Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Elaine, How old is your daughter? Joan SSI and medicaid Now you are making me really wonder. got kicked off of SSI because I could have sold some stock and would have gone over the 2,000 thingy. Thing is I didn't and get a measly 1.60 a quarter from it. Now one person at SS office says dumb you didn't sell, the other says but you could have. Ugh! Anyway, they are helping me get on medicaid without the SSI and here in Pa they are acting like it is no big deal! Of course, why am I blindly trusting them? LOL! Besides, they can't count your home , and have to exclude one vehicle. I guess the money is a problem a month. Elaine because we own our home, hubby makes 50,000 a year and we have stuff to play with- old used stuff, but stuff none the less. I know all about the waivers, my daughters DDS case worker says there isn't one, never heard of it. I've heard a local medical university/hospital has them available for parents to apply to have services covered...I don't really know what the deal is here in Oregon. Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Okay, out of my league. My daughter just started receiving ssi when she turned 18 here in Jersey. Once the child is legally an adult, the rules change. Sorry I couldn't be of assistance. Joan SSI and medicaid Now you are making me really wonder. got kicked off of SSI because I could have sold some stock and would have gone over the 2,000 thingy. Thing is I didn't and get a measly 1.60 a quarter from it. Now one person at SS office says dumb you didn't sell, the other says but you could have. Ugh! Anyway, they are helping me get on medicaid without the SSI and here in Pa they are acting like it is no big deal! Of course, why am I blindly trusting them? LOL! Besides, they can't count your home , and have to exclude one vehicle. I guess the money is a problem a month. Elaine because we own our home, hubby makes 50,000 a year and we have stuff to play with- old used stuff, but stuff none the less. I know all about the waivers, my daughters DDS case worker says there isn't one, never heard of it. I've heard a local medical university/hospital has them available for parents to apply to have services covered...I don't really know what the deal is here in Oregon. Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 No, not really in a bad way. It's just that when she turns 18, they can't count anything that her parents have as her assets. So the way that her stipend or payment is calculated changes totally based on her income and ability to support herself. So it's wise not to put any money or assets in her name at all, even when she is a child, so that they won't count those funds against her when she becomes an adult. You can appeal the decision. They may not tell you that. YOu may have to ask about the procedure. Good luck! Joan Re: SSI and medicaid Oh that is really nice to know...sarcasm...:>) JUst when I learn the system then I start all over. Anything to keep you off balance I guess! ElaineF legally an adult, the rules change. Elaine, How old is your daughter? Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 She's 9. Elaine Elaine, How old is your daughter? Joan SSI and medicaid Now you are making me really wonder. got kicked off of SSI because I could have sold some stock and would have gone over the 2,000 thingy. Thing is I didn't and get a measly 1.60 a quarter from it. Now one person at SS office says dumb you didn't sell, the other says but you could have. Ugh! Anyway, they are helping me get on medicaid without the SSI and here in Pa they are acting like it is no big deal! Of course, why am I blindly trusting them? LOL! Besides, they can't count your home , and have to exclude one vehicle. I guess the money is a problem a month. Elaine because we own our home, hubby makes 50,000 a year and we have stuff to play with- old used stuff, but stuff none the less. I know all about the waivers, my daughters DDS case worker says there isn't one, never heard of it. I've heard a local medical university/hospital has them available for parents to apply to have services covered...I don't really know what the deal is here in Oregon. Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Oh that is really nice to know...sarcasm...:>) JUst when I learn the system then I start all over. Anything to keep you off balance I guess! ElaineF legally an adult, the rules change. Elaine, How old is your daughter? Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Okay, I see! Thanks! See, you were some help!<grin> ElaineF No, not really in a bad way. It's just that when she turns 18, they can't count anything that her parents have as her assets. So the way that her stipend or payment is calculated changes totally based on her income and ability to support herself. So it's wise not to put any money or assets in her name at all, even when she is a child, so that they won't count those Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Dear Elaine, I live in Pa and my daughter receives medical assistance through a loophole in the system that DOES NOT count the income of parents. Even though we have insurance through my husband's work, is also covered for everything through her medical assistance...now called Keystone Mercy. SSI and medicaid > Now you are making me really wonder. got kicked off of SSI because I could have sold some stock and would have gone over the 2,000 thingy. Thing is I didn't and get a measly 1.60 a quarter from it. Now one person at SS office says dumb you didn't sell, the other says but you could have. Ugh! Anyway, they are helping me get on medicaid without the SSI and here in Pa they are acting like it is no big deal! Of course, why am I blindly trusting them? LOL! Besides, they can't count your home , and have to exclude one vehicle. I guess the money is a problem a month. > > Elaine > because we own our home, hubby makes 50,000 a year and we have stuff to play > with- old used stuff, but stuff none the less. I know all about the waivers, > my daughters DDS case worker says there isn't one, never heard of it. I've > heard a local medical university/hospital has them available for parents to > apply to have services covered...I don't really know what the deal is here in > Oregon. Deanna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 People here with special needs children are forced to do things that normally they wouldnt just to get medical care. For example two school teachers private insurance infant needed heart surgery. There private insurance refused and the baby died but if they were on medicaid they would of gotten it. My experience my first private insurance wouldnt give speech therapy and the schools here didnt either LOL. My second insurance gives only 20 a year so I was lucky to get into a program called scotish rites! Now if I were on medciaid here I could get speech therapy as much as twice a week! I have been told that I had them (son and daughter with autism) I take care of him as I chose to have them. My response thats fine but why should I pay for welfare then they chose to be poor not me! Then the fight is on. The whole thing is I cant change things. I either learn to live with it or leave! I have noticed the east coast is much different. We lived in NJ for 3 years military and didnt have to worry about speech therapy because the schools took care of things. I am so glad that is taken care of in that matter. That is one less stress you have to deal with. Charlene -- Re: SSI and medicaid Dear Elaine, I live in Pa and my daughter receives medical assistance through a loophole in the system that DOES NOT count the income of parents. Even though we have insurance through my husband's work, is also covered for everything through her medical assistance...now called Keystone Mercy. SSI and medicaid > Now you are making me really wonder. got kicked off of SSI because I could have sold some stock and would have gone over the 2,000 thingy. Thing is I didn't and get a measly 1.60 a quarter from it. Now one person at SS office says dumb you didn't sell, the other says but you could have. Ugh! Anyway, they are helping me get on medicaid without the SSI and here in Pa they are acting like it is no big deal! Of course, why am I blindly trusting them? LOL! Besides, they can't count your home , and have to exclude one vehicle. I guess the money is a problem a month. > > Elaine > because we own our home, hubby makes 50,000 a year and we have stuff to play > with- old used stuff, but stuff none the less. I know all about the waivers, > my daughters DDS case worker says there isn't one, never heard of it. I've > heard a local medical university/hospital has them available for parents to > apply to have services covered...I don't really know what the deal is here in > Oregon. Deanna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Glad to see a discussion about social security. My son is 14, I recently called our State offices about supplemental medicaid for him, to see if he would qualify. I have health insurance through my job, but the Lord knows we are still aquiring pretty heavty medical bills. They instructed me that I would have to apply for disability for Austin through Social Security before I could apply for supplemental medicaid. I'm not real sure how the whole process works, and am assuring myself that he will be denied social security, but am afraid that being denied for that will set up denial for any additional help. I don't even know if with my income Austin will qualify for medicaid. Any advice? M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 M, Yes, you can apply for your son through the SSI process. Take this link to learn about the process, rules, terms etc. http://www.ssa.gov/notices/supplemental-security-income/text-apply- ussi.htm But first read through this information about SSI http://www.ssa.gov/notices/supplemental-security-income/ The information at this link is about Medicaid http://www.ssa.gov/disabilityresearch/wi/medicaid.htm ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 susan sorensen wrote: > Is this something ACCESS > would know about? > I would think ACCESS would be your best option for these types of questions. Their number is 206-340-4505. I hope they are able to help. In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Thanks . Yes, it was your conversation that I'm remembering about SSI, but I also thought someone else here had mentioned getting retro SSI for their child retro from birth? Maybe I'm mistaken. We don't have any high risk insurance pool in Hawaii unfortunately, but I've downloaded the Med-Quest applications and am waiting for a call back from the disability rights association. There are 2 nearly identical sets of forms and not sure which I should use. Hope I get a return call soon, so I can get some guidance. Thanks again, Re: SSI and Medicaid ---Retroactive benefits would be, say, if you applied and were denied, then applied again and were accepted, you would then recieve whatever that child SHOULD have gotten, had he been accepted the first time. I think it was me you are remembering,I said I applied, was denied, twice, then I applied for an appeals hearing, which was before a judge. Because my boys were then accepted, We received the backpay from the first time I applied. Which was nearly three yrs back. I know that in MI, if you are over 18 but have a medical/mental condition that renders you unable to care for yourself, you can sometimes be approved for a branch of state ins that only deals with sick kids. I wonder if you have that option? If not, it would seem like your son would be eligible for, and receive Medicaid even after turning 18. I know adults who get SSI, and with it comes straight Medicaid. good luck, valarie In , " susan sorensen " <sorensens004@...> wrote: > > *****I tried sending this to the group on Sunday but never saw it appear in my mailbox, so I'm trying again. I'd really like to find out more....since writing the origianl message, I've left a message at our Disability Rights Org, but have gotten no reposnse yet. Looking for any suggestions******** > > > > I'm following this thread with great interest! Perhaps I missed part of the discussion, but I don't understand the retroactive SSI. I'd like to find out if it's something that my kids might benefit from. > > I tried applying for SSI benefits for my oldest son with Down Syndrome when he was an infant in 1990, but because we owned a townhouse we didn't qualify. The property was sold at a loss in 2000 or 2001 (I forget exactly) and I never tried again until my sister encouraged me to try again after my divorce in 2004. I requested and received full legal and physical custody of the children. > > My daughter was diagnosed with severe apraxia, langauge delays, fibromalgia, PID, etc. In 2005 both children began to receive SSI assistance. My kids are now 18 and 16. Since SSI is income and disability based, would there be any way that retroactive funds could be sought in a situation like this? Would you need to provide back years of income taxes? (That might be a problem since my ex-husband was in charge of and secretive with finances and simply stopped filling in 1995....ugh) Did anyone go through their local disability rights organization for help sorting it out? Who else could help guide me through it? Someone mentioned a judge...does it have to go through the court system to determine retroactive SSI? Is this something ACCESS would know about? > > I am just now also in the beginning stages of trying to understand Medicaid. My son is currently under my private health insurance, but when he turns 19, he will be off the policy. Because he has DS and was a cardiac kid, he is high risk and I'll never find a carrier to take him. This thread is making me wonder if when I apply for Medicaid him, if I should also apply for my daughter as well. Are there Medicaid policies that govern IVIG? > > Sorry for so many questions, but if there's financial or medical assistance that we've not taken advantage of, I'd sure love to know about it. My daughter was incredibly sick for 5 years and has a tremendous amount to catch up on. There are not just medical costs, but therapy and educational interventions that I can't afford to provide for her. I'd appreciate any advice. > > Thank you, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2007 Report Share Posted October 19, 2007 Hi , It was me. The judge in my sons case said that he is disabled retro to birth but I am being told by the worker that it is only from the time we applied. So I guess ther is no such thing as retro. It is good news but very little will probably come of it. Because I am on SSDI based on my work as a nurse. I make less than $2000 with payments for both of my children. But if it is too much for SSI in OKlahoma ( the limits are very very low then he will not be eligible for anything (other programs) He has a very high IQ so it takes away a lot of programs). It is amazing how different it is from state to state. We had tremendous state support in WA but the cost of living is higher. Here the cost of living is lower but absolutely no support. Overall it is amazing how you cannot win for losing. If he is eligible for just one dollar then he will be able to get several other programs. If not then there will be nothing more than what we get now. I think what I have figured out is that it even out wherever you live. ( I lived in Hawaii for 11 years and made it fine there) BARBIE susan sorensen <sorensens004@...> wrote: Thanks . Yes, it was your conversation that I'm remembering about SSI, but I also thought someone else here had mentioned getting retro SSI for their child retro from birth? Maybe I'm mistaken. We don't have any high risk insurance pool in Hawaii unfortunately, but I've downloaded the Med-Quest applications and am waiting for a call back from the disability rights association. There are 2 nearly identical sets of forms and not sure which I should use. Hope I get a return call soon, so I can get some guidance. Thanks again, Re: SSI and Medicaid ---Retroactive benefits would be, say, if you applied and were denied, then applied again and were accepted, you would then recieve whatever that child SHOULD have gotten, had he been accepted the first time. I think it was me you are remembering,I said I applied, was denied, twice, then I applied for an appeals hearing, which was before a judge. Because my boys were then accepted, We received the backpay from the first time I applied. Which was nearly three yrs back. I know that in MI, if you are over 18 but have a medical/mental condition that renders you unable to care for yourself, you can sometimes be approved for a branch of state ins that only deals with sick kids. I wonder if you have that option? If not, it would seem like your son would be eligible for, and receive Medicaid even after turning 18. I know adults who get SSI, and with it comes straight Medicaid. good luck, valarie In , " susan sorensen " <sorensens004@...> wrote: > > *****I tried sending this to the group on Sunday but never saw it appear in my mailbox, so I'm trying again. I'd really like to find out more....since writing the origianl message, I've left a message at our Disability Rights Org, but have gotten no reposnse yet. Looking for any suggestions******** > > > > I'm following this thread with great interest! Perhaps I missed part of the discussion, but I don't understand the retroactive SSI. I'd like to find out if it's something that my kids might benefit from. > > I tried applying for SSI benefits for my oldest son with Down Syndrome when he was an infant in 1990, but because we owned a townhouse we didn't qualify. The property was sold at a loss in 2000 or 2001 (I forget exactly) and I never tried again until my sister encouraged me to try again after my divorce in 2004. I requested and received full legal and physical custody of the children. > > My daughter was diagnosed with severe apraxia, langauge delays, fibromalgia, PID, etc. In 2005 both children began to receive SSI assistance. My kids are now 18 and 16. Since SSI is income and disability based, would there be any way that retroactive funds could be sought in a situation like this? Would you need to provide back years of income taxes? (That might be a problem since my ex-husband was in charge of and secretive with finances and simply stopped filling in 1995....ugh) Did anyone go through their local disability rights organization for help sorting it out? Who else could help guide me through it? Someone mentioned a judge...does it have to go through the court system to determine retroactive SSI? Is this something ACCESS would know about? > > I am just now also in the beginning stages of trying to understand Medicaid. My son is currently under my private health insurance, but when he turns 19, he will be off the policy. Because he has DS and was a cardiac kid, he is high risk and I'll never find a carrier to take him. This thread is making me wonder if when I apply for Medicaid him, if I should also apply for my daughter as well. Are there Medicaid policies that govern IVIG? > > Sorry for so many questions, but if there's financial or medical assistance that we've not taken advantage of, I'd sure love to know about it. My daughter was incredibly sick for 5 years and has a tremendous amount to catch up on. There are not just medical costs, but therapy and educational interventions that I can't afford to provide for her. I'd appreciate any advice. > > Thank you, > > > Quote Link to comment Share on other sites More sharing options...
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