sensory

September 15, 2002

My son is (now) 7 yrs old and has been a patient of Dr G's

for almost 3 yrs.

He's very sensory, esp this time of year when the pollen and mold are

up.

We see a sensory therapist once a week and an allergist 2-3 x a year.

We do a variety of desensitation techniques to calm his senses.

Dr G isn't very thrilled over this - feels as the brain heals the body

will too.

Yes, while this is true, it doesn't hurt to help things along.

The sensory techniques are working, slowly.

Now, I read an item in the GBS newsletter that I haven't had

time to explore. I was going to pass the item to LRAPTOR and see

if she could hunt it down ) ) )

In the article, a researcher looking into the causes of GBS mentions

that GBS sufferers who have sensory issues have high titers

to CMV. CMV and/or EB are known to cause GBS.

Both my husband and son have high titers to CMV.

So, my belief is, until we can get the CMV either under control

or erradicated, sensory issues will continue.

doris

land

Message: 13

Date: Fri, 13 Sep 2002 11:58:40 EDT

From: jamhas2@...

Subject: Sensory Integration

Hi Group,

My seven year old son is very hyper, oppositional and demanding. He has

been

seeing Dr.G for a year now and, quite frankly, he seems to be getting

worse.

He is struggling to do simple homework and is literally bouncing off the

walls.

I was wondering if anyone of you follow the Ayers sensory integration

program

and if so, with what results. Also, does Dr. G acknowledge that this

kind of

treatment is beneficial to our kids?

Thanks, Julee

September 4, 2007

usually you can crosspost with the author's permission

And I always give permission :-)

Try Kids Concoctions.

My son loves these books.

For his Birthday Backyard Beach Bash on Saturday,

we're going to have a crafts table set up for Splongees

and Ocean in a Bottle ...

(yep, is going to be the big 1-2 !!)

doris

Posted by: " Jill Boyer " sjillboyer@...

<mailto:sjillboyer@...?Subject=%20Re%3A%20Sensory%20Recipes%20%2E%2E%2E>

sjillboyer <sjillboyer>

Mon Sep 3, 2007 6:33 am (PST)

Wow! There are some great messy ideas there. Thank you

so much for posting that link. I know we are not

allowed to cross posts to other places but I did email

that sensory recipe link to another autism group. My

kids spent an hour last night playing in the soapy

water in our kitchen sink last night and they managed

not to get water all of the place. Now I am off to

print those recipes.

All the best,

Jill

--- Doris and Steve <sjsmith@...

<mailto:sjsmith%40cablespeed.com>>

wrote:

> http://www.epinions.com/content_4899053700

<http://www.epinions.com/content_4899053700>

>

> 205 Sensory Recipes For Daycares, Autism Classrooms,

> Preschools ~~

> Nov 17 '06

November 8, 2010

Bill,

This is indeed very interesting! I notice when my son is sleeping he wraps

himself in his sheets and duvet so tightly, in a similar way an OT used to

do the Burrito trick when he was younger and hyper. I don`t often see this

behaviour any more, except when he is `snuggled` in bed! I would go insane

being that trapped, but it obviously feels good to him!

I recently saw the Temple Grandin movie that was on HBO. It reminds me of

the ``squeeze`` machine she made to help calm herself!!!

Lori

_____

From: [mailto: ] On Behalf Of Bill

klimas

Sent: November-08-10 8:33 AM

Subject: Sensory

Guys

This was sent to me and I find it very interesting. I have posted here with

my

response below. Anyone else have any thoughts?

Bill,

Hope you are your son are doing well.

I have some thoughts/question that you may have some perspective

I stumbled upon this when researching sensory/pressure seeking behavior,

which

we have seen quite a bit recently.

There is a rare muscular disorder Inclusion Body myositis that is supposed

to be

caused by some sort of auto-immunity

http://resources.metapress.com/pdf-preview.axd?code=w2371735613n8512

<http://resources.metapress.com/pdf-preview.axd?code=w2371735613n8512 & size=l

argest> & size=largest

http://journals.lww.com/aidsonline/fulltext/2003/05230/inclusion_body_myosit

is___another_possible.24.aspx

Mito dysfunction is also seen in this disease - quite like type

disorders.

There maybe no connection to this to except that they are immune

pressure

seeking type behavior. Is there an explanation of what is going on at the

brian

or muscular level - why the pressure is calming?

Thanks,

Kay

Yes that is very interesting and I agree that this is probably yet another

aspect of and is probably a piece of the puzzle. When Connor is off

base I

can attribute soo many of the behavioral issues to sensory problems that it

is

obvious that what is going on in his brain is occurring throughout his

entire

nervious system. I have always used one technique that we call burrito

treatment. I keep a very heavy blanket/ dense and thick / and I will get him

on

the floor and roll him up into a burrito as a game. It is amazingly calming

and

I get him back in a few minutes. What ever is going on, on this cellular

level

must be viral by the very description. The new assays they are using casing

the

genome around will sort it out eventually.

In regard to the list I do not know who monitors it but I suspect it is

Dr

G's wife . If you are a patient of his you can call the office, if not, post

them to me and I will put them up.

Bill

November 8, 2010

This also reminds me of what Dr. Harvey Karp describes as a " reflex " :

swaddle baby real tight, place baby along forearms and cradle head in your

hands, tip baby to one side and then gently rock the head. I used this

technique to calm my oldest who was an extremely fussy baby. I found it

very difficult to 'hit' that reflex at first, but once I figured it out this

procedure saved me from a breakdown!

_____

From: [mailto: ] On Behalf Of Lori

Sent: November 8, 2010 12:14 PM

Subject: RE: Sensory

Bill,

This is indeed very interesting! I notice when my son is sleeping he wraps

himself in his sheets and duvet so tightly, in a similar way an OT used to

do the Burrito trick when he was younger and hyper. I don`t often see this

behaviour any more, except when he is `snuggled` in bed! I would go insane

being that trapped, but it obviously feels good to him!

I recently saw the Temple Grandin movie that was on HBO. It reminds me of

the ``squeeze`` machine she made to help calm herself!!!

Lori

_____

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Bill

klimas

Sent: November-08-10 8:33 AM

<mailto:%40>

Subject: Sensory

Guys

This was sent to me and I find it very interesting. I have posted here with

my

response below. Anyone else have any thoughts?

Bill,

Hope you are your son are doing well.

I have some thoughts/question that you may have some perspective

I stumbled upon this when researching sensory/pressure seeking behavior,

which

we have seen quite a bit recently.

There is a rare muscular disorder Inclusion Body myositis that is supposed

to be

caused by some sort of auto-immunity

http://resources.metapress.com/pdf-preview.axd?code=w2371735613n8512

<http://resources.metapress.com/pdf-preview.axd?code=w2371735613n8512

<http://resources.metapress.com/pdf-preview.axd?code=w2371735613n8512 & size=l

> & size=l

argest> & size=largest

http://journals.lww.com/aidsonline/fulltext/2003/05230/inclusion_body_myosit

is___another_possible.24.aspx

Mito dysfunction is also seen in this disease - quite like type

disorders.

There maybe no connection to this to except that they are immune

pressure

seeking type behavior. Is there an explanation of what is going on at the

brian

or muscular level - why the pressure is calming?

Thanks,

Kay

Yes that is very interesting and I agree that this is probably yet another

aspect of and is probably a piece of the puzzle. When Connor is off

base I

can attribute soo many of the behavioral issues to sensory problems that it

is

obvious that what is going on in his brain is occurring throughout his

entire

nervious system. I have always used one technique that we call burrito

treatment. I keep a very heavy blanket/ dense and thick / and I will get him

on

the floor and roll him up into a burrito as a game. It is amazingly calming

and

I get him back in a few minutes. What ever is going on, on this cellular

level

must be viral by the very description. The new assays they are using casing

the

genome around will sort it out eventually.

In regard to the list I do not know who monitors it but I suspect it is

Dr

G's wife . If you are a patient of his you can call the office, if not, post

them to me and I will put them up.

Bill

November 12, 2010

Bill, Lauri,

Thanks for the response. Please post to as I think my posts don't make it

to there.

Do you remember anytime that behavior (pressure seeking) went up or down - like

when you started some medication or things like that.

I did a little bit more research on this & all I could find is the symptoms (the

behavior) is very much like that of a stroke victim. Depending on where the

stroke impacted, folks usually have a lot of sensory issues & overtime is

rectified by Occupational therapy. Adults usually are able to describe their

issues whereas kids (esp less verbal) are probably not able to do that easily.

So, now the question is whether hypofusion as hypothesized in is a type of

a mild stroke & does increased blood flow after treatment increase some of the

sensory behavior as some of the nerves/muscles are coming " alive " .

Interested if anyone has seen anything on this or has a perspective.

Thanks,

Kay

________________________________

From: Bill klimas <klimas_bill@...>

Sent: Mon, November 8, 2010 5:32:51 AM

Subject: Sensory

Guys

This was sent to me and I find it very interesting. I have posted here with my

response below. Anyone else have any thoughts?

Bill,

Hope you are your son are doing well.

I have some thoughts/question that you may have some perspective

I stumbled upon this when researching sensory/pressure seeking behavior, which

we have seen quite a bit recently.

There is a rare muscular disorder Inclusion Body myositis that is supposed to be

caused by some sort of auto-immunity

http://resources.metapress.com/pdf-preview.axd?code=w2371735613n8512 & size=larges\

t

http://journals.lww.com/aidsonline/fulltext/2003/05230/inclusion_body_myositis__\

_another_possible.24.aspx

Mito dysfunction is also seen in this disease - quite like type disorders.

There maybe no connection to this to except that they are immune related

but I am curious as to the theories on sensory dysfunction in kids esp pressure

seeking type behavior. Is there an explanation of what is going on at the brian

or muscular level - why the pressure is calming?

Thanks,

Kay

Yes that is very interesting and I agree that this is probably yet another

aspect of and is probably a piece of the puzzle. When Connor is off base I

can attribute soo many of the behavioral issues to sensory problems that it is

obvious that what is going on in his brain is occurring throughout his entire

nervious system. I have always used one technique that we call burrito

treatment. I keep a very heavy blanket/ dense and thick / and I will get him on

the floor and roll him up into a burrito as a game. It is amazingly calming and

I get him back in a few minutes. What ever is going on, on this cellular level

must be viral by the very description. The new assays they are using casing the

genome around will sort it out eventually.

In regard to the list I do not know who monitors it but I suspect it is Dr

G's wife . If you are a patient of his you can call the office, if not, post

them to me and I will put them up.

Bill

November 12, 2010

FYI

----- Forwarded Message ----

From: Bill klimas <klimas_bill@...>

Kay <kp_mlist@...>

Sent: Fri, November 12, 2010 5:15:56 PM

Subject: Re: Sensory

Kay

Yes it does have to do with blood flow but think inflammation and look at the

blood work that is being done. I see it when he is ill or more likely getting

over an illness (Recently strep). This is very much like a small child looking

for comfort (A good snuggle) only X 10. I also see it when we have die-off but

when it does happen he is on the rebound. When he is off I do not see it. I get

defiance and mood swings. On the way back he will OCD, have sensory issues, and

with treatment I see them lessening. If you do not see any variance

(improvement) I would suspect an ongoing diet issue - soy - corn - that has him

at an agitated point that keeps being re-introduced but not over the top.

They are all different, just my thoughts!

Bill

________________________________

From: Kay <kp_mlist@...>

; klimas_bill@...; lbharris@...

Sent: Fri, November 12, 2010 4:42:55 PM