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My name is , I am a 43 year old male living in Virginia Beach.

I have just been diagnosed with CMT resulting from a Charcot joint in my right

foot. The symptoms began to appear in September and it has taken quite a long

time to arrive at the correct diagnosis.

Looking back, the CMT diagnosis explains so much about different episodes and

symptoms I have experienced and have had discounted over the years. There is

some small comfort in finally being able to understand the underlying causes of

some things. I have to say that up to this point the impacts from CMT in my

life have

been minor.

I have two concerns right now. First, I have three children ranging in

ages from 8 to 17. None seem to have any issues, but time and testing will

tell.

Second, I don't know what is next and because the disease progression is so

different for different people I guess I will have to learn to live with that.

I have read back into December on the board and appreciate the potential sharing

of resources and look forward to continued participation. Thank you.

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