Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 HI EZ Mom: Welcome to the group! It is not unusual for young kids to lack insight into their OCD. However it sounds like your son has some insight as he is acknowledging his OCD. My son kept telling me for years that I was the one with OCD :-) SOmetimes OCD can trick them into not wanting to acknowledge they have the disorder and usually it is best to leave it at that and just proceed with getting the necessary help. What other strategies than CBT is the therapist using? E & RP is the first line treatment for kids with OCD as it has been validated in well designed and executed research studies - it is a signal that docs are practising evidence based medicine when they make sure our kids are getting E & RP for their OCD. You might want to ask what the treatment goals are, what the therapist has discovered as your son's symptom hierarchy and how you will be involved in assisting with therapy/family support through treatment. Please let us know what you learn and we will certainly give you more feedback. You can subscribe to a daily digest which provides a whole days emails as one email to you. OR you can just sign up for access to the web site and look at the messages there. Another option is to get each email one by one. I wish I were better at managing the emails than I am so I could give you good tips. The only reason I can catch up tonight is that our son, Steve, has flown off to be in the Science Bowl in Honolulu so I am not competing with him for access to the computer. Good luck, take care, aloha, kathy (h) kathy.hi@... > Hi, My 8 yr old son was recently diagnosed with OCD, ADD, and other > learning disabilities. His OCD seems somewhat atypical in that he > doesn't have any compulsions, but is more obsessive. He gets stuck > on thought or ideas. He doesn't have any insight to his OCD. He > can't verbalize or explain his thoughts; just that he gets stuck. > He is on Prozac and that has been very helpful. He'll now even > acknowledge that he has OCD, where he wouldn't previously. I am > concerned because his lack of insight makes CBT difficult. We have > implemented a few other strategies that his psychologist and he > worked out and that seems to be helpful. I would appreciate any > guidance or suggestions that you would have. I look forward to > participating in this group. Where can I learn how to est manage > and kkep up with this board? Until next time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Laurie We went through a very similar situation with my daughter at age 13 she told us that she was afraid she wanted to kill us and herself. She is 17 now mostly doing better except recently as is in my other post. She is on prozac and zyprexa which definately help. and is in counseling. I think that was probably the worse day of my life since she is typically a warm caring kid. Give it some time it will get better unfortunately ocd rears its ugly head when the kids get stresses. Hugs to you and your daughter , you will find alot of support here, keep us posted. Lori T in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi Laurie, I know what you mean, her having OCD actually being a relief what with the things she was thinking! I'm glad she was actually able to let you know she was having these thoughts. That's such a huge step to take, telling someone! I wish my would just admit " OCD " ! (see my next post!) Has puberty begun to kick in any yet? Was wondering if you think it's playing a part in her OCD as to it seems to have been triggered by it or is getting worse due to puberty or.... I feel like it played a part with along the way since 6th grade (he's in 9th now). I know girls generally begin puberty earlier than boys though. Sounds like you've been able to find some knowledgeable professionals to help too, that's really great! Hope the Zoloft kicks in real soon. I also can only imagine what sufferers must go through when they have such thoughts and actually worry about possibly " doing " something and having them seem so real. But it must be such a relief to find out that they're not alone. (like the article) Please keep us updated on how she & family are doing and how she's doing on the Zoloft! And welcome to the group! > Our 12 year old daughter was diagnosed with OCD in January. ly, > it was a huge relief to me because, after hearing her " confess " her > morbid thoughts to me, I did think she was either " going crazy " or > was possibly a psychopath. Her thoughts about sex and/or harming > others were so unbelievably disturbing that I couldn't even tell my > husband about them at first. One of her thoughts (about stabbing me) > made me wonder if I should hide the knives or lock my bedroom door at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2004 Report Share Posted February 29, 2004 Hi, Laurie. Welcome to the group. It's wonderful that you are getting treatment for your daughter and hopefully, she will be feeling better soon. I have two daughters with OCD-- (10) was diagnosed at 7 and Hannah (13) was diagnosed at 11 but her onset was at 10. They both take medication and go to therapy. sees a therapist to learn social skills and Hannah is doing ERP with her therapist. Their OCD is different from each other. has mostly thoughts, fears, and worries while Hannah has all that plus compulsions. The medication has definitely made both of them better! Please keep posting. I know that the beginning is a very hard time but it does get better! Kelley in NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 Hi, Stan I think? I saw the video on the Generation Rescue website. I can send you the link if you wish. Some parent must have added it to the website if you didn’t put it there. My ASD son hasn’t started the spray yet as we were just prescribed and it hasn’t been shipped from Wellness yet. I’m hoping for big things with the spray. I guess we’ll do the shots if the spray isn’t easy to administer (he’s 2 ½). I don’t know if he has herpes as we haven’t done many viral tests yet. He did get shingles from the chicken pox vaccine and we know he has other viral issues. Have a great day, Pam new to group just wondering where to see the video? and what type of kids is this treatment helping the most PDD/NOS HF MF LF and is it more effective with kids that you know have the herpes virus or does that not seem to make a diffrence as to who is a responder? ive read some posts about being an mb12 responder alone so does this seem to make a diffrence as to effectiveness? so curious to it all, it makes sense and really want to give it a go with both my boys each sitting at diffrent places on the spectrum, each having responded to diffrent treatments along the way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 a, I can relate in so much you have said. I have 3 kids. is is almost 13, is 10 and is 5. was diagnosed with ASD in May and also SI. She also has a tick disorder. has autism, a seizure disorder and also SI. I am married to Jim and we live in Aurora IL. Where are you from? Welcome to the group. Stacie Hi Everyone, My name is a, I am a 24 year old mother of 4 kids aged 4 months (boy), 2 years (girl), 4 years (boy with ASD) and 5 years (girl). My 4 year old son Donovan was diagnosed with Autism when he was 25 months old. He never really spoke as a baby other than mama and dada (with no meaning), but he didn’t start to lose eye contact or start stimming until after he had his 12 month and 18 month vaccinations. I don’t fully believe that these shots caused my son’s autism- but I know they played a role is poisoning his system. Since his diagnosis he has made much less progress than we had hoped. The most progress he has made is regaining eye contact, bringing things he wants opened to us, pushing a chair to climb and get something he wants and sometimes pushing buttons on a communicative device with pictures to say what he wants every now and then. He is non-verbal with no real functional communication for daily needs and desires. We tried ABA, PECS and signing for the first year and he wouldn’t respond. He throws frequent tantrums, often for no apparent reason. When he gets upset he will sometimes hit at me. Donovan is affectionate though. He will come to me for hugs and kisses and likes to be tickled. But sometimes when giving or receiving affection, he will pinch me or grab and pull my hair all of the sudden- when he does this, he is still smiling and does not seem to understand that he is hurting me. I tell him “no†and I think he understands what no is, but he continues to do this. He has recently pulled my mom’s hair and she was shocked- I never told her that he pulled my hair because my family is already weary to be around him because of the behaviors he exhibits. Donovan also stims all the time. He stims by flicking his spit with his finders in front of his eyes and especially in streams of indoor and outdoor light. When he stims he gets so excited that he stands on his toes and you can almost feel the excitement and energy building up in him and he says “aaahhhhh†and other vocalizations when stimming. He also gets “overstimulated when he stims and will go from being excited to crying really loudly. Donovan also likes to knock things off of tables, turn cups filled with liquid upside down, and “mess up†things by moving them back and forth real fast under his hands. He used to be totally infatuated with strings and would flick them in front of his face, now he only flicks them in light and doesn’t seem to be obsessed with them anymore (which is great, he used to unbraid the hair on his older sisters dolls, tear it out and leave it all over the house and tear up the strings in carpet. I often think about his future and fear that my family will never truly be comfortable around him because he requires so much attention and tends to destroy their houses. I fear that as he gets older that, since he is so big (he’s only 4 taller than my 5 year old and weights 49 pounds from height and stature, not fat) that his dad and I won’t be able to physically handle him like we can now, especially during tantrums. I often hear how autistic kids tend to have an area they excel at or have high interest in- I have yet to see what that area might be for Donovan. I hope and pray that he will grow to be accepted by my family and his peers, communicate with us in some way and stop his aggressive behaviors. I have also heard that stimming is neurodegenerative, so when he tries to stim all the time, I keep thinking that he is ruining his brain or something by doing it. It is difficult to say the least, raising four kids that already have health issues like sever eczema and asthma, sleeping issues, etc. then to worry about Donovan all the time and how his future will be is enough to really stress me out. On top of everything else, I go to school full-time, work full-time and never seem to bet sleep. My children’s father is a tremendous help, but both of us are exhausted and we often get discouraged at the lack of progress for Donovan. I do not want to medicate my son. I have read how often these stimulants and anti-depressants are medicines made for adults, but given to children in lower doses- with no real un-biased studies of their efficacy in children. I have also seen first hand how children who are on medicines as kids, grow up and stop taking their medicine, and the chemical imbalance is a sort of shock to their system and they act out violently. And that these acts of violence or rage make people think that “they need their medicine†when in fact their body is going through withdrawal. I want to snap Donovan into our world naturally and soon, with out causing so much stress on his siblings. (His tantrums make the other kids cry and get scared>) I hope someone can relate to my situation and give me some advice on how to help my son. I would also like to know what services your children get through the school district and if you get daily living skills assistance also and if so, how did you get those services. Thanks for taking the time to read my story. a Calderon ______________________________________________________________________This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs. For more information on MCI's Managed Email Content Service, visit http://www.mci.com.______________________________________________________________________ Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Hello a, My name is , I am a 21 year old mother of two kids aged 1 year-girl and a 2 year old boy. My son also has Autism. Diagnosed at 18 months.My son also spoke as a very young child (about 9 - 11 months ) saying things like mama ,baba dada, sometime with the meaning of the word and other times just to say it. Then very suddenly around his 1st bithday he stopped all words and we noticed how he was always in his own little world and didn't make eye contact and was very affraid of other people. We soon found out why. It was very hard for me still is sometimes. But I was able to move forward and relialize that he was still the same I have aways known and loved and I would love him no matter what. As I'm sure you have. Your son's symptoms sound alot like my son's as well.... He is a stimmer. He stands on his tippy toes alot when he is excited, he flails his arms and makes very loud vocalizations and yells as well, he also runs back in forth when excited (while yelling ) he is very lovey to us and he is very rough.... he does pull hair sometimes or kick also not on purpose but we are usually able to control his aggresiveness. He is usually a very happy boy but can throw small tantrums here and there. Those are also usually easily nutrealized. is able to express what he needs in a very small manner right now. does some signs...."more" and he has almost conqeured " all done " ,he also is doing well with the PECS system ((( goes to a developmentally disabled pre-school locally 5 days a week for about 3 hours every morning. He recieves ABA style teaching. He is recieving Speech, Occupational therapy, and one on one developmental therapy.He has been going for a year in December. It is really doing him good.))) Anyways.... hope i haven't lost you yet...haha has just recently been giving us a few words and sounds! He said "mama "once at school, he has also been saying "mo" for more and using the sign as well as saying the "baba" sound ALOT and saying it here at home and at school "bubbles". ( jason is a big fan of bubbles) When it comes to our family people are just curios and accepting but get togethers can be hard. I am very sorry to hear that your family is not very accepting and weary of your son.My daughter..... well she has her up and downs with him. When she was a baby she would get very scared and cry while jason was beeing very over excited and loud but over time she seemed to overcome it and except it. She still can get a litlle fussy sometimes. As for how they get along... most of the time they are together and knows she is there but does not really bother with her and other times they will fight over something and he will try to move her and if she does not move he will shove her causing her to cry for a good 10 minutes sometimes. But most of the time they are nice. I do catch him holding her hand sometimes or trying to hug her, some sort of affection so I know he must love her. My daughter, andria, also does not talk yet she is 18 months.. I know she is still young so I'm not super worried. She does have a few words and sounds but I think she is too lazy sometimes to say anything. She does say "mama" ,"baba" "yeah" ,and makes the "e "sound but like I said not alot because I think she doesn't have the example from her brother and also being lazy.I am not worried about Autism though . She makes good eye contact and just doesn't have many syptoms. She is very curious of and always wants to do what he is. She definitaly loves him and has grown to be understanding of his loudness and over excitability. My son has alot of sensory issues... what about your son??? My jason is a very picky eater. Having a very small food selection. All food alike in texture and color, he always wants things in his mouth. We have chewies for him and he still sucks on a binky at nap and bed time. throws little crums and things while eating..... he just doesn't seem to like them I guess. haha. I also share your feeling with not wanting to medicate your son.. I don't think I ever will. Right now my sons treatment seems to be working.Besides the speech improvements he has regained eye contact and is improving motor skills and so forth. He has also opened up more socially to other people wich I think is the biggest improvement he has made. I am sorry to hear about your son's treatment not working so well. I am interested in what he is getting right now for help. There were so many alike features in your story to mine and I really hope that we could get to know each other well. I have been hoping to find someone with the same struggles as myself. I wish you the best and I hope to hear from you soon! Thanks for reading... i know it was very long haha. New to Group Hi Everyone, My name is a, I am a 24 year old mother of 4 kids aged 4 months (boy), 2 years (girl), 4 years (boy with ASD) and 5 years (girl). My 4 year old son Donovan was diagnosed with Autism when he was 25 months old. He never really spoke as a baby other than mama and dada (with no meaning), but he didn’t start to lose eye contact or start stimming until after he had his 12 month and 18 month vaccinations. I don’t fully believe that these shots caused my son’s autism- but I know they played a role is poisoning his system. Since his diagnosis he has made much less progress than we had hoped. The most progress he has made is regaining eye contact, bringing things he wants opened to us, pushing a chair to climb and get something he wants and sometimes pushing buttons on a communicative device with pictures to say what he wants every now and then. He is non-verbal with no real functional communication for daily needs and desires. We tried ABA , PECS and signing for the first year and he wouldn’t respond. He throws frequent tantrums, often for no apparent reason. When he gets upset he will sometimes hit at me. Donovan is affectionate though. He will come to me for hugs and kisses and likes to be tickled. But sometimes when giving or receiving affection, he will pinch me or grab and pull my hair all of the sudden- when he does this, he is still smiling and does not seem to understand that he is hurting me. I tell him “no” and I think he understands what no is, but he continues to do this. He has recently pulled my mom’s hair and she was shocked- I never told her that he pulled my hair because my family is already weary to be around him because of the behaviors he exhibits. Donovan also stims all the time. He stims by flicking his spit with his finders in front of his eyes and especially in streams of indoor and outdoor light. When he stims he gets so excited that he stands on his toes and you can almost feel the excitement and energy building up in him and he says “aaahhhhh” and other vocalizations when stimming. He also gets “overstimulated when he stims and will go from being excited to crying really loudly. Donovan also likes to knock things off of tables, turn cups filled with liquid upside down, and “mess up” things by moving them back and forth real fast under his hands. He used to be totally infatuated with strings and would flick them in front of his face, now he only flicks them in light and doesn’t seem to be obsessed with them anymore (which is great, he used to unbraid the hair on his older sisters dolls, tear it out and leave it all over the house and tear up the strings in carpet. I often think about his future and fear that my family will never truly be comfortable around him because he requires so much attention and tends to destroy their houses. I fear that as he gets older that, since he is so big (he’s only 4 taller than my 5 year old and weights 49 pounds from height and stature, not fat) that his dad and I won’t be able to physically handle him like we can now, especially during tantrums. I often hear how autistic kids tend to have an area they excel at or have high interest in- I have yet to see what that area might be for Donovan. I hope and pray that he will grow to be accepted by my family and his peers, communicate with us in some way and stop his aggressive behaviors. I have also heard that stimming is neurodegenerative, so when he tries to stim all the time, I keep thinking that he is ruining his brain or something by doing it. It is difficult to say the least, raising four kids that already have health issues like sever eczema and asthma, sleeping issues, etc. then to worry about Donovan all the time and how his future will be is enough to really stress me out. On top of everything else, I go to school full-time, work full-time and never seem to bet sleep. My children’s father is a tremendous help, but both of us are exhausted and we often get discouraged at the lack of progress for Donovan. I do not want to medicate my son. I have read how often these stimulants and anti-depressants are medicines made for adults, but given to children in lower doses- with no real un-biased studies of their efficacy in children. I have also seen first hand how children who are on medicines as kids, grow up and stop taking their medicine, and the chemical imbalance is a sort of shock to their system and they act out violently. And that these acts of violence or rage make people think that “they need their medicine” when in fact their body is going through withdrawal. I want to snap Donovan into our world naturally and soon, with out causing so much stress on his siblings. (His tantrums make the other kids cry and get scared>) I hope someone can relate to my situation and give me some advice on how to help my son. I would also like to know what services your children get through the school district and if you get daily living skills assistance also and if so, how did you get those services. Thanks for taking the time to read my story. a Calderon ______________________________________________________________________This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs. For more information on MCI's Managed Email Content Service, visit http://www.mci.com.______________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Hello...and Welcome to the group It is a wonderful group. I have a child who is very young yet, so I have no suggestions...other than to say welcome --- take a look, as there are many here who have walked similar paths...we are all in this together, and while I'm sad that so many of our children are diagnosed with ASD, I'm so very grateful for all the mother's who have walked this path before, and can teach me. Blessings to you... e New to Group Recent Activity 14 New MembersVisit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Achy Joint? Common arthritis myths debunked. Yahoo! Groups Cat Zone Connect w/ others who love cats. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Oh wow! You were in a coma because of strep? I have never had it and my kids and husband don't get it but my best friend who I have known since birth literally gets it all the time and so do her kids!Stacie BAurora ILSent via BlackBerry by AT&TDate: Thu, 18 Sep 2008 09:05:01 -0000To: <AutismBehaviorProblems >Subject: Re: New to Group Hi Kellie,thank you from my heart for sharing your families story. You bring the reality of love,courage and loss to me. My prayers go out to you,family to family. I would like the families to please understand I am only speaking of vaccinations in regards to my own children. 2 of my children had reactions to the shots because of the way their bodies, systems dealt with them. They had all their primary shots wich allowed discovery of their reactions to be verified. They did have the alternative type dose for polio. Their pediatrician advised no further shots,boosters ect. because of fevers and convulsions following mmr/dpt. They did not complete their schedules under the advice of our pediatrician. It does cause me to worry. I had strep at age 14. It traveled into my organs. I was in a coma because of strep. Tishanne - In AutismBehaviorProblems , Kellie Folkerts wrote: > > > Hi , > > I know what I'm about to say isn't going to be popular but I have to say it. I'm not trying to scare anyone or change anyones mind on anything but groups are about sharing your personal experience and I really feel the need to share this with you all. was 2 and we had just started seeing a DAN doctor. My daughter had just been born and he recommended no vaccines for her. We were (and still are) very afraid of having another autistic child so we didn't give her any. When she was 10 months I asked about giving her some on a different schedule(not so many at one time) and he said yes when she was 2 we would start them. On Dec. 8 2003 I put to bed she was fine and the next morning she was gone. She had contracted Strep which turned into meningitis and it went so quickly it only took hours from onset to death. We will always regret not having her vaccinated and we can't take it back. Our daughter Paige was born in > 2005 and we had her vaccinated at a slower rate. I'm really not trying to scare anyone. I just needed to tell you what we have experienced. Kellie > > > > Hi Everyone, > > > > My name is a, I am a 24 year old mother of 4 kids aged 4 > months (boy), 2 years (girl), 4 years (boy with ASD) and 5 years > (girl). My 4 year old son Donovan was diagnosed with Autism when he > was 25 months old. He never really spoke as a baby other than mama > and dada (with no meaning), but he didn't start to lose eye contact > or start stimming until after he had his 12 month and 18 month > vaccinations. I don't fully believe that these shots caused my son's > autism- but I know they played a role is poisoning his system. Since > his diagnosis he has made much less progress than we had hoped. The > most progress he has made is regaining eye contact, bringing things > he wants opened to us, pushing a chair to climb and get something he > wants and sometimes pushing buttons on a communicative device with > pictures to say what he wants every now and then. He is non-verbal > with no real functional communication for daily needs and desires. > We tried ABA , PECS and signing for the first year and he wouldn't > respond. He throws frequent tantrums, often for no apparent reason. > When he gets upset he will sometimes hit at me. Donovan is > affectionate though. He will come to me for hugs and kisses and > likes to be tickled. But sometimes when giving or receiving > affection, he will pinch me or grab and pull my hair all of the > sudden- when he does this, he is still smiling and does not seem to > understand that he is hurting me. I tell him " no " and I think he > understands what no is, but he continues to do this. He has recently > pulled my mom's hair and she was shocked- I never told her that he > pulled my hair because my family is already weary to be around him > because of the behaviors he exhibits. Donovan also stims all the > time. He stims by flicking his spit with his finders in front of his > eyes and especially in streams of indoor and outdoor light. When he > stims he gets so excited that he stands on his toes and you can > almost feel the excitement and energy building up in him and he says > " aaahhhhh " and other vocalizations when stimming. He also gets > " overstimulated when he stims and will go from being excited to > crying really loudly. Donovan also likes to knock things off of > tables, turn cups filled with liquid upside down, and " mess up " > things by moving them back and forth real fast under his hands. He > used to be totally infatuated with strings and would flick them in > front of his face, now he only flicks them in light and doesn't seem > to be obsessed with them anymore (which is great, he used to unbraid > the hair on his older sisters dolls, tear it out and leave it all > over the house and tear up the strings in carpet. > > > > I often think about his future and fear that my family will never > truly be comfortable around him because he requires so much attention > and tends to destroy their houses. I fear that as he gets older > that, since he is so big (he's only 4 taller than my 5 year old and > weights 49 pounds from height and stature, not fat) that his dad and > I won't be able to physically handle him like we can now, especially > during tantrums. > > > > I often hear how autistic kids tend to have an area they excel at > or have high interest in- I have yet to see what that area might be > for Donovan. I hope and pray that he will grow to be accepted by my > family and his peers, communicate with us in some way and stop his > aggressive behaviors. I have also heard that stimming is > neurodegenerative, so when he tries to stim all the time, I keep > thinking that he is ruining his brain or something by doing it. > > > > It is difficult to say the least, raising four kids that already > have health issues like sever eczema and asthma, sleeping issues, > etc. then to worry about Donovan all the time and how his future will > be is enough to really stress me out. On top of everything else, I > go to school full-time, work full-time and never seem to bet sleep. > My children's father is a tremendous help, but both of us are > exhausted and we often get discouraged at the lack of progress for > Donovan. > > > > I do not want to medicate my son. I have read how often these > stimulants and anti-depressants are medicines made for adults, but > given to children in lower doses- with no real un-biased studies of > their efficacy in children. I have also seen first hand how children > who are on medicines as kids, grow up and stop taking their medicine, > and the chemical imbalance is a sort of shock to their system and > they act out violently. And that these acts of violence or rage make > people think that " they need their medicine " when in fact their body > is going through withdrawal. > > > > I want to snap Donovan into our world naturally and soon, with out > causing so much stress on his siblings. (His tantrums make the other > kids cry and get scared>) > > > > I hope someone can relate to my situation and give me some advice > on how to help my son. I would also like to know what services your > children get through the school district and if you get daily living > skills assistance also and if so, how did you get those services. > > > > Thanks for taking the time to read my story. > > > > a Calderon > > > > > > > > > > > > > > > > >__________________________________________________________ > > This e-mail has been scanned by MCI Managed Email Content Service, > using Skeptic technology powered by MessageLabs. For more > information on MCI's Managed Email Content Service, visit http:// > www.mci.com. > > >__________________________________________________________ > > >_________________________________________________________ _____________ > This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs. For more information on MCI's Managed Email Content Service, visit http:// www.mci. com. >_________________________________________________________ _____________ >_________________________________________________________ _____________ > This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs. For more information on MCI's Managed Email Content Service, visit http:// www.mci. com. >_________________________________________________________ _____________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 There are actually a few homeopathic remedies that will knock it out without antibiotics. We stopped using Antibiotics for it after his 2nd round last spring. Our naturopath suggested a homeopathic product called “Angiplex” which you can get at some natural medicine stores and some Super Supp stores. It is a natural anti-bacterial for throat related illnesses…when my kiddo would get a sore throat we give him Angiplex (a sublingual, dissolve in the mouth tasteless tablet) 2x a day for 2 days and the strep was gone. That’s what we use now when we can tell a strep infection is coming on. Works for us, anyway. There are other natural products that will work quickly against bacterial infections, if you are wanting to avoid traditional antibiotics. Dora in WA From: AutismBehaviorProblems [mailto:AutismBehaviorProblems ] On Behalf Of Two Blessings Sent: Thursday, September 18, 2008 9:57 AM To: AutismBehaviorProblems Subject: Re: Re: New to Group That's why anitibiotics are soooooooooo imprtant with strep...step is bacterial, not viral and it does not go away on its own..... e Re: Re: New to Group Recent Activity 16 New Members Visit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Asthma Triggers How you can identify them. Cat Groups on Yahoo! Groups discuss everything related to cats. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Hi, Dora...yes! there are different types. There isn't a vaccination against "strep throat" for sure......NOR should there be, our babies don't need one more The meningitis one for kids is the vaccination I am talking about (I think that's what Kellie was too)...anyhow, yes, thanks for clarifying. Also --- one can still get strep without the tonsils...check that out, because I've always heard that if you are going to get strep it is best on the tonsils (as they are the protector), then the back of throat, etc...strep does not discriminate between tonsils and other parts of the mouth.... Now chronic tonsillitis is another story with regard to having anything removed...I'm rambling and you probably know all this stuff better than I anyway. Have a good, good day! e Re: New to Group Hi Kellie,thank you from my heart for sharing your families story. You bring the reality of love,courage and loss to me. My prayers go out to you,family to family. I would like the families to please understand I am only speaking of vaccinations in regards to my own children. 2 of my children had reactions to the shots because of the way their bodies, systems dealt with them. They had all their primary shots wich allowed discovery of their reactions to be verified. They did have the alternative type dose for polio. Their pediatrician advised no further shots,boosters ect. because of fevers and convulsions following mmr/dpt. They did not complete their schedules under the advice of our pediatrician. It does cause me to worry. I had strep at age 14. It traveled into my organs. I was in a coma because of strep.Tishanne- In AutismBehaviorProbl emsyahoogroups (DOT) com, Kellie Folkerts <kelliefolkerts@ ...> wrote:>> > Hi , > > I know what I'm about to say isn't going to be popular but I have to say it. I'm not trying to scare anyone or change anyones mind on anything but groups are about sharing your personal experience and I really feel the need to share this with you all. was 2 and we had just started seeing a DAN doctor. My daughter had just been born and he recommended no vaccines for her. We were (and still are) very afraid of having another autistic child so we didn't give her any. When she was 10 months I asked about giving her some on a different schedule(not so many at one time) and he said yes when she was 2 we would start them. On Dec. 8 2003 I put to bed she was fine and the next morning she was gone. She had contracted Strep which turned into meningitisand it went so quickly it only took hours from onset to death. We will always regret not having her vaccinated and we can't take it back. Our daughter Paige was born in> 2005 and we had her vaccinated at a slower rate. I'm really not trying to scare anyone. I just needed to tell you what we have experienced. Kellie> >> > Hi Everyone,> > > > My name is a, I am a 24 year old mother of 4 kids aged 4 > months (boy), 2 years (girl), 4 years (boy with ASD) and 5 years > (girl). My 4 year old son Donovan was diagnosed with Autism when he > was 25 months old. He never really spoke as a baby other than mama > and dada (with no meaning), but he didn't start to lose eye contact > or start stimming until after he had his 12 month and 18 month > vaccinations. I don't fully believe that these shots caused my son's > autism- but I know they played a role is poisoning his system. Since > his diagnosis he has made much less progress than we had hoped. The > most progress he has made is regaining eye contact, bringing things > he wants opened to us, pushing a chair to climb and get something he > wants and sometimes pushing buttons on a communicative device with > pictures to say what he wants every now and then. He is non-verbal > with no real functional communication for daily needs and desires. > We tried ABA , PECS and signing for the first year and he wouldn't > respond. He throws frequent tantrums, often for no apparent reason. > When he gets upset he will sometimes hit at me. Donovan is > affectionate though. He will come to me for hugs and kisses and > likes to be tickled. But sometimes when giving or receiving > affection, he will pinch me or grab and pull my hair all of the > sudden- when he does this, he is still smiling and does not seem to > understand that he is hurting me. I tell him "no" and I think he > understands what no is, but he continues to do this. He has recently > pulled my mom's hair and she was shocked- I never told her that he > pulled my hair because my family is already weary to be around him > because of the behaviors he exhibits. Donovan also stims all the > time. He stims by flicking his spit with his finders in front of his > eyes and especially in streams of indoor and outdoor light. When he > stims he gets so excited that he stands on his toes and you can > almost feel the excitement and energy building up in him and he says > "aaahhhhh" and other vocalizations when stimming. He also gets > "overstimulated when he stims and will go from being excited to > crying really loudly. Donovan also likes to knock things off of > tables, turn cups filled with liquid upside down, and "mess up" > things by moving them back and forth real fast under his hands. He > used to be totally infatuated with strings and would flick them in > front of his face, now he only flicks them in light and doesn't seem > to be obsessed with them anymore (which is great, he used to unbraid > the hair on his older sisters dolls, tear it out and leave it all > over the house and tear up the strings in carpet.> > > > I often think about his future and fear that my family will never > truly be comfortable around him because he requires so much attention > and tends to destroy their houses. I fear that as he gets older > that, since he is so big (he's only 4 taller than my 5 year old and > weights 49 pounds from height and stature, not fat) that his dad and > I won't be able to physically handle him like we can now, especially > during tantrums.> > > > I often hear how autistic kids tend to have an area they excel at > or have high interest in- I have yet to see what that area might be > for Donovan. I hope and pray that he will grow to be accepted by my > family and his peers, communicate with us in some way and stop his > aggressive behaviors. I have also heard that stimming is > neurodegenerative, so when he tries to stim all the time, I keep > thinking that he is ruining his brain or something by doing it.> > > > It is difficult to say the least, raising four kids that already > have health issues like sever eczema and asthma, sleeping issues, > etc. then to worry about Donovan all the time and how his future will > be is enough to really stress me out. On top of everything else, I > go to school full-time, work full-time and never seem to bet sleep. > My children's father is a tremendous help, but both of us are > exhausted and we often get discouraged at the lack of progress for > Donovan.> > > > I do not want to medicate my son. I have read how often these > stimulants and anti-depressants are medicines made for adults, but > given to children in lower doses- with no real un-biased studies of > their efficacy in children. I have also seen first hand how children > who are on medicines as kids, grow up and stop taking their medicine, > and the chemical imbalance is a sort of shock to their system and > they act out violently. And that these acts of violence or rage make > people think that "they need their medicine" when in fact their body > is going through withdrawal.> > > > I want to snap Donovan into our world naturally and soon, with out > causing so much stress on his siblings. (His tantrums make the other > kids cry and get scared>)> > > > I hope someone can relate to my situation and give me some advice > on how to help my son. I would also like to know what services your > children get through the school district and if you get daily living > skills assistance also and if so, how did you get those services.> > > > Thanks for taking the time to read my story.> > > > a Calderon> > > > > > > > > > > > > > > > >____________ _________ _________ _________ _________ _________ _> > This e-mail has been scanned by MCI Managed Email Content Service, > using Skeptic technology powered by MessageLabs. For more > information on MCI's Managed Email Content Service, visit http://> www.mci.com.> > >____________ _________ _________ _________ _________ _________ _> >>____________ _________ _________ _________ _________ _________ ____________ _> This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs. For more information on MCI's Managed Email Content Service, visit http://www.mci. com.>____________ _________ _________ _________ _________ _________ ____________ _>____________ _________ _________ _________ _________ _________ ____________ _> This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs.. For more information on MCI's Managed Email Content Service, visit http://www.mci. com.>____________ _________ _________ _________ _________ _________ ____________ _> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 My poor son had to have the intraveniously 4 times a day when he contracted it Re: Re: New to Group Recent Activity 16 New MembersVisit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Asthma Triggers How you can identify them. Cat Groups on Yahoo! Groups discuss everything related to cats. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Hi, Dora...this is another personal decision we each have to make...I choose to do it the old-fashioned way, as strep is something I won't mess with; however, I am a big proponent of doing natural as long as the risk isn't something that concerns me. e Re: Re: New to Group Recent Activity 16 New Members Visit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Asthma Triggers How you can identify them. Cat Groups on Yahoo! Groups discuss everything related to cats. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 God love him!!!! So glad he got what he needed... e Re: Re: New to Group Recent Activity 16 New MembersVisit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Asthma Triggers How you can identify them. Cat Groups on Yahoo! Groups discuss everything related to cats. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Thanks for the info. For us ditching on the table sugar helped. Drinks and food have a way of leaving residue. Drinking water after ice cream,milk has kept us healthy. I have my kids drink a little water before bed. Without that my kids used to get swollen tonsils,colds. Now its pretty rare. All of us have kept our tonsils and it helped my kids not to have bladder trouble,infection from holding or dental problems. Lemon or lime sliced or squeezed in a cup of water is really good for the ph levels and helps that balance in the mouth and throat so it wont grow the nasties. We also use sea salt because the minerals are still available. The bodies ph is so important to health. You can buy a really cool little book and test kit on amazon called " Home test ph kit " Dr.s check ph with cbc blood tests. Its easy to do at home. Tishanne - In AutismBehaviorProblems , Two Blessings wrote: > > Hi, Dora...yes! there are different types. There isn't a vaccination against " strep throat " for sure......NOR should there be, our babies don't need one more The meningitis one for kids is the vaccination I am talking about (I think that's what Kellie was too)...anyhow, yes, thanks for clarifying. > > Also --- one can still get strep without the tonsils...check that out, because I've always heard that if you are going to get strep it is best on the tonsils (as they are the protector), then the back of throat, etc...strep does not discriminate between tonsils and other parts of the mouth.... > > Now chronic tonsillitis is another story with regard to having anything removed...I'm rambling and you probably know all this stuff better than I anyway. > > Have a good, good day! > > e > > > Re: New to Group > Hi Kellie,thank you from my heart for sharing your families story. > You bring the reality of love,courage and loss to me. My prayers go > out to you,family to family. I would like the families to please > understand I am only speaking of vaccinations in regards to my own > children. 2 of my children had reactions to the shots because of the > way their bodies, systems dealt with them. They had all their primary > shots wich allowed discovery of their reactions to be verified. They > did have the alternative type dose for polio. Their pediatrician > advised no further shots,boosters ect. because of fevers and > convulsions following mmr/dpt. They did not complete their schedules > under the advice of our pediatrician. It does cause me to worry. I > had strep at age 14. It traveled into my organs. I was in a coma > because of strep. > > Tishanne > - In AutismBehaviorProbl emsyahoogroups (DOT) com, Kellie Folkerts > <kelliefolkerts@ ...> wrote: > > > > > > Hi , > > > > I know what I'm about to say isn't going to be popular but I have > to say it. I'm not trying to scare anyone or change anyones mind on > anything but groups are about sharing your personal experience and I > really feel the need to share this with you all. was 2 and we > had just started seeing a DAN doctor. My daughter had just > been born and he recommended no vaccines for her. We were (and still > are) very afraid of having another autistic child so we didn't give > her any. When she was 10 months I asked about giving her some on a > different schedule(not so many at one time) and he said yes when she > was 2 we would start them. On Dec. 8 2003 I put to bed she > was fine and the next morning she was gone. She had contracted Strep > which turned into meningitisand it went so quickly it only took > hours from onset to death. We will always regret not having her > vaccinated and we can't take it back. Our daughter Paige was born in > > 2005 and we had her vaccinated at a slower rate. I'm really not > trying to scare anyone. I just needed to tell you what we have > experienced. Kellie > > > > > > Hi Everyone, > > > > > > My name is a, I am a 24 year old mother of 4 kids aged 4 > > months (boy), 2 years (girl), 4 years (boy with ASD) and 5 years > > (girl). My 4 year old son Donovan was diagnosed with Autism when he > > was 25 months old. He never really spoke as a baby other than mama > > and dada (with no meaning), but he didn't start to lose eye contact > > or start stimming until after he had his 12 month and 18 month > > vaccinations. I don't fully believe that these shots caused my > son's > > autism- but I know they played a role is poisoning his system. > Since > > his diagnosis he has made much less progress than we had hoped. The > > most progress he has made is regaining eye contact, bringing things > > he wants opened to us, pushing a chair to climb and get something > he > > wants and sometimes pushing buttons on a communicative device with > > pictures to say what he wants every now and then. He is non- verbal > > with no real functional communication for daily needs and desires. > > We tried ABA , PECS and signing for the first year and he wouldn't > > respond. He throws frequent tantrums, often for no apparent reason. > > When he gets upset he will sometimes hit at me. Donovan is > > affectionate though. He will come to me for hugs and kisses and > > likes to be tickled. But sometimes when giving or receiving > > affection, he will pinch me or grab and pull my hair all of the > > sudden- when he does this, he is still smiling and does not seem to > > understand that he is hurting me. I tell him " no " and I think he > > understands what no is, but he continues to do this. He has > recently > > pulled my mom's hair and she was shocked- I never told her that he > > pulled my hair because my family is already weary to be around him > > because of the behaviors he exhibits. Donovan also stims all the > > time. He stims by flicking his spit with his finders in front of > his > > eyes and especially in streams of indoor and outdoor light. When he > > stims he gets so excited that he stands on his toes and you can > > almost feel the excitement and energy building up in him and he > says > > " aaahhhhh " and other vocalizations when stimming. He also gets > > " overstimulated when he stims and will go from being excited to > > crying really loudly. Donovan also likes to knock things off of > > tables, turn cups filled with liquid upside down, and " mess up " > > things by moving them back and forth real fast under his hands. He > > used to be totally infatuated with strings and would flick them in > > front of his face, now he only flicks them in light and doesn't > seem > > to be obsessed with them anymore (which is great, he used to > unbraid > > the hair on his older sisters dolls, tear it out and leave it all > > over the house and tear up the strings in carpet. > > > > > > I often think about his future and fear that my family will never > > truly be comfortable around him because he requires so much > attention > > and tends to destroy their houses. I fear that as he gets older > > that, since he is so big (he's only 4 taller than my 5 year old and > > weights 49 pounds from height and stature, not fat) that his dad > and > > I won't be able to physically handle him like we can now, > especially > > during tantrums. > > > > > > I often hear how autistic kids tend to have an area they excel at > > or have high interest in- I have yet to see what that area might be > > for Donovan. I hope and pray that he will grow to be accepted by my > > family and his peers, communicate with us in some way and stop his > > aggressive behaviors. I have also heard that stimming is > > neurodegenerative, so when he tries to stim all the time, I keep > > thinking that he is ruining his brain or something by doing it. > > > > > > It is difficult to say the least, raising four kids that already > > have health issues like sever eczema and asthma, sleeping issues, > > etc. then to worry about Donovan all the time and how his future > will > > be is enough to really stress me out. On top of everything else, I > > go to school full-time, work full-time and never seem to bet sleep. > > My children's father is a tremendous help, but both of us are > > exhausted and we often get discouraged at the lack of progress for > > Donovan. > > > > > > I do not want to medicate my son. I have read how often these > > stimulants and anti-depressants are medicines made for adults, but > > given to children in lower doses- with no real un-biased studies of > > their efficacy in children. I have also seen first hand how > children > > who are on medicines as kids, grow up and stop taking their > medicine, > > and the chemical imbalance is a sort of shock to their system and > > they act out violently. And that these acts of violence or rage > make > > people think that " they need their medicine " when in fact their > body > > is going through withdrawal. > > > > > > I want to snap Donovan into our world naturally and soon, with > out > > causing so much stress on his siblings. (His tantrums make the > other > > kids cry and get scared>) > > > > > > I hope someone can relate to my situation and give me some advice > > on how to help my son. I would also like to know what services your > > children get through the school district and if you get daily > living > > skills assistance also and if so, how did you get those services. > > > > > > Thanks for taking the time to read my story. > > > > > > a Calderon > > > > > > > > > > > > > > > > > > > > > > > > > >____________ _________ _________ _________ _________ _________ _ > > > This e-mail has been scanned by MCI Managed Email Content > Service, > > using Skeptic technology powered by MessageLabs. For more > > information on MCI's Managed Email Content Service, visit http:// > > www.mci.com. > > > > >____________ _________ _________ _________ _________ _________ _ > > > > >____________ _________ _________ _________ _________ _________ > ____________ _ > > This e-mail has been scanned by MCI Managed Email Content Service, > using Skeptic technology powered by MessageLabs. For more > information on MCI's Managed Email Content Service, visit http:// > www.mci. com. > >____________ _________ _________ _________ _________ _________ > ____________ _ > >____________ _________ _________ _________ _________ _________ > ____________ _ > > This e-mail has been scanned by MCI Managed Email Content Service, > using Skeptic technology powered by MessageLabs. For more > information on MCI's Managed Email Content Service, visit http:// > www.mci. com. > >____________ _________ _________ _________ _________ _________ > ____________ _ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Hi a,thanks for asking. My children are functioning very well in so many things. They still have their autistic traits and behaviors but they are taking steps towards getting out on their own in the world. Driving,having a relationship,bith control and shopping along with job searching have taken center stage. They are coming to terms with their own realities and limits within their circumstances. I have the try it attitude. They are very easily discouraged in their limits self imposed or otherwise. I am mom on the sly giving them the support and info they need to succeed and the buffer if they need more time to achieve a goal. I feel its their choice to inform or not inform others about their autism. There will always be areas in life that we all could use a little help. We all have challenges of some type. They have learned the basics needed to make it on their own. I am so happy for them. It wasnt so many years ago that I was given bleak outcomes. I never resigned my hope and patience and I persisted. They have a spark that misfires. They have a unique way of living without all the sentiment and clock confinement that describe the general population. They are eternally immature. They communicate,it just differant. They are a curious mixture of all people and places from every walk of life. They support and defy autism. They need their space and society. They have learned the basic living skills. They still take things literally. They still have social problems and strange behaviors. They kind of fit our life into themselves a little at a time. I think they are more of the self discovery types and I always need to look at each day as a new day. Sometimes every moment. I can see what they gain and never know how they think or feel about what I know they have missed. Its always a learning experience for me. Hope you find all the patience and hidden treasures. They will help you get through the many hard times we are still sharing and learning about daily. There is so much to learn. Its really hard to keep your composure when meltdown and reversals take a toll on your heart and nerves. I am happy to share this part of life and friendship through all the helping, understanding families. Its such a comfort not to go it alone. Best wishes, Tishanne - In AutismBehaviorProblems , a Calderon wrote: > > Hi Tishanne, > > I'm curiouis to know how your children are functioning, especially since they are much older than mine. Like I said before I often wonder and worry about the future. I would als like to get more information on vaccinating on an alternative schedule for my 4 month and two year old. If you know where I should look, please tell me. My two year old has only had one " thimersol-free " vaccine. But we go from doctor to doctor because I cannot find anyone to support my beliefs and be a partner to help my kids- just criticism and usually " the American academy of pediatrics " says spiels with each new PCP visit. > > a > > ________________________________ > From: AutismBehaviorProblems [mailto:AutismBehaviorProblems ] On Behalf Of tishannepatterson > Sent: Wednesday, September 17, 2008 1:28 AM > To: AutismBehaviorProblems > Subject: Re: New to Group > > > Hi a, Im happy you joined this group. 3 of my 8 children are > autistic. A 20yr daughter,16yr son,10yr son. My 20yr lost her speech > and quit eye contact around 1yr. She always had trouble with > vaccinations. She had high fevers after and got very sick. Finally > her pediatrician had to give her doses of human gamma globulin to aid > or counter act her immuno deficiancy following vaccinations. I quit > the vaccination schedule,exempted- under advice of our Dr. My 16yr > son had a similar experience with vaccinations and had high fevers > with convulsions. I believe vaccinations played a significant part in > their autism. My 10yr son is a twin, was a preemie with a birth > weight under 2lbs. I really relate to you and share your concerns > about our children,their developement and our families relationships > and interactions when our children are autistic. Thanks for sharing > your lives. Sending you the warmth of understanding, > Tishanne > -- In AutismBehaviorProblems <mailto:AutismBehaviorProblems%40yahoogrou\ ps.com>, a Calderon > <lcalderon@> wrote: > > > > Hi Everyone, > > > > My name is a, I am a 24 year old mother of 4 kids aged 4 > months (boy), 2 years (girl), 4 years (boy with ASD) and 5 years > (girl). My 4 year old son Donovan was diagnosed with Autism when he > was 25 months old. He never really spoke as a baby other than mama > and dada (with no meaning), but he didn't start to lose eye contact > or start stimming until after he had his 12 month and 18 month > vaccinations. I don't fully believe that these shots caused my son's > autism- but I know they played a role is poisoning his system. Since > his diagnosis he has made much less progress than we had hoped. The > most progress he has made is regaining eye contact, bringing things > he wants opened to us, pushing a chair to climb and get something he > wants and sometimes pushing buttons on a communicative device with > pictures to say what he wants every now and then. He is non-verbal > with no real functional communication for daily needs and desires. > We tried ABA, PECS and signing for the first year and he wouldn't > respond. He throws frequent tantrums, often for no apparent reason. > When he gets upset he will sometimes hit at me. Donovan is > affectionate though. He will come to me for hugs and kisses and > likes to be tickled. But sometimes when giving or receiving > affection, he will pinch me or grab and pull my hair all of the > sudden- when he does this, he is still smiling and does not seem to > understand that he is hurting me. I tell him " no " and I think he > understands what no is, but he continues to do this. He has recently > pulled my mom's hair and she was shocked- I never told her that he > pulled my hair because my family is already weary to be around him > because of the behaviors he exhibits. Donovan also stims all the > time. He stims by flicking his spit with his finders in front of his > eyes and especially in streams of indoor and outdoor light. When he > stims he gets so excited that he stands on his toes and you can > almost feel the excitement and energy building up in him and he says > " aaahhhhh " and other vocalizations when stimming. He also gets > " overstimulated when he stims and will go from being excited to > crying really loudly. Donovan also likes to knock things off of > tables, turn cups filled with liquid upside down, and " mess up " > things by moving them back and forth real fast under his hands. He > used to be totally infatuated with strings and would flick them in > front of his face, now he only flicks them in light and doesn't seem > to be obsessed with them anymore (which is great, he used to unbraid > the hair on his older sisters dolls, tear it out and leave it all > over the house and tear up the strings in carpet. > > > > I often think about his future and fear that my family will never > truly be comfortable around him because he requires so much attention > and tends to destroy their houses. I fear that as he gets older > that, since he is so big (he's only 4 taller than my 5 year old and > weights 49 pounds from height and stature, not fat) that his dad and > I won't be able to physically handle him like we can now, especially > during tantrums. > > > > I often hear how autistic kids tend to have an area they excel at > or have high interest in- I have yet to see what that area might be > for Donovan. I hope and pray that he will grow to be accepted by my > family and his peers, communicate with us in some way and stop his > aggressive behaviors. I have also heard that stimming is > neurodegenerative, so when he tries to stim all the time, I keep > thinking that he is ruining his brain or something by doing it. > > > > It is difficult to say the least, raising four kids that already > have health issues like sever eczema and asthma, sleeping issues, > etc. then to worry about Donovan all the time and how his future will > be is enough to really stress me out. On top of everything else, I > go to school full-time, work full-time and never seem to bet sleep. > My children's father is a tremendous help, but both of us are > exhausted and we often get discouraged at the lack of progress for > Donovan. > > > > I do not want to medicate my son. I have read how often these > stimulants and anti-depressants are medicines made for adults, but > given to children in lower doses- with no real un-biased studies of > their efficacy in children. I have also seen first hand how children > who are on medicines as kids, grow up and stop taking their medicine, > and the chemical imbalance is a sort of shock to their system and > they act out violently. And that these acts of violence or rage make > people think that " they need their medicine " when in fact their body > is going through withdrawal. > > > > I want to snap Donovan into our world naturally and soon, with out > causing so much stress on his siblings. (His tantrums make the other > kids cry and get scared>) > > > > I hope someone can relate to my situation and give me some advice > on how to help my son. I would also like to know what services your > children get through the school district and if you get daily living > skills assistance also and if so, how did you get those services. > > > > Thanks for taking the time to read my story. > > > > a Calderon > > > > > > > > > > > > > > > > > __________________________________________________________ > > This e-mail has been scanned by MCI Managed Email Content Service, > using Skeptic technology powered by MessageLabs. For more > information on MCI's Managed Email Content Service, visit http:// > www.mci.com. > > > __________________________________________________________ > > > > ______________________________________________________________________ > This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs. For more information on MCI's Managed Email Content Service, visit http:// www.mci.com. > ______________________________________________________________________ > > ______________________________________________________________________ > This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs. For more information on MCI's Managed Email Content Service, visit http:// www.mci.com. > ______________________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 On vaccinations I would seek all the medical opinions and support you can. Ask every clinic,Dr. ect. and keep asking. I would also be very informed of all the information there is about safety issues without vaccinations. Make lots of calls to clinics and Dr.s for medical advice on vaccinations. Some Church social services may have info on the non-vaccination stance. State your concerns and needs,keep asking. Be safe and informed of all your options. Best wishes, Tishanne -- In AutismBehaviorProblems , a Calderon wrote: > > Hi Tishanne, > > I'm curiouis to know how your children are functioning, especially since they are much older than mine. Like I said before I often wonder and worry about the future. I would als like to get more information on vaccinating on an alternative schedule for my 4 month and two year old. If you know where I should look, please tell me. My two year old has only had one " thimersol-free " vaccine. But we go from doctor to doctor because I cannot find anyone to support my beliefs and be a partner to help my kids- just criticism and usually " the American academy of pediatrics " says spiels with each new PCP visit. > > a > > ________________________________ > From: AutismBehaviorProblems [mailto:AutismBehaviorProblems ] On Behalf Of tishannepatterson > Sent: Wednesday, September 17, 2008 1:28 AM > To: AutismBehaviorProblems > Subject: Re: New to Group > > > Hi a, Im happy you joined this group. 3 of my 8 children are > autistic. A 20yr daughter,16yr son,10yr son. My 20yr lost her speech > and quit eye contact around 1yr. She always had trouble with > vaccinations. She had high fevers after and got very sick. Finally > her pediatrician had to give her doses of human gamma globulin to aid > or counter act her immuno deficiancy following vaccinations. I quit > the vaccination schedule,exempted- under advice of our Dr. My 16yr > son had a similar experience with vaccinations and had high fevers > with convulsions. I believe vaccinations played a significant part in > their autism. My 10yr son is a twin, was a preemie with a birth > weight under 2lbs. I really relate to you and share your concerns > about our children,their developement and our families relationships > and interactions when our children are autistic. Thanks for sharing > your lives. Sending you the warmth of understanding, > Tishanne > -- In AutismBehaviorProblems <mailto:AutismBehaviorProblems%40yahoogrou\ ps.com>, a Calderon > <lcalderon@> wrote: > > > > Hi Everyone, > > > > My name is a, I am a 24 year old mother of 4 kids aged 4 > months (boy), 2 years (girl), 4 years (boy with ASD) and 5 years > (girl). My 4 year old son Donovan was diagnosed with Autism when he > was 25 months old. He never really spoke as a baby other than mama > and dada (with no meaning), but he didn't start to lose eye contact > or start stimming until after he had his 12 month and 18 month > vaccinations. I don't fully believe that these shots caused my son's > autism- but I know they played a role is poisoning his system. Since > his diagnosis he has made much less progress than we had hoped. The > most progress he has made is regaining eye contact, bringing things > he wants opened to us, pushing a chair to climb and get something he > wants and sometimes pushing buttons on a communicative device with > pictures to say what he wants every now and then. He is non-verbal > with no real functional communication for daily needs and desires. > We tried ABA, PECS and signing for the first year and he wouldn't > respond. He throws frequent tantrums, often for no apparent reason. > When he gets upset he will sometimes hit at me. Donovan is > affectionate though. He will come to me for hugs and kisses and > likes to be tickled. But sometimes when giving or receiving > affection, he will pinch me or grab and pull my hair all of the > sudden- when he does this, he is still smiling and does not seem to > understand that he is hurting me. I tell him " no " and I think he > understands what no is, but he continues to do this. He has recently > pulled my mom's hair and she was shocked- I never told her that he > pulled my hair because my family is already weary to be around him > because of the behaviors he exhibits. Donovan also stims all the > time. He stims by flicking his spit with his finders in front of his > eyes and especially in streams of indoor and outdoor light. When he > stims he gets so excited that he stands on his toes and you can > almost feel the excitement and energy building up in him and he says > " aaahhhhh " and other vocalizations when stimming. He also gets > " overstimulated when he stims and will go from being excited to > crying really loudly. Donovan also likes to knock things off of > tables, turn cups filled with liquid upside down, and " mess up " > things by moving them back and forth real fast under his hands. He > used to be totally infatuated with strings and would flick them in > front of his face, now he only flicks them in light and doesn't seem > to be obsessed with them anymore (which is great, he used to unbraid > the hair on his older sisters dolls, tear it out and leave it all > over the house and tear up the strings in carpet. > > > > I often think about his future and fear that my family will never > truly be comfortable around him because he requires so much attention > and tends to destroy their houses. I fear that as he gets older > that, since he is so big (he's only 4 taller than my 5 year old and > weights 49 pounds from height and stature, not fat) that his dad and > I won't be able to physically handle him like we can now, especially > during tantrums. > > > > I often hear how autistic kids tend to have an area they excel at > or have high interest in- I have yet to see what that area might be > for Donovan. I hope and pray that he will grow to be accepted by my > family and his peers, communicate with us in some way and stop his > aggressive behaviors. I have also heard that stimming is > neurodegenerative, so when he tries to stim all the time, I keep > thinking that he is ruining his brain or something by doing it. > > > > It is difficult to say the least, raising four kids that already > have health issues like sever eczema and asthma, sleeping issues, > etc. then to worry about Donovan all the time and how his future will > be is enough to really stress me out. On top of everything else, I > go to school full-time, work full-time and never seem to bet sleep. > My children's father is a tremendous help, but both of us are > exhausted and we often get discouraged at the lack of progress for > Donovan. > > > > I do not want to medicate my son. I have read how often these > stimulants and anti-depressants are medicines made for adults, but > given to children in lower doses- with no real un-biased studies of > their efficacy in children. I have also seen first hand how children > who are on medicines as kids, grow up and stop taking their medicine, > and the chemical imbalance is a sort of shock to their system and > they act out violently. And that these acts of violence or rage make > people think that " they need their medicine " when in fact their body > is going through withdrawal. > > > > I want to snap Donovan into our world naturally and soon, with out > causing so much stress on his siblings. (His tantrums make the other > kids cry and get scared>) > > > > I hope someone can relate to my situation and give me some advice > on how to help my son. I would also like to know what services your > children get through the school district and if you get daily living > skills assistance also and if so, how did you get those services. > > > > Thanks for taking the time to read my story. > > > > a Calderon > > > > > > > > > > > > > > > > > __________________________________________________________ > > This e-mail has been scanned by MCI Managed Email Content Service, > using Skeptic technology powered by MessageLabs. For more > information on MCI's Managed Email Content Service, visit http:// > www.mci.com. > > > __________________________________________________________ > > > > ______________________________________________________________________ > This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs. For more information on MCI's Managed Email Content Service, visit http:// www.mci.com. > ______________________________________________________________________ > > ______________________________________________________________________ > This e-mail has been scanned by MCI Managed Email Content Service, using Skeptic technology powered by MessageLabs. For more information on MCI's Managed Email Content Service, visit http:// www.mci.com. > ______________________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Good advice Tishanne! Re: New to Group .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 My son is 9 years old, was diagnosed at age three. He has moderate to severe autism, limited verbal. I am reaching out to the group for suggestions on his aggressive behavior biting, scratching, hitting, etc.) that started about 1 year ago with ups and downs. He has been in a SDC for children w/ autism since age 3. He has done 2 behavior mod. programs, and currently in ABA. Not on any meds. I work and think following a GFCF diet would be too hard. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 Hi,welcome! I really feel for you and your son. We have gone through the same kind of year. Were there any changes in your lives around last year when his aggression began? You might find a clue looking back. Recent changes at home,school,diet or meds may be a factor also. I would chart his behaviors for a few days and find the biggest culprits. Usually its to much stimulation,sensory type problems and lack of typical communication. If his attention span has changed or there are interuptions in his attention sometimes it becomes the precursor of aggressive actions. My son is 10 and just went through a similar year of building aggression. Pre puberty,puberty changes seem to cause some kids to be more outwardly aggressive. Are you using medications? With my son I had to literally take all his interactions down to a 25 minute limit every 1-2 hrs. If I or anyone pushes beyond that time frame or keep him engaged my son has meltdowns,aggression more then calm times. It was easier for me to realize the causes by keeping a behavior log,chart. I was able to isolate the activity and relation to his behaviors and modify his/our routine. My son needs lots of down time,low key time even with activities he enjoys. Re organizing, time limits and scheduling his/our day has made a huge differance in my son and the meltdowns,aggression have decreased so much we can enjoy our time together. Its so hard when they communicate their needs with aggressive reactions,I understand how stressful this is. Some medications,diets have helped kids with their tolerance levels so they can cope better instead of aggressively. Best wishes to you and your son, Tishanne > > My son is 9 years old, was diagnosed at age three. He has moderate to > severe autism, limited verbal. I am reaching out to the group for > suggestions on his aggressive behavior biting, scratching, hitting, > etc.) that started about 1 year ago with ups and downs. He has been in > a SDC for children w/ autism since age 3. He has done 2 behavior mod. > programs, and currently in ABA. Not on any meds. I work and think > following a GFCF diet would be too hard. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Welcome to the group, I highly recommend checking out the generationrescue.org site. ABA is a key tool, recommend the book "Children w/Starving Brains by Jaquelyn McCandless, M.D." starting a diet, go to a DAN Conference if you can. Make an appointment w/a well known DAN Dr. YODA Subject: New to groupTo: AutismBehaviorProblems Date: Tuesday, October 21, 2008, 10:55 AM My son is 9 years old, was diagnosed at age three. He has moderate to severe autism, limited verbal. I am reaching out to the group for suggestions on his aggressive behavior biting, scratching, hitting, etc.) that started about 1 year ago with ups and downs. He has been in a SDC for children w/ autism since age 3. He has done 2 behavior mod. programs, and currently in ABA. Not on any meds. I work and think following a GFCF diet would be too hard. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Welcome to the group jenni i know you will like it. we have a great group of parents who are very caring and understanding. My name is Lesley and my son is 6 yrs old with classic Autism. he has a lot of the same behaviors your son has. Again welcome to the group. Lesley To: AutismBehaviorProblems Sent: Wednesday, 7 January, 2009 7:32:02 PMSubject: new to group I'm new to the group.My 8 year old son,Jonathon, has had behavioral and language problems since around 19 months old.He bangs his head,sef injures,hits, kicks,bites, and has many tantrums a day. I tried speaking to his pediatrician for years that I thought something was wrong with him.He sent him to a psychiatrist where he was treated for ADHD and Bi-polar for the last 5 years.Nothing worked.Recently a new psychiatrist did some testing with him.She stated he is autistic and has referred him to a developemental pediatrician. I question why it would take so long to figure this out and worry about the outcome for my son.He is in an EBD (emotionally and behaviorally disturbed) classroom at school.There are 7 kids to 1 teacher and 1 aid.He is not doing well academically but the switch to this classroom has helped his behaviors.He receives ST,OT, and PT.The doctors said his IQ is in the mentally retarded range but her and I both agree thats not accurate (it's just impossable to get the testing completed by him).Words of advice and wisdom would be appreciated.Jenni Stay connected to the people that matter most with a smarter inbox. Take a look. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Hi, Jenni~ Welcome to the group. You will find what you need hear...Mine is too young yet to offer any advice...but I just wanted to chime and and say, " welcome glad you are here. " e Quote Link to comment Share on other sites More sharing options...
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