Can lyme be transferred by family contact? (was adopted sib tests positive)

[Guest guest]

Heidi, Darci and others, thank you for your replies! We saw the

lyme doctor today and he is going to have the 31 confirmation test

run. HE agreeed with our DAN doc that cleanign up the gut was the

first priority.

Our lyme doctor had never heard of lyme being transfereed by everyday

family contact (as opposed to breast feeding, intercourse or in

utero). He was going to ask other lyme docs on their forum if they

had ever seen such as thing. So I'm curious, how many on this forum

know of cases where lyme has been transferred by regular family

contact (E.g. sharing food, taking baths together, etc.)?

>

> :

>

> Mainstream doctors and lyme doctors do not agree on things. We

have lyme

> doctors because there is a need for them since mainstream doctors

are not

> treating lyme patients in a satisfactory manner. It's ok to use

two doctors as

> long as you inform both of them what all treatments your children

are under.

> They can work together. If you use the Washington doctors, they

know about

> autism and lyme, so you may only need one doctor then. There

seems to be a lot

> of politics, insurance, and all kinds of strange things happening

to lyme

> doctors. There are many books out there on it and lawsuits, on

lyme docs and

> on organizations that are going after lyme doctors, so generally

lyme doctors'

> names or doctors who treat lyme in general are not mentioned on

forums,

> except for initials. This is to protect them since we depend upon

them so much

> and something very strange is going on with lyme. Like I said

there are many

> books out about it and many organizations are approaching Congress

about the

> situation.

>

> I do have an adopted daughter, but she came with all of her

symptoms and

> diagnoses. She is much better now. Her symptoms were so severe

that they were

> going to put her into inpatient treatment, long-term for

behavioral reasons.

> I was their last resort. If anything, I think she gave us some

things

> because two in my house developed new behavioral issues since her

adoption, which

> was about 2 years ago. She is now 6. Her behaviors were such

that you had

> to see it to believe it, but many of us on these forums have seen

a lot.

>

> Being that die-off from lyme treatments is so stressful on one's

body, I

> think it is good to get the digestion running good. Many report

dumping metals

> when treating for lyme, so a good digestive system will help keep

those loose

> metals from recirculating. Ridding lyme also depends highly on

the body's

> health, so it may require fixing the body first or

simultaneously. There is

> no perfect way at this time, so choose whatever you feel is best

for your

> family based on what you believe in, have access to, can afford,

can support,

> etc.

>

> Love and prayers,

>

> Heidi N

>

>

>

> Heidi and Jill,

>

> Thank you both for your detailed and insightful comments! I do

know

> the lovely red ribbon story from CHina, and do think Abby was

meant

> to be with us, but can't help feeling guilty to think we may have

> infected her with lyme.

>

> We don't know anything about her birth family and very little

about

> her first year in China. She was in an orphanage that was poor,

but

> caring. She never was breastfed. It's very likely that she, like

> most orphans in China, was fed melamime-tainted infant formula

(One

> girl in our adoption group has developed kidney stones.) We do

know

> she has two copies of a gluten sensitivty gene (but these genes

are

> very common, I understand). Sortly after we got home, I asked my

> older daughter's DAN doctor to run some screening tests on Abby

adn

> we were suprised to find she had low cysteine, which I always

thought

> to be a marker for autism risk, and some very low levels of lead

in

> her blood. So yes, she was probably was vulnerable form the

> outset. Still, she was a happy, healthy baby when we brought her

> home, and something happened to trigger illness.

>

> Heidi, I thought I saw on an old post that you have an adopted

child

> as well as several biolgoical children and all had lyme. DId I

read

> this correctly? Do you think they contracted it from one another?

>

> My husband is the only one in our family who tests clearly

negative

> for lyme on the Western blot. I'm wondering if I have lyme, and

may

> have given it to my children, why I didn't give it to him as well?

>

> Now that I've had a chance to ramble on about my global fears (and

> thank you, Heidi and Jill fo adressing them so knowledgably and

> eloquently!)eloquently!)<WBR>, here are some more pra

>

> Our DAN doc says he sees a lot of ASD kids with positive IgMs and

> negative IgGs on the Western blot. I still don't understand how

the

> IgG could be negative, unless it is a brand new infection. Can we

> be sure that it is reallly lyme? I'm hearing my HMO docs on the

> one hand say it's NOT lyme if there's a negative ELISA, and the

lyme

> docs saying it IS lyme if there is a positive Western blot, and our

> DAN doc sayign MAYBE it's lyme. Could it be some different

pathogen

> that mimics lyme on the Western blot, hence explaining the

negative

> ELISAs?

>

> Abby has an appointment with a lyme doctor (Dr. Marty Ross in

> Seattle) on Friday. He treats with long-term antibiotics. We

> also are hoping to get into see Klinghart or Amy Derkson, who

treat

> with herbal antimicrobials. How do we decide which route to go?

>

> Out DAN doc mentioned a test called 30/31 (?) to confirm lyme. DO

> you know anythign about that test?

>

> Our Dan doc recommended first treating Abbys gut issues (h.

pylori,

> candida and Klebsiella) with a combo of gentamyain, meteobenzoate

> (s/), bismtuh and amphoterican B, while we are waiting to see him

> later this month and do the confirmatory test for lyme. Is it

> better to treat these other gut bugs first, or should we treat for

> lyme first, or do all at the same time?

>

> I expect the lyme doc will order tests for the co-infections. Are

> there any other tests we should request? Any specific questions we

> should ask the lyme doc?

>

> I'm wondering too what to do too about my older daughter, the one

> with ASD (Apsergers), whose WEstern blot was equivocal, even after

an

> antibiotic challenge. I'm supposing she has lyme, but we can't

> prove it. The lyme doc was willing to treat her with long-term

> antibiotics, but our DAN doctor recommended against it when her

> clostridia markers started going sky high. We didn't see much

> improvment from the relatively short time (maybe a few months, I'd

> have to go back and check my records) she was on the lyme

> antibiotic. Yet after we went off it, she eventually began to

> regress (perhaps because we had expanded her diet somewhat, going

> from SCD to a low starch, low sugar GFCF). Two years ago she was

> close to recovery. Now she is having sensory issues, restless body

> (ADHD type behavior), and other focus problems at school. THings

> really got bad for her after her bout of viral meningitis this

> summer. HBOT has helped some, but not enough to turn her around.

> Should we try again treating her with antibiotics? What about

using

> several at once--one for lyme, one for the clostridia, etc? I'm

> supposing I should go back to SCD for my older daughter, but it's

so

> much harder as she gets older, especially now that my younger one

> reacts to nuts and is GFCF (so it's tempting to make the same

foods

> for both of them).

>

> I look forwrd to being part of this group.

>

>

>

>

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