Re: symptom onset and advice

[Guest guest]

Welcome. I don't have CMT but my husband does. He first noticed symptoms at

about age 62. He had the high arches and hammertoes long before the first

symptoms; he can't remember when he go them. He is now 77, has braces, and

uses a scooter for long distances like an airport. His first complete CMT gene

test with Athena was inconclusive; the repeat was negative. CMT comes in many

different forms with many different onset ages. Before you get yourself

a diagnosis [and the chances are probably 50-50], you need to be settled into

good, noncancelable health insurance including long-term health care and

disability if that's going to be what you want because if you get a diagnosis,

you won't be able to get the insurances.

Elinor