Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hi, My name is . I am 26 years old and I got diagnosed with CMT last June. I've always been weak, I've always done the best I could despite everything and often adapted, and I'm a pro at figuring out my " own route " . I model and I make balloon animals. I've developed a very offbeat sense of style, partly due to the fact that huge leg pants and vintage retro dresses cover my legs and funny walk and feet completely. I play flute, I love biology, fashion, and music no one else listens to at all. My homepage with some images is at www.angelfire.com/hi/DemonicasLair or www.myspace.com/missdemonica to me, CMT is now my valid excuse for not doing some things that before I had to just explain why it was I was too tired to go out to the bars when all I had done was cleaned up my apartment all day. its the way she goes I guess. > > Nice to meet you , welcome, and thanks so much for introducing > yourself. You'll find many parents here with the same age children > with CMT. Oh how I know those " up and down emotions " - had 'em all > myself since diagnosis when I was 10. My teen years, while fun, were > also hard emotionally and in the 60's, believe me, no one knew CMT, > and without the Internet, I had no way to connect with others. > Fortunately, that all changed > > I hope you find helpful on your journey. Don't hestitate to ask > questions, we're all here to learn. > > ~ Gretchen ( Founder and ELC) > Quote Link to comment Share on other sites More sharing options...
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