confused about progression

[Guest guest]

Hello All! Hope you had a great holiday!

OK...heres my question. I know that you cannot forsee progression

rate in CMT, but I was wondering if anyone could share there stories

with me to help me understand what may or may not happen to me. At

this point my legs are weak. Some days are terrible. I have 30% of

my motor skills left in them. I have the burning sensations, muscle

twitches (which can be maddening when your trying to sleep) at times

numbness in feet and hands. Sometimes I get the " stocking " feeling

in my lower legs too. Sometimes my right foot really hurts too. But

I did have the nerve biopsy in that ankle. Same ankle is tight when

I try to rotate it. I have had these symptoms for about two years.

OK, now I am getting to the question (finally). What could I expect

in the future? Don't worry about scaring me unnecessarily, I have

been through so much that nothing surprises me anymore.

OH, and FATIGUE, I hear that it doen't go with CMT, but heck, my body

is tired, tired, tired!!!!! And I get so mad at myself!!!

Sorry I was so long winded!!! Just need some insight!!

Thanks in advance to all that respond!!

Teri