Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 Dear Sandy, I can imagine how you felt for 4 hours of not knowing where was! Bob and I had the experience of losing our son at a zoo for just about 10 minutes when he was very small ( our son without MDS) I thought I lost a few years off my life. I am thankful that you had a very happy ending. It is scary for any parent to think of their child lost! I am sure you are extra thankful for him to be safe when you found him near water. Oh my! I do not have any great sage advice for you. I just think of the freedoms that our parents were able to give us as children that we do not dare give our children today. I seem to recall being one of 5 children in a station wagon in the late 60's and Mom leaving us in the car while she ran into a store for a few things. My Mom would always tell us we were not to get out of the car and then one of my older brothers would be so kind as to roll down the window and throw my shoe out or something so I would go after it and then they would lock me out of the car. That would probably be front page news today! I just wanted to say that I am so happy that is fine, and that you are too! I hope the rest of your summer gets better and better. Love to . Sincerely, Barbara Martz Mom to Jonas 8 1/2 months (MDS) & 6y.o.Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 Sandy, I know how scared you must have been! When Tim was 3 he snuck out of the house while I was asleep. It was 6 in the morning. I got woken up by someone beating on my door! They said he was riding his little battery operated car down the highway! They almost ran over him! He snuck out several more times after that. And, as he grew up, he would tend to wander off. I just would have to stay outside with him when he wanted to play. I know that they all need independance. I have trouble letting Tim go off on his own still. If you feel in your heart that you should be watching him play, then stay by him. Also, perhaps you could get him a watch with an alarm,(this has worked for me). Set the alarm for every 15 or 20 minutes. Tell him exactly where he can go and where he can not go, be very specific and have him repeat what you say. You may have to do this each time he goes out. Then tell him when his alarm goes off that he has to come home and check in with you. Then set the alarm again and send him on his way. I remember seeing those alarms that you can attach to your child and they go off if the child gets too far. I remember wanting one of those desperately. The only problem with those is I think they only go about 100 yards. That is not real far to ride your bike! But, I am not sure about the distance. I hope some of this helps! Kristy --- hwrd842001@... wrote: > Hi everybody-- > I was wondering if anybody has used any wonder > guards or anything > like that for their child. The reason that I was > wondering was that > last week (Fri the 13th) my son who is 8 and has mds > decided just to > take off on his bike by himself--and preceded to get > lost for 4 > hours.We found him down by the river. He had never > wondered off that > far or for that long by himself. Has this happened > to anybody else > and if so what precautions did you have to take > after? This has also > had some long term effects on --acting out a > little more--I hope > that is just normal and will go away after he feels > more secure > again.He hasn't even asked for his bike and for him > that is alot > since he loves to ride. He still has training wheels > on and thats > more for us to catch up w/him then him actually > needing them.I also > need some suggestions on how to give him a little > more freedom w/o > " standing over him " .He gets tired of Mom being there > every time he > turns around yet I don't want to go out looking for > him again...Any > way any suggestions would much very much > appreciated. > Thanks > Sandy mom to 8 mds Lucus 10 and 5 > > > Won't you please consider adding your personal story > on the MDS website today? > http://www.mosaicdownsyndrome.com > ************************************************* > NEW MDS MESSAGE BOARD - > http://www.mosaicdownsyndrome.com/discus > ************************************************* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2001 Report Share Posted July 23, 2001 I really don't have any great advice for you, just want to share some stories! When he was young he thought it 'funny' to scare us. In a huge department store one day he hid in the circle of a rack of clothes while I had security block off exits,etc. Or when we went to events such as Air Shows or anywhere where there were crowds, he'd walk beside a couple in perfect alignment so we couldn't see him. He was forever thinking up new ways of driving me nuts. When was 18, I worked nights. He told the babysitter his bus was there for school and took off walking! I learned later that day that he stopped along the way asking for directions until he made it to school! He has always been determined to be independent. I raised all 4 of my kids alone so I've been rather over protective. has really been a challenge in that area!! myrna and jeremy (21 mds) Digest Number 484 > Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com > ************************************************* > NEW MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus > ************************************************* > Quote Link to comment Share on other sites More sharing options...
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