Infections

[Guest guest]

I have never heard that specifically, but a damaged liver will not clot the blood properly (or not as quickly) after a cut, so I suppose there could be a relationship there. -dz-Norma <netaylor@...> wrote:

I think I asked this before but my son wanted me to ask . For the last few years when ever he has cut himself or even banged a leg it would get very infected. Do you think this would have something to do with the liver not cleansing his blood or something?

Naive Norma

[Guest guest]

> I think I asked this before but my son wanted me to ask . For the

last few

> years when ever he has cut himself or even banged a leg it would

get very

> infected. Do you think this would have something to do with the

liver not

> cleansing his blood or something?

> Naive Norma

******************************************

I've been warned for years about avoiding infections by my Dr.s. I

think it was something to do withnot being able to heal well/quickly.

I have appt on Jan 5 and was going to add that to my ever growing

number of questions, so remind me you asked and I'll tell you what I

was told.

Kay

[Guest guest]

Thank you.

Norma

Happy Holidays

-- [ ] Re: Infections

> I think I asked this before but my son wanted me to ask . For the last few> years when ever he has cut himself or even banged a leg it would get very> infected. Do you think this would have something to do with the liver not> cleansing his blood or something?> Naive Norma******************************************I've been warned for years about avoiding infections by my Dr.s. I think it was something to do withnot being able to heal well/quickly. I have appt on Jan 5 and was going to add that to my ever growing number of questions, so remind me you asked and I'll tell you what I was told.Kay

[Guest guest]

Is he diabetic ?

> > I think I asked this before but my son wanted me to ask . For

the

> last few

> > years when ever he has cut himself or even banged a leg it would

> get very

> > infected. Do you think this would have something to do with the

> liver not

> > cleansing his blood or something?

> > Naive Norma

> ******************************************

>

> I've been warned for years about avoiding infections by my Dr.s. I

> think it was something to do withnot being able to heal

well/quickly.

> I have appt on Jan 5 and was going to add that to my ever growing

> number of questions, so remind me you asked and I'll tell you what

I

> was told.

> Kay

[Guest guest]

No, not that I know of. He is into body building and a big hunk of a fellow.

Norma

Happy Holidays

-- [ ] Re: Infections

Is he diabetic ?> > I think I asked this before but my son wanted me to ask . For the > last few> > years when ever he has cut himself or even banged a leg it would > get very> > infected. Do you think this would have something to do with the > liver not> > cleansing his blood or something?> > Naive Norma> ******************************************> > I've been warned for years about avoiding infections by my Dr.s. I > think it was something to do withnot being able to heal well/quickly. > I have appt on Jan 5 and was going to add that to my ever growing > number of questions, so remind me you asked and I'll tell you what I > was told.> Kay

[Guest guest]

Our immune systems are weakened. Our bodies are working hard to fight the hcv, leaving us more susceptible to other problems. I was advised to have a flu shot while on the treatment, implying that it was more important for me than for the average person without hcv. -dz-Norma <netaylor@...> wrote:

No, not that I know of. He is into body building and a big hunk of a fellow.

Norma

Happy Holidays

-- [ ] Re: Infections

Is he diabetic ?> > I think I asked this before but my son wanted me to ask . For the > last few> > years when ever he has cut himself or even banged a leg it would > get very> > infected. Do you think this would have something to do with the > liver not> > cleansing his blood or something?> > Naive Norma> ******************************************> > I've been warned for years about avoiding infections by my Dr.s. I > think it was something to do withnot being able to heal well/quickly. > I have appt on Jan 5 and was going to add that to my ever growing > number of questions, so remind me you asked and I'll tell you what I > was told.>

Kay

[Guest guest]

Hi Carla,

I just joined this support group today to find out if anyone has had

serious infections while taking Enbrel. I ran across your post about

your staph infection. How are you doing? I have been sick since my

last injection the last week in June. I am so scared. I have been

on Enbrel for approximately seven years. I am always warned about

infection, and never take a shot when I am already sick. I have

taken three rounds of antibiotics and am on prednisone. I will see

my rheumatologist next Tuesday and hope he has some way of helping

me. I have been out of state all summer, though I did see a doctor

in Missouri. I would sure be interested in knowing how your

infection has turned out.

Thanks

P.S. I hope I can figure out how to read your reply!

[Guest guest]

Carla,

Maybe you should make an appointment with an infectious disease specialist.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Infections

> Well, I have a new thing going on... I'd been on enbril and mtx and at

> least

> I was holding my own pretty well .. no bad flares. Then I started getting

> what my primary doc thought was psoriasis.. I have an appt. to see a

> dermatologist on that... but during the period when my mother was going

> through all kinds of misery and infections and stuff I must have rubbed on

> my elbows (which were cracked and sore) as I managed to get a confirmed

> staph infection in my left elbow. Not in the bone but in the bursa. I

> was

> on 2 kinds of antibiotic, aughmentin and biaxcin (?) ... anyway it's

> exactly

> the same thing as Septra, which I have had mild allergic reactions to in

> the

> past. The sulfa drug was the specific for the type of staph I have and I

> was able to take a weeks worth but then I got a rash all over and had to

> stop.. :-( My rheumy thinks one week is better than none.. I'm seeing her

> Thursday-- we've been on a wait and see. Of course I had to stop all my

> R.A. meds, sigh, and yes, I'm having a mild flare. The thing is.. the

> elbow

> hasn't swollen and the redness hasn't spread again but it hasn't gone away

> either and I'm terrified of walking around with a staph infection in my

> elbow for who knows how long.. ...

>

> Has anyone else dealt with this sort of thing? I'm already retired, so I

> don't have to worry about what I'll live on .. and fortunately I have

> medical coverage (thank heavens x l00000).. but at 60 I don't want to lose

> my ability to function-- I have too much yet to do. thanks, Carla in

> Rhode Island

[Guest guest]

> Carla, sorry to hear about your infection, I guess I have be lucky I

have been on Enbrel for 4months now and have not infection and had to

stop, hope you feel better soon,

Janet IN IL

> Well, I have a new thing going on... I'd been on enbril and mtx and

at least

> I was holding my own pretty well .. no bad flares. Then I started

getting

> what my primary doc thought was psoriasis.. thanks, Carla in

> Rhode Island

>

[Guest guest]

SSN and Group

SSn, Sorry I don't know your name. YOu forgot to put a name on the

end. I read your story and think how sad life to do this to you. I

dreamed of being a nurse. Illness puts you at home watching tv.. Even

in our old age we plan to have fun. I have a lot of skin problems

too. No sores on my face. My feet are so dry and crackly if feels like

cardboard. I am sure its from the RA.

It's heart breaking when you hear someone so important to helping

others can't get out to do what they do best because of lousy

diseases. A lot of people here are so wonderful. Dodge is another I

love so much. I know if we can walk on the moon we can figure how to

get red of all these disabling diseases.

I hope they can find a cocktail to help you to get back on your feet

again. The group here is so understanding. If you feel like venting

or talking about it just knock your self out. I am really into our

group. I read everyones post and love to hear someone has found the

meds to put them back on track with life. When you feel better write

us about it too. It make's us so happy, besides everone that can be

help is hope for us too.

gentle hugs everyone

Clora

> I am taking Remcade for about 1 month.I seem to be getting different

> sores.I have a nasty one on my foot,and 2 on my face(so attractive)I

> want to go back to work so badly.I worked in the operating room as a

> scrub nurse for many years-after getting RA,I was catching every

> infection that came into the OR.All I do is sit around all day and

> watch old movies and read books .-and of course take pills!Anyone out

> there that wants to talk to a sick and tired of being sick and tired

> ole lady?

>

[Guest guest]

I'm a nurse also...Was just diagnosed this month with ra...One of my

biggest fears is getting infections but my rhuemy as mentioned it also

the risk...Thankfully i work in the psych unit, we do get infections in

our patients but not as bad as other areas esp surgery...I just hope

you feel better soon...your health is always number one....diane

[Guest guest]

Hi SSN!

Hooo boy! I can relate...! I was a nurse once upon a time, too. I was a

charge nurse in a care facility. Those days are over... I have been out of

it for a long time, raising children. I want to go back, but the RA... some

days are good... I think " I can go back! " I make plans to take the test to

get back into it... then I am down with the pain, the fatigue. Some days I

have spent in bed. I don't think I can get back into that profession again!

And I was teaching children until just recently... but I was catching

things, too. Last winter I spent at least 2 months straight sick with

upper-resp. infections and strep, caught from the children I taught. I can't

do that anymore. I have children still at home and I have to be careful who

I allow them to " play " or " hang out " with for fear of getting sick.

Yep, sick and tired of being sick and tired! I understand!!!! So maybe

those of us, like you and I, who spend some time reading books and watching

old movies can compare notes on the old movies and books we are

reading.....PRIDE AND PREJUDICE!!!!! What are you reading?!

I'm sorry you have been suffering from infections, though. Are they

getting any better? Will you be going back to work in the OR eventually? Or

will you change your specialty?

When I was going through all the infections myself, I asked my pharmicist

about building my immune system with " Emergen-C " packets. At first she

commented they would work, then we both realized I should not use those.

It's a battle, isn't it?

Please let us know how you are doing, how you are feeling.... I hope you

get feeling better! ....Old movies, eh? Have you watched Jimmy s

" Harvey " lately?! If you have to sit there with infections, getting better

so you can go back to work.... Harvey can give you enough chuckles to help

you fight any infection!!!

Good luck.... I'm pulling for you!

>From: " ssn_cnnrs " <ssn_cnnrs@...>

>Reply-

>

>Subject: [ ] infections

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>

>I am taking Remcade for about 1 month.I seem to be getting different

>sores.I have a nasty one on my foot,and 2 on my face(so attractive)I

>want to go back to work so badly.I worked in the operating room as a

>scrub nurse for many years-after getting RA,I was catching every

>infection that came into the OR.All I do is sit around all day and

>watch old movies and read books .-and of course take pills!Anyone out

>there that wants to talk to a sick and tired of being sick and tired

>ole lady?

>

[Guest guest]

From one sick and tired ole lady to another - please check with your

doctor regarding those sores. Although I guess I don't need to tell

you that considering you are a nurse. Is your RA keeping you

housebound or are you concerned with catching other infections? I'll

chat with you anytime if you want - just holler........Doreen

>

> I am taking Remcade for about 1 month.I seem to be getting different

> sores.I have a nasty one on my foot,and 2 on my face(so attractive)I

> want to go back to work so badly.I worked in the operating room as a

> scrub nurse for many years-after getting RA,I was catching every

> infection that came into the OR.All I do is sit around all day and

> watch old movies and read books .-and of course take pills!Anyone out

> there that wants to talk to a sick and tired of being sick and tired

> ole lady?

>

[Guest guest]

Hi sherry,

I stopped the Enbrel because of infections in my mouth. I had to take four tooth

because of infections that could not be stooped with huge amount of antibiotics.

So: I got read of four tooth and of Enbrel (to cut the process of damage).  Last

time I felt normal was 27 years ago, when all he long journey of the severe PA

started.

Arie

[Guest guest]

Hi Sherry,

Seems like a normal thing to do, treat the symptom that is strongest and right

there in your face, but, that is not the ONLY thing we have to worry about. If

the disease itself is ignored, the pain will only continue to travel and the

damage will be forever. I don't like being sick or in pain any more than the

next guy. Lord, what I wouldn't give to have the energy and the ability I had

only 7 or 8 years ago. It seems like I wasted an awful lot of it now that I

look back on it. The MTX is not a pleasant drug, but neither is the disease

when left alone. I am lucky in as much as the only disfiguring I have is the

little finger on my left hand and have lost some movement in my right wrist. I

don't usually quit taking the MTX altogether. I've only been told to one time

by my rheumy. I had to move up to a stronger pain med last winter because

Vicodin just wasn't doing the job anymore. My doctor sent me a script for norco

( still a form of Vicodin ) and I only need to take a half of one and not very

often. If this is remission, I'll take it. Now, if the fibro, thyroid, high

blood pressure and allergies would go into remission, too, LOL. Just remember,

dear, we wouldn't need to lower our resistance if it were not for the fact that

our immune system is running in 5th gear and attacking our bodies just like a

battering ram into a cement wall. This seems to be the only way to stop the

progression at this time. Pray for a MIRACLE CURE. This is our best hope.

God bless you

cameronparkmom@...

[Guest guest]

Sherry,

The real problem is your bodies immune system is attacking you body.

Pain meds won't stop the joint damage and eventually they become

ineffective.

" stacymorris9999 " <STACYMORRIS07@...>

[Guest guest]

Hey thanks for the comments. Yeah, I know we have to take stuff. I

have some damage in one toe and my fingers. I also have problems

with my elbows and hip. I will start back on the medications when

the Dr. gives me the go ahead. Right now I am struggling to get

through the night without coughing my head off. And, it is kinda

like life..... " if it isn't one thing....it is another " . Life is good

though, in spite of the pain and headaches. I guess that is why we

keep on keeping on. I cannot understand why people are intelligent

enough to put a man on the moon and do countless other seemingly

impossible feats but the medical profession cannot come up with an

answer to our pain. I don't like taking pain medicine but sometimes

it is like getting blood out of a turnip. I think if we had doctors

who have as much pain as we do they would be a little more

understanding. I don't know why they are so concerned about us

becoming dependent on pain medication. We have to work and function

and sometimes when the pain is so bad, it is extremely difficult. I

simply have to work if I can push myself. I rely on over the county

meds when I am not in severe pain but then when I ask for something

else, it is: " oh, I don't prescribe anything stronger than

Darvocet " . Yeah, and when the pain is bad it is like spitting on a

forrest fire. I suppose they are saving the strong " stuff " for

our 'last' days. That way we don't become dependent. My family

doctor has known me for years and knows that I don't abuse

medications, but my rheumy (is that how everyone refers to them?)

does NOT know me and therefore assumes that I am gonna be a druggy.

I cannot over medicate myself. My work requires that I be very alert

and when I am home I usually have my grand kids. I just don't

understand their reluctance to help us with our severe pain. DO YOU?

" ssherryhh46 " <ssherryhh46@...>

[Guest guest]

If you just treat the pain, you end up with destroyed joints! No

thanks. I want to treat the actual disease and stop or prevent the

joint damage. I wonder whether you might try a different med, like

Humira. Or ask about stretching out the time between doses so your

immune systems doesn't stop completely.

" S. Zorzi " <szorzi_1999@...>

[Guest guest]

Sherry:  I've been on Enbrel for 18 months with nary a sniffle.  But last week,

I went in to see the doctor with chest congestion and coughing that was

diagnosed as bronchitis.  My doc put me on an anti-biotic to prevent any side

infections, I guess, since bronchitis is typically a virus; but she told me no

Enbrel until the anti-biotic was over.  I didn't get much better, however,

despite using Mucinex and all the typical over the counter stuff you take for

chest congestion.   So, yesterday she had me get a chest x-ray and blood tests

to rule out pneumonia.  Now that she knows for sure that I don't have that,

she's putting me on prednisone for 3-4 days because I have a touch of asthma and

it works well for that - and will also help any PsA pain, though so far, so

good.  There's been none.  (A zillion years ago - way before PsA - I got

bronchitis and before I even knew what was happening it went into acute asthma

and I was in the

hospital for 2 weeks.  Not being able to breathe is the scariest thing you will

ever encounter, believe me!!!  But asthma has not been much of a problem at all,

since I went thru some years of allergy shots.)  

When I asked about going back on Enbrel when I stop the anti-biotic

tomorrow, she said no - that it would just complicate any further diagnosis and

treatment and until I was much better, she wanted me to stay off it. She has had

a patient on Enbrel who suffered a life threatening infection and was

hospitalized, taken off Enbrel immediately.  She ultimately got better and chose

to go back on Enbrel when all threat of the infection was gone, despite the

scare.  

It's my understanding from everything I hear and read that if you have an

infection or are undergoing a procedure that can lead to one, you stay away from

immunosuppressants.   

 Joanna Hoelscher

________________________________

From: ssherryhh46 <ssherryhh46@...>

Sent: Thursday, February 12, 2009 7:14:39 PM

Subject: [ ] infections

I have a chest cold and ear ache, I did not give my Enbrel injection

over the weekend due to that. I started on an antibiotic today. Do

all of you stop your Enbrel or other meds when you have an infection.

It seems I have had one thing or the other the past 3 months. I start

having a lot of pain after missing one injection. Also, I am having

increased weakness in my legs. Having trouble getting up & down. I

suppose this is just part of it. I wake up every morning, stiff, sore

and hurting. Oh, for a day without pain. thanks sherryhh

[Guest guest]

I have been on Enbrel for a while. I have noticed in the last few weeks that my

legs have become weaker. I notice it when going up stairs.

I was never one to get sick and never had an infection - so far no change since

being on Enbrel.

Randy Gribble <randyebr2005@...>

[Guest guest]

Sherry, I have not stopped my Humira for mild colds but I did delay my

injection last week after a cold got better then started to get worse

again. The cold cleared up in short order, but my joints started

aching after only a 4 day delay in my shot. I took it 4 days ago and

I'm still hurting.

The weakness in your legs concerns me. I think you should definitely

speak to your rheumy about that ASAP. Enbrel can cause MS-like

symptoms which is not a good thing. That should go away once you stop

the drug, but it is reason to be concerned. You should talk to the

doctor right away. There are other meds you can try instead, if

necessary. best regards, sherry z

[Guest guest]

Randy, be sure to let your doctor know about the weakness in your

legs. I would it report it to his nurse by phone and not wait until my

next appointment. MS-like symptoms can be (rarely) a side effect of

Enbrel, which go away if the drug is stopped promptly but may become

permanent if it is ignored for too long.

" S. Zorzi " <szorzi_1999@...>

[Guest guest]

Sherry:  I had the same symptoms as you - bronchitis causing a lot of

coughing, especially in the evenings (though not usually after I went to

sleep.)  My doctor had told me to call her if I was not better; I did a week to

the day that she saw me and put me on an antibiotic and told me to use Mucinex. 

When I told her I wasn't much better, she ordered a chest x-ray and blood tests

to rule out pneumonia; and as soon as they came back negative, she put me on a

short term dose of prednisone to clear up the lungs so I would not go into a

full blown asthma attack, which is not typically a problem for me but I'd been

having some wheezing.  She'd already told me I should not be on Enbrel while

taking an anti-biotic but since that was almost finished, I asked her about

going back on it.  She told me that would just complicate any further need for

diagnosis and/or treatment and that if I was having any pain (which I'm not) the

prednisone would

help.  I started on the prednisone last night and am to call her on Monday - or

see her if I'm not significantly better.  Even if I am, she said that we would

decide what to  " do next " at that time. (I have not taken prednisone in decades

and have never needed it for PA.)  It has been my internist handling this - not

my rheumy.  But my internist is very knowledgeable and has other patients on

Enbrel - and has been through a life-threatening infection with one

(successfully treated.)  I trust her a lot. 

Anyway, this is a long tale but the point is maybe you could see if prednisone

is a short-term option for you (both for the chest congestion and your PA pain)

until you can go back on Enbrel.    

 Joanna Hoelscher

[Guest guest]

Hi,

Are you sure you're not having allergic reactions to Enbrel?

Enbrel is suppose to make you feel good, energetic and pain free.

I would check because I had a bad reaction to this med.

SD

[Guest guest]

Hi, I was wondering if anyone had any problems with Enbrel and others

causing their immune system to stop fighting against certain diseases.

Like it says in the side effects. Has it happened to anyone here?

What are the good results of Enbrel, methotrexate and Humira?

" Tania " <taniaess1@...>