Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 Hi I am brand new to this board and saw in another post that you have been to Pfeiffer treatment center. I am going to their outreach program in California next week. I am very excited. My sons behavior is so much better with the GFCF diet and just recently started treating for Candida. Still would like to see more inprovement. My son is 6 and in 1st grade genreal ed, after being home hospitaled for Kindergarten for his severe behaviors. What kind of Benefits have you seen from the Pfeiffer center. I would love to hear your opinions. Thanks so much Sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 My son emmett has been battling eczema since he was four months old. He also has a peanut and tree nut allergy! I wonder how many autistic children have food allergies and/or eczema? - In AutismBehaviorProblems , " mrmilik " wrote: > > Hi Sherri, > > To make a very long story really short, here it goes: > > My son had issues right from birth. He cried for 12-24 hours a day and > would vomit every time he drank. Had major problems with feeding etc. > I went to 10 specialists in the first 17 months of his life and went > through countless pediatricians. None of them could figure out what was > wrong with my son. He had severe, stinky diarrhea, no productive play, > would spin things all day, would stare at the ceiling fan for hours, he > had severe eczema, etc. > > At 17 months, I walked into my local health food store and broke down > crying. The nutritionist, who I admired and trusted very much told me > to take him off all Gluten and dairy. She had told me this before, but > frankly I thought she was way off. On the 4th day off gluten my son > stopped vomiting. Off dairy, his crying went from all day to about 3 > hours. > > We began Early Intervention around the same time. He was tested before > he began the diet. By the time we had our first few therapies, the > therapists couldn't believe the difference in him. I was convinced it > was all allergies at the time. No one at any point had mentioned autism > to me. > > He entered the school system at 3 for early childhood. We also did > private speech, OT and feeding therapy for him in addition to that. > > A friend of mine that I met at the school told me about Pfieffer. She > told me how well her son was doing. The program made sense to me so I > made an apt. > > Our first apt. we spent 4 hours with the nurse and doctor. It was the > most comprehensive history anyone had ever done on my child. We did > several tests which took about 6-8 weeks to get back. > > The doctor sent us home with some MTP promoter (zinc and B vitamins), > cod liver oil, probiotics etc. > > Once the tests came back I found that he was extremely low in zinc, had > very high copper levels, high histamine levels, candida and > hypoglycemia. Basically, it confirmed that he had autism in a medical > way. > > After about 2 weeks I started to see improvement in his skin and > behavior. Diarrhea was still there though. A month later we started > Methyl B 12 shots. 6 hours later he said his first question ever! I was > filling out another doctor form for him to see an allergist and he > said, " Mommy, are you done yet? " Not only was that his first > question, but the longest sentence he had ever said. > > We took him to see Dr. Mercola for P/N allergy testing and found out he > was basically allergic to everything. Again, this confirmed the leaky > gut issues he was having. His immune system was shot. > > I removed all the things he was highly positive for like Soy, Corn etc. > and rotated the other items. > > That was when he began to have normal stool for the first time in his > life. By this time he was 4. > > His speech is still a bit off. He gets speech therapy at school and > private as well. He can talk though! And nonstop at that. His > expressive language is incredible now. He just said to me > today, " mommy, you ROCK " I started laughing and asked him why he > thought I rocked and he said, " Because you are a kind of like a power > ranger warrior, you are making me feel better " . I kid you not! > Needless to say, I got my cry in for the day today as well. > > He has worked so hard to be where he is right now and is still working > hard. We are doing Vision therapy as well now. We found out in the > spring that he had visual processing issues and we are addressing that > now. > > It is very much like peeling the layers of an onion. We still have a > ways to go but I have no doubt in my mind that my son will be a very > productive adult who will get married some day and have a great job. > He is such a smart kid. > > He is at the top in his class academically, but has major attending and > focus problems mostly due to visual processing problems. Something we > are working on correcting. > > I don't think anyone would ever guess my son has autism at this point. > A speech issue? Yes. ADHD? Yes, but autism? NO. > > I attribute the majority of that to Pfieffer. > > I do think we are at a point that we will need to switch doctors > though. I think we have taken Pfieffer as far as we can for my son and > we will need to get a DAN doctor to help us with the rest of it. My > main issues apart from the focus and attending is his immune system > which is still not where it should be. He still has terrible allergies > and gets hives etc quite often. I feel like we still have not found > out that next inner layer and I'm thinking of chelation or Biofilms to > take care of that. When my son gets sick he is really sick and it > happens often. I am trying to figure out why that is so I can fix it. > > As for behaviors, most of the time he acts like a normal 5 year old. > He is a bit whiner than I would like, but the days of major meltdowns, > biting, kicking and tearing off drywall are over. > > I hope that helps. I tried to keep it as short as possible. > > Good luck at your apt. Put your blinders on and go with this full > force. It is not a half way kind of deal. Just like the GF/CF. You > either commit to it or don't bother. It is a lot of work. You will > have many bad days at first until you figure it all out but the payoff > is amazing. > > Remember that each kid is different and what worked for my son may not > work for yours. The hard part is finding out what works for your child. > I believe that biomed can help all these kids. Some respond to some > treatments, others to a totally different treatment but they do > respond. > > . > > > > > > > > > > > > > > Hi I am brand new to this board and saw in another post that > you > > have been to Pfeiffer treatment center. I am going to their outreach > > program in California next week. I am very excited. My sons > behavior > > is so much better with the GFCF diet and just recently started > treating > > for Candida. Still would like to see more inprovement. My son is 6 > > and in 1st grade genreal ed, after being home hospitaled for > > Kindergarten for his severe behaviors. What kind of Benefits have > you > > seen from the Pfeiffer center. I would love to hear your opinions. > > Thanks so much > > Sherri > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 A huge amount of the kids have allergies and weak immune systems. My guess is that he has several other allergies as well. I never thought my son had environmental allergies because he wasn't the stuffy head, watery eyes kind of kid. I came to find out that he is highly allergic to trees, grass, weeds, mold etc. It's crazy. Just a tidbit for you. If your son is allergic to peanuts,a legume, I can bet you he also has issues with other beans and soy. You might want to try a rotation diet to see if he is reacting to them. We saw major changes in my son after removing soy which I could have sworn he didn't have an issue with. The strangest allergy my son has is to clover. He actually bit me 3 times during the testing. It was so strange cause the only time he would bite was in the spring or summer. I give him allergy shots in the spring for his outside allergens and we have had no problem with it since. He also used to get really pale and that is no longer. There is a really good book that I recommend by Dr.Bock. http://www.amazon.com/Healing-New-Childhood-Epidemics- Groundbreaking/dp/0345494504?ie=UTF8 & s=books & qid=1193278756 & sr=1-1 If you have not read it, you won't be able to put it down. > > > > > > Hi I am brand new to this board and saw in another post that > > you > > > have been to Pfeiffer treatment center. I am going to their outreach > > > program in California next week. I am very excited. My sons > > behavior > > > is so much better with the GFCF diet and just recently started > > treating > > > for Candida. Still would like to see more inprovement. My son is 6 > > > and in 1st grade genreal ed, after being home hospitaled for > > > Kindergarten for his severe behaviors. What kind of Benefits have > > you > > > seen from the Pfeiffer center. I would love to hear your opinions. > > > Thanks so much > > > Sherri > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Neither of my ASD kids has "eczema" but my daughter did have psorias (sp) on her arm which cleared up when we went GFCF. Both had "chicken bumps" which also cleared up substantially. Both have IgG to casein and gluten. My son (the older one) also has IgG reactions to soy, peanuts, eggs, radishes, garlic, and tomatoes.Eileen To: AutismBehaviorProblems From: racmac0204@...Date: Thu, 16 Oct 2008 03:29:22 +0000Subject: Re: -Pfeiffer advice _My son emmett has been battling eczema since he was four months old. He also has a peanut and tree nut allergy! I wonder how many autistic children have food allergies and/or eczema?_,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hi ,have you tried all cotton clothes and bedding,towels? I know there has been some types of reactive eczemza sensitive from materials. Most materials,threads are manufactured from corn,coal and their by products. Alot of products and medicines,even tylenol is a coal,petroleum derivative. Have you found anything that helps give your son relief? My son had anaphalytic shock once. They thought it was tree nuts. He was tested for many allergies. He gets very itchy throat from sunflower seeds and hives and sneezes from all kinds of things. He had many tests yet they could not isolate that paticular bad reaction. Now its like roulette style eating. I have gone over that day agin and agin. He was on his 3rd bite of a peanut butter and grape jelly sandwich. His skin started showing hives and then morphing into strange swellings and crinkles. I wish they could figure it out. I am always on guard when he eats anything. They ruled out peanut butter as a legume. I wonder if it was sunflower traces in the peanut butter. Not a tree nut but in lots of things. My son has lots of allergies. Is sunflower seeds on your sons list? Best wishes, Tishanne - In AutismBehaviorProblems , " rachel mccashland " wrote: > > My son emmett has been battling eczema since he was four months old. > He also has a peanut and tree nut allergy! I wonder how many autistic > children have food allergies and/or eczema? > > - In AutismBehaviorProblems , " mrmilik " <qtmsoup@> > wrote: > > > > Hi Sherri, > > > > To make a very long story really short, here it goes: > > > > My son had issues right from birth. He cried for 12-24 hours a day and > > would vomit every time he drank. Had major problems with feeding etc. > > I went to 10 specialists in the first 17 months of his life and went > > through countless pediatricians. None of them could figure out what was > > wrong with my son. He had severe, stinky diarrhea, no productive play, > > would spin things all day, would stare at the ceiling fan for hours, he > > had severe eczema, etc. > > > > At 17 months, I walked into my local health food store and broke down > > crying. The nutritionist, who I admired and trusted very much told me > > to take him off all Gluten and dairy. She had told me this before, but > > frankly I thought she was way off. On the 4th day off gluten my son > > stopped vomiting. Off dairy, his crying went from all day to about 3 > > hours. > > > > We began Early Intervention around the same time. He was tested before > > he began the diet. By the time we had our first few therapies, the > > therapists couldn't believe the difference in him. I was convinced it > > was all allergies at the time. No one at any point had mentioned autism > > to me. > > > > He entered the school system at 3 for early childhood. We also did > > private speech, OT and feeding therapy for him in addition to that. > > > > A friend of mine that I met at the school told me about Pfieffer. She > > told me how well her son was doing. The program made sense to me so I > > made an apt. > > > > Our first apt. we spent 4 hours with the nurse and doctor. It was the > > most comprehensive history anyone had ever done on my child. We did > > several tests which took about 6-8 weeks to get back. > > > > The doctor sent us home with some MTP promoter (zinc and B vitamins), > > cod liver oil, probiotics etc. > > > > Once the tests came back I found that he was extremely low in zinc, had > > very high copper levels, high histamine levels, candida and > > hypoglycemia. Basically, it confirmed that he had autism in a medical > > way. > > > > After about 2 weeks I started to see improvement in his skin and > > behavior. Diarrhea was still there though. A month later we started > > Methyl B 12 shots. 6 hours later he said his first question ever! I was > > filling out another doctor form for him to see an allergist and he > > said, " Mommy, are you done yet? " Not only was that his first > > question, but the longest sentence he had ever said. > > > > We took him to see Dr. Mercola for P/N allergy testing and found out he > > was basically allergic to everything. Again, this confirmed the leaky > > gut issues he was having. His immune system was shot. > > > > I removed all the things he was highly positive for like Soy, Corn etc. > > and rotated the other items. > > > > That was when he began to have normal stool for the first time in his > > life. By this time he was 4. > > > > His speech is still a bit off. He gets speech therapy at school and > > private as well. He can talk though! And nonstop at that. His > > expressive language is incredible now. He just said to me > > today, " mommy, you ROCK " I started laughing and asked him why he > > thought I rocked and he said, " Because you are a kind of like a power > > ranger warrior, you are making me feel better " . I kid you not! > > Needless to say, I got my cry in for the day today as well. > > > > He has worked so hard to be where he is right now and is still working > > hard. We are doing Vision therapy as well now. We found out in the > > spring that he had visual processing issues and we are addressing that > > now. > > > > It is very much like peeling the layers of an onion. We still have a > > ways to go but I have no doubt in my mind that my son will be a very > > productive adult who will get married some day and have a great job. > > He is such a smart kid. > > > > He is at the top in his class academically, but has major attending and > > focus problems mostly due to visual processing problems. Something we > > are working on correcting. > > > > I don't think anyone would ever guess my son has autism at this point. > > A speech issue? Yes. ADHD? Yes, but autism? NO. > > > > I attribute the majority of that to Pfieffer. > > > > I do think we are at a point that we will need to switch doctors > > though. I think we have taken Pfieffer as far as we can for my son and > > we will need to get a DAN doctor to help us with the rest of it. My > > main issues apart from the focus and attending is his immune system > > which is still not where it should be. He still has terrible allergies > > and gets hives etc quite often. I feel like we still have not found > > out that next inner layer and I'm thinking of chelation or Biofilms to > > take care of that. When my son gets sick he is really sick and it > > happens often. I am trying to figure out why that is so I can fix it. > > > > As for behaviors, most of the time he acts like a normal 5 year old. > > He is a bit whiner than I would like, but the days of major meltdowns, > > biting, kicking and tearing off drywall are over. > > > > I hope that helps. I tried to keep it as short as possible. > > > > Good luck at your apt. Put your blinders on and go with this full > > force. It is not a half way kind of deal. Just like the GF/CF. You > > either commit to it or don't bother. It is a lot of work. You will > > have many bad days at first until you figure it all out but the payoff > > is amazing. > > > > Remember that each kid is different and what worked for my son may not > > work for yours. The hard part is finding out what works for your child. > > I believe that biomed can help all these kids. Some respond to some > > treatments, others to a totally different treatment but they do > > respond. > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > Hi I am brand new to this board and saw in another post that > > you > > > have been to Pfeiffer treatment center. I am going to their outreach > > > program in California next week. I am very excited. My sons > > behavior > > > is so much better with the GFCF diet and just recently started > > treating > > > for Candida. Still would like to see more inprovement. My son is 6 > > > and in 1st grade genreal ed, after being home hospitaled for > > > Kindergarten for his severe behaviors. What kind of Benefits have > > you > > > seen from the Pfeiffer center. I would love to hear your opinions. > > > Thanks so much > > > Sherri > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 I know that my son has seasonal allergies as well but we have only tried claritin and the such for that. I suspect that he may have an allergy to dogs because he will usually get hives around them but he gets hives sometimes when he is stressed as well. I had him allergy tested at 18 mos old before diagnosis because of his terrible skin problems. He would itch and scratch until he bled the poor guy. It would just break my heart not to mention all the stares that we would get when we would go out because most of his problem was on his face. A woman once had the nerve to ask me if he was in a fire! Can you believe that?! Thank god it isn't on his face anymore but on his legs arms and back now. We do an itchy routine every nite! I know that I need to get him retested but I am afraid to because he is so strong willed and aggressive that the least time we tried the doctor could not get him to sit still enough to drop the serums in the scratches. I also know that he would definelty not stand for a blood draw that is for sure. Any suggestions on how to ease the anxiety at an allergy visit? > > > > > > > > Hi I am brand new to this board and saw in another post > that > > > you > > > > have been to Pfeiffer treatment center. I am going to their > outreach > > > > program in California next week. I am very excited. My sons > > > behavior > > > > is so much better with the GFCF diet and just recently started > > > treating > > > > for Candida. Still would like to see more inprovement. My son > is 6 > > > > and in 1st grade genreal ed, after being home hospitaled for > > > > Kindergarten for his severe behaviors. What kind of Benefits > have > > > you > > > > seen from the Pfeiffer center. I would love to hear your > opinions. > > > > Thanks so much > > > > Sherri > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hello Tishanne! Yes everything that he wears is all cotton with the tags removed of course! I had no idea about the tylenol! That is very interesting! I know what you mean about waiting for a reaction while they are eating! We had a scare once the hives like you explained and it is very frightening! I never leave without his epi-pen! Once at a party someone didn't ask if it was ok with me and went to give him a brownie with walnuts in it! I about lost my mind! Thankfully Emmett always asks if the food has nuts in it because I have him trained the nuts will give him big boo boos! I am not sure if he is allergic to sunflower seeds. As of my knowledge he has never had them. I really have to get him tested again but I am so afraid that it will be a traumatic experience for him. Like i said the last time we tried it was awful. He is afraid of the doctor setting especially as of recently because he had to be put under general anest. for a dental procedure. Dues to his sensory issues and his age his dentist whom i love would not have been able to do the procedure in the chair. We have to go the the hospital and that was a very scary day for us all. I was not aware of this but she told me that children with autism do not respond well to the typical oral sedation that they would have used in that situation. That like benadryl with some kids it will make them more hyper than sleepy. The things that work for my sons skin are a salve that we bought at a natural foods store and when it really gets bad we have to use a 2% cortisone cream. Also if it gets super bad he has to have an ultraviolet light put on the area at the derm. office to kill bacteria. I have a question for you as well. Have you ever heard of any studies about a high fever early in childhood " bringing out autism " ? (I guess that is the best way to put it)! When my son was born I had an infection in my fluid called chorioamnioitis which caused him and i to have a very high fever during his birth. He developed pnemonia from it and was in the nicu for 2 weeks. Just wondering if you have heard about that corrilation? - In AutismBehaviorProblems , " tishannepatterson " wrote: > > Hi ,have you tried all cotton clothes and bedding,towels? I > know there has been some types of reactive eczemza sensitive from > materials. Most materials,threads are manufactured from corn,coal and > their by products. Alot of products and medicines,even tylenol is a > coal,petroleum derivative. Have you found anything that helps give > your son relief? > My son had anaphalytic shock once. They thought it was tree nuts. He > was tested for many allergies. He gets very itchy throat from > sunflower seeds and hives and sneezes from all kinds of things. He > had many tests yet they could not isolate that paticular bad > reaction. Now its like roulette style eating. I have gone over that > day agin and agin. He was on his 3rd bite of a peanut butter and > grape jelly sandwich. His skin started showing hives and then > morphing into strange swellings and crinkles. I wish they could > figure it out. I am always on guard when he eats anything. They ruled > out peanut butter as a legume. I wonder if it was sunflower traces in > the peanut butter. Not a tree nut but in lots of things. My son has > lots of allergies. Is sunflower seeds on your sons list? > Best wishes, > Tishanne > > > - In AutismBehaviorProblems , " rachel > mccashland " <racmac0204@> wrote: > > > > My son emmett has been battling eczema since he was four months > old. > > He also has a peanut and tree nut allergy! I wonder how many > autistic > > children have food allergies and/or eczema? > > > > - In AutismBehaviorProblems , " mrmilik " <qtmsoup@> > > wrote: > > > > > > Hi Sherri, > > > > > > To make a very long story really short, here it goes: > > > > > > My son had issues right from birth. He cried for 12-24 hours a > day and > > > would vomit every time he drank. Had major problems with feeding > etc. > > > I went to 10 specialists in the first 17 months of his life and > went > > > through countless pediatricians. None of them could figure out > what was > > > wrong with my son. He had severe, stinky diarrhea, no productive > play, > > > would spin things all day, would stare at the ceiling fan for > hours, he > > > had severe eczema, etc. > > > > > > At 17 months, I walked into my local health food store and broke > down > > > crying. The nutritionist, who I admired and trusted very much > told me > > > to take him off all Gluten and dairy. She had told me this > before, but > > > frankly I thought she was way off. On the 4th day off gluten my > son > > > stopped vomiting. Off dairy, his crying went from all day to > about 3 > > > hours. > > > > > > We began Early Intervention around the same time. He was tested > before > > > he began the diet. By the time we had our first few therapies, > the > > > therapists couldn't believe the difference in him. I was > convinced it > > > was all allergies at the time. No one at any point had mentioned > autism > > > to me. > > > > > > He entered the school system at 3 for early childhood. We also > did > > > private speech, OT and feeding therapy for him in addition to > that. > > > > > > A friend of mine that I met at the school told me about Pfieffer. > She > > > told me how well her son was doing. The program made sense to me > so I > > > made an apt. > > > > > > Our first apt. we spent 4 hours with the nurse and doctor. It was > the > > > most comprehensive history anyone had ever done on my child. We > did > > > several tests which took about 6-8 weeks to get back. > > > > > > The doctor sent us home with some MTP promoter (zinc and B > vitamins), > > > cod liver oil, probiotics etc. > > > > > > Once the tests came back I found that he was extremely low in > zinc, had > > > very high copper levels, high histamine levels, candida and > > > hypoglycemia. Basically, it confirmed that he had autism in a > medical > > > way. > > > > > > After about 2 weeks I started to see improvement in his skin and > > > behavior. Diarrhea was still there though. A month later we > started > > > Methyl B 12 shots. 6 hours later he said his first question ever! > I was > > > filling out another doctor form for him to see an allergist and > he > > > said, " Mommy, are you done yet? " Not only was that his first > > > question, but the longest sentence he had ever said. > > > > > > We took him to see Dr. Mercola for P/N allergy testing and found > out he > > > was basically allergic to everything. Again, this confirmed the > leaky > > > gut issues he was having. His immune system was shot. > > > > > > I removed all the things he was highly positive for like Soy, > Corn etc. > > > and rotated the other items. > > > > > > That was when he began to have normal stool for the first time in > his > > > life. By this time he was 4. > > > > > > His speech is still a bit off. He gets speech therapy at school > and > > > private as well. He can talk though! And nonstop at that. His > > > expressive language is incredible now. He just said to me > > > today, " mommy, you ROCK " I started laughing and asked him why he > > > thought I rocked and he said, " Because you are a kind of like a > power > > > ranger warrior, you are making me feel better " . I kid you not! > > > Needless to say, I got my cry in for the day today as well. > > > > > > He has worked so hard to be where he is right now and is still > working > > > hard. We are doing Vision therapy as well now. We found out in > the > > > spring that he had visual processing issues and we are addressing > that > > > now. > > > > > > It is very much like peeling the layers of an onion. We still > have a > > > ways to go but I have no doubt in my mind that my son will be a > very > > > productive adult who will get married some day and have a great > job. > > > He is such a smart kid. > > > > > > He is at the top in his class academically, but has major > attending and > > > focus problems mostly due to visual processing problems. > Something we > > > are working on correcting. > > > > > > I don't think anyone would ever guess my son has autism at this > point. > > > A speech issue? Yes. ADHD? Yes, but autism? NO. > > > > > > I attribute the majority of that to Pfieffer. > > > > > > I do think we are at a point that we will need to switch doctors > > > though. I think we have taken Pfieffer as far as we can for my > son and > > > we will need to get a DAN doctor to help us with the rest of it. > My > > > main issues apart from the focus and attending is his immune > system > > > which is still not where it should be. He still has terrible > allergies > > > and gets hives etc quite often. I feel like we still have not > found > > > out that next inner layer and I'm thinking of chelation or > Biofilms to > > > take care of that. When my son gets sick he is really sick and > it > > > happens often. I am trying to figure out why that is so I can > fix it. > > > > > > As for behaviors, most of the time he acts like a normal 5 year > old. > > > He is a bit whiner than I would like, but the days of major > meltdowns, > > > biting, kicking and tearing off drywall are over. > > > > > > I hope that helps. I tried to keep it as short as possible. > > > > > > Good luck at your apt. Put your blinders on and go with this > full > > > force. It is not a half way kind of deal. Just like the GF/CF. > You > > > either commit to it or don't bother. It is a lot of work. You > will > > > have many bad days at first until you figure it all out but the > payoff > > > is amazing. > > > > > > Remember that each kid is different and what worked for my son > may not > > > work for yours. The hard part is finding out what works for your > child. > > > I believe that biomed can help all these kids. Some respond to > some > > > treatments, others to a totally different treatment but they do > > > respond. > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi I am brand new to this board and saw in another post > that > > > you > > > > have been to Pfeiffer treatment center. I am going to their > outreach > > > > program in California next week. I am very excited. My sons > > > behavior > > > > is so much better with the GFCF diet and just recently started > > > treating > > > > for Candida. Still would like to see more inprovement. My son > is 6 > > > > and in 1st grade genreal ed, after being home hospitaled for > > > > Kindergarten for his severe behaviors. What kind of Benefits > have > > > you > > > > seen from the Pfeiffer center. I would love to hear your > opinions. > > > > Thanks so much > > > > Sherri > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hi ,things people say! My heart goes out to your son. It must be so hard on him,theres nothing worse then an itch,itching and pain. I use claritin and caladryl lotion with my kids and rx singular and advair. They also have nasacort nasal spray. Getting them into an appointment,priceless.lol I dont have success stories anymore,just sheer luck. Sometimes Mcs or something new{bribe} will work. Most of the problem is their appointment goodies like gameboys or treats they associate with getting a shot,blood draw. Thing is I really dont see much allergic differance while on or off the allergy shots. Some kids might. The claritin seems to work best and the singular and nasacort spray as needed. You can have those prescriptions from your pediatrician. Thats what I do now. I get 3 month prescriptions and refill as needed. I also run a big kenmore hepa air machine. Looks like a dryer barrel in my living room,lol. The filter fills up with dust I never seen. The pediatrician for allergy meds might be the easier option. Best wishes, Tishanne > > > > > > > > > > Hi I am brand new to this board and saw in another post > > that > > > > you > > > > > have been to Pfeiffer treatment center. I am going to their > > outreach > > > > > program in California next week. I am very excited. My sons > > > > behavior > > > > > is so much better with the GFCF diet and just recently started > > > > treating > > > > > for Candida. Still would like to see more inprovement. My son > > is 6 > > > > > and in 1st grade genreal ed, after being home hospitaled for > > > > > Kindergarten for his severe behaviors. What kind of Benefits > > have > > > > you > > > > > seen from the Pfeiffer center. I would love to hear your > > opinions. > > > > > Thanks so much > > > > > Sherri > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hi ,I have read infection based models of autism and also of incidence in relation to fever. Fever is not conclusive in all cases of autism. Good point though about the fluid infection,fever maybe having a part in your sons autism. I think there may be a dormancy factor that becomes active from something. I had an infection with my youngest{twins} in the amnio fluid because my water had broke 48hrs before delivery,wich was c-section. I did have fever and they were treated with an antibiotic iv in neo-natal. No report of infant fever was given to me in regards to them and they were treated as a precaution. It really makes me wonder as the years have evolved since my near 21yrs now child was my first with autism. I was first told it was a lack of oxygen in birth complications that caused her undiagnosed autism symptoms,deficits and deafness. She was not totally deaf as thought but was or became mute,lost speech. later when she was diagnosed autism I was told she had an immuno deficiency causing autism. She did recover speech and began to thrive,a late bloomer. All of my children on the spectrum have been born from 1987- 1997. Somethings I have read are newer,studies considering ultra sound,soundwaves induce heat or heat signatures to developing fetus. Valproic acid,used for migraines,seizures and bi-polar in off brand names also is associated now in recent findings{2008} and so is rubella associated with autism{2008} theese,in pregnancy. My own children experienced high fevers following vaccines and adverse reactions,swelling,rashes. Fever may be an aspect of autism. It does seem to be a common occurance. I am also curious about glucose tolerance drinks for blood draws during pregnancy. That is something I had in common during pregnancy. I believe they are routine in the 4-6 month of pregnancy. The institute of medicine will be reporting current findings on autism soon. The extremely high incidence in Somali children born in the US may hold the biggest clues for now. Did you read of peanut products in bologna,chocolate ice cream and liverswurst and hotdogs? I have a found peanut products in the most unusual foods. I am so sorry to hear your son had to experience trauma in his life. I so understand how hard it is as a parent to subject them to further tests,labs. Hospitals are so overwhelming for children,I could imagine his stress. My 16yr son would not let the dentist finish his filings from almost 2yrs ago, until theese past couple of weeks. He went today and had his root canal finished. I couldnt get him thru the door for almost 2yrs and one day he just asked if I would make his dentist appointment. He has been good with going now. He never complains when he comes home after major work,blows me away. My younger son can't get through a haircut or anything that requires patience. Best wishes to you and your family. Tishanne > > > > > > > > > > Hi I am brand new to this board and saw in another post > > that > > > > you > > > > > have been to Pfeiffer treatment center. I am going to their > > outreach > > > > > program in California next week. I am very excited. My sons > > > > behavior > > > > > is so much better with the GFCF diet and just recently started > > > > treating > > > > > for Candida. Still would like to see more inprovement. My son > > is 6 > > > > > and in 1st grade genreal ed, after being home hospitaled for > > > > > Kindergarten for his severe behaviors. What kind of Benefits > > have > > > > you > > > > > seen from the Pfeiffer center. I would love to hear your > > opinions. > > > > > Thanks so much > > > > > Sherri > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hi, I just wanted to talk a little about our bio med experience. For us we started when was 18 months. We did all the testing very high for dairy and moderate intolerance for soy, peanut,banana and sesame seeds. I couldn't even figure out where they came from because he doesn't eat bread. Then I figured out that some of our crackers had them in them. He didn't test negative for gluten at all. also didn't seem to have any of the other signs such as body rashes, constipation or diarrhea, a lot of colds or illness. We went ahead and did the gf/cf diet as well as the herbal and vitamin mineral supplementation. We took him about every month for a gluthonine IV and even did the secretin IV 3 times. No big light bulb moments and no huge gains. We did all of this for about 1 1/2 years and no huge changes. We slowly took him off the diet and reduced the supplements with no noticeable effect. I really wanted this to work and we followed the plan religiously but for our guy it just wasn't part of the problem. The only thing I wanted to say is look for the physical signs that this maybe an issue and when you do the testing pay attention to what the results say. This was difficult to do and our insurance didn't pay for it so for us the money would have been better spent on more ABA therapy or even more sensory toys. Hind sight is 20/20 . I just wish we would have realized sooner that it wasn't one of his issues. KellieA>> Hi Sherri,> > To make a very long story really short, here it goes:> > My son had issues right from birth. He cried for 12-24 hours a day and > would vomit every time he drank. Had major problems with feeding etc. > I went to 10 specialists in the first 17 months of his life and went > through countless pediatricians. None of them could figure out what was > wrong with my son. He had severe, stinky diarrhea, no productive play, > would spin things all day, would stare at the ceiling fan for hours, he > had severe eczema, etc. > > At 17 months, I walked into my local health food store and broke down > crying. The nutritionist, who I admired and trusted very much told me > to take him off all Gluten and dairy. She had told me this before, but > frankly I thought she was way off. On the 4th day off gluten my son > stopped vomiting. Off dairy, his crying went from all day to about 3 > hours. > > We began Early Intervention around the same time. He was tested before > he began the diet. By the time we had our first few therapies, the > therapists couldn't believe the difference in him. I was convinced it > was all allergies at the time. No one at any point had mentioned autism > to me. > > He entered the school system at 3 for early childhood. We also did > private speech, OT and feeding therapy for him in addition to that. > > A friend of mine that I met at the school told me about Pfieffer. She > told me how well her son was doing. The program made sense to me so I > made an apt. > > Our first apt. we spent 4 hours with the nurse and doctor. It was the > most comprehensive history anyone had ever done on my child. We did > several tests which took about 6-8 weeks to get back. > > The doctor sent us home with some MTP promoter (zinc and B vitamins), > cod liver oil, probiotics etc. > > Once the tests came back I found that he was extremely low in zinc, had > very high copper levels, high histamine levels, candida and > hypoglycemia. Basically, it confirmed that he had autism in a medical > way. > > After about 2 weeks I started to see improvement in his skin and > behavior. Diarrhea was still there though. A month later we started > Methyl B 12 shots. 6 hours later he said his first question ever! I was > filling out another doctor form for him to see an allergist and he > said, " Mommy, are you done yet?" Not only was that his first > question, but the longest sentence he had ever said. > > We took him to see Dr. Mercola for P/N allergy testing and found out he > was basically allergic to everything. Again, this confirmed the leaky > gut issues he was having. His immune system was shot. > > I removed all the things he was highly positive for like Soy, Corn etc. > and rotated the other items. > > That was when he began to have normal stool for the first time in his > life. By this time he was 4. > > His speech is still a bit off. He gets speech therapy at school and > private as well. He can talk though! And nonstop at that. His > expressive language is incredible now. He just said to me > today, "mommy, you ROCK" I started laughing and asked him why he > thought I rocked and he said, " Because you are a kind of like a power > ranger warrior, you are making me feel better". I kid you not! > Needless to say, I got my cry in for the day today as well. > > He has worked so hard to be where he is right now and is still working > hard. We are doing Vision therapy as well now. We found out in the > spring that he had visual processing issues and we are addressing that > now. > > It is very much like peeling the layers of an onion. We still have a > ways to go but I have no doubt in my mind that my son will be a very > productive adult who will get married some day and have a great job. > He is such a smart kid. > > He is at the top in his class academically, but has major attending and > focus problems mostly due to visual processing problems. Something we > are working on correcting. > > I don't think anyone would ever guess my son has autism at this point. > A speech issue? Yes. ADHD? Yes, but autism? NO. > > I attribute the majority of that to Pfieffer. > > I do think we are at a point that we will need to switch doctors > though. I think we have taken Pfieffer as far as we can for my son and > we will need to get a DAN doctor to help us with the rest of it. My > main issues apart from the focus and attending is his immune system > which is still not where it should be. He still has terrible allergies > and gets hives etc quite often. I feel like we still have not found > out that next inner layer and I'm thinking of chelation or Biofilms to > take care of that. When my son gets sick he is really sick and it > happens often. I am trying to figure out why that is so I can fix it. > > As for behaviors, most of the time he acts like a normal 5 year old. > He is a bit whiner than I would like, but the days of major meltdowns, > biting, kicking and tearing off drywall are over. > > I hope that helps. I tried to keep it as short as possible. > > Good luck at your apt. Put your blinders on and go with this full > force. It is not a half way kind of deal. Just like the GF/CF. You > either commit to it or don't bother. It is a lot of work. You will > have many bad days at first until you figure it all out but the payoff > is amazing. > > Remember that each kid is different and what worked for my son may not > work for yours. The hard part is finding out what works for your child. > I believe that biomed can help all these kids. Some respond to some > treatments, others to a totally different treatment but they do > respond. > > .> > > > > > > > > > > >> > Hi I am brand new to this board and saw in another post that > you > > have been to Pfeiffer treatment center. I am going to their outreach > > program in California next week. I am very excited. My sons > behavior > > is so much better with the GFCF diet and just recently started > treating > > for Candida. Still would like to see more inprovement. My son is 6 > > and in 1st grade genreal ed, after being home hospitaled for > > Kindergarten for his severe behaviors. What kind of Benefits have > you > > seen from the Pfeiffer center. I would love to hear your opinions. > > Thanks so much> > Sherri> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Honestly, I wouldn't bother with getting him tested again. So many of these kids don't respond to quick response tests. Most of these problems stem from the gut.(virus,candida etc.) I have my son on Nordic natural Cod Liver oil. 2t x day. I mix it with his food. It helps so much. EFA's are the key. My son was just like yours as a baby. It did look like his face was on fire. I have some pictures of him that brings tears to my eyes when I see them. > > > > > > > > > > Hi I am brand new to this board and saw in another post > > that > > > > you > > > > > have been to Pfeiffer treatment center. I am going to their > > outreach > > > > > program in California next week. I am very excited. My sons > > > > behavior > > > > > is so much better with the GFCF diet and just recently started > > > > treating > > > > > for Candida. Still would like to see more inprovement. My son > > is 6 > > > > > and in 1st grade genreal ed, after being home hospitaled for > > > > > Kindergarten for his severe behaviors. What kind of Benefits > > have > > > > you > > > > > seen from the Pfeiffer center. I would love to hear your > > opinions. > > > > > Thanks so much > > > > > Sherri > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Tylenol is not a good choice for our kids anyways because it depletes their gluthionine levels which is a huge issue for children with ASD anyways. Motrin is a much better choice. Here is an interesting article I just came across. http://www.autismdoc.org/ > > > > > > > > > > Hi I am brand new to this board and saw in another post > > that > > > > you > > > > > have been to Pfeiffer treatment center. I am going to their > > outreach > > > > > program in California next week. I am very excited. My sons > > > > behavior > > > > > is so much better with the GFCF diet and just recently started > > > > treating > > > > > for Candida. Still would like to see more inprovement. My son > > is 6 > > > > > and in 1st grade genreal ed, after being home hospitaled for > > > > > Kindergarten for his severe behaviors. What kind of Benefits > > have > > > > you > > > > > seen from the Pfeiffer center. I would love to hear your > > opinions. > > > > > Thanks so much > > > > > Sherri > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Thank you for this, Kellie! e Re: Re: -Pfeiffer advice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Thank you. Subject: Re: Re: -Pfeiffer adviceTo: AutismBehaviorProblems Date: Thursday, October 16, 2008, 11:33 AM Beutifully put, --thank you. Re: -Pfeiffer advice .. Quote Link to comment Share on other sites More sharing options...
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