How we obtained a prescription for Prozac

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I went to my son's neonatologist because she sees my son on a monthly basis

because he takes the Synagsis shots. I felt like she was a good choice because

at each visit they do a developmental checklist to monitor my son's progress and

potential needs. They would also be able to provide an unbiased opinion as to

the protocol's efficacy. I showed her the protocol and we discussed her

reservations. She agreed to watch the video and read the supporting

documentation I had provided. I explained that I needed her help but if she did

not feel comfortable that I would understand. However, I WAS going to do it the

question was if she would help. After one week, I went back to her office and I

had a prescription for Prozac at the front desk. She and her entire office had

watched the video on the way to an out of town clinic. When I picked up the

video, the nurse told me that the neonatologist was very interested in the

protocol and wondered if it would be

beneficial for some of her more severely disabled populations.

By the way, the neonatologist was the first doctor I had asked for help. I asked

her because of her in-depth knowledge of down syndrome including its long-term

prognosis, her honestly in talking with me, and her willingness to think outside

the box.

Adulation is poison. - President Gordon B. Hinckley

>

> Subject: Re: *Re: [DownSyndromeInfoExchange] PROZAC more questions

> To: DownSyndromeInfoExchange

> Date: Tuesday, November 11, 2008, 9:51 PM

> I think that suicide is only one known worry. Any drug

> that is intended

> for one thing, and being suggested to use for something

> else needs to be

> looked at seriously. And the fact that this is not only

> something

> different, but in our kids, concerns me.

>

> All children react to things differently. And without a

> physician

> monitoring the child there is no correct regulation of

> dosage. Which is a

> huge issue for me.

>

> As far as your thoughts on our kids not being to be at a

> point where they

> are aware enough to understand taking their life, I

> don't know if I agree or

> not. I have known two who have tried to commit suicide.

> Both happened

> after losing a parent.

>

> Never not under supervision.... I can tell ya a small

> story here. I am a

> pain in the butt to everyone around me about just that

> subject. Always

> have my kids supervised. Not an option. We go on

> vacation to Florida. I

> am in a 2.5 foot deep wading pool with my son Branndon who

> was then about 2

> or so. Standing up the water is mid chest on him. I am

> about 3 feet from

> him. Watching him. I literally rubbed my eye to wipe

> off sweat, and then

> he was face down in the pool. That fast. I pulled him

> up, he was fine,

> altho ready to go in and spitting water. I was a basket

> case. Had it

> been the hubby out there, he would have NEVER been allowed

> to watch the kids

> again, I would never have believed the story had he told it

> to me. So we

> can only do our best, but we cannot be there every second.

> No one can.

>

> I don't know if it works, I hope so. I understand

> those using it being

> excited about what they see in their child but I just worry

> very much about

> someone reading all this, going to a doc who will give a

> prescription and

> never follow up and a child getting put on prozac without

> proper follow up.

> And then something bad happening to the child. You

> would have a parent

> wanting the best for their child. A doc who should be

> strung up (my

> personal belief for no follow up on a drug like that), and

> a child in

> trouble. That is my concern with the whole thing and why

> I wish there was

> good trials out there being done BEFORE it was being used

> with our kids.

>

>

> Jules

> Romero

>

> -- *Re: [DownSyndromeInfoExchange] PROZAC more

> questions

>

>

> Hi thanks for all the input on prozac. The big worry seems

> to be the

> possible link to sucide. I do however recognise that the

> implications of the

> drug on the developing child are for the most part

> unknown. Is this

> correct ???? Can we also say the improvements on CM

> protocol are relative

> ??? That all children come from different starting points

> and therefore will

> not all reach the same levels of development ???

>

> If the above is true ( and please correct me if I am wrong

> ) then I need to

> ask another question. The notion of taking ones life

> would require a

> certain level of awareness, definetly a certain high level

> of self

> awareness?? Ok here is where I am talking about Sam and Sam

> alone. Sam has

> vast potiential that much I am sure of but even on this

> protocol I cannot

> see that Sam would ever attaining that level of

> awareness.

> Of the very high functioning children and adults I know I

> have not seen that

> level of awareness. Perhaps its because I am not looking

> for it. Mabye or

> maybe its just not there . I dont know.

>

> I also know that by the very nature of Sams disability he

> is never not under

> supervision , medical , and physical ( as in someone

> watching over him) and

> generally any other kind. His school constantly picks up on

> things ,

> emtional , physical , medical as do I and as do his

> doctors. Sam since

> birth has been under a high level of supervision . That is

> really never

> likely to change.

>

> So looking at the above , do they meet the objections put

> forth to some

> degree??? We still have the unknown factors of the long

> term implications of

> taking the drug. Still children take this drug for a host

> of complaints

> besides depression as pointed out. So if there were

> significant risks

> would this drug be liscensed for use with children ????

> Does this answer

> to any degree the questions around taking prozac if you are

> not depressed

> ??? Prozac seems to address a number of needs ,neurogensis

> being just one

> perhaps ????

>

> I would like to think I am cutting to the nub of the

> issues but realise

> that I am probably just over simplifying everything. I am

> really just

> trying to get to the bottom this and decide if my way of

> thinking is

> completely off!!!!

>

>