Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Hi everyone, I have been lurking for a couple of months and learning a great deal from everyone ...this is my first post. We have a nearly 2yr old son, Jack, (birthday on Sunday) who has been diagnosed with autism and we have an appointment to see Dr G in a couple of weeks. We currently live in Singapore and are moving to New Zealand to live in 6 weeks. Jack is on the diet which has helped and undertaking speech and OT therapy but we have v.slow progress in teaching him despite therapists saying he is bright e.g. It took months to teach him how to wave and recently he has " lost " this skill again. It is very frustrating and I am hoping that is the answer. His medical history would suggest his immune system was overloaded as in the first 14 months he had Urine infection, ear infections, febrile seizure, Roseola, Hand Foot and Mouth, Giardia (nasty parasite) plus all the immunisations including HepB which is standard here and was given at the same time as his MMR. The onset of Jack's autistic symptoms were around 12 - 14 months we think but it was so gradual it is hard to pinpoint. At 16 months I started trying to find out what was wrong with our boy who was disappearing further from us everyday and losing what little verbalisations he had. At 19 months we got the diagnosis. Jack stopped regressing when we introduced the diet (thanks to Rob and in Singapore who introduced us to the protocol) and is a happy, loving, non verbal child who just does not seem able to understand what we what say the majority of the time, flaps his hands when excited, mouths objects constantly and has trouble initiating interaction, communicating etc. We are underway with our test work but still have some to do. Results so far have found that Jack is low in iron, magnesium, calcium and zinc (probably through not being able to absorb food with the parasite). In the CBC his Lymphocytes, Atypical lymph cell, E.S.R were high and haemoglobin, Polymorphs, Haematori were low (all other markers were in range). ANA, CMV IgGand EBV IgG tests were all negative. We still are waiting on other results. I know from the posts that low iron is normal with kids but has anyone had results similar to Jack in the CBC? Also we would like to know more information about having a neurospect done. How much does it cost? Contact details for nearest place to Tarzana that can do it and what will it tell us in terms of helping treat Jack? New Zealand does not have the facility to carry out a neurospect so we will need to do it in USA whilst we are there but it is not covered by medical insurance so would like to know more about it. One last question which is a long shot...is there anyone (parents or doctors) in New Zealand following the protocol? Thanks to everyone for spreading the word about , diet, therapy and hope for our children. It is due to Rob and that we are following the protocol so early. You are making a difference not only to your own children but to others. Thanks Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Hi Sue, It's great that you are starting so early with your child, it is probably the difference between great improvement and full recovery. and Stefanie have been extremely helpful with us also. They helped us to understand the protocol and to make the decision to get started. There have been a number of times when we probably would have given up on this long rough journey, with no support from anyone locally. But we have emailed or phoned and Stefanie and they have been supportive and helpful and have been the reason we didn't give up during some of the hard times. This group is very helpful for those of us who live in places where it is almost impossible to get any support or encouragement whilst on this protocol. It can be easy to give in during difficult patches (like 'die off' which we are going through in a big way right now!). Best of luck to all Cherie Shephard Australia. New member introduction > Hi everyone, > I have been lurking for a couple of months and learning a great deal from everyone ...this is my first post. > > We have a nearly 2yr old son, Jack, (birthday on Sunday) who has been diagnosed with autism and we have an appointment to see Dr G in a couple of weeks. We currently live in Singapore and are moving to New Zealand to live in 6 weeks. > > Jack is on the diet which has helped and undertaking speech and OT therapy but we have v.slow progress in teaching him despite therapists saying he is bright e.g. It took months to teach him how to wave and recently he has " lost " this skill again. It is very frustrating and I am hoping that is the answer. His medical history would suggest his immune system was overloaded as in the first 14 months he had Urine infection, ear infections, febrile seizure, Roseola, Hand Foot and Mouth, Giardia (nasty parasite) plus all the immunisations including HepB which is standard here and was given at the same time as his MMR. The onset of Jack's autistic symptoms were around 12 - 14 months we think but it was so gradual it is hard to pinpoint. At 16 months I started trying to find out what was wrong with our boy who was disappearing further from us everyday and losing what little verbalisations he had. At 19 months we got the diagnosis. > > Jack stopped regressing when we introduced the diet (thanks to Rob and in Singapore who introduced us to the protocol) and is a happy, loving, non verbal child who just does not seem able to understand what we what say the majority of the time, flaps his hands when excited, mouths objects constantly and has trouble initiating interaction, communicating etc. > > We are underway with our test work but still have some to do. Results so far have found that Jack is low in iron, magnesium, calcium and zinc (probably through not being able to absorb food with the parasite). In the CBC his Lymphocytes, Atypical lymph cell, E.S.R were high and haemoglobin, Polymorphs, Haematori were low (all other markers were in range). ANA, CMV IgGand EBV IgG tests were all negative. We still are waiting on other results. > > I know from the posts that low iron is normal with kids but has anyone had results similar to Jack in the CBC? > > Also we would like to know more information about having a neurospect done. How much does it cost? Contact details for nearest place to Tarzana that can do it and what will it tell us in terms of helping treat Jack? New Zealand does not have the facility to carry out a neurospect so we will need to do it in USA whilst we are there but it is not covered by medical insurance so would like to know more about it. > > One last question which is a long shot...is there anyone (parents or doctors) in New Zealand following the protocol? > > Thanks to everyone for spreading the word about , diet, therapy and hope for our children. It is due to Rob and that we are following the protocol so early. You are making a difference not only to your own children but to others. > > Thanks Sue > > > > Quote Link to comment Share on other sites More sharing options...
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