Guest guest Posted April 8, 2008 Report Share Posted April 8, 2008 Greetings - I have been a member of this group for some months now -- though mainly " lurking " in the background, mainly because my interest is in specific treatments rather than in its emotional support aspects. I run a small website development business using some neat site management software that makes it easy for non-techies to keep the site up to date and add content while maintaining its design integrity. I've been coping with what you are now calling 4S or misophonia since I was a teenager (I'm 51 now) and well understand what you're all going through. I'm willing to donate my site design and hosting services to create a site for the group if you are at all interested. I want to stress that this is **not** a commercial solicitation but rather a personal offer of time and resources. My only conditions are that (a) we implement a thoroughly professional-looking design (sorry -- the bunny ears won't cut it, besides which " cute " and " credible " don't generally go together), ( that others commit to maintaining the content of the site and act as forum moderators (if a discussion forum is part of the plan), © that any content added to the site be consistent with an agreed upon standard formatting style of the site (i.e., that it is CSS-driven, for those of you familiar with website lingo), (d) that all involved understand that I may edit site content as needed to ensure that the above standards are followed and to correct errors in grammar, spelling and basic writing style and, finally, (e) that there be a designated website " steering committee " or something of the sort consisting of a small, manageable number of people to make decisions about the development and administration of the site (just so I don't lose my mind trying to satisfy a zillion conflicting requests or demands. I realize the above may seem slightly draconian to some, but it's really nothing more than best practices in creating and maintaining a quality website -- and protecting my own time and sanity. All too often such things do not get spelled out at the get-go, with the result that people later end up unproductively squabbling about minutiae. Also realize (as is probably obvious to you by now) that I am a very direct and blunt person. In communication among members of the " steering committee " , site content authors/editors, or forum moderators, if I think an idea is foolish or detrimental to the quality of the site or its goals I will say so, albeit in a civil and professional manner. In the context of a support group, it is obviously necessary to tread lightly to be sensitive to the feelings of less thick-skinned individuals, but the context of a website management group is a different animal altogether. I would approach the latter from a business/management perspective, and assume that others will as well -- which to me means that we don't take frank, albeit civil, criticism personally. There now. With all that said, I'm really not a difficult and unpleasant grouch, but I am a big believer in setting crystal clear and reasonable ground rules and expectations up front. If you're interested in taking me up on this, let me know. I had, with the intent of doing something like this on my own at some point, purchased the rights to the misophonia.net and soundsensitive.org domain names and would consider contributing one of those to the cause. Following are the URLs of some of the other websites I've done: http://www.saintalphonsus.com http://wheeling.wphinfo.com http://prospectheights.wphinfo.com http://www.res-fuel.com http://www.mitef-bg.org http://www.wildwisconsin.com http://www.jaybirdholdings.com (in development) http://www.irinabizyayeva.com (in development) http://www.imbatech.org (dormant, but still up on the 'net, and not a bad design.) Quote Link to comment Share on other sites More sharing options...
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