Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hey All--My name is Amie and I am a mom to 2 beautiful babies. My oldest, Karson(3 yrs old) has PDD. I have had him in ST and OT since he was 17 months old and has just recently started school--an ESE Pre- K program at the nearby elementary school. He is enjoying the program. I look forward to learning more. As w/ any child w/ special needs, everyday is a learning experience:). Amie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Hi Jane: Welcome to our wonderful group. You have come to the right place, that's for sure. I have had RA for 6 years now, and I am not crippled. My Rheumy started me on RA meds. right away, and treated it aggressively. My RA meds. are working wonderfully, and my flares are shorter in duration, and longer in between. I have my blood tested every month as she monitors me very carefully. I moved from Cape Cod to Florida because I could not tolerate the N.E. weather anymore. I was almost in a wheel chair six years ago. I have been fine living in Flordida. This move has worked so good for me. Hoping you feel better each day. Hugs, Barbara > > Hi everyone. My name is Jane and I just received a diagnosis of RA. I am one of the 20% who test negative, yet have the disease. This is very hard to accept. My question is does everyone who has this end up crippled? Is it only a matter of time? Help me out. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Jane, No, everyone who has RA does not end up crippled. There are lots of medications for the disease that can prevent that. The key is to get a good rheumatologist who will treat it aggressively from the very beginning, because joint damage is irreversible. Methotrexate may be the med that you'll be started on; it has a good track record. It usually takes a while to get the right cocktail of drugs that will relieve the pain and inflammation. Blood work will be done often to make sure there are no adverse side effects; if they are, you can be switched to something else. I've had RA for six years now, and have absolutely not joint damage. I had an excellent rheumatologist from the start, who took great care of me. If you don't have a rheumy, get one. If he/she doesn't treat your RA aggressively, find another one who will. Be the squeaky wheel that gets the grease. Good luck, and let us know how it goes. Do some research on RA and medications available for it. , our wonderful moderator, keeps us well informed by posting articles about these autoimmune diseases. Ask any questions you may have. You've found a great group. Sue On Apr 9, 2009, at 9:12 AM, evansnot wrote: > Hi everyone. My name is Jane and I just received a diagnosis of > RA. I am one of the 20% who test negative, yet have the disease. > This is very hard to accept. My question is does everyone who has > this end up crippled? Is it only a matter of time? Help me out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Hi Jane, Welcome to the group. I'm very sorry for your dx of RA. I know its very hard for you right now to accept this disease. I am glad you joined the group, you will learn so much about this dreadful disease. We all have our own opinions, and it so great to be able to share. I believe getting on meds to help the progression early, can help a person. I am on humira and methotrexate right now, and I do think it helps me a lot. I am getting worse, but without the meds, I can't imagine the shape I would be in. We all our scared what can happen in the future. Just talk to your rheumy, and find out what is best for you. Just do the best you can, and know your limits. Were all different, and that is why this group is so amazing. Just know, were all here for you, if you need a friend. Take care, Tawny > > Hi everyone. My name is Jane and I just received a diagnosis of RA. I am one of the 20% who test negative, yet have the disease. This is very hard to accept. My question is does everyone who has this end up crippled? Is it only a matter of time? Help me out. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 It came to me literally one night also without any previous symptoms at all. I am also one of the 20% just like you. I took Methotrexate by intramuscular injection for 6 months but the pain never went away in my fingers and wrists. Now I am off Methotrexate and using Minocycline 2x100 MWF and NSAID and sometimes Prednisone to get off the flare but so far Minocycline is helping more than Methotrexate did From: McNally <McNacks@...> Subject: Re: [ ] A newbie Date: Thursday, April 9, 2009, 9:24 AM Hi Jane, I was diagnosed 10 years ago at the age of 43. I tested negative also and was bed bound and unable to do absolutely anything when I finally got into my rheumy office after 2 months, mine literally came on overnight, literally over one night. Shortly after I started on methotrexate I was practically back to normal, I don't think you would even know that I have it. So have faith and get to a rheumy asap, if you don't like the first one try another. I ocassionally have a bad day and last summer I was hospitalized for a week for a toe flare but that is really not the norm for me. Good luck, in PA [ ] A newbie Hi everyone. My name is Jane and I just received a diagnosis of RA. I am one of the 20% who test negative, yet have the disease. This is very hard to accept. My question is does everyone who has this end up crippled? Is it only a matter of time? Help me out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Hi Arshad - I am so glad to hear you are getting relief with the Minocycline. I have seriously considered trying this as nothing else is working so far and I don't have insurance. Anyway, what does the MWF stand for?.....Doreen It came to me literally one night also without any previous symptoms at all. I am also one of the 20% just like you. I took Methotrexate by intramuscular injection for 6 months but the pain never went away in my fingers and wrists. Now I am off Methotrexate and using Minocycline 2x100 MWF and NSAID and sometimes Prednisone to get off the flare but so far Minocycline is helping more than Methotrexate did Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Doreen, MWF = Monday-Wednesday-Friday Not an MD On Wed, Apr 15, 2009 at 6:41 AM, Mimi <mimi212@...> wrote: > > > Hi Arshad - I am so glad to hear you are getting relief with the > Minocycline. I have seriously considered trying this as nothing else is > working so far and I don't have insurance. Anyway, what does the MWF stand > for?.....Doreen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 hi the road back foundation website will give you more info on this treatment and can also help you find a doc in your area who is familiar with it. monique Hi Arshad - I am so glad to hear you are getting relief with the Minocycline. I have seriously considered trying this as nothing else is working so far and I don't have insurance. Anyway, what does the MWF stand for?.....Doreen It came to me literally one night also without any previous symptoms at all. I am also one of the 20% just like you. I took Methotrexate by intramuscular injection for 6 months but the pain never went away in my fingers and wrists. Now I am off Methotrexate and using Minocycline 2x100 MWF and NSAID and sometimes Prednisone to get off the flare but so far Minocycline is helping more than Methotrexate did Quote Link to comment Share on other sites More sharing options...
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