Educated my docs and still doing so

[Guest guest]

Geri,

I have educated my own docs and still do so. The docs now seem

more " agreeable " to receive information I give them and listen to what

I say. I think last week I related my story of my family friend

neurosurgeon and what he told me when I was a teen: that I am writing

my own unique medical history... " So, since I'm very much alive and

kicking, when something comes along about CMT that's new, I make sure

my doctor gets a copy for my File and the next appointment he usually

has a few questions or comments.

I have at times contacted 2 CMT doctors I know to ask a question that

I do not know - but this is mainly for purposes of the group and

not my own self.

The doc who did my tendon surgery was an ordinary orthopedist specializing in

feet - he was also the one to diagnose me. And that was about 1962 or so. He is

deceased now. All the neurologists I saw after that seemed clueless, although

the one who suggested Potassium supplements to me was on to something, but he

retired. Early Internists in my life suggested B12 injections. My Internist in

LA suggested Vitamin E, and my Internist here suggested Blackstrap Iron and my

new Vitamin B + C supplements. My orthopedic surgeon for my back suggested

Aquatics, and he is my favorite of all. Open, honest, willing, a good listener,

communicative, thorough, conservative in his treatment approaches, fun to be his

patient - although I haven't had to see him since 2003.

~ Gretchen