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Next Step in Treatment?

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Hi All,

My son's current neurologist has suggested that we take him to a

neurologist that specializes in neuromuscular diseases. The Doc he

referred us to cannot see our son until May and I'm still working on

getting him to another neuromuscular specialist sooner. I know we

need an orthopedic for his foot issues. Anyway, do I need to have him

see the neuromuscular Doc before he sees an orthopedic? I'm not sure

if I need to go through certain steps in regards to treatment.

Quick background info, my son 17, diagnosed with CMT last month, has a

new mutation in the MPZ gene and Athena cannot specify exactly which

type he has (don't know if it is necessary to know exact type for

treatment), has extremely high arch, walks on the outside of his foot,

has hammer toes, having more difficulty with hand strength, and

complaining more and more of back pain. (assuming from the foot issues)

Any advice or suggestions appreciated.

Thanks!

Carmella

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