Ulcers (was meds for autistic teen)

[Guest guest]

The reason that my son is getting ulcers has yet to be determined. I have been to 3 pediatric gastroenterologists and no one knows. His latest GI doctor agreed (after lots of pushing) to consult with Dr Krigsman of Thoughful House. Dr K feels that there must be disease going on that we have not discovered and to give Blake a colonoscopy. Well, I have begged all of Blake's doctor's in the past to do a colonoscopy for years, but have been turned down. They only do endoscopies. Anyway, if his present doctor won't do it the next time Blake get's his endoscopy, then I am taking him to Dr K in January. Meanwhile, he is on new medication which will help heal the ulcers. But when we tried this medication before, it made Blake going nuts. I realized that the stuff had red dye in it (it looked like Pepto Bismul). (Blake has had problems with red dye in the past. His present diet contains no dyes). After researching it, I found that we could get the medication without the red dye, so we are trying it again without the red dye. So far so good. It has to be taken on an empty stomach and with a window of one hour before or after his other medications. So we have a strict food and medication schedule in place, which starts early in the morning. We don't get to school until 11 AM and he get's picked up again at 1:30, but this protocol is important and a priority. We will see.

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[Guest guest]

Hi ,I hope this newest specialist has success in diagnosing

and treating your son. Its kind of strange but I had been stung while

in the woods, by hornets. I had a few stings on my hand,arm. What

followed was chills and a ulcer disease. I have seen many

DR.s,specialists and had several endoscopys,contrast dye,colon tests.

The specialists,gi and rheumatology,neurology tracked every marker.

None had seen ulcer disease,disease of this type and biopsy ruled out

h.pylori.,crohn's and other typical causes,diseases. For a couple

years I had blood work ups often and tests a-z for causes and

continually testing for lyme disease. They just keep checking for it.

The Dr.s monitor the ulcers for concerns it could spread or cause any

further organ damage. Some scar tissue has given me problems with

constriction,narrowing and malabsorption. I've had bone

scans,mri,,endoscopy,biopsy and a so many types of tests for

diagnoses. After a few years of havoc it has gone into remission. I

never had heartburn or any problems with reflux before,during or now.

It get hungry far more often now and eat lots of smaller

meals,snacks. It made me very weak while it was peak active. I still

have high turn over for food/energy level. Its very hard to keep my

energy on keel without lots of snacking. To me it feels like I am

fermenting food instead of digesting it. Please let me know what you

find out. If you think back to pre-disease in your son was there

anything that may be related? I hope Blake finds relief soon. I know

first hand ulcers suck.

Best wishes,

Tishanne

-- In AutismBehaviorProblems , walkman975@... wrote:

>

> The reason that my son is getting ulcers has yet to be determined.

I have been to 3 pediatric gastroenterologists and no one knows. His

latest GI doctor agreed (after lots of pushing) to consult with Dr

Krigsman of Thoughful House. Dr K feels that there must be disease

going on that we have not discovered and to give Blake a colonoscopy.

Well, I have begged all of Blake's doctor's in the past to do a

colonoscopy for years, but have been turned down. They only do

endoscopies. Anyway, if his present doctor won't do it the next time

Blake get's his endoscopy, then I am taking him to Dr K in January.

Meanwhile, he is on new medication which will help heal the ulcers.

But when we tried this medication before, it made Blake going nuts. I

realized that the stuff had red dye in it (it looked like Pepto

Bismul).? (Blake has had problems with red dye in the past. His

present diet contains no dyes). After researching it, I found that we

could get the medication without the red dye, so we are trying it

again without the red dye. So far so good. It has to be taken on an

empty stomach and with a window of one hour before or after his other

medications. So we have a strict food and medication schedule in

place, which starts early in the morning. We don't get to school

until 11 AM and he get's picked up again at 1:30, but this protocol

is important and a priority. We will see.

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