Re: NIH Seeks CFS-XMRV patients for Study

[Guest guest]

Looks like XMRV is a hot property to be getting this much attention. Makes me think nobody's buying the "contamination" theory put forth by the British researchers.

From: Al Melillo <melillo3@...>Subject: [infections] NIH Seeks CFS-XMRV patients for Study"I & I Group" <infections >Date: Monday, January 31, 2011, 3:02 PM

Several teams of researchers at the National Institutes of Health(NIH) have been studying XMRV and have been working to develop new andmore sensitive laboratory tests for it. One NIH team at the NationalCancer Institute, has recently received approval to obtain samplesdirectly from CFS patients. To be eligible for the study, you musthave a diagnosis of CFS and must be under the care of a physician. Youmust also be willing and able to travel at your own expense to the NIHcampus in Bethesda, land for a screening evaluation.The researchers are specifically trying to reach individuals who havealready been tested for XMRV so they can compare the results of theirnew tests with the results obtained using other tests. People withpositive or negative results will be eligible to participate. The NIHwill share samples obtained in this study with other laboratories thathave tests for XMRV. The goal

is to determine which kind of test isbest to detect XMRV. All participants will understand and give writtenconsent before any samples are obtained, tested or shared.Participants have the right to withdraw from the study at any time.Individuals who meet criteria for this study will make an appointmentto receive a physical examination, routine laboratory tests andresearch tests at the NIH Clinical Center in Bethesda, land. Thisstudy will not provide any medications. No new therapies, includingantiretroviral therapies, will be tested in this study.If you are interested in participating, please contact Dr. Maldarelli, the study contact, at his office directly at (301)435-8019 for more information.Participation in this study will not be coordinated through theSolveCFS BioBank and any questions about it should be directed to theNIH.With best wishes for health and progress in

the new year,Gloria E. SolveCFS BioBank CoordinatorThe CFIDS Association of AmericaOur Mission:For CFS to be widely understood, diagnosable, curable and preventable.Our Strategy:To stimulate research aimed at the early detection, objectivediagnosis and effective treatment of CFS through expanded public,private and commercial investment.Our Core Values:To lead with integrity, innovation and purpose.

[Guest guest]

Yes, and CFS patients are officially banned from donating blood in a recent FDA

decision.

In other hot news, 2 CFS researhers are now using 'MCMAF' a new HIV antiviral

thats a lot safer than others.

Al

>

>

> From: Al Melillo <melillo3@...>

> Subject: [infections] NIH Seeks CFS-XMRV patients for Study

> " I & I Group " <infections >

> Date: Monday, January 31, 2011, 3:02 PM

>

>

>  

>

>

>

> Several teams of researchers at the National Institutes of Health

>

> (NIH) have been studying XMRV and have been working to develop new and

> more sensitive laboratory tests for it. One NIH team at the National

> Cancer Institute, has recently received approval to obtain samples

> directly from CFS patients. To be eligible for the study, you must

> have a diagnosis of CFS and must be under the care of a physician. You

> must also be willing and able to travel at your own expense to the NIH

> campus in Bethesda, land for a screening evaluation.

>

> The researchers are specifically trying to reach individuals who have

> already been tested for XMRV so they can compare the results of their

> new tests with the results obtained using other tests. People with

> positive or negative results will be eligible to participate. The NIH

> will share samples obtained in this study with other laboratories that

> have tests for XMRV. The goal is to determine which kind of test is

> best to detect XMRV. All participants will understand and give written

> consent before any samples are obtained, tested or shared.

> Participants have the right to withdraw from the study at any time.

>

> Individuals who meet criteria for this study will make an appointment

> to receive a physical examination, routine laboratory tests and

> research tests at the NIH Clinical Center in Bethesda, land. This

> study will not provide any medications. No new therapies, including

> antiretroviral therapies, will be tested in this study.

>

> If you are interested in participating, please contact Dr.

> Maldarelli, the study contact, at his office directly at (301)

> 435-8019 for more information.

>

> Participation in this study will not be coordinated through the

> SolveCFS BioBank and any questions about it should be directed to the

> NIH.

>

> With best wishes for health and progress in the new year,

>

> Gloria E.

> SolveCFS BioBank Coordinator

> The CFIDS Association of America

>

> Our Mission:

> For CFS to be widely understood, diagnosable, curable and preventable.

>

> Our Strategy:

> To stimulate research aimed at the early detection, objective

> diagnosis and effective treatment of CFS through expanded public,

> private and commercial investment.

>

> Our Core Values:

> To lead with integrity, innovation and purpose.

>

[Guest guest]

So are we going to see improvement from using anti virals?I personally don't

think so. they have been thrashed to death with very little or no benefit in cfs

patients.On the other side of the bigger picture, antibiotics almost alway's

seem to make a difference.

So finding XMRVABCD virus isn't going to get you anywhere...

> >

> >

> > From: Al Melillo <melillo3@>

> > Subject: [infections] NIH Seeks CFS-XMRV patients for Study

> > " I & I Group " <infections >

> > Date: Monday, January 31, 2011, 3:02 PM

> >

> >

> >  

> >

> >

> >

> > Several teams of researchers at the National Institutes of Health

> >

> > (NIH) have been studying XMRV and have been working to develop new and

> > more sensitive laboratory tests for it. One NIH team at the National

> > Cancer Institute, has recently received approval to obtain samples

> > directly from CFS patients. To be eligible for the study, you must

> > have a diagnosis of CFS and must be under the care of a physician. You

> > must also be willing and able to travel at your own expense to the NIH

> > campus in Bethesda, land for a screening evaluation.

> >

> > The researchers are specifically trying to reach individuals who have

> > already been tested for XMRV so they can compare the results of their

> > new tests with the results obtained using other tests. People with

> > positive or negative results will be eligible to participate. The NIH

> > will share samples obtained in this study with other laboratories that

> > have tests for XMRV. The goal is to determine which kind of test is

> > best to detect XMRV. All participants will understand and give written

> > consent before any samples are obtained, tested or shared.

> > Participants have the right to withdraw from the study at any time.

> >

> > Individuals who meet criteria for this study will make an appointment

> > to receive a physical examination, routine laboratory tests and

> > research tests at the NIH Clinical Center in Bethesda, land. This

> > study will not provide any medications. No new therapies, including

> > antiretroviral therapies, will be tested in this study.

> >

> > If you are interested in participating, please contact Dr.

> > Maldarelli, the study contact, at his office directly at (301)

> > 435-8019 for more information.

> >

> > Participation in this study will not be coordinated through the

> > SolveCFS BioBank and any questions about it should be directed to the

> > NIH.

> >

> > With best wishes for health and progress in the new year,

> >

> > Gloria E.

> > SolveCFS BioBank Coordinator

> > The CFIDS Association of America

> >

> > Our Mission:

> > For CFS to be widely understood, diagnosable, curable and preventable.

> >

> > Our Strategy:

> > To stimulate research aimed at the early detection, objective

> > diagnosis and effective treatment of CFS through expanded public,

> > private and commercial investment.

> >

> > Our Core Values:

> > To lead with integrity, innovation and purpose.

> >

>

[Guest guest]

Early reports I read are good, but time will tell, but don't rush to judgment

(as ny Cochran, OJ's lawyer would say ) .

> > >

> > >

> > > From: Al Melillo <melillo3@>

> > > Subject: [infections] NIH Seeks CFS-XMRV patients for Study

> > > " I & I Group " <infections >

> > > Date: Monday, January 31, 2011, 3:02 PM

> > >

> > >

> > >  

> > >

> > >

> > >

> > > Several teams of researchers at the National Institutes of Health

> > >

> > > (NIH) have been studying XMRV and have been working to develop new and

> > > more sensitive laboratory tests for it. One NIH team at the National

> > > Cancer Institute, has recently received approval to obtain samples

> > > directly from CFS patients. To be eligible for the study, you must

> > > have a diagnosis of CFS and must be under the care of a physician. You

> > > must also be willing and able to travel at your own expense to the NIH

> > > campus in Bethesda, land for a screening evaluation.

> > >

> > > The researchers are specifically trying to reach individuals who have

> > > already been tested for XMRV so they can compare the results of their

> > > new tests with the results obtained using other tests. People with

> > > positive or negative results will be eligible to participate. The NIH

> > > will share samples obtained in this study with other laboratories that

> > > have tests for XMRV. The goal is to determine which kind of test is

> > > best to detect XMRV. All participants will understand and give written

> > > consent before any samples are obtained, tested or shared.

> > > Participants have the right to withdraw from the study at any time.

> > >

> > > Individuals who meet criteria for this study will make an appointment

> > > to receive a physical examination, routine laboratory tests and

> > > research tests at the NIH Clinical Center in Bethesda, land. This

> > > study will not provide any medications. No new therapies, including

> > > antiretroviral therapies, will be tested in this study.

> > >

> > > If you are interested in participating, please contact Dr.

> > > Maldarelli, the study contact, at his office directly at (301)

> > > 435-8019 for more information.

> > >

> > > Participation in this study will not be coordinated through the

> > > SolveCFS BioBank and any questions about it should be directed to the

> > > NIH.

> > >

> > > With best wishes for health and progress in the new year,

> > >

> > > Gloria E.

> > > SolveCFS BioBank Coordinator

> > > The CFIDS Association of America

> > >

> > > Our Mission:

> > > For CFS to be widely understood, diagnosable, curable and preventable.

> > >

> > > Our Strategy:

> > > To stimulate research aimed at the early detection, objective

> > > diagnosis and effective treatment of CFS through expanded public,

> > > private and commercial investment.

> > >

> > > Our Core Values:

> > > To lead with integrity, innovation and purpose.

> > >

> >

>