Kids Less Disabled at Conference

[Guest guest]

Hello All,

I was at the convention last time. At the time my son's diagnosis was changed

from Pachygyria to PMG. One of my first thoughts was " Do I have to leave the

convention now that my son doesn't have Lissencephaly? " I was so upset at the

idea of leaving my new found friends. Well after I came down from seeing Dr.

Dobyns my friends were anxious to hear what he'd said. And after I told them,

their attitude to me and my child didn't change a bit. I was told by those with

little one's that my child gave them hope that their child would one day run

too!

I did feel strange having one of the few mobil children at the convention but it

wasn't because of others, it was because of me. So don't feel you aren't

welcome at the convention I didn't hear one unwelcome word from

anyone....actually I heard many people welcoming me. The only thing was a door

man who asked if my son had the same stuff wrong as the other children, and how

it blew him away to see so many children in wheelchairs. Actually it blew me

away to see so many children in wheelchairs. I don't know where I'm going with

this....sorry but sleep deprivation is setting in. Hope to see you all at the

convention.

Kim & Teddy Raub