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his office door has been closed which means he is talking to someone

about this.....stay tuned....

To: Soundsensitivity From: k.howe@...Date: Tue, 29 Jul 2008 22:15:11 -0400Subject: RE: New to group

I might have been one of those parents who made my child feel like it was their fault if it wasn't for this group. I feel badly for your parents--not having the information and not knowing why their child was the way they were. It's frustrating. Hopefully your parents are now believing you that it's not your fault. Try to forgive them because they just didn't have any support group or way to find out things like we have the internet.

If they still don't listen, then shame on them!!

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of Tammy CaseSent: Tuesday, July 29, 2008 9:16 PMTo: Soundsensitivity Subject: Re: New to group

Amen ! Preach it. I'm tired of feeling, well...let's be honest. I hope this isn't offensive, it's not meant to be. I have a friend who is gay and I know somewhat of his emotions doing the whole 'coming out' thing. That's what I feel like. I shouldn't have to feel like I'm 'coming out'. Neither should gays, I'm not saying that. But you know what I mean. We shouldn't have to feel like we have to hide who we are. That's all I'm saying.

And to the mothers out there, God bless you! I wish my parents cared even half as much as you all do. It blows my mind that you understand and then, on top of that, Empathize! Wow. My parents raised me thinking I was just a terrible person. So my applause, ladies

New to group

Hello,

I am new to the group. My name is Debi and I believe my 11 year old son, Elijah, has Sound Sensitivity Disorder. My friend found an article written by Dr. yesterday on the internet and sent it to me. It described my son perfectly. He was fine and then literally woke up one day unable to eat dinner with us or be anywhere near his 6 year old sister. Her lip smacking, chewing, drinking just about anything pushes him to a point that scares us all. Now, he is also fixated on my eating as well.

We don't understand what happened and why. It was as though he woke up a different child one day and we want to help him get back to his old self; if that is even possible.

Can someone help me (and my husband) understand why this happened and give me treatment options? What can we do to help him? He uses ear plugs at the table or just eats in another room on really bad days. He is very bright, does great in school (he's actually starting a new school this fall for gifted children in math and science and technology). He's very excited that he was accepted and I don't want this to affect him there. So far, it's the worst at home with us (even at restaurants with us he goes to a separate booth).

Any help, advice or treatment options are desperately welcomed.

Debi ( & Little Ben)

Shelby Township, Michigan

In a message dated 7/29/2008 8:42:41 A.M. Eastern Daylight Time, vmfcomverizon (DOT) net writes:

>> I'm sorry to say that my mother has always been the root for most of my > triggers. She I first became aware of her snorting, then it went to > everyone else around me. Then it was her talking in german (she's full > german) then it was the computer typing. Now, for the past year or so, > it's just her talking in general!! I mean I can talk to her face to > face, but even then sometimes I say, "Mom, I'm standing right here." > It's mostly a trigger when she's talking on the phone! I think she's > talking soo loud! I can't stand it, I mean most of the time I'll go in > my room and listen to music. But sitting in the car with her talking on > the phone is almost unbareable!! !! Does anyone else have any triggers > like this??>My father was my original trigger. However, my mother became a trigger later on. My mother is full german also and talkes WAY too loud also. She was a school teacher and I think she just got used to having to project her voice all the time. Anyway, I don't consider her loud talking a trigger so much as just painful. My husband is a loud talker too the difference being that I can make a quiet motion and he will lower his voice for me. The other difference being that if he is talking nearby and I want to go to bed he will move his converation to where I can't hear it. Oh, and my mother talks very very loud on the phone also. When she visits I'm constantly trying to steer her into the fininshed basement when she's on the phone. I don't know why some people feel the need to yell everything they say.I struggle more with the noises of my moms breathing and spit while she is talking though than the talking itself.

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