Hopleess Doctors

[Guest guest]

Well I went to a CMT Doctor after 15 years just to see if their were any medical

advances since then. I was not going in overly positive which was good because

nothing has changed. I go through a whole hour and a half of physical testing

no different then what I went

through 20 years ago. In the end nothing was offered.

Surgery was discouraged and physical therapy would make it worse according to

him. Medication for pain is all that can be done to ease the pain which I

already take and was hoping to not have too. I was told get used to using

adaptive devices like a cane

walker or wheelchair because that was my fate.

It seems all that has advanced was gentic testing and even that is all out of

pocket. I was told they had to come to my house and spend $5,000 out of pocket

to tell me what I already know. Why was this encouraged because of research and

research only. I would rather donate the money to a cause rather then be a lab

rat,

that is if I had the money.

Basically I am to fend to myself and figure something out. I found things not

only have not changed but have gotten worse.

I am done with all the CMT specialist, doctors, etc. I will learn to live with

this terrible disease and just hope that my daughter has a better outcome then

me. I made my decision for certain that she will not get tested unless when she

is older she decides too.

There is no reason I can see to have it.

I know people use natural or holistic ways of treating the disease but I think

this fight for me is over. Sorry to be the negative one, this is a positive

group and a very good group.

Andy