Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 I am grateful for Gretchen and all that she does for us. I don't know about you guys, but Gretchen always makes me feel like I CAN do it, even when I'm frustrated and want to give up hope. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 I agree...thanks Gretchen for going the extra mile ! Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 , Good luck to you and yor son. He is lucky to have a mom like you willing to advocate for him. The school will almost always put 30 minutes per week on his IEP b/c it is the minimum service needed to be provided (actually think 20 min is), but anyway, they will always put the minimum, but can always provide more. Does he get outside speech? Do you practice at home? Is he around good speech models in school/at home? I tried the fish oils w/ my son, didn't see any difference, but I know many people have. I have not tried NV, don't think I will, but we'll see. I look at my son now and see how far he's come since he was first dx (right before age 2). His vocab is huge, still struggles getting those sounds/words out at times, but for the most part I can understand him. I watch how he really has to work on getting his tongue to go in the right position, he will try multiple times to get the right sound. The other day in the car, he was asking me how to spell words, so we were sounding them out & he was spelling! He will be starting kdg in the fall! Bonnie > > I'm also just new and during the past 2 weeks since I have discovered this group, my knowledge of Apraxia has grown leaps and bounds. My son, , recently turned 4 and was just diagnosed with verbal apraxia about 6 months ago. I know there are many children worse off than my Josh, he talks very little -- he probably has a vocabulary of 15 words. He can't even say his own name. Fortunately, he has a very easy-going personality and is patient with all of us when he tries to communicate his needs. He did early intervention at 2 years old and had his speech therapist, who was visiting our home weekly, very perplexed - she wasn't sure what to diagnose him with since according to her, didn't show all oblivious signs of apraxia. I hate to say this, but with 5 children, I completely gave my trust to the school system and what they told me he needed (which clearly isn't enough). It wasn't until I read THE LATE TALKER (and might I add, I cried through most of it) that I realized I'm not doing near enough for him. That book is a life saver and I'm so grateful for a plan now thanks to this group and that book. Sometimes I feel completely alone in this battle -- my husband, as great as he is, totally downplays it. We lost a child 12 years ago to cancer so I think he just figures that since this isn't life threatening, everything will work out fine on it's own. I, on the other hand, grew up with my youngest brother having a severe speech problem and saw personally how cruel other children can be -- he had few friends growing up and his self esteem was zero. Just last week I started the fish oils and just received my NV 2 days ago. I'll be meeting with his pediatrician soon so he can back me up when I go to his preschool class and request more than the ONCE a week - 30 min. speech therapy he's currently receiving. I still need to check with our private insurance to see if they cover more therapy. I can't wait to see some progress....I hope it's soon. So thank you .....and everyone else. > > > Mesa, Arizona > > > Quote Link to comment Share on other sites More sharing options...
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