there. There are no quick fixes > to a hyper or hypo immune system. > > I think too often people complain that their child isn't progressing as > quickly as they like with Dr. G or Dr. Russel, yet they are not following > the concept or protocol per Dr's instructions and are self medicating their > child through supplements, poor food choices etc. > > In the end you have to do what you think is right for your child. But I > plead with you to think it through and not do anything that can set back > your child's health long term. > > You either trust Dr. G or you don't. For most of us, he is right every > time. > > Warm regards, > > Lori > > _____ > > From: <%40> [mailto: > <%40>] On Behalf Of Martha > Wood > Sent: July-18-10 9:20 AM > > <%40> > Subject: Re: HHV-6 > > I have asked Dr. Goldberg about trying Nutriveda because our son has severe > apraxia. He says absolutely no because of the whey protein and some other > ingredients. > Anyone seeing Dr. Goldberg who have done Nutriveda anyway? To me we are > unable to get the esonophils and IEG down through his VERY restricted diet > anyway so what harm can it do? > > Thanks for your input. > Martha > On Sun, Jul 18, 2010 at 8:11 AM, Cotter <cotter.mary1@...<cotter.mary1%40gmail.com> > <mailto:cotter.mary1%40gmail.com <cotter.mary1%2540gmail.com>> > wrote: > > > look my advice is try it ,he may be a responder and you wont always be > > wondering.Have you considered your son may have lymes ,that is what > > happened > > with us.try doing zyto consult with Payne living well today.ALso > > look into Nutriiveda from pursuit of research cant explain it but really > > helping kids with apraxia,worth trying for a few months > > > > good luck > > > > mary > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@...<beiwallace%40bigpond.com> > <mailto:beiwallace%40bigpond.com <beiwallace%2540bigpond.com>> > > >wrote: > > > > > > > > > > > Hi all, > > > > > > I am new here so i need some help. I have a 12 year old son with severe > > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > > his > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of > my > > > sons blood test and found out he had positive HHV-6 in 2003 and once he > > had > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > > which > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > He has a history of out of range of Neutrophilis and history of low > white > > > blood cell. I did natural anti virus with no improvement. My question > is > > , > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > Bei > > > > > > > > > > > > > > > > > -- > > Cotter > > 5 Pollerton Manor > > Carlow > > 059 9134964 > > 087 2637921 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Oh gosh yes - worth an antiviral. HHV6 very often does not show up in the labs. You can google the HHV6 foundation - they have tons of info on it, and you can read the problems with determining whether someone w/CFS actually has HHV6. HTH ________________________________ From: alan21101997 <beiwallace@...> Sent: Sat, July 10, 2010 7:18:20 AM Subject: HHV-6  Hi all, I am new here so i need some help. I have a 12 year old son with severe autism who is non verbal, i have done most DAN protocol(except HBOT and Valtrex )with no success. I am ready to start the Valtrex for my son, 3 *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, his HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of my sons blood test and found out he had positive HHV-6 in 2003 and once he had HHV-1 positive in 2004.He also had Immunoscience lab immino panel test which showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. He has a history of out of range of Neutrophilis and history of low white blood cell. I did natural anti virus with no improvement. My question is , is it worth trying Valtrex ? Any information much appreciated Bei Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 I think you will find that if you look into the pursuit of reseach website and all the information you will find that the whey used in nutriiveda is 100% casein and gluten free,and there a large group of parents who are seeing nice gains and some remarkable gains with nutriiveda.I am well aware of allergies and the damage they can do three of my children have to epipens,so i would never recommend anything that i thought would cause problems,what alot of us are seeing makes me sure that nutriiveda is something that i will be sticking with On Mon, Jul 19, 2010 at 1:35 PM, Lori <lbharris@...> wrote: > > > Martha, " what harm can it do? " .??? > > Clearly your child has a very sensitive system or his eosinophils and IgE > would have responded more quickly and he would not need to be on such a > restricted diet. > > The damage you can do to his health can be irreparable, or at least take > years to reverse the inflammatory effects of something like whey (dairy!). > Regardless of the illness, dairy is consistently one of the things our > children (and most for that matter!) should NEVER have. > > I understand your frustration, but hang in there. There are no quick fixes > to a hyper or hypo immune system. > > I think too often people complain that their child isn't progressing as > quickly as they like with Dr. G or Dr. Russel, yet they are not following > the concept or protocol per Dr's instructions and are self medicating their > child through supplements, poor food choices etc. > > In the end you have to do what you think is right for your child. But I > plead with you to think it through and not do anything that can set back > your child's health long term. > > You either trust Dr. G or you don't. For most of us, he is right every > time. > > Warm regards, > > Lori > > _____ > > From: <%40> [mailto: > <%40>] On Behalf Of Martha > Wood > Sent: July-18-10 9:20 AM > <%40> > > Subject: Re: HHV-6 > > I have asked Dr. Goldberg about trying Nutriveda because our son has severe > apraxia. He says absolutely no because of the whey protein and some other > ingredients. > Anyone seeing Dr. Goldberg who have done Nutriveda anyway? To me we are > unable to get the esonophils and IEG down through his VERY restricted diet > anyway so what harm can it do? > > Thanks for your input. > Martha > On Sun, Jul 18, 2010 at 8:11 AM, Cotter <cotter.mary1@...<cotter.mary1%40gmail.com> > <mailto:cotter.mary1%40gmail.com <cotter.mary1%2540gmail.com>> > wrote: > > > look my advice is try it ,he may be a responder and you wont always be > > wondering.Have you considered your son may have lymes ,that is what > > happened > > with us.try doing zyto consult with Payne living well today.ALso > > look into Nutriiveda from pursuit of research cant explain it but really > > helping kids with apraxia,worth trying for a few months > > > > good luck > > > > mary > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@...<beiwallace%40bigpond.com> > <mailto:beiwallace%40bigpond.com <beiwallace%2540bigpond.com>> > > >wrote: > > > > > > > > > > > Hi all, > > > > > > I am new here so i need some help. I have a 12 year old son with severe > > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > > his > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of > my > > > sons blood test and found out he had positive HHV-6 in 2003 and once he > > had > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > > which > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > He has a history of out of range of Neutrophilis and history of low > white > > > blood cell. I did natural anti virus with no improvement. My question > is > > , > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > Bei > > > > > > > > > > > > > > > > > -- > > Cotter > > 5 Pollerton Manor > > Carlow > > 059 9134964 > > 087 2637921 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 , if you follow the protocol (most people on this site are parents of Dr. G's patients) whey or any milk products are banned. Its not really about the gluten or casein... Its bovine dairy and most grains that provoke the immune system. > > > > > look my advice is try it ,he may be a responder and you wont always be > > > wondering.Have you considered your son may have lymes ,that is what > > > happened > > > with us.try doing zyto consult with Payne living well today.ALso > > > look into Nutriiveda from pursuit of research cant explain it but really > > > helping kids with apraxia,worth trying for a few months > > > > > > good luck > > > > > > mary > > > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@...<beiwallace%40bigpond.com> > > <mailto:beiwallace%40bigpond.com <beiwallace%2540bigpond.com>> > > > >wrote: > > > > > > > > > > > > > > > Hi all, > > > > > > > > I am new here so i need some help. I have a 12 year old son with severe > > > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > > > his > > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of > > my > > > > sons blood test and found out he had positive HHV-6 in 2003 and once he > > > had > > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > > > which > > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > > He has a history of out of range of Neutrophilis and history of low > > white > > > > blood cell. I did natural anti virus with no improvement. My question > > is > > > , > > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > > > Bei > > > > > > > > > > > > > > > > > > > > > > > > -- > > > Cotter > > > 5 Pollerton Manor > > > Carlow > > > 059 9134964 > > > 087 2637921 > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 When you say most grains - does that include non-gluten grains as well? ________________________________ From: Sloan <Sloan_smith@...> Sent: Tue, July 20, 2010 7:26:43 PM Subject: Re: HHV-6 , if you follow the protocol (most people on this site are parents of Dr. G's patients) whey or any milk products are banned. Its not really about the gluten or casein... Its bovine dairy and most grains that provoke the immune system. > > > > > look my advice is try it ,he may be a responder and you wont always be > > > wondering.Have you considered your son may have lymes ,that is what > > > happened > > > with us.try doing zyto consult with Payne living well today.ALso > > > look into Nutriiveda from pursuit of research cant explain it but really > > > helping kids with apraxia,worth trying for a few months > > > > > > good luck > > > > > > mary > > > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 ><beiwallace@...<beiwallace%40bigpond.com> > > <mailto:beiwallace%40bigpond.com <beiwallace%2540bigpond.com>> > > > >wrote: > > > > > > > > > > > > > > > Hi all, > > > > > > > > I am new here so i need some help. I have a 12 year old son with severe > > > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > > > his > > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of > > my > > > > sons blood test and found out he had positive HHV-6 in 2003 and once he > > > had > > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > > > which > > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > > He has a history of out of range of Neutrophilis and history of low > > white > > > > blood cell. I did natural anti virus with no improvement. My question > > is > > > , > > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > > > Bei > > > > > > > > > > > > > > > > > > > > > > > > -- > > > Cotter > > > 5 Pollerton Manor > > > Carlow > > > 059 9134964 > > > 087 2637921 > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 MLM product designed for weight loss? Sorry, I don't care what the research and anecdotes show. I would not try it for my child unless Dr. G approved it (not likely to happen). Kristy Nardini TazziniTM Stainless Steel Bottles http://www.tazzini.com kristy@... Phone: 858.243.1929 Fax: 858.724.1418 Re: HHV-6 > > I have asked Dr. Goldberg about trying Nutriveda because our son has severe > apraxia. He says absolutely no because of the whey protein and some other > ingredients. > Anyone seeing Dr. Goldberg who have done Nutriveda anyway? To me we are > unable to get the esonophils and IEG down through his VERY restricted diet > anyway so what harm can it do? > > Thanks for your input. > Martha > On Sun, Jul 18, 2010 at 8:11 AM, Cotter <cotter.mary1@...<cotter.mary1%40gmail.com> > <mailto:cotter.mary1%40gmail.com <cotter.mary1%2540gmail.com>> > wrote: > > > look my advice is try it ,he may be a responder and you wont always be > > wondering.Have you considered your son may have lymes ,that is what > > happened > > with us.try doing zyto consult with Payne living well today.ALso > > look into Nutriiveda from pursuit of research cant explain it but really > > helping kids with apraxia,worth trying for a few months > > > > good luck > > > > mary > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@...<beiwallace%40bigpond.com> > <mailto:beiwallace%40bigpond.com <beiwallace%2540bigpond.com>> > > >wrote: > > > > > > > > > > > Hi all, > > > > > > I am new here so i need some help. I have a 12 year old son with severe > > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > > his > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of > my > > > sons blood test and found out he had positive HHV-6 in 2003 and once he > > had > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > > which > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > He has a history of out of range of Neutrophilis and history of low > white > > > blood cell. I did natural anti virus with no improvement. My question > is > > , > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > Bei > > > > > > > > > > > > > > > > > -- > > Cotter > > 5 Pollerton Manor > > Carlow > > 059 9134964 > > 087 2637921 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2010 Report Share Posted July 22, 2010 Ok that is fair enough but it is having some remakable results with children who have apraxia ontop of a autism diagnosis,and my son falls into that bracket,for me it is helping our son despite his dairy intolerence,it is not a weight loss drink ,it would be weight managment ,in that chidren who dont seem to gain weight with ordinary foods do gain it with nutriiveda and visa versa re overweight. Any way not going to harp on just that in five years of treatment ,nutriiveda is one thing that i have seen definate improvements with. On Wed, Jul 21, 2010 at 3:26 AM, Sloan <Sloan_smith@...> wrote: > > > , if you follow the protocol (most people on this site are parents > of Dr. G's patients) whey or any milk products are banned. Its not really > about the gluten or casein... > Its bovine dairy and most grains that provoke the immune system. > > > > > > > > > look my advice is try it ,he may be a responder and you wont always > be > > > > wondering.Have you considered your son may have lymes ,that is what > > > > happened > > > > with us.try doing zyto consult with Payne living well > today.ALso > > > > look into Nutriiveda from pursuit of research cant explain it but > really > > > > helping kids with apraxia,worth trying for a few months > > > > > > > > good luck > > > > > > > > mary > > > > > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 <beiwallace@ > ...<beiwallace%40bigpond.com> > > > <mailto:beiwallace%40bigpond.com <beiwallace%2540bigpond.com><beiwallace% > 2540bigpond.com>> > > > > > >wrote: > > > > > > > > > > > > > > > > > > > Hi all, > > > > > > > > > > I am new here so i need some help. I have a 12 year old son with > severe > > > > > autism who is non verbal, i have done most DAN protocol(except HBOT > and > > > > > Valtrex )with no success. I am ready to start the Valtrex for my > son, 3 > > > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw > back, > > > > his > > > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history > of > > > my > > > > > sons blood test and found out he had positive HHV-6 in 2003 and > once he > > > > had > > > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel > test > > > > which > > > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > > > He has a history of out of range of Neutrophilis and history of low > > > white > > > > > blood cell. I did natural anti virus with no improvement. My > question > > > is > > > > , > > > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > > > > > Bei > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > > > > Cotter > > > > 5 Pollerton Manor > > > > Carlow > > > > 059 9134964 > > > > 087 2637921 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2010 Report Share Posted July 27, 2010 Yes, its non-gluten grains as well: brown rice, quinoa, gluten-free flours, etc all banned. > > > > > > > look my advice is try it ,he may be a responder and you wont always be > > > > wondering.Have you considered your son may have lymes ,that is what > > > > happened > > > > with us.try doing zyto consult with Payne living well today.ALso > > > > look into Nutriiveda from pursuit of research cant explain it but really > > > > helping kids with apraxia,worth trying for a few months > > > > > > > > good luck > > > > > > > > mary > > > > > > > > On Sat, Jul 10, 2010 at 1:18 PM, alan21101997 > ><beiwallace@<beiwallace%40bigpond.com> > > > <mailto:beiwallace%40bigpond.com <beiwallace%2540bigpond.com>> > > > > >wrote: > > > > > > > > > > > > > > > > > > > Hi all, > > > > > > > > > > I am new here so i need some help. I have a 12 year old son with severe > > > > > autism who is non verbal, i have done most DAN protocol(except HBOT and > > > > > Valtrex )with no success. I am ready to start the Valtrex for my son, 3 > > > > > *500mg per day per Dr. Rossignol. Today I had my sons blood draw back, > > > > his > > > > > HHV-1 and HHV-2 IGg is not detected. How ever i traced the history of > > > my > > > > > sons blood test and found out he had positive HHV-6 in 2003 and once he > > > > had > > > > > HHV-1 positive in 2004.He also had Immunoscience lab immino panel test > > > > which > > > > > showed high title of HHV-1 and HHV-2 but negative HHV-6 in 2002. > > > > > He has a history of out of range of Neutrophilis and history of low > > > white > > > > > blood cell. I did natural anti virus with no improvement. My question > > > is > > > > , > > > > > is it worth trying Valtrex ? Any information much appreciated > > > > > > > > > > Bei > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > > > > Cotter > > > > 5 Pollerton Manor > > > > Carlow > > > > 059 9134964 > > > > 087 2637921 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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