Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 So a flare is really cysts coming out? Robin > > Robin: > > When I first started learning about lyme and cysts, I was freaking out > trying to understand if I have to do things a certain way or I will make it worse > or what. Here are some things I have come across. Lyme can turn into cyst > form in seconds. Large numbers of lyme convert back from cyst to spirochete in > hours. Things the lyme likes to eat will make it come out of cyst form > (sugar, gelatin, grains, and possibly magnesium, glutathione, B vitamins, and I > can't remember what else right now) . Removing things one is on will make the > lyme come out of cyst form. > > People usually report a decrease in symptoms than an increase in symptoms > when on things that make it go into cyst form, like antibiotics. But, since > the are getting these bad herxes about 2 months after starting antibiotics, one > might assume the lyme gets tired of hiding out or comes out to eat or > something to cause the herx. I don't have so much fear any more, since I now feel > the lyme can readily come out of cyst form. The situation is still > complicated though. I feel feeding and killing are good ideas. Only feeding the lyme > without having a good immune system or something to kill them, is likely a > bad idea. > > I am seeing that boosting the immune system may work better than taking > things to directly kill it. It could be that our white blood cells may be able > to conquer all forms of lyme. Well, maybe not, I have seen video of > spirochete lyme entering a white blood cell and then exiting it with contents of the > white blood cell on it, thus camouflaging itself. That thing is so > intelligent; that is why its such a struggle to conquer. I think science aside, go > with what people and doctors say works. We can only try and see what happens > and then make changes as needed. Since there are variances in us, and we all > have different strains, pathogens, insurance, access to things, etc., I say > just pick what one believes in, has access to, can afford, etc. and make > changes as needed. I have seen a lot of different things work and those same things > fail. Thus, the situation is very grey. > > I think the detoxers you are using are great. I would try to add in some > probiotics. Likely, giving them with the meal would be good, so they can be > present to help digest the food. Your doc may have an opinion on that. I do > have neurolyme symptoms, but my supplements and diet keep symptoms away. > Without them, I can not function at all. I don't know a lot about the antibiotic > route. It scares me, this is why I chose herbs. But I am not against them. > Many have had success with them. > > Love and prayers, > > Heidi N > > > My daughter is on abx. I know that the cyst form is probably forming. > From what I understand all antimicrobials will put lyme into cyst > form. How do you all address that? Our doctor told me that it is > difficult to treat children with lyme because the drugs are hard on > them and really meant for adults... the ones that get teh cell wall > deficient forms as well as the ones that get the cyst forms.. > > DD has been on doxy 6 weeks, now on ceftin 3 weeks then doxy 3 weeks. > I am starting to fear I have started the a future cyst explosion that > we cant deal with. > > She has had simple die offs. Shaky legs a few days, tremoring fingers > on and off that cause no pain, fatigue on and off, headaches, but > thats about it. She's 11. > > She is on Unda drops and modifilin. > > How do you all address this with your kids? I think I remember grape > seed extract? Is that it and what others then how with a child? Can > homeopathics take care of it? Can you just wait for the next round > and then how do you stay ahead of the game IF they multiply in cyst > form? Does the KMT help or Valkion? Does the KMT put into cyst form? > I think Rife is not supposed to. Would valkion? > > Thank you. You all are amazing and amazingly smart, and I am > overwhelmed again. Cant keep up. I cannot imagine dealing with what > you all deal with. > > Do any of you have neurolyme and how do you handle that and taking > such good care of your children staying on top of things like you do? > I go in spurts where I process the info, then poof.. I cant think or > handle stress very well. > > Robin > > **************One site has it all. Your email accounts, your social networks, > and the things you love. Try the new AOL.com > today! (http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol? redir=http://www.aol.com/?optin=new-dp > %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001) > Quote Link to comment Share on other sites More sharing options...
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