Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 I just read the Legislative Budget Board Report the link is below: http://www.lbb.state.tx.us/Health_Services/State_Schools_Report1108.pdf It says " To be eligible for ICF/MR services or HCS, a person must have a determination of mental retardation or documentation from a physician of a related condition. The term " related condition " refers to a severe, chronic disability such as cerebral palsy, epilepsy or autism, that manifests before the person reaches age 22, is expected to continue indefinitely, and results in substantial functional limitations. Clients must meet a certain level of care criteria. For ICF/MR services, individuals must be in need of and able to benefit from active treatment provided in a 24-hour supervised setting. ICF/MR services include habilitation, medical services, skills training, as well as room and board. " You might contact Jenine Pinner at Texas Parent to Parent, I beleive I heard her discuss this issue once before....she might have some answers. > > I have a 17 year old son diagnosed with Autism when he was 3 year > olds. It's been a long hard road but we are surviving. I have tried > to do all of the right things by staying on top of information and > putting my son on any waiting lists that can be of service as he > transitions into young adulthood. Like any parent I just want the > best for my child. After being on the HCS waiting list for almost 8 > years, I was estactic when I was offered a slot in July. After months > of waiting, redtape, and the bureaucracy. I was told that services > would be denied services because of his IQ reassessment at 78%. The > requirement for Autism (related conditions) is 75% and below for the > HCS program. Now mind you my son is nonverbal, requires constant > personal care, and supervision. I am in the process of appealing. Can > anyone give me any help/advice on how to handle this process? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Is he on the CLASS waiting list too? Perhaps you can call the below number and tell them your son has been on the wrong waiting list all along but nobody ever told you back when you first placed your son on the HCS waiting list that he would not qualify for services based on his IQ and not his level of need. Contact your local rep. and state senator and describe what happened. If Senator Dan represents you I bet he'd be interested in knowing that your son is getting the shaft because of misinformation by the MHMR agency you dealt with. Community Living Assistance & Support Services: CLASS - Each one serves a different population: HCS, only serves those with IQ <70 or with autism IQ<75. CLASS, serves those with developmental disabilities, no IQ specification. MDCP, Medically Dependent Children Program; serves those with medical needs (i.e. dependent on medical equipment or medication). CBS, Community Based Alternatives & DADS Home & Family Support; is a wavier for adults with developmental disabilities, 21 and older. CReeceMake your life easier with all your friends, email, and favorite sites in one place. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 http://www.dads.state.tx.us/providers/community_options.pdf Access and Intake services HCS: Page 79 I wanted to also mention, do not forget to request for General Revenue Services (GR funds), even the individuals IQ level is high, if dx'd with autism there may be more services to assist. Page 75 or 77, General Revenue Services. These funds assist for ABA, respite,etc., see some of the information below. BUT - if an individual dx'd with the MR label over 21 years old, they will not qualify for some of the services like ABA therapy unless they have the Autism label, they will qualify. Mental Retardation Community Services (General Revenue) Eligibility Determination: An assessment or endorsement conducted in accordance with Texas Health and Safety Code, 593.005 and 25 TAC Chapter 415, Subchapter D to determine if an individual has mental retardation or is a member of the DADS mental retardation priority population. Service Coordination: Assistance in accessing medical, social, educational and other appropriate service and supports that will help an individual achieve a quality of life and community participation acceptable to the individual. Services are described in a Plan of Services and Supports that is based on a person-directed process. Service coordination includes reviewing, revising, implementing and monitoring the written plan of services and supports. Service Coordination also assists with linkage and assistance to secure services for crisis management and provision. Community Support: Provides services and supports through individualized activities consistent with the participant’s person directed plan, in a participant’s home and at locations such as libraries, stores or other community locations. Provides habilitation or support activities that provide, foster improvement of, or facilitate an individual’s ability to perform functional living skills and other activities of daily living. Employment Assistance: The participant is supported in locating paid employment in the community by assisting the participant to identify his or her employment preferences, his or her job skills, his or her requirements for work setting and work conditions, and prospective employers offering employment compatible with the participant’s identified preferences, skills and requirements. Supported Employment: Employment in an integrated setting with on-going individualized support services consistent with achieving outcomes identified in the participant’s person directed plan. Includes individualized services and supports including supervision and training essential to sustain paid work by a participant. Day Habilitation : Assistance with acquiring, retaining , or improving self help, socialization, adaptive skills necessary to live successfully in the community and participate in home and community life. It includes individualized activities consistent with achieving the outcomes identified in the participant’s person-directed plan and activities designed to reinforce therapeutic outcomes. Normally furnished in a group setting other than the individual’s residence for up to 6 hours a day, five days per week on a regularly scheduled basis. Includes personal assistance for participants who cannot manage their personal care needs during the day rehabilitation activity, assistance with medications and the performance of tasks delegated by a RN in accordance with state law. Community Options Rev. 12/11/2008 75 Vocational Training: Day training services and consistent with achieving the outcomes identified in the participant’s person-directed plan provided to an individual in an industrial enclave, a work crew, a sheltered workshop, or an affirmative industry to enable the individual to obtain employment. Nursing: Includes treatment and monitoring of health care procedures prescribed by physician/medical practitioner and/or required by standards of professional practice or state law to be performed by licensed nursing personnel. Behavioral Support: Provides specialized interventions that assist a participant to increase adaptive behaviors to replace or modify maladaptive behavior that prevent or interfere with the participant’s inclusion in home and family life or community life. This service includes assessment and analysis of assessment findings so that an appropriate behavior support plan may be designed; development of an individualized behavior support plan consistent with the outcomes identified in the participant’s person directed plan; training of and consultation with family members or other support providers and as appropriate, with the participant; monitoring and evaluation of the success of the behavioral support plan and modification of the behavior support plan. Specialized Therapies: Provides assessment and treatment by licensed or certified professionals including social work, occupational therapists, physical therapists, speech, and language pathologists, audiologists, and dietitians and included training and behavioral health services other than those described on Attachment VI A. Services-Adult Mental Health. The service includes consultation with an individual’s family members or other support providers. Community Options Rev. 12/11/2008 76 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 > > http://www.dads.state.tx.us/providers/community_options.pdf > > Access and Intake services I went ahead and placed this URL over to the Link file for future reference if anyone is reading this directly from the listserve. I placed it under Sites to Texas Resource Guide. Review this once in awhile as subject to change when update occurs. Hope this helps. Irma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 CReece, Thank you for sharing the information. I'll do just that. Yes, my son is on the CLASS list. But get this.....there is a little bit more to the story. Although my son qualified for the HCS program based on level of need(LON)/level of care(LOC). The IQ disqualified him. However, his level of need(LON)/level of care(LOC) will be the disqualifying factor from the CLASS program. Not the IQ. That is what parents are saying when they talk of getting to the top of the next list(normally CLASS) just to find out that they are also ineligible. There are a few surprises with the programs. Jackie Subject: Re: HCS WaitlistTo: Texas-Autism-Advocacy Date: Sunday, December 14, 2008, 5:08 PM Is he on the CLASS waiting list too? Perhaps you can call the below number and tell them your son has been on the wrong waiting list all along but nobody ever told you back when you first placed your son on the HCS waiting list that he would not qualify for services based on his IQ and not his level of need. Contact your local rep. and state senator and describe what happened. If Senator Dan represents you I bet he'd be interested in knowing that your son is getting the shaft because of misinformation by the MHMR agency you dealt with. Community Living Assistance & Support Services: CLASS - Each one serves a different population: HCS, only serves those with IQ <70 or with autism IQ<75. CLASS, serves those with developmental disabilities, no IQ specification. MDCP, Medically Dependent Children Program; serves those with medical needs (i.e. dependent on medical equipment or medication). CBS, Community Based Alternatives & DADS Home & Family Support; is a wavier for adults with developmental disabilities, 21 and older. CReece Make your life easier with all your friends, email, and favorite sites in one place. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Many could write to their House of Senate and Representatives here in Texas that this needs to change to make a difference with the Medicaid Waiver services/funds, that Waiver eligibility must be based on functional limits, not IQ. My son is severe, MR & AU and I have written and participated at Stakeholder committee meetings when proposals of services are being addressed when it comes to specialized services and thensome as I am focusing now on the alternative biomedical issues, it is a neverending to make sure to get some of the issues addressed as it is not a one size fits all for everyone. Have not really heard many share this when anyone attends the committee meetings that I have, in regards to the high IQ level. I understand it is impossible if parents or caregivers are not able to get away to attend as most of these meetings are set during morning or afternoon during the weekday. New York has passed this law, Texas could learn from them. This is an example of an old petition from a parent who shared this in regards to the IQ level. Autism Spectrum Disorder Waiver Petition to the House Of Senate and Representatives in Iowa. Do not know the outcome but if there is a need for when many individuals with their IQ level is high, still require some type of coaching with specialized services. Mental Retardation Waiver (MR Waiver) is available to people with an IQ of ... Medicare and Medicaid do not currently cover them, leaving the parents with ... http://www.petitiononline.com/ASDW/petition.html Irma > > > Subject: Re: HCS Waitlist > To: Texas-Autism-Advocacy > Date: Sunday, December 14, 2008, 5:08 PM > > > > > > > > Is he on the CLASS waiting list too? Perhaps you can call the below number and tell them your son has been on the wrong waiting list all along but nobody ever told you�back�when you first placed your son on the HCS waiting list that he would not qualify for services based on his IQ and not his level of need. Contact your local rep. and state senator and describe what happened. If Senator Dan represents you I bet he'd be interested in knowing that your son is getting the shaft because of misinformation by the MHMR agency you dealt with. > � > � > Community Living Assistance & Support Services:� CLASS - > � > > Each one serves a different population: > > HCS, only serves those with IQ <70 or with autism IQ<75. > CLASS, serves those with developmental disabilities, no IQ specification. > MDCP, Medically Dependent Children Program; serves those with medical needs (i.e. dependent on medical equipment or medication). > CBS, Community Based Alternatives & DADS Home & Family Support; is a wavier for adults with developmental disabilities, 21 and older. > � > > CReece > > > > > > > > > > Make your life easier with all your friends, email, and favorite sites in one place. Try it now. > Quote Link to comment Share on other sites More sharing options...
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