Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 I realized a few months back that my Mom was in total denial of 's diagnosis and what we were dealing with. She would dismiss me when I would try to reach out to her and didn't even realize that she just wasn't listening. After months of discussion, I finally asked her if she wouldn't mind reading up on some information regarding children with disabilities to help her understand our situation (she spends a lot of her free time going to her grandchildren's sporting events so I figured a few hours at the library wouldn't hurt). She finally figured out that I needed her to understand what I was dealing with. And... she found a great book. It's called From the Heart... On Being the Mother of a Child with Special Needs, edited by Jayne D.B. Marsh. Publisher Woodbine House. She read it in a night and couldn't wait to call me and say that so much of the info in the book (it's a lot of comments from Moms explaining how they feel) reminded her of me. I read it also and although the Mom's in the book deal with a variety of disabilites (down syndrome, autism, adhd) most of the feelings are what we feel. I was awed by how much I related to them. I think it was $14.95 but I thought maybe it would be helpful for anyone of us dealing with this, including family members. It certainly helped bridge the gap between my Mom and me. Sally, Mom to 22 months Quote Link to comment Share on other sites More sharing options...
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