Re: Itchy, Twitchy, Creepy, Crawly Legs

[Guest guest]

Hey Tonya,

Try Neurontin that really helped me used to have them all the time and it is the

worst. Try a really hot shower that helps too.

Andy

[Guest guest]

Hi Tonya,

Are you taking any medication for the restless legs (R.L.S.)? I take

Requip and it really helps. Also there is another medication that

I've heard of CMTers taking for R.L.S. called Mirepex. Requip is

over $2 a pill. I checked with the partnership for prescription

assistance (the one Montel promotes) and I qualified for

assistance for the Requip. I'm in the process of getting the

paperwork completed for the drug company. I know how miserable you

must be, because I was having the same problems with my legs and

literally reached the point of exhaustion from not being able to

sleep. It is a terrible thing to deal with. I was having trouble in

the daytime also. Hopefully you can find something that will help.

Holly

[Guest guest]

Is there a real study going on somewhere about these crazy legs?

All I can find are people taking expensive medication for something that appears

to have just developed over the last few years. What was it called before

Restless Legs?

It makes me wonder what body deficiency is causing this. Vit. B maybe? Lack of

balanced diet? Too many Veggies?---Imbalance can create havoc.

My legs move a lot too....when the Dr. asked me , I told him I usually had a

tune in my head and was keeping time with it which is true. I also have enough

back pain that moving helps a lot to keep me from being miserable all the time.

I refused the medication.

When I get the crawly feeling legs, it is usually a broken vessel or something

that goes away. But I always look to make sure it is not a clot or something

that needs tending to. My twitchy comes from nerves that are fighting for

freedom from being pinched. Usually I can figure out and work to get that area

relaxed.

I am truly upset with the Dr.'s who are putting medication out right and left to

people that DON " T necessarily need it.

Yes, in this group I understand there is a need......I just needed to say that

there is a lot of abuse going on with this diagnosis.

Genieworks

[Guest guest]

Hi,

I'm not currently taking any medication for it and am hoping to find

some type of natural remedy.

I can remember my Dad really getting angry if we touched the

thermostat when we were kids. I vaguely remember him saying

something about it bothering his legs. The past couple of years, I

finally figured it out - my legs are a lot worse if the room temp is

above about 68 degrees. I'm having the same conversations with my

children that he had with us! (I've also thought about buying a lock box to go

over the thermostat)

I asked Dad - he said that his would usually only bother him if he

didn't do enough walking during the day. He hasn't had problems with the

twitchy legs more recently - except for right after he had back surgery. The

doctor prescribed quinine sulf. He said it worked really well.

Since Dad has CMT, I've assumed that the jumpy legs were part of the

CMT. After I posted my original question, I started wondering if

that was true or not.

Tonya