LDN

[Guest guest]

>

> Has anyone ever experienced an allergic reaction to LDN?

>

=======

it's usually their filler they are allergic to. What sort of reactions are you

having?

[Guest guest]

Too much heat, from the neck up, and I get dizzy/light headed.

Too much cold and things/body parts (hard to describe), just

don't work/respond like normal. Other than that, all ok. 2cents :-)

Jim

[low dose naltrexone] LDN

Hi Aletha;

I’ve been on LDN since Aug 25, 2005 and been doing very good, my therapist can’t believe how well I’ve been doing, I’ve gone from a wheelchair to a walker. Yesterday, I got out of bed my legs, arms and hands tingling pain, I got in the shower with my wifes help, normally I have no problems by myself. I had been sitting on a chair, transferred to my scooter, fell on the floor, my wife had to help me up, I didn’t have the strength in my hands to hold on the arm rests of my scooter when I was transferring, I do have arthritis too, I'm normally a very strong person.

We live in North Dakota, we have had a very mild winter this year, but, the last two weeks our winter has returned to normal, it has gotten down to 35 below zero at nights and up to 12 below to zero during the day, could that be what caused my problem? My wifes sister and husband live in AZ and been after us to move there, do you think that would help?

Jim

[Guest guest]

Hi Jim,

This is a good question for the group. We have many people in different climates utilizing LDN and having MS. Personally I would take an extended vacation to AZ and see how you do there. Remember that the heat is usually difficult for MS too. However, some people have problems with heat before they start LDN and then do better once on LDN. But that is not always the case. One person that is doing much better is Sammie Joe. See her web site below:

http://www.ldners.org/mission.htm

http://www.ldners.org/SJW_LDN.pdf#search='LDN%20MS'

My husband surfs on a daily basis in the cold Pacific ocean and seems to do fine, but the temperature is about 45 to 50 and he wears a wet suit. He seemed to do OK in the snow two weekends ago when we went skiing, but I don't think our temperatures were anywhere near what you are experiencing.

Perhaps the temperature changes are just too abrupt. Maybe going into the warm or hot shower would be quite a change from what ever the house temperature was.

Hopefully things will get better soon as the weather gets warmer.

Kindest of regards

Aletha

[low dose naltrexone] LDN

Hi Aletha;

I’ve been on LDN since Aug 25, 2005 and been doing very good, my therapist can’t believe how well I’ve been doing, I’ve gone from a wheelchair to a walker. Yesterday, I got out of bed my legs, arms and hands tingling pain, I got in the shower with my wifes help, normally I have no problems by myself. I had been sitting on a chair, transferred to my scooter, fell on the floor, my wife had to help me up, I didn’t have the strength in my hands to hold on the arm rests of my scooter when I was transferring, I do have arthritis too, I'm normally a very strong person.

We live in North Dakota, we have had a very mild winter this year, but, the last two weeks our winter has returned to normal, it has gotten down to 35 below zero at nights and up to 12 below to zero during the day, could that be what caused my problem? My wifes sister and husband live in AZ and been after us to move there, do you think that would help?

Jim

[Guest guest]

Hi Aletha;

My last message to you 2/26/06 I described the pain I was having and contributed it to the extreme cold we were having, now it's 1 week later the weather has warmed some and I'm now having extreme pain in my legs, the reversal I think I'm having, seems like the order it happened coming down with MS, now, does a person back out of the MS in the opposite way a person came down with MS? is this someting I just have to go through? what I'm trying to say, does it make any since? I hate to start drinking to excess, to cope with pain.

Best to you,

Jim

[low dose naltrexone] LDN

Hi Aletha;

I’ve been on LDN since Aug 25, 2005 and been doing very good, my therapist can’t believe how well I’ve been doing, I’ve gone from a wheelchair to a walker. Yesterday, I got out of bed my legs, arms and hands tingling pain, I got in the shower with my wifes help, normally I have no problems by myself. I had been sitting on a chair, transferred to my scooter, fell on the floor, my wife had to help me up, I didn’t have the strength in my hands to hold on the arm rests of my scooter when I was transferring, I do have arthritis too, I'm normally a very strong person.

We live in North Dakota, we have had a very mild winter this year, but, the last two weeks our winter has returned to normal, it has gotten down to 35 below zero at nights and up to 12 below to zero during the day, could that be what caused my problem? My wifes sister and husband live in AZ and been after us to move there, do you think that would help?

Jim

[Guest guest]

Hi Jim,

The reversal of symptoms has come up a lot on this forum. So my thought is that yes it is typical and can almost be expected. It is like going backwards.

I will e-mail you over the past chats that I have saved in regards to pain and hopefully some (or a combination of some) of the things that have helped others will help you feel better.

Obviously diet and supplements seem to help along side of LDN with the immune system, so that is always recommended. The next thing for pain is the soap thing. Someone had posted that the soap in their bed was not helping with the spasms or pain so they put directly up against the skin in the area that was hurting and it worked. My husband is an avid surfer and has pain in his neck from paddling and he tried the soap up against his neck holding a sliver of Ivory soap in place with a ace bandage and he really had relief. But we need to come up with a better way to keep it in place as it is so messy (bits of soap everywhere).

Please keep us posted on what helps

Aletha

[low dose naltrexone] LDN

Hi Aletha;

I’ve been on LDN since Aug 25, 2005 and been doing very good, my therapist can’t believe how well I’ve been doing, I’ve gone from a wheelchair to a walker. Yesterday, I got out of bed my legs, arms and hands tingling pain, I got in the shower with my wifes help, normally I have no problems by myself. I had been sitting on a chair, transferred to my scooter, fell on the floor, my wife had to help me up, I didn’t have the strength in my hands to hold on the arm rests of my scooter when I was transferring, I do have arthritis too, I'm normally a very strong person.

We live in North Dakota, we have had a very mild winter this year, but, the last two weeks our winter has returned to normal, it has gotten down to 35 below zero at nights and up to 12 below to zero during the day, could that be what caused my problem? My wifes sister and husband live in AZ and been after us to move there, do you think that would help?

Jim

[Guest guest]

You are a doll Kathy,

Thanks

Aletha

[low dose naltrexone] LDN

Hi Althea,

I have already told Joanna about the 25mg. I also sent a copy of the letter to this board but it never showed up. I think the moderator had something to do with this.

Hope all is well,

Kathy

Have a question? Canada Answers. Go to Canada Answers

[Guest guest]

Hi Aletha;

I'm still having the severe pain in my legs like I had when I came down with MS, I hope it subsides soon, I started yesterday taking Aleve, it might be helping some, we put Ivory soap at the foot of the bed sometime ago, my wife says it helps the pain she sometimes has in her legs, MY LEGS ???????????? If the LDN is reversing my MS, when this pain leaves me I should be in good shape. When I was at therapy last Friday I had the pain, but, my therapist said, I'm starting to walk better again after that set back a week ago, so even with the pain my strength still seems to be there. I'm on my seventh month of LDN, so, I suppose I can expect still more improvement.

Jim

[low dose naltrexone] LDN

Hi Aletha;

I’ve been on LDN since Aug 25, 2005 and been doing very good, my therapist can’t believe how well I’ve been doing, I’ve gone from a wheelchair to a walker. Yesterday, I got out of bed my legs, arms and hands tingling pain, I got in the shower with my wifes help, normally I have no problems by myself. I had been sitting on a chair, transferred to my scooter, fell on the floor, my wife had to help me up, I didn’t have the strength in my hands to hold on the arm rests of my scooter when I was transferring, I do have arthritis too, I'm normally a very strong person.

We live in North Dakota, we have had a very mild winter this year, but, the last two weeks our winter has returned to normal, it has gotten down to 35 below zero at nights and up to 12 below to zero during the day, could that be what caused my problem? My wifes sister and husband live in AZ and been after us to move there, do you think that would help?

Jim

[Guest guest]

Hi Jim,

Try putting the soap right up against the area (touching the skin) where the pain is at. You can just use a sliver in if that is easier, but it breaks up and gets a bit messy. I will forward on a couple of messages in this regard.

I am glad that you are showing signs of walking better. Are you also taking supplements and doing one of the MS diets. They also help to support the immune system. If you have not already tried the DLP that might also be helpful.

My husband cut out all flour and dairy. It was quite a contrary diet to his usual but he feels so good now that he does not seem to mind. We have gotten quite creative with our cooking so we have made it fun and do it together. The restaurant thing is a bit of a bother, but we just order things without white sauces or bread. We just got through reading the book the Gold Coast Cure which seems to reiterate the MS diet thing. Also there was just a post about how this German doctor had an enormous amount of people turn around on the raw unprocessed food diet and MS in the 1940's.

I will forward on some chats in regards to pain. Hopefully they will be helpful.

My very best

Aletha

[low dose naltrexone] LDN

Hi Aletha;

I’ve been on LDN since Aug 25, 2005 and been doing very good, my therapist can’t believe how well I’ve been doing, I’ve gone from a wheelchair to a walker. Yesterday, I got out of bed my legs, arms and hands tingling pain, I got in the shower with my wifes help, normally I have no problems by myself. I had been sitting on a chair, transferred to my scooter, fell on the floor, my wife had to help me up, I didn’t have the strength in my hands to hold on the arm rests of my scooter when I was transferring, I do have arthritis too, I'm normally a very strong person.

We live in North Dakota, we have had a very mild winter this year, but, the last two weeks our winter has returned to normal, it has gotten down to 35 below zero at nights and up to 12 below to zero during the day, could that be what caused my problem? My wifes sister and husband live in AZ and been after us to move there, do you think that would help?

Jim

[Guest guest]

--- In low dose naltrexone , " surffcity " <surffcity@...>

wrote:

>

> The moderator is BRENDA. I believe that she will be out for a

> few days.

>

--

is the moderator of this group?

[Guest guest]

Thanks so much for letting us know! I did see where she will be gone

for awhile.

Take Care

>

> The moderator is BRENDA. I believe that she will be out for a

> few days.

>

[Guest guest]

I don't think so! is just someone who is extremely helpful and

knowledgeable on LDN issues. There is no moderator as such (in the

sense that other groups have someone who vets all new members and posts)

but I believe the list owner is Dr. Gluck.

surffcity wrote:

> The moderator is BRENDA. I believe that she will be out for a

> few days.

[Guest guest]

Hi ,

I get my script from my neuro and I use a reputable compounding

pharmacy. When I first started at 3mg. they used calcium carbonate.

Not wanting to take the chance on it compacting down and causing a

slow release I had them use advicel.

Into the 3rd month I increased to 4.5mg. After a short time I started

experiancing mood swings. I thought it was just me but I talked with

others who were experiancing this, I saw it wasn't just me. I dropped

down to 3mg and that did not rectify the problem so I went completely

off 2 days ago. The mood swings stopped but not the depression. Also

my 2nd autoimmune disease hidradenitis started flaring again. This is

why I want to find something that will work.

Thanks for the suggestion. I think maybe someone will see a pattern

or find out whats going on.

Take Care

>

> ,

> do you get your LDN from a doctor? What filler is being used?

> Maybe, you should drop back down to 3.0. Only a suggestion.

>

>

[Guest guest]

I tried it probably 17 years ago as a tx for CFIDS. At the time it did nothing

except made me feel fuzzy. But don't remember my dosage. Hope