Guest guest Posted December 20, 2006 Report Share Posted December 20, 2006 My name is . I don't have CMT, but my 14 year old son Austin is in the progress of diagnosis. He has just had a genetic profile done on him, including a lab CMT drawn. It started about a year ago with him constantly spraining his ankles, and we began to notice his feet were becoming deformed and his fingers are contracting. Our physician directed us to see a Podiatrist who right away speculated that our son has CMT. We are now working with a neurologist who also has a strong suspicion that Austin has CMT. My son is having mixed emotions, he feels like he is alone in the world right now, no matter how many times I tell him he's not. The profile's have been sent to the lab, and the wait continues. I am a registered nurse, and before this, I had never heard of CMT. It's a learner process, I would love any contact with anyone who could help us through this process. It's one thing to have someone to talk to but another when it's someone who really truly understands the road you are traveling on. Quote Link to comment Share on other sites More sharing options...
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