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Posted

I understand people with CMT have/get motion sickness more frequently

than others because our equlibrium is out due to CMT. Is this true?

Have you found anything that works for motion sickness?

Posted

I have had this off and on since I was a baby. I have learned to

accept and manage it.

If I am riding in a car when someone else is driving, I sit in

front, and no matter how cold the outside air is, I keep the window

about 3 inches down, so I can have fresh air. (When I drive, no

matter what, my window is always down) Rest assured on curvy

mountain roads, I will be THE driver too!

For trains, planes, sailing, etc., I've tried everything. One of the

best OTC products I used was Marazine. (That was recommended by my

pharmacist - that's what he used)

http://www.medicinenet.com/meclizine_cyclizine-oral/article.htm

The Transderm Scop patch is the absolute best - no need to take

pills, the patch is small and round, and about two hours before a

flight, or sailing, I place it behind my ear. No one except me knows

it's there. And no motion sickness. This patch can be worn for 3

days in a row, then another applied if needed. Since I only

have 'potential motion sickness' I use the patch as a precautionary

tool. I also eat crystallized ginger too.

http://www.transdermscop.com/ When sailing, I do well, by focusing

on the horizon line.

Interesting too, apparently the patch can used to stop post

operative nausea too.

I never got sleepy with use of either product. However, they both

tend to make me thirstier than usual, so I always have extra water

with me.

Since my balance in general is alot better than it used to be, I

can't say if this is CMT related or not, but in my case, I have to

say it isn't. Seems that if it was, I'd be affected more with motion

sickness than I am. Or maybe my aqua-balance exercises are really

helping. Astronauts can get motion sickness, so I really don't

believe this is due to our CMT. For more information see this

http://en.wikipedia.org/wiki/Motion_sickness

~ Gretchen

Posted

I buy generic meclizine instead of marezine or bonine. I get 1/2 size 12.5

mg because sometimes that is enough. You can get your pharmacist to order

100 of them for under $10, so they are a lot cheaper. I have needed these ever

since an inner ear infection many years ago. They seem to keep for a long

time.

Elinor

Posted

I have this problem too...dont know if it's CMT related...I ride up front and

make sure I have cool air blowing on me...also if I fly I take dramamine...does

the trick for me

Jimmy

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